Tag: CES

Father’s Day 2020

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Father’s day 2020

I had a good father’s day despite being in pain. My sister made yummy shrimp scampi and my other sister made dessert. I haven’t had it yet. I probably will later when it comes upstairs. I don’t feel like going downstairs again. My back is bothering me big time and is spasming. I wanted to empty my recycles today but never got around to do it. I guess there is always tomorrow for this job. I also need to throw out my trash.

I need to change my sheets this week. It is overdue for changing. I just have been lazy trying to clear off my bed so I can change them. I have a clean set so soon as I strip the bed, I can get them on again. I just haven’t decided if I am going to use the same bedding or change it to different blankets. I usually do. I think I will. So now it is just a matter of clearing off the bed and then stripping it. I just hope I can do it on my own without help.

I weighed myself today and much to my surprise, I lost five pounds. Only twenty-five more to go. I wish I knew how I did it so I can do it again. I think eating cereal is one way of keeping the pounds off. I haven’t lost my appetite so this was just a matter of how many calories I ate during the day. I have been having at least two meals a day and no snacking in between.

It is still hot as fuck out. I don’t know when this heat wave is going to stop. I wish it would already. I was able to shower ok and even though I felt tired afterwards, I didn’t go to sleep. I am really tired now but I just took my night meds so hopefully I will sleep soon. I want to make sure I am up before 11 tomorrow so I can make coffee before therapy. I am going to ask my therapist a serious question and hope she doesn’t laugh at me. I am always afraid of her laughing at me because I feel stupid with my questions. I just hope she answers my question without asking another question with it. I rather her answer then ask a question rather than question then answer it. Reading Linehan’s memoir has helped solidify my resolve to ask this question even though I know it is stupid.

I am so tired. I am going to try and go to bed around 2100. I think I will cath myself then and then go to bed. If I am not really sleepy or too anxious to sleep, I will write in my journal or read the memoir book for a bit. I just hope I don’t get the overtireds because that will not be good and I won’t be able to sleep right away once I am at that point. I will take a melatonin and see if that helps. I had to take some Benadryl tonight because my sister made some food with ginger and I had some. She tells me this after I eat it. I swear sometimes I think she is trying to kill me. I am highly allergic to ginger.

appt with neurosurgeon

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Appointment with neurosurgeon

I took a shower today because I wanted to get the loose hairs from my haircut out of my head. I also didn’t want to stink. It was hard because I was exhausted and the whole process of showering made me more tired. I couldn’t nap though so I just rested in bed before I had to leave for my appointment.

I was thrilled my surgeon said I didn’t have to have another surgery for the fluid. He is going to keep an eye on me and my white count. I was to have bloods done today but the lab was closed so I will have to go tomorrow or Friday. Depends on what my energy levels are tomorrow. I am still exhausted so I hope that I can sleep well tonight. I am to contact him should something else arises. I am cleared for PT so I will be making my Ride appointment tomorrow for the appointments that I have. I am so glad I can start PT again. I am so deconditioned and even he said that I would be as I haven’t done much since surgery. This complication has wrecked my recovery.

Right now I am really tired and want to go to sleep but it is too early. I go to bed now I will wake up around midnight and then be up for a few hours, totally throwing off my sleep more than it already is. I will wait till my meds kick in some and I am totally brain dead. I also got to keep an eye on my bladder as it hasn’t been functioning the way I would like it lately. I am back to voiding on my own but I don’t know how long that will last. I haven’t felt like I have an empty bladder when I do void so I probably will need to cath before going to bed. Back is killing me so when I am finished blogging I am going to lay down and just read for a bit. I haven’t read since Friday. I wanted to finished the Linehan book this weekend but my brain had other plans (do nothing apparently!) I want to start the Dante Club by Matthew Pearl. It seems like a good book to read. I have read his other books and like his style of writing.

I goofed on my Powerade order. I accidently ordered the “zero” kind of white cherry. It has sucralose in it which I do not like. It is drinkable but I rather have sugar in my drinks rather than the fake kind. I have to be careful when I order more next time. I had dinner and it was a good piece of steak that I ate. Why am I still hungry?? I might make a burger.

All day my left leg has been hurting me. The only time it didn’t hurt was when I was meeting with the surgeon. Damn thing. I don’t know why it is angry today. But my back is killing me as well. I hate that I am in so much pain. Hope that my night meds help ease some of the discomfort. Surprisingly, my CRPS ankle/foot has been behaving. That is the weirdest thing that has been going on the past few weeks. I don’t know if it is because something else is going on with me or what but I will take the pain free days. Just hope I haven’t spoken too soon. That will suck.

listening to Taylor Swift

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Listening to Taylor Swift

I decided to listen to Taylor because it has been a while since I listened to her music. I really love listening to her. I am listening to all her music that does not include her recent album. Her lover album is so different from her earlier music that I couldn’t put it in the playlist. It is not an album I like.

I spent most of the day sleeping. I again had an early morning awakening and couldn’t go back to sleep. I was tired most of the day. I went to the pharmacy to pick up my meds. Seems I am there every other day for one prescription or another. I hate that I am on so many meds. My antidepressant med I take two pills to give me a dose that helps me. I am surprised that it hasn’t made me nauseous yet. Usually they make me sick after a few months. But I haven’t had too much stomach problems yet. I am glad because being sick all the time is no way to be.

I have decided that I am not going to text my therapist about anything anymore. She is just not receptive to it and can careless about how my particular day is going. She doesn’t want me to become dependent on her yet she wants me to be open with her but only when we meet. It is still difficult to talk via the computer and I blank out. I try to say something, anything and nothing happens. It is like the thoughts are just sucked out of my brain. I hate that I am not talkative. We have been having a later time in the day and it has helped with me being awake during sessions. My brain still hasn’t woken up though enough to talk for 45 mins. I am sure we will work it out but I am so tired of having silences during our time.

I need to shave with my razor as my electric razor doesn’t seem to get that close as I would like. I also need to trim my sideburns. I completely messed up my mustache when I was trying to trim it so I had to shave it off. I hated to do it but the damn trimmer kind of did it for me. I think I need to try with a razor next time. I want to get it in a thin line but I am not sure I can do it. I will have to play with it. I want to get it like my uncle’s mustache was. His was always neatly trimmed. I really miss him. He probably would not accept me as a guy but I know he would still love me. He was a good man.

I am going to try and shower today. I don’t know if I will be successful as I am really tired and have no energy. I know the shower will suck whatever energy I have. I hate that it takes so much effort to wash up. I miss the days when a shower was refreshing and not a hassle. I envy my sister and nephew who can take a shower without a problem. I have sort of decided that I would take a selfie if I showered to show off my shower head hair. It is usually all messy and stuff and looks kind of cool. I don’t remember the last time I took a shower so it has been a while. If I shower today it will be the last time I will have long hair on top. I made an appointment with my barber for next week to have my haircut. I want the top short again. I can’t stand it being long anymore.

I am fricken exhausted

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

I am fricken exhausted. I only went to the pharmacy to get my meds and came right home. I feel so lifeless it isn’t funny. this so sucks having no stamina/endurance/energy to do anything. Pain is part of it too. it is just exhausting. After I went to the pharmacy I went to my sister’s apartment to relax a bit before going up the stairs. We talked a bit and I made the decision to call my PT to set up an appointment with her. The first available wasn’t ok in my schedule so it will be in two weeks. Now I got to call the Ride and schedule transportation to and from the place. I will do that tomorrow. I need to write down the appointments as I just took whatever might work for me.

I am so tired. I think I might go to bed early and hope I don’t wake up at 2 like I did last night. I had a hard time getting to sleep last night. I emptied my bladder and that helped a little but I still could not fall asleep and stay asleep. I had to get my meds and leave the house for a bit because I was getting cooped up again. I am hoping tomorrow I will get some energy to go to the butcher shop in the Square and get some burgers and steak. I want to make my chili cornbread casserole but it all depends on how my back feels in walking. It flared up big time by the time I came home so I just been laying low. I got the AC on because it is warm in my room. I can’t tolerate the heat at all.

Baseball draft is tonight. I don’t understand how it goes so I won’t be watching it. I will pay attention if the Sox sign someone. That will be the only interesting thing to hear. I remember last year we got a high school kid that was so excited. I forget his name. Hope we get some good pitchers this year. We really need them.