Tag Archives: chronic illness

Least Make it Feel Like Night

Least Make it Feel Like Night

My Pats lost. I am in agony both sports wise and in pain. I never had my margarita. The whole game was back and forth. It was a tough game to watch. I missed most of the third quarter. Then watched parts of the fourth. I couldn’t handle it. There should have been at least one unsportsmanlike conduct when the Broncos sacked Brady and then the guy was pulling at his crotch. That was uncalled for.

Now I don’t know what I am going to do. After my Pats play, I hit a depression until March when spring training begins. Catchers and pitchers report to Fort Meyers in a couple of weeks. I’ll get to see the idiotic face of Dave Price now more than I ever wanted to. I hate this guy so much. He is such a player with no meaning, and I don’t mean as in a baseball player. The guy just makes me sick. And we have him for the next 3-7 years. This weekend they had a Sox fan weekend in I think Foxwoods, which is in Connecticut. Mr. Price couldn’t make it because of the snow in Nashville. But Ramirez was there and we had to hear how confident he is at 1B by several people, including the GM. I really think he is going to suck at that position like he sucked in LF. Just wait until Pedroia throws him a pitch that should be caught and he drops it thus missing for a double play. He is not my favorite player. Actually there are three people I don’t like that are playing for the sox: Sandoval (aka Panda), Price, and Ramirez. Going to be an interesting season. I will be boycotting the game on NESN and just be listening via radio or Twitter.

I forgot to refill one of my important pills so I can’t take it tonight because I don’t have it. So tonight is hodgepodge night. I will just take what I feel like taking. I thought it was later than 1900 but it’s 1845. I took one of my meds really early. I am tired anyways so I’ll just take my pain meds and call it a night. I might wake up around midnight/0100. If I do, I will probably write another blog.

I feel like such a jerk because I didn’t refill my meds. This is the second time that I forgot. I think it’s because I threw away the pack before I refilled it that I forgot, but then I had a LOT going on last week and the pain didn’t help any. I got to get my haircut in the morning when that barber shop opens. I will be so disappointed if they are closed. I got to remember to bring my Times article with me. I told them I would bring it in the next time I got my haircut.

I’m going to have to start writing things down on the calendar so I don’t forget refills for my pills. I have to keep track because it’s not a 30 day schedule they have me on and I forget. I am trying to be better at refilling my meds before they run out instead of when they run out. Like one of my blood pressure pills. I always wait until I am down to my last week before refilling it. I feel like such a loser but this medication I get a special deal at Stop and Shop where I only pay $10/90 day supply for the script whereas if I went through my regular pharmacy, I would pay twice that amount and only get a 30 day supply. It saves to shop around for medication.

Energized and then caput!

Energized and then caput!

I woke up around 0700 after waking up at 0500. I was going to go back to sleep but wanted coffee badly and something to eat. I don’t know if I am hypomanic or not but I feel really good and energetic. That was until I hurt my foot and had to take pain meds. I was feeling goofy and ecstatic, which I rarely feel. I still feel good and in good spirits but I kind of lost my energy after eating lunch. I was going to go out today but I was so fearful of a flare up that I decided to stay home and watch movies. I have seen one movie today, The American President. It is my favorite movie. My next movie is going to be Bull Durham, but I am not sure when I am going to watch it.

I went down the stairs like a normal person today and paid the price. Just stepping in a downward motion caused severe pain. I usually go down the stairs step one step because of this but because I was feeling “high”, I decided to go down step after step. Wrong move. I couldn’t believe it. It kind of brought my “high” down a few notches. I limped to the kitchen to get whatever it is that I needed to get. I am just so feeling mixed feelings. I think I am in a mixed state more so than hypomanic. My moods have been shifting. I also want to do many things but I can’t because of bloody pain. Right now, my ankle/foot is throbbing up a storm. I am sure I will become depressed again once the pain meds kick in. They usually make me drowsy anyways. I only took one pill so hopefully it won’t make me too drowsy like two pills will. I don’t want to sleep like I did all day yesterday. It is so hard to put the brakes on my high energy levels when I am in pain. I almost never have energy and I want to use it up. But I don’t have the capacity to read. I think if I did, I probably dissociate. I just feel really weird. It’s not like me to have energy and feeling good. I don’t know what to do with myself. I probably would tackle the corner of my room that is aggravating me.

Because I am still waiting the decision on my SSD, I wanted to pay double for my cell phone and cable bill. I checked to see what my cable bill was and it went up six fricken dollars. I am like WTF. I checked my previous bill and it explained that the broadcast and sports fees went up. I don’t watch TV so I went to my mother to find out what channels she watches and to see if I could get a downgrade for my bill. I did. I am saving a whopping $17. It’s not much but it will be better in the long run. I hated paying over a hundred dollars for TV and I hardly watch it. I only watch it when my games are on. I can’t watch my shows because I am usually too tired to watch them and I can’t record them anymore because I don’t have TiVo. Another reason I changed packages was because they took away my CMT channel. The whole reason I went to the preferred package was to get country music. Now that I no longer have this, screw the package I am on. I hope they take away the sports fee because I no longer get the MLB channel anymore. It was a hard decision to get rid of a sports channel I love but I hardly ever watch it because they mostly show games I don’t want to see. Only time they will show things I want to see are the no-hitters in progress or something. That is exciting to watch.

Starting tomorrow, we are supposed to get a huge snowstorm. I really don’t think it’s going to be anything more than a few inches but they keep changing their stories as to how much we will get. I know we are getting something because my pain is through the fucking roof. My spine is aching, my hip pain is killing me and don’t get me started on my ankle/foot. That has been bothering me all damn week.

It’s weird to be in a positive state of mind. I just don’t understand it. Yesterday I was in gloomville, today I am the opposite. I haven’t changed my meds or anything, though I did take my night meds really late last night. I had fallen asleep after dinner and didn’t wake up till 2200 or so. It’s so going to mess around with my hormone pill by taking it late. I usually take my meds around 2000. That is because I am usually wiped out. I don’t think I will be wiped out today. I am still in an energetic mood. I so want to do something but I am in too much pain to really stand on my feet or walk. I might use my grabber to clean that area of my room that I is aggravating me. Most of the stuff just needs to be picked up and thrown away. I have decided that if it has been sitting in a place for more than 6 months, I don’t need it so toss it. Shit on my desk needs to be gone but I can’t reach my desk because of the damn shit in front of it. Once I can clear a space, I can put my printer on my desk rather than have it on my desk chair.

I hope this feeling good lasts a little while but I have a feeling taking my pain meds is going to knock out the feelings. It happened when I was in the hospital after taking remeron. I got a little hypomanic and then was down after taking my meds. It sucked but they probably would have discharged me if I was hypo. The crash was horrible though. I think I felt more suicidal than I did when I first came into the hospital. It was bad. Then Robin Williams died and so did I. I had no reason for living. Things just sucked all around. But things got better with the antidepressant. I gained weight, which my PCP was thrilled about and I haven’t been able to lose it. Docs don’t understand that when you are immobile like I am that meds can cause weight gain and then it sucks trying to lose it. They give you the rap like it’s not good for this and that but do they offer ways to lose it, no. Like you are just supposed to wish it away or something magical to happen to make you down to their expected weight guidelines. Bastards. I am lucky I don’t get the shit from my psychiatrist. I would go off on her because my psych meds are the reason I gained so much meds. And the Neurontin doesn’t help. I have been eating since I have been up this morning because I took a dose of meds yesterday.

Afternoon Blog

Afternoon Blog

I’m having a rough day. I woke up early in the morning. Went back to sleep around 0600 and then woke up around 1000. Was able to make breakfast without too much difficulty and then made coffee. The coffee energized me so I decided to read the psychology book, “Explorations in Personality”. I had to stop reading it in the middle of a page last night because there were no breaks and I was too tired to read the 5-6 pages to get to one. I read it to my despair. I tried to understand the language they were using but this book is over my fricken head. So I am just going with the flow of it. When I did come to a break, I decided to get dressed and pick up my prescriptions. I was feeling okay. Until I walked half a block and then the pain started. I continued my walk but it was too much. By the time I reached Walgreens, I was in so much discomfort it wasn’t funny. And why do they have the pharmacy always in the back of the store?? The extra walking really tired me out.

I walked home with ease but I was still hurting. Despite it being cold out, I was a sweaty mess by the time I walked back into my room. I thought I was fine once things settled down and I was comfortably in my bed with my feet up. Now my toes are smarting really bad. It feels like I hammered them all day long and the bones, 3 metatarsals under my last 3 toes are killing me to no end. I must have pulled on the pereoneal tendon while walking home and didn’t realize it because that is where it smarts. I just took a pain pill to quiet things down. I went downstairs to watch the pathetic Caroline/Seattle game and eat some pizza. Wrong move. What was worse was going down to my sister’s apartment to talk to her about my disability and about my student loan paperwork. She said that I had nothing to worry about, that I am still seeing doctors and such that can prove that I am disabled. We were talking about my MRI and possible surgery. Well, that brought my anxiety through the roof, which activated the damn voices. They are once again calling me every name in the book as well as saying I am just a lazy ass and not disabled. And that I am a fake. Meanwhile my foot is flaring up to no end, which is causing my PTSD symptoms to flare. Yea, I am a faker alright. I texted my therapist saying that if I can’t get the voices under control by next week, I am going in the hospital. I am getting so damn exhausted struggling all the damn time with this. It’s gone on for too long. I know it’s my fault, I should have taken the PRNs to nip it in the bud when it first started. But I have a hard time knowing when I am in a psychotic break and when I am not. My first clue should have been when the voices weren’t my normal ones. You ever see the Charmed episode where Leo is haunted by the others (can’t think of their name right now). How they were just swirling around him as they were talking to him? That is what these voices are like, swirling around me so that even my normal voices can’t break through. But everything is in hindsight now. I don’t think my psychiatrist thinks I should be in the hospital but I am getting more and more terrified as these voices continue. I might just do what they want just to shut them up.

I did take a trilafon last night, too. But they only work for so long. It’s not a long acting form. I think they last 6 hours top, but I would have to look it up as it’s been so long since I have been on it. I just hope I don’t need more of the trilafon because my psychiatrist will flip out. I don’t think she has mastered how to do prescriptions with the new system. I have 7 pills left. I hope I don’t have to use many to get the voices under control.

I filled my pill box when I got home from the pharmacy. I figured why not as it needed to be done and with my psychosis semi-out of hand, I needed to be sure to take the abilify. It didn’t help a couple of weeks ago when I missed a few days. I probably wouldn’t be as psychotic if I took it continuously. I really messed up and can’t help blaming myself for my predicament. Getting the SSD paperwork really messed me up. But my sister said that it’s because of the false claims in New York where there were fraudulent cases that everyone is being reviewed. Didn’t help my stress levels to hear this. As much as she tried to reassure me that it were people who hasn’t seen a doctor since their disability was claimed, I am still nervous about being rejected. And the voices telling me I am going to be rejected is just screwing with me. It did help that my psychiatrist said that I have a good case because I had CES twice. But what bothers me is that my psychiatrist nor my therapist have received paperwork from SSD to support my claim. They will gladly sign off on it, but they need the paperwork to do so. Maybe when they get the general release from my hospital the paperwork from my psychiatrist is in there. I don’t know. Both my PCP and psychiatrist are in the same facility, though obviously in different departments/locations. I will just feel better once I get an answer.

hygiene and other things

I feel like I should get a medal. I showered and brushed my teeth, with pain and discomfort between my back and my damn foot. While I was drying off, my foot started cramping. It always does this and I don’t know why. It takes me at least 10 mins to recover to continue drying off. It fucking sucks.

It just started snowing so I won’t be going out. I wasn’t planning on it but sometimes I think a Starbucks reward for showering is in order. I’ll just make my Hawaiian coffee. Did I tell you about this nectar of the gods? My therapist gave me it for my birthday, not really as she bought it when she went to Hawaii in July. But when I saw her on my birthday, she finally was able to give it to me. I had it last week and it was very good coffee. I never had Kona before and I could tell the bag was just enough for a regular pot of coffee. I make coffee by the cup so I just used what I needed and it came out awesome. It has a very distinctive taste. Too bad it was just a small coffee bag. But I think I will be able to get at least three cups out of it. I only use 4 tablespoons.

I started reading “The Brothers Karamazov”. It is very interesting and very boring. No action occurs. Just writing, writing, and more writing. Sometimes he stays on point. Other times he varies off. But that is the Dostoevsky way. I just finished the first book and am working on the second. There are I believe five books in this novel. It’s going to take a long time to read this book.

I woke up early, around 0600 and I couldn’t not get back to sleep so I decided to get up and make some hot cocoa. I had a cereal bar and that has been it. I am planning on making an egg burrito for my lunch and breakfast. I might make some tater tots as well. It all depends on if my pain levels settle down. Taking a shower just takes so much out of me that it takes some time to recover. That is why it happens when I can’t stand myself anymore. I have tried to take it every other day or every three days but that hasn’t been working out for me.

I feel so sleepy. I really want to nap but the football game is going to start in a couple of hours and I don’t want to miss it. I want to make coffee but it’s really cold in the kitchen. The heat there sucks almost as bad as my room as there is no insulation in the walls and the radiator decides to work only when it wants to. My feet are cold and I know that if I go in the kitchen, even with my slippers, they are going to turn to ice. I don’t know why the house is so cold. It’s in the mid thirties so the heat should be cooking, unless my mother turned it down. It was really warm in my room earlier. I just put on thermal socks on my feet and a sweatshirt. I hope I start to feel warm before the game starts.

Still not good

Still Not Good

I quickly took a PRN without the voices knowing about it and took an extra of the abilify that I take. Other than that, I don’t know what else to do. A couple of friends have suggested listening to music but the voices started their death chant with the beats of the music. I can’t stand loud music so I just turned it off. Sometimes listening to silence helps. My mother has gone to bed so I don’t have to hear the blare of the TV. I am glad she went to bed early. My shows are starting their new mid-season premieres and I am not recording them because I have nothing to record them on. I don’t have the heart to throw away the TiVo. I am still hoping for life one of these days with it. I will have to talk tech with the new TiVo guys because I have an old television set without an HDMI so if I need that it’s not going to be worth spending the money on the set.

My therapist never called me. My therapist is looking for a way for us to talk tomorrow. That will be good. I am just so stressed out but a little calmer than I was. I haven’t had many meltdowns but today was just the pits. My psychiatrist just got back to me. Wants to know when I do when I get report of my back. Nothing else was in the email. Guess she isn’t concerned about the damn voices or anything. I knew I should have paged her. But I always think of these things after hours. I wish she said something about the voices that would have comforted me somewhat. Sometimes I think she thinks I make them up or something.

I called my cousin who has bipolar to discuss the SSD stuff but he wasn’t interested. He never is. He just calls me when it’s convenient for him. Then has the nerve to say why don’t I call or where have I been like I have left the country without telling him or something. He is the lazy bastard that won’t take the groceries up the stairs when my mother goes shopping with him.

I hope I don’t have to see the SSD doctors. That will really stress me out. I know they won’t understand about CES or chronic pain. They may even not get PTSD and the like. They usually aren’t good doctors.

I just realized the PRNs I take for my psychosis are more than a year old. Crap. I still have like 15 pills. I don’t take them that often. Voices are worse at night, especially when I am tired and want to sleep. They want to have conversations with me. I woke up at a decent hour, after falling asleep at 0400. I had woken up at 0300. I hope that doesn’t happen again. I’d go to the ER tomorrow if I thought I could scrape by without a hospitalization. But they don’t like to hear when patients tell them the voices are telling you to do things, especially harmful things like take a bottle of pills and lots of them. They also don’t like it when you tell them you rather not wake up in the morning.

I never played the lottery so if my numbers come out, I only have myself to blame. But something is telling me that no one is going to win tonight. Jackpot will be 2 billion dollars and then someone will win.