Tag: suicidality

waves of exhaustion are fun

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, CRPS, depression, mood disorders

Waves of exhaustion are fun

I was sort of having a good sleep, once I got to sleep when my stupid med alarm woke me up. I wasn’t quite awake so shut the fricken thing off, took my BP pill, and surprisingly went back to sleep until my alarm went off. I seriously detest taking this pill twice a day. I need the alarm to remind me to take it otherwise I am just getting half the dose I need to be on and I don’t want my BP to become unstable.

I had a fairly low pain day despite having pain spikes last night and going to bed late. I don’t remember much after midnight. I didn’t want to get up but when I said five minutes, it turned into ten and I started to rush. I had gotten dressed and got my muffins ready to be taken with me, then I realized I forgot my watch and had to go back upstairs. My mother then asked for me to take the recycles down and I told her I would when I came home as I didn’t have time to put them in the bin.

I got to Starbucks and because I rush, forgot my reusable mug. I ordered a new drink. Some kind of hazelnut macchiato that was supposed to be made with coconut milk but I changed it to almond. It also had mocha drizzle. It was okay but the milk made it kind of bitter. I probably won’t be ordering it again, least not with that kind of milk. I had a sandwich as I was to rushed to eat at home. I brought my Kindle hoping to read for a bit but I was so tired that reading was out of the question. I wrote in my journal for a bit before I caught the train into Boston.

I was early for my psych appt. I got really sleepy while waiting. My appt time came and I was still waiting. I thought I was going to fall asleep before my doc called me. I was so tired. I guess three shots in the macchiato was not enough. My doc finally called me and we chatted. She asked what was up with me and like I emailed her all week, I haven’t been sleeping due to pain. She asked where I stood with my PCP and pain doc and I said I haven’t heard anything in three weeks. So she emailed them asking them for a conference or something. My doc doesn’t play around. I love her for that. She did talk to the LGBT doc but was worried that without adequate pain control, she wasn’t sure how the hormones were going to affect me. I didn’t care. I already made up my mind about things. I told her I was suicidal and once I found a place to terminate, I was probably going to go through with my plan. I didn’t tell her about the other stuff. There was no point. I told her I wasn’t sure I want to start hormones as it all depended on what happened this month and left it at that. She didn’t press me for info. I started feeling weepy, like I have all week and said so. I asked her if we could increase the Zoloft as I am not a cryer. She said it could be hormones. I don’t care what the hell it is. I don’t want to be in the middle of my commute somewhere and have a meltdown over nothing. I told her 75 mg of Zoloft should be okay. So she refilled my script for that amount.

I left and was just so tired, I felt like crying again. It had started snowing and then sleeting when I got to the train station. I still want to go to the grocery store to get eggs. Even though we had like 6 dozen last week, we are down to like one. My mother baked and I used at least a dozen with my baking and cooking. We go through a lot of eggs. But the bus home came before the bus to the grocery store so I just went home. I stopped at Walgreens before home. The snow was coming down heavier and the wind was making it really cold. I couldn’t wait to get home. Before leaving the store, I bought some Reese’s peanut butter cups and M&Ms peanut because I wanted them. I didn’t even eat them when I got home. I made a frozen dinner and then went up to my room to change. It was cold in my room. I put my sweatshirt on and got under the fleece blanket. I still need to change my sheets but my back was hurting. My pain spiked a few times since being home. I just wanted to fucking die. My bones were aching so bad.

The one thing my psych said about the pain doc was that he wanted me to go to PT more than do anything else. I told her the stress of that. It is not going to happen with my pain levels and trying to do other stuff. I just cannot manage. The idiot also didn’t want me to wear my AFO anymore as he wanted more movement with my ankle. Since I was having a low pain day before the last block home, I was thinking maybe I should stop wearing it. I was only proved wrong as walking home my ankle crapped out on me. So screw him. He barely saw me for more than 5 minutes and didn’t even examine me. He just felt the temps on my feet. Some exam. Just pisses me off that this guy determined probably before I met him how he was going to treat me, or rather not treat me.

I plan on taking my meds early, reading 1984, and then hopefully sleep. Probably the last two aren’t going to happen but I can try…

cooking Wednesday

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, CRPS, depression, mood disorders

Cooking Wednesday

I slept crappy for the third night in a row. I am so spent and labile. My mood keeps going all over the place and I am weepy at times. I was determined to make something today. I had silenced my phone not thinking it would not sound my med alarm. I wanted it to wake me up around 11. It never went off so I woke up around 1230. I really didn’t feel like doing shit but I was hungry and needed to make something.

I decided to make a three cheese egg and bacon burritos. I made four but my niece wanted mac and cheese, so after I made the burritos, I made the mac and cheese. I had that instead of the burrito. My ankle and back were acting up so that was all the cooking I was going to do. I tried to nap afterwards but I felt so depressed because I was in pain. I honestly don’t know why I am living. I just want to die. I didn’t know what to do. I thought about texting my therapist, but what was he going to do? I emailed my psychiatrist and got no response. I think that was worse than anything.

I got busy with social media. I had posted my burrito work on FB, IG, and Twitter. I probably post at least twice a month what I make. Someone on Twitter, who I don’t follow, replied to my tweet asking if I liked making breakfast. This is the fourth time a café or restaurant responded to my pics on food. I think it is funny as they just want my business, but other than the Indian restaurant, I am not going to go. Other than Starbucks, I don’t eat out. I might order from Grubhub but that is all. I mostly have been eating at home as I just can’t be bothered to go out anymore. I am in too much pain.

After I had dinner, I took a shower. I needed one. My foot cramped up and my back ached but it got done. I had bought compression socks for my foot and ankle and they came in today. I wore them for a few hours. They left a nice mark on my leg as I was drying off. I am going to try wearing them a few hours a day to control the swelling but don’t know if I will be successful.

I am so tired. I hope I sleep tonight during “normal” sleep hours. I think I might lose it if I don’t have sleep for the fourth night in a row. All three nights my pain started at 2200 or after. It’s just about 1900 right now so I have three hours before I know if I will be in pain all night or not. It used to start at 2000. Now the “magic” number seems to be 2200. Probably because I am ready to settle down and turn in at that time.

One of my Twitter buddies just posted an article that was in JAMA about not to prescribe opioids for severe to moderate chronic back pain or hip/knee osteoarthritis pain because it was shown not to prove function. I am sorry but that is just wrong. Most people who take an opiate for pain do regain some function because their pain is less and they can do more. I don’t trust their results. But all over the article was written, “don’t prescribe opioids” so a little bias?? Pisses me off.

I am doing an experiment. I just took my night meds but I am not going to take the Ativan, just yet. I will take it later when I want to go to sleep. Maybe then I can sleep through the night. I just hope I don’t have side effects from the antipsychotic.

Easter Sunday 2018

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, CRPS, depression, mood disorders, suicide

Easter Sunday 2018

I woke up to my fricken med alarm around 645 this morning. It scared me out of my sleep and all I wanted to do was throw my phone against the wall. I shut the thing off and dutifully took my meds. My back was so bad. It hurt more than my CRPS pain in my ankle/foot. I had to use the bathroom and it hurt to move. I decided to cancel therapy for tomorrow as I wasn’t sure how my back was going to be. I was sure that just walking to the office would not be a good idea. When I came back to my room, I texted my therapist. I then got my heating pad and adjusted it a few times to get the heat where it hurt, which was mostly around my hip. I had used a tennis ball to try and massage it but the pain was so intense. I know I need to do it a few more times to get the knots out. I am lucky it is just muscle pain or it could be a lot worse.

I fell back to sleep. My sister was having Easter dinner at 2. I think I woke up a little after 1. My pain was a little better but my ankle was throbbing. I heard my mother make her way downstairs so thought the food must be ready. I followed her after gobbling a few chocolate chip cookies for an appetizer. My brother in law’s family wasn’t there yet. The time my sister told her to be there and the time my brother in law said was off by an hour. I have no idea why he said 3 pm as we never have dinner that late. That caused a little argument. Just what I wanted to hear, fighting on Easter.

The in laws arrived about a half hour later, which was good because I wanted to eat. Everything was good and peaceful. I saw my nephew and his sister, who I haven’t seen since Christmas. They don’t come over much or call. I might get a text from them every so often. I still can’t believe my nephew is going to be 24 this year. Seems like only yesterday I was holding him in my arms and playing catch with him. This caused him to puke on me for at least his first two years. I never learned. I was just happy to play with him. He often was like Dino the dinosaur in Fred Flintstone. I would come home from work and he’d promptly attack me with hugs. Later it was just to grab my baseball hat so I could chase him.

I spent most of the afternoon and evening down my sister’s. My back was surprisingly cooperating and so was my foot/ankle, though it was still throbbing. It hurt to go from a seated position to a standing. My aunt came over around 6. She saw a stray cat and wanted to take it home as it was malnourished. It had been living for some time on my sister’s porch for at least a month. I guess she told my cousin and he talked her out of it. Now my brother in law will be calling some cat shelter for it. That really pissed me off as the cat would have had a good home with my aunt.

I was late in taking my meds because I was downstairs. I hope I am not up all night. I did have a cup of caffeinated tea. For some reason, having tea late can either not affect me or will. I am tired so hopefully I will sleep.

I read twitter before writing this blog. There was a tweet that someone wrote that got my attention. It was about chronic pain and people being forced off their pain meds because their doctors are no longer prescribing it for them anymore. One tweet read that they were planning their suicide. I felt that person’s pain because my thoughts are the same. I am also planning. I don’t know if I will go through with it, even though I have given myself a date and some time to actually plan it. Not saying that it will happen the way I do plan it but the thought is there. Now that the CDC is admitting it falsified its data for their proposed guidelines, hopefully that will make doctors treat patients the way they should be treated. I don’t have hope that I will ever be treated for my pain because I have a psychiatric illness. I think that is why my PCP and pain docs are staying away from me like a 10 foot pole. I can’t prove it but it makes sense. I think that is why my PCP is in constant contact with my psychiatrist, which is kind of leading me not to trust my psychiatrist as much. I know what I tell her is confidential and all but my paranoia gets the better of me. I don’t know if she tells him how suicidal I have become. I have no idea what she writes in her notes about me because he reads them, even though he is not supposed to. I am too scared to request my records from her. It would be easier if I had access to them when I was hospital employee, but now I need to fill out a release like every one else. Plus I am not so sure reading them will benefit me in anyway.

Will the crushing pain ever stop?

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders, suicide

Will the crushing pain ever stop??

I was up all night, again, due to pain. My foot and ankle were playing a game of this part is going to hurt, then this, then that, and then repeat. ALL FUCKING NIGHT! I did what I could to control it but with pain that changes and is intermittent, it is very hard to control. Eventually the Neurontin knocked me out for a few hours. Then I was a hungry beast. I had a burrito followed by the tuna my mother made with some crackers.

I emailed my psychiatrist during the mayhem and she responded. She wanted to know what changed. I said everything is status quo with no help from the pain doc or my PCP so I am done. I am no longer going to try and get a longer acting pain med. I am going to make every damn effort to make sure that when I do die, there isn’t the financial stress of my death. So again, I played with dates and think sometime in June things will end. I just got to find a place to do it. That is a huge thing. But two months is plenty of time, right?

My foot is just being a fucking bastard today. The bones hurt so bad and feel like they are being crushed. It is a constant pain. I took my strong pain pill and an Ativan to try and take a nap but everyone decided to either call or text me at that time. I should have shut the phone off. My mother is planning on going out to the grocery store so she won’t be home for when my niece if off of school. So why you calling me? Call her mother and tell her. She isn’t going to be home either as she has a doc appt and I will be going with her.

My phone decided it was going to update the OS so wiped out all my preferences. Individual text tones are no longer an option. That sucks. It also got rid of my Star Trek ringtones. I can’t seem to get it back after I somehow disabled the sound. The whole setting option has changed. UGH. Then my music was GONE! But luckily, it was only because it wasn’t recognizing the SD card. I had to remove it then reinstall it. I also updated my now spare phone. I then realized that when I changed my niece’s contact information, the number wasn’t in my phone. I just had to call to get the number. Felt weird having to call my number to get my number, lol.

I missed the ball game today. I kind of saw a few tweets that said we scored two runs to take the lead and I don’t know what happened after that. I would have the Red Sox on mobile notifications but they don’t tell me the score during the game and if they do, they use a stupid box around the number so I have no clue what it translates to. It annoys the fuck out of me.

I just put in my refills for my meds for the month. I have four. It would have been five but I don’t have refills left on one. I will pick it up Tuesday as I know the Invega won’t be in stock until then. I was going to shower today but damn foot is a wreck. No way I am standing for 10 minutes just to aggravate the sucker. I’ll be up all night in pain again. Part of the reason my pain was so bad last night was that the barometric pressure was 30.14. Hi pressure equals a lot of pain. I am hoping to have my grocery order in tomorrow. I want to make morning glory muffins. There is a lot of good stuff in it, coconuts, carrots, apples, raisins. I haven’t had this kind of muffin in a long time. I think the coffee shop at work had them every now and then. They were so good and big. I hope my muffins are big. Usually they are small and look like a cupcake. That will be the adventure this week. I’ll try and make them before Easter so we can have dessert. I think my sister will be making a ham. Not sure what my mother is making. I thought she was going to make Pizzelles but she ended up washing clothes instead. Maybe she doesn’t have enough ingredients or something. I don’t know.