Tag: disability

never ending. It just goes on and on

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders, suicide

Never ending. It just goes on and on

I’m trying to settle down for sleep but a new pain keeps popping up when I lie down, when I sit up, when I take my meds, when I move it, etc. It is fucking never ending. I am not doing a damn thing tomorrow, least that is the plan for now.

I sent an email to my psychiatrist asking her if I was a difficult patient. I briefly discussed my therapy session with my therapist and that the therapy group down the hall from him contacted me. Unfortunately, it got filtered to my junk mail so I didn’t get it until I got home. My phone doesn’t get junk mail for they could be viruses embedded in what they send. Last thing I need is a virus on my phone.

I just sent an email to my neurologist asking her if she could help me out by confirming that I do indeed have CRPS as my PCP just wants to pass me off to another doctor. I am tired of seeing new doctors who aren’t helpful and then just want to pass me off or not treat/see me anymore. I see my neuro in two weeks. It was kind of a long email but I don’t care. My stupid phone kept on inserting different words as I typed, which annoyed the crap out of me. I should have just typed it on my laptop so I wouldn’t get aggravated. Lesson learned.

My foot feels like it is being strangled. There is such a pressure on it like it’s going to burst. I am so tired that I am reaching the over tired stage, which is dangerous because I could catch my second wind and then be up all night. I took an Ativan because along with the strangulation, my ankle is pulsating. The little muscles are twitching. This condition is so frustrating because there is never ending different kinds of pain. I wish I could see a doctor at this hour so they can see or I can try to explain to them what living with this condition is like. All I can do is send them an email and then not get a response. But at least by writing it out, it helps me because at least I have documentation that I wrote this to a doctor.

I still am shocked that in the great medical hub of Boston, I have not found a doctor that is willing to help me. Sure, my PCP gives me pain meds to alleviate my pain. I appreciate that. But he doesn’t want to stop there. Right now my diagnosis is in the air and it is making everything seem like we haven’t tried enough. I am tired of this merry go round. I want off. I asked my neuro if she could possible give me a concrete diagnosis and staple it on my PCP’s head. Well, I didn’t say that. But if she could send a note to him saying I have this dreaded condition, then maybe I don’t have to see yet another new doc. There is no treatment for this condition. I know this. My PCP knows this, my neuro knows this. But opioids help me and if I don’t have them, I am good as dead. I have exhausted physical therapy. I have tried injections. I have tried rest. This is no longer a case of tendonitis. It is deeper than that.

The pain is changing all the fucking time, all over my ankle, foot, toes, bones. It hurts every where. Normally, at this hour, I would be writing a morbid story about ending my life. That is what this blog was about. My suicidal thoughts in the cybersphere. But then one day someone took it too far and called the cops on me so I no longer talk about those things, even though it relieves the tendencies to act. Thoughts are NOT the same as feelings. And feelings does not mean act upon them. It is okay to feel. It is ok to think. Here is a quote from the father of suicidology, Edwin Shneidman that I had the pleasure of talking to him before he died.

“Never kill yourself while you are suicidal. You can, if you must, think about suicide as much as your wishes and let the thoughts of suicide –the possibility that you could do it- carry you through the dark night. Night after night. Day after day, until the thoughts of self-destruction runs its course and a fresh view of your own frustrated needs comes into clearer form in your mind and you can, at last, pursue the realistic aspects, however dire, of your natural life”. –Edwin Shneidman, Suicidal Mind, p166

I write these blogs because I still am struggling night after night, day after day. Pain increases my vulnerability to think of self-destruction. I have the means though no one talks about restricting them. I told my psychiatrist I have something that will end my life but still, she doesn’t ask about it when I see her. She never does. Poor assessment of risks. So does my therapist who knows damn well that I have chronic suicidal thoughts. It makes me angry that I am not treated the way I was with my former therapist, Bozo. She was annoying, I will give her that, but she fucking cared and if I had a method she damn well tried to take it away from me the best she could. I really miss her. Yesterday was her birthday. I wonder if I will be alive to see mine. I really am surprised that you CAN get anything off of Amazon. While I was searching for my method, they had machetes. Machetes!! I don’t think I would have the will power to use it to chop my ankle off but I know a chainsaw would do the job. I refuse to search for it because I know in my darkest of moments, I may just buy it. I’ll go all Scarface on my ankle and groin to sever my artery.

I am once again plagued by dark thoughts. All because I can’t sleep and I am in pain that is never ending. It just goes on and on.

Sunday Blog 6 August 2017

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

Sunday Blog 6 August 2017

I thought I would wake up early as my med alarm was to go off around 7. I don’t remember shutting the alarm off or taking my meds so I must have been really in a deep sleep. I checked my spreadsheet to see if I did log in my pain meds and there wasn’t an entry for today. I went almost all day without pain meds. I wasn’t in pain so I guess that was good.

I woke up around 1330 and had breakfast. I brushed my teeth before hand and then ate. My gums are still sore from the dental work. I made coffee but by the time it was done, I was getting sleepy again. I must have had a few sips, went to my room, had a few more sips and then took a nap. It was Pike not my expensive coffee so I didn’t care that it got wasted. My mother called me to make sure I would be making supper. I woke up a few hours later due to my bladder. It was 1600 and I wasn’t in pain so I just made supper.

I made ribs and they were good. Unfortunately, one tried to escape and got on my shirt as I saved it. So after supper, I took a shower. I needed one anyways as the last time I took one was Wednesday. After the shower I filled my med box for the week. I hope my doc calls in my hormone pills because I just used the last week. I’ll have to keep an eye on it because I don’t want to miss a dose next week. My ankle started to hurt when I was done so I took some pain meds.

I missed the ball game, though they won. That makes it 6 in a row. I am so happy for my guys. We are still narrowly in first with the Skankees in 2nd place. We play the Evil Empire the end of the week. Those games will really count toward the standings as we are so close.

I got to call the dentist tomorrow because my gum line is still so sore whenever I eat anything. I have been taking ibuprofen, which as helped but the soreness is still there. I just don’t want it to become infected or anything. That would suck really bad.

I got a comment on one of my popular blogs, Knackered, today. The woman has a daughter with Cauda Equina Syndrome. I then checked my stats and there are 23 views from that blog alone for today. The UK is really reading my blogs with 21 views, so far. I am a stats geek, though I do not like the new format of WordPress Stats. But, can’t do anything about it. As long as I can get my daily tally, I am good. I just miss being about to click on a blog and see the total stats for it. I haven’t quite figured it out with the new format. I also miss seeing my total views. I need to change screens and it’s a pain. I used to take screen shots of it and post it on FB but it’s hard to do now. But now that I can screen shot on my phone, I think I can post it.

I’m getting really excited because this coming Saturday I will be going on a booze cruise around Boston Harbor to benefit Autism. I will be going with my youngest sister, who is also a mutual friend of the person running the cruise. It should be fun. I haven’t been around Boston Harbor in years so I am really looking forward to it. I love my city! I really can’t imagine living anywhere else, least not permanently. I have always wanted to go away to grad school somewhere because the tuition is cheaper. Now it doesn’t look like it will happen because I can’t afford to finish my bachelor’s degree. It still hurts. Just hope to win the lottery one day…

a low key day

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

Very low key day

I woke up around 0230 and didn’t go back to sleep till around 7/8. Around 0600, I decided to make breakfast because I was getting hungry. I made scrambled eggs with pepper jack cheese in a lavash bread that I bought yesterday. It was really good. I then decided to make my new coffee, which turned out to be a mistake. By the time it was done, I was falling asleep. I drank some it, hoping it would keep me awake but my tiredness overwhelmed the coffee’s effects. The mug was stainless steel and kept coffee hot so I grabbed the cover and tightly put it on. I didn’t want to waste my delicious, expensive coffee on the first cup! I went back to sleep and slept till around 1315.

I woke up again hungry. I drank my coffee and it was warm. I had a few more sips of it and then I couldn’t drink anymore. It was a big mug. I wanted to make turkey roll ups with cranberry sauce so I did. It was so good, I made two. Then I got sleepy again. While I slept, my phone went off but I didn’t answer the call. I figured it was my mother telling me dinner was ready. I was wrong. It was my doctor’s office calling me about a prescription I requested early this morning or last night. I don’t remember. She said she would email me through their secure email service so I checked it a little while later. The medication is drops for my ears because I have eczema. My ear canals have been really itchy lately and the drops that I have are expired. I don’t have anymore refills because those are expired as well. I don’t use the drops every day, just when my ears are itchy. The email asked if I had an ear infection of some sort. So I replied and had to explain why I needed the drops. I will call tomorrow if it doesn’t get called in. Kind of weird that I put in the request early in the morning and they didn’t call me until after closing time.

My pain has been bad all day. I made myself two meals and my ankle didn’t like it at all. I took my night meds a little while ago. I really have just been sleeping all day, waking up because my pain meds wore off. This condition is terrible. I hate being in pain all the time. I could see if I went out or something but I didn’t. I know it’s more like a recovery day for me as yesterday I did a lot of things. I am glad the heating pad that I used to ease the soreness on the bottom of my foot helped. I really need to get some kind of cushion for my AFO.

Sox are losing right now. Someone threw a stat out that Sale has gone so many innings without a run and I replied saying you just jinx him. He gave up 3 in the first inning. Asshole whoever that person was. If I saved the tweet, I would have shoved it in his face.

I need to change my sheets. I spilled a little coffee on them when I took the sip to see if it was hot. The foam topper is shifting again, pulling to one side so I guess I will have something to do tomorrow, if my pain is low. It shouldn’t take me too long as my bed, though a mess, is still fairly easy to clear off. I just hate changing sheets.

the 4 AM painsomnia blog

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

The 4 AM Painsomnia blog

It is a little after 0400 and I still have not slept a wink. Pain is keeping me up. I have tried different drugs and was getting ready to settle down about a half hour ago, when I moved my ankle to get comfy and was rewarded with more pain. I am so tired, physically and mentally, of this crap. I don’t understand how normal movements of my ankle the way it is supposed to work are causing me loads of pain. It doesn’t make sense. Maybe my neuro can help me. I see her in a couple of weeks.

I have been adding apps to my phone. I still haven’t made the playlists on my MP3 player. That will involve my old phone and mega time. I actually don’t know if the songs will be on the old phone because I took out the storage card. It had all my music on it. Will really suck if I have to create each playlist and then try to remember what songs were in it. I had a good list going, too. Should have written it down before pulling the card out. Oh well.

I took my pain meds a little while ago, before my pain really hit skyrocket levels. I am debating on taking the strong pain med and another Ativan. With any luck I will be asleep by 0530. I hate when I am up all night. I probably will be sleeping all morning and into the afternoon again. I feel like waking my mother up and telling her I am going to sleep now so she has some idea that I don’t sleep when I am in my room. I could do it just to be a bastard.

I think the CRPS is spreading up my leg. Lately, I have been getting pains above my ankle, nerve pain, on the same side where my ankle hurts and where originally the swelling was greatest. It hasn’t hurt like that in a while so I thought it had gone away. Now it doesn’t seem to be the case. It just causes me to have hypervigilance and anxiety with my PTSD symptoms. That’s why I wanted to take the strong pain med and Ativan. Kill two birds with one stone. And it might help me doze off.

I keep trying to ignore the pain but it is throbbing and it changes and moves all over the place. One side of my foot will feel one thing, the top of my foot will feel another. My toes will feel something else and my ankle will just have several kinds of pain all at once. It can be up, down, and all around. There is no rhyme or reason to it, which is so frustrating. I took some Neurontin for the burning pain and applied Lidocaine so numb it. Then I move my ankle to get comfy and was overwhelmed with pain again just as I thought it was finally settling down. Fucker. It’s awake so so am I.

I took the meds. Fuck it. I need relief and sleep. I got to wait an hour or so for the Ativan to work. I was watching videos on Facebook. One of them was about how to cook eggs easily. It showed how to unpeel a boiled egg in a container after putting some water and then shaking it with a cover on the container. It was cool. Also showed how to make a poached egg in the microwave. I’ll have to see it again to learn how. I like poached eggs once in a while but they can be messy when you make it by pan. I saved the link so I have it in my saved thingy. I really like that option.

My sister thawed out burgers so she will be making them today. I know I am going to have a couple! That is my favorite summer food. I want to buy the grill thingy that you put on the stove to grill things without mess. I should have written down the number or the website. Maybe they will have it at Walgreens in the “shown on tv” section. It would be awesome to make grilled stuff year round. So when I wake up from my “nap”, the food should be ready, lol. I wish I had bought cole slaw with my grocery order. Maybe I will get it when I go grocery shopping later today. I need to get my bread that wasn’t delivered. My mother buys wheat bread, which is okay, but I like multigrain bread. It just tastes good. I also plan on buying some deli turkey breast. Boar’s Head just came out with a new kind called Maple Honey Turkey breast. I want to try it. I also want to get more ribs. They are so good.

I know I take a lot of psych meds, but having to take all these pain meds drives me nuts. It’s only because the pain changes so I need to adjust the dose or take lidocaine or Neurontin more because I know the opioids won’t respond to it. I never get to a zero but a three would be nice every once in a while. Someone liked one of my low pain tweets about wanting to shower on Twitter. It was back in June. Long time since that day. I think the weather has caused my pain to spike. It decreased another 10 degrees. It’s 57 degrees F right now. It was 70 degrees when I woke up at 1415, so many hours ago. So what is that, 13 degrees in a little more than 12 hours? No wonder I am in pain. Fucking human barometer I am. SUCKS!!