suffering with a price

Today was a little better day without my nerve condition bothering me so much. I still feel pretty down.

I’ve been trying to work on my blog for the new thing that I am involved in and it’s tough editing my own work. I am to add in some questions but don’t know really where to begin. I feel like just drafting a whole other paper but I don’t want to start from scratch. Drafting this paper was a piece a cake the first go round. Editing it is a little more difficult.

I finally saw my therapist after not seeing her for a few months. I think I might be able to see her every Tuesday but I am not sure I can commit to that. I have a hard time waking up and getting the car from my sister’s work is a hassle. I then have to pick her up from work and sometimes I am too tired to drive back, even though it is a MUCH shorter distance than my therapist’s office. I had to give her my forms for my long term disability so I might see her next week so she doesn’t have to mail them out and I can send it in with the other stuff that they need. I’m seeing my psychiatrist next week so I will drop off the paperwork to her and my primary care as he is in the same facility. I don’t get to see him till the end of the month and I want them sent in ASAP.

I just looked over the paperwork and they have a section for vocational stuff. My psychiatrist isn’t involved in that kind of bullshit and neither is my therapist. Oh the hoops these idiots make you go through for a buck.

Been starting to feel suicidal again. I just keep thinking that I just have to die. I can’t go on living. Then today a video comes in that my niece wanted and she is overjoyed and tells me that she loves me so much. How am I to die knowing that she will be messed up if I die? It hurts too much to think about but yet it kills me to suffer the way I do all the time. I get no reprieve. No alleviation at any time. Sure I was able to drive 30 miles today to see my therapist but it cost me my back to be hurting and mentally I am still depressed and suicidal. We talked about this new group that I am hoping to get into. I don’t know, maybe it will help things. I know it will give me something to get out of the house but the group meets at the time of my therapy appt on Wednesdays. I know it’s not a big deal to reschedule my appt but it is to me. I hate it when the schedule gets messed around. Trying to find another time is not always that easy. But I still think that suicide is a way out of my misery. I don’t have to go to group or therapy. Just crush a teenager’s heart or two. I try not to think about stuff like that because it really brings into the picture of what suicide does to the family when you are gone. I keep thinking they will be alright but I know they won’t. People always keep reminding me of that and it kills me because it means I have to suffer longer. I just want my pain to stop. If I had cancer I know they wouldn’t want me suffering so why can’t they just understand it that way. That I had to be out of my misery because I hurt so much. But no one sees it my way.

had enough

Today was interesting and bad. It was interesting because for the first time, I was at Starbucks and there was a mentally ill guy there just ranting on all the customers, mumbling something and he was asked to leave but didn’t. he just took his jacket off and told the guy next to him this is going to get interesting for the next 30 mins. The manager of the store decided to call the cops. I was in the middle of an email and said god only knows what as all this was going on and left the store. I wasn’t hanging around to find out what this guy had up his sleeve.

I had ordered a plain latte to try it out. Never again. It was so plain, LOL. I went across the street and had lunch at McD’s. I really wanted a big Mac. Then decided to go home so hell can start. I had to go to the bathroom by the time I got home. Because my nerve condition affects my bowels, it’s hard to go sometimes and today was the mother load. I felt like I was trying to push out a tuba but only rabbit turds came out. The hardness caused some bleeding and I thought great, I’m bleeding from the front and back now as I still have my fucking menses till god knows when! My mother decides she has to go so I had to hurry up. I ended up getting stuff everywhere, rushing so my mother doesn’t end up peeing herself. I never had a day like today. And it still is wicked humiliating to me. The psychache just too much. I just am so numb, well emotionally. Right now my feet are doing a cramping dance because they are cold despite warm socks. I just hate that I can’t go to the bathroom like I did before all this CES (Cauda Equina Syndrome) entered my life. I feel really bad because I NEVER had shit on the bathroom floor before but there must have been some stuff there after I wiped and I didn’t know so when I got up it fell on the floor. Luckily my mother didn’t notice it or I would have said I stepped in dog shit (even though clearly there was no shit on my shoes). I just want to die from embarrassment.

To say that today has been a shitty day is an understatement. But this is the life I live now. My nerves no longer tell me where my stool is. Half the time I go pee and hear plunk. My biggest fear is when I have loose stool. That is when I really have no control. The hardest part is that I wanted to tell someone but I had no one to really tell. I belong to a support group and could have gone there but lately all my post there have been negative and I know they would have understood but I just feel like a burden to them because I need their support sometimes too much lately. And it’s not like I can explain it to my family. They would freak out and I know there would be that awkward day where my mother would ask if I shit myself today because she thinks it’s being supportive. But it’s not. I hate telling her anything about my condition. She blames me for having my surgery, even though it was an emergency. I had no choice. It was either surgery or never walk again. The second time I didn’t tell them why. It was because I was losing control of my bladder. I also had wicked bad leg pain. My surgeon was surprised I was still able to walk with the disc material in my spine where it shouldn’t be. I still have the pics on my private Facebook page to show my fellow CESers the material. Normally you can’t get that stuff but because I worked in the path dept at the time, I knew who to talk to about getting it. I wanted to see for myself what it looked like. This was only for my second diagnosis. My first one I missed the disc by a few days. It’s like having a trophy but also a reminder of what these buggers can do when they get wrapped up in your nerves when they shouldn’t. I had one disc fragment embedded in my L3 nerve for a few days. I lost use of my left leg and it took months of rehab to get it back. Too bad it didn’t help my foot drop on the same side. I never learned to walk correctly or if I did, it was only when I was a fatigued that I would not. It’s so hard knowing now that I am not working whether being stationary is helping or not. I know I did a lot of walking today and it felt good but now I am paying the price with cramps in my feet.

blah 2

Mood has shifted just a little bit but I still have not left the house for anything. I just feel like my world is coming to an end and there is nothing I can do about it. Least today the numbness wore off just a little bit to let some feelings in so I can write a bit.

Got a bunch of paperwork, one for the group therapy place and the other from my long term disability place. Each packet is like twenty pages. I have my work cut out for me. Though I hardly have the energy to do it. I still need to get my taxes done. I keep saying tomorrow and tomorrow comes and goes. I feel weighed down though I don’t know from what.

I stopped taking the birth control pill last night to hurry things up. I figure there is no point taking them for the rest of the week if I am just going to stop them anyway. I’m kind of scared because I don’t know what kind of havoc this is going to place on me mentally. So far there has been no change in my menses and thankfully I don’t have any cramps. But the wearing of female products I still killing me. I just have gotten so used to not having a menstrual cycle that now it just feels so overwhelming. It’s making me so depressed and suicidal that all I can think about is ending my life because I don’t want to go through with this. That is what my suicidality is truly about. Not being able to cope with my false identity. And I am really pissed off that no one really cares except for my therapist. She is kind of freaked out right now as my mood is unpredictable. I know my friend that I have been writing with is kind of worried too though she is pretending she is not. I just don’t have many people to talk to about this. I feel that it’s too much information or just to hard to try and explain.

I just don’t know if I will be ok during this period. I know my shrink is worried since my post the beginning of the week. I still want to cut but the feeling come and go. I haven’t yet but that doesn’t mean I won’t. I hate that I love walking about in t-shirts all the time. If I start wearing long sleeve shirts my family might notice something off. Cutting is a huge thing to cover up. I used to not care when I was a teen, but now that I am an adult it still is kind of hard to cover up when you have a 7 yr old that smells band aids a mile a way.

BLAH

That is how I have been feeling the last two days. I just feel like the end of the world has come upon me. I don’t want to do anything, I just want to sleep.

Monday I have a meeting with a group therapy leader and I am thinking it is just too much to go. I want to but in this state all I want to do is fuck it all. I have no energy to eat, though I have forced myself to have a little of something. And to drink my slim fast shakes. Today I had Chinese food and I didn’t even enjoy it or finish it. I guess I will have it for later or tomorrow.

My sister texted me today saying she hasn’t seen me. Well I don’t feel like going downstairs. I don’t feel like going out. I just want to be left alone, away from everybody. The next few weeks are going to be rough and I am not sure how I am going to handle it. I am beyond coping right now.

The group leader sent me a packet I am to fill out. It’s like twenty pages long. Some intake. I hardly feel like writing a blog let alone fill out twenty pages of god knows what. I am so tired. Maybe I will just deal with that tomorrow and sleep the rest of today. I have never felt this bad before. I have never had this loss of energy and motivation before. This really sucks. I know most of it has to do with my menses. I just feel so defeated. Like I was going to make this huge change and was expected it to go kind of rough but I was NOT expecting my menses to show up and wear me down. Six weeks I have had this and seems like I will have it for another eight to nine. No one cares how much this is humiliating me. To have to wear female underwear and female products for this long is just draining the life out of me.

A good friend gave me a good tip. When I can take my sister’s car, I am going to go to Stop and Shop and buy all the asparagus they have and buy a bottle of Alleve. Hopefully something will work.