Tag: complex regional pain syndrome

PT Pain and Torture

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

PT pain and torture

I went out in the snow to my PT appointment and I left with being in more pain than I was. But it was a different kind of pain. I am very sore and can barely move my arm but I got to keep moving it. I am putting heat on it right now to try and soothe it.

After PT, I went grocery shopping. I bought a lot of coffee and just a half gallon of half and half. I also bought some burgers that I will make tonight for dinner. I am supposed to wash clothes but I am hurting too much. I am very depressed and feel like crying. The floor guys didn’t come because the helper has Covid. They won’t be able to work on the areas in two weeks. My mother isn’t going to like this. She was looking forward to going back upstairs this weekend.

I had therapy yesterday and it went ok. We talked a lot about safety as my suicidal levels are high right now due to pain. She wanted me to write it down the things we talked about. I was reluctant at first because it is the same thing over and over again. I added to take medication and she was for it. She asked if I will do the things I wrote and I said I will try it. I probably am not going to call a hotline.

I had zoom with my cousins tonight. One of my older cousins still calls me my deadname and “lady”. I hate that at every meeting I need to remind her of my name and pronoun. I even have it in my zoom profile G (he/him) so I don’t know what the problem is. Fuck. I was telling my therapist yesterday that my mother still calls me daughter, especially for medical stuff. It is so hard to bring up. I feel like she is ashamed of me.

Last night I had a hard time sleeping. I kept on waking up every few hours in pain. Then I don’t know what happened but my right foot was under my left foot and it (right) jerked, causing my toenails to scratch me. It hurt pretty bad and there is a long scratch on my ankle. My niece put bandaids on it. It is still painful because I have no skin on the bone of my ankle. I don’t know how it happened. So weird. I hope I can sleep tonight.

Journal entry 15022021 1603

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Journal entry 15022021 1603

Having a rough day. Pain in shoulders and neck is making me suicidal. I want to text my therapist but I know she won’t respond. Fucking bugs me.

My left leg has been hurting me since last night. Hammy is killing me and I am having pain in my ankle. I’ve noticed I will get hamstring pain with this ankle pain. I’m so sick of being in pain every day I am in pain. Very depressing. I sent psychiatrist another message about increasing the citalopram. Hope he does. I should be at 60 mg right now but I am at half that dose. This doc doesn’t believe in celexa like I do. Really bothers me.

I half cleared off my bed. I just need to clear my “office” stuff. I should be done tomorrow. I will put the foam topper on in the AM before I leave for PT. That will give it a couple of hours to settle. Ideally, it needs twenty-four hours but I’, going to give it 12 or so.

Tomorrow is supposed to rain and be icy. I got to be careful while I’m out. I don’t want to slip and get another concussion. Taylor Swift is coming out with a new old album called Fearless (Taylor’s version). Not sure if she is going to do all of her albums. The new version is to have 26 songs, 10 not released before. I can’t wait.

I’m so depressed. SO sick of being in pain. Therapist is going to buy managing chronic pain so we can do the exercises together. I told her CRPS is a brain disorder as well as a neuro one so now she thinks it’s important to do the skills and shit. I am so tired. Pain kept me up again last night. Left shoulder kept hurting and then my right arm would fall asleep. I really couldn’t get comfy last night. I did take BT meds and Zanaflex. It’s all that I could do.

I really hope I can go to PT tomorrow. I really want some more of the dry needling so I hurt less. It all depends on how icy it is. I hope I don’t have to change it to a virtual appointment because that will suck. I really need a massage to feel better.

I am in the fence about taking a nap before going to bed. I am just so tired because I took some Zanaflex and it is making me drowsy. I am in a fuck it mood so just been taking whatever to try and ease this pain in my neck and leg. There is supposed to be a storm tonight/tomorrow so I know that is why I am hurting. I fucking hate storms. They always make my pain worse.

Saturday Blog 13022021

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Saturday Blog 13022021

I am so sore today. My back and shoulders hurt a lot. I was bringing home groceries that were heavy for me. By the time I got near my house the bags broke. A guy in a truck gave me a trash bag so that I could carry the stuff. My nephew came and took me home. I made my burger. It was so good. I plan on having another one today.

I talked with the PT who is really concerned about the tingling in my shoulder. She wants me to contact her today, which I did already. I told her I was sore from the groceries still. My back is really sore. I need to put heat on it. I also need to put heat on my shoulders. I am not to do repetitive motions, so no household chores or dish washing. I am going to have to wash out the pan today so oh well. I still have tingling but it is much less than it was yesterday. I am to put ice on it. I haven’t done that today because I woke up late and I have been moving slow due to soreness. My right arm is killing me because I slept on it and hyperextended the elbow.

I am so tired today. I slept pretty good but I just could not get up this morning when my med alarm went off. My sisters were making noise downstairs and I just laid there in bed, hoping for the noise to end so I could sleep. My back was so sore and it was so hard to move. I took some Tylenol when I got up. I really need a shower but I am hurting too much for that. I know I won’t be able to stand for more than a few minutes. My feet have been cramping today for some reason. I just took some Zanaflex for it and my neck. I know it is going to make me more tired taking this medication but I need relief.

Yesterday I bought cranberry honey mustard. It doesn’t go with burgers. It was too sweet. I liked it though. It would go good with a turkey sandwich. I am mad that my cheddar cheese that I bought got lost on the way home. $4 wasted. I have no idea where I lost it. Taught me a lesson though, always bring your own bags to the grocery store. I knew I should have done it but I didn’t think I was going to get that much stuff. I got impulsive when I saw the juice. I love juices. I should have just bought a 20 oz soda rather than a 2L. I know that for next time. I really wanted a cherry coke but bought Dr. Pepper instead.

I am feeling low again. I just want to crawl under a rock. I’ve been finding comfort in holding my new stuffed giraffe that I named Jim. He is so cute and soft. I also been sleeping with him. I just hug him for support. It has helped a great deal. I really love him. It was so kind of my friend to send him to me.

document 6

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Document 6

Lame title I know but I couldn’t come up with something else. I just had my coffee so feel energized to write. I had flashbacks last night and it was pretty terrifying. I tried reaching out to my therapist but she hasn’t responded. I don’t think she will. I hate when I am in a tough spot and she can’t respond to what I am saying. I feel so alone when she does this. But I understand that texting isn’t always the way to go in a crisis. A friend suggested a hotline but I didn’t have the patience to talk to someone about what I am going through. I wasn’t suicidal.

My neck and shoulders are stiff today. I am trying to keep them moving so they loosen up. I got the tingling sensation again in my shoulder where I was dry needled. It is really sore there to touch. I am going to put some ice and then heat on it after I blog.

I am worried about my mother. Her kidneys aren’t functioning like they should. She is 79 years old and has been an insulin user for more than 40 years. I just hope she doesn’t need dialysis eventually. That will be so hard. She recently has been having some trouble sleeping where she wakes up gasping for air. We think she has sleep apnea. She is still recovering from Covid. The disease really sucks as she can be ok for a day and the next be weak and lifeless. I really feel bad for her. I wish there was something more I could do than listen to her bitch about how sick she is, which she has every right to. She sometimes cries and it breaks my heart.

I need to shower today. I am going to try and clear off my bed too. I just need to get organized a little bit. I think taking a shower will wake me up enough to clear my bed. If I can do that, changing the sheets will be an easier task. I still need to go to the butcher’s shop for burgers. I just hope I still have the sandwich pickles that I love. Last time they didn’t have it so I had to get the chips.

My legs feel so sore and I don’t know why. I am having throbbing in my ankle which is my normal. I never have 100% pain relief despite being on pain meds. Most I will get is 80-95% relief from meds. Then I take the breakthrough meds to help get over the hump. Last night I took gaba because I was getting nerve pain in my ankle and foot. Being triggered last night didn’t help my pain one bit. I got really tense in my neck and that just worsened my neck pain. I just killed my shoulder by trying to message it with the palm massager thing I have. I am really hurting now. I just messaged the PT because I am still tingling and she said it would go away by today. I just want to make sure there is no nerve damage going on or something. I got to put heat on it. I am really hurting today with this. Just hope I can go out and do my shopping that I want to do.