Category: Bipolar Disorder

Really steamed 

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, CRPS

I posted on Twitter that my mother was mad at me for not helping with the dishes or laundry today. Sorry, I didn’t sleep all night and I was in a lot of pain. I was used to her calling me useless. But what got me distressed was her calling me “daughter”. Someone I don’t know responded saying she was a mother and it wouldn’t hurt for me to help her. WTF. I responded that I was upset because I was a transgendered male and my mother knows this. Plus I have debilitating pain so stop judging me, asshole. I blocked her after I sent the message as she followed me. Loser. 

I hate it when someone I don’t know responds to my tweets. I have no idea how Twitter works and how people who don’t follow you, sees your tweets. What a jerk. I am so mad.

I keep thinking I have nothing to do on Monday but I have therapy.  I might cancel as Tuesday is going to be a long day. I still got to go to my PCP’s office to pick up my meds. I don’t think I can fill them but I’m going to try. 

I took my night meds early and I’m still awake. My damn foot is hurting so bad. Maybe I will see my doc. I’ll call on Monday for an appt. Maybe something more than CRPS is going on. Not sure what as I haven’t done anything to injure my foot. I need to email the Neuro and find out what he plans on doing, if anything. I am going to ask him about ketamine infusions. That might help me. Might help the depression more. 

My psych responded to the email I sent her. She said maybe my mother and I can support each other. I don’t know how. I did help her up the stairs to her room. The couch didn’t help her back last night. My sisters were talking about putting a bed downstairs for her, especially if she gets her other knee replaced in Jan. I am kind of nervous about it as it will be done at a small hospital. I just worry that between her heart and diabetes, there might be unforeseen complications and the hosp might not be able to deal with it.

I am glad I have this blog to vent my worries and frustrations. Writing really helps.

Black Friday 2017

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

Black Friday 2017

I was up in pain most of the night. I think I finally went to bed around 5ish. After 3, I was checking my bank account for the deposit that I should have had. It usually comes in around 0330. By 0430, nothing was in. I just assumed it was because yesterday was a holiday. When I woke up around 11, I was reading twitter and my bank had posted a tweet saying they were having trouble with direct deposits. D’oh. I was hoping to have my deposit later today, which did happen. Now I can pay my bills and be poor come Monday.

My mother made cherry pie and that was all that interested me. I didn’t want leftovers, just pie. My sisters and brother in law went up to New Hampshire for the weekend. Before leaving, my brother in law told me to feed the fish and cats outside and to take the recycle bin to the driveway. I fed the fish. The recycle bin was on the porch so they must have come before they left. I wasn’t going to feed the feral cats. I’ll feed them in the morning when I get up.

I am so tired from pain. My foot still is hurting me despite being in bed most of the day. I was tempted to make an appt with my doc but I don’t think there is anything that can be done. I was just feeling so hopeless. I emailed my psychiatrist. I told her how rotten I felt and how I read the radiology report of my bone scan. All week, the top of my foot has hurt really bad and trying to move the ankle the way it should hurts like hell.

Tuesday, I see my PT. I am not going to go to the pain program she wants me to go to. Hell, I am not sure I even want to be in PT anymore. I am seeing the brace clinic Tuesday night. I really don’t know what to expect from them. Hopefully, they can give me something to immobilize my ankle when it hurts like this as well as something that keeps weight off it.

hodgepodge 999

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

Hodgepodge 999

My foot is keeping me up so my brain is thinking of things that is making it harder to sleep. Tonight’s thoughts are centered around my ex-ex-girlfriend. We are no longer friends because she said she wanted to “jump my bones” when she sees me next summer. The last time we talked by phone which was more than a few weeks ago, she told me her neighbor, a male, had raped her a couple of times and they also had consensual sex. She got upset that night we talked because this neighbor and her got into an argument so she cut herself pretty bad. She has a lot of mental health issues, her deepest one is being repeatedly used as a sex toy by her father. I think that this along with her bipolar disorder has made her a sex addict. She wasn’t getting the affection from her neighbor anymore, so she cut. It upset me, not because she cut, but because she was having relations with a male. I was a female when I met her. She was out as a lesbian. We had relations for about two years. She was my first love.

I had started to fall out of love for what reason, I am not sure. She is very self-centered, always putting herself first. Whenever I was having a hard time, she ignored me and then told me her problems. Often times she would text me and then shower or fall asleep. In the meantime, I had no idea why she wasn’t responding. It hurt that she didn’t respect my feelings of whatever I was going through and truly couldn’t be there for me. She tried a few times, but she really didn’t know how to be supportive. Or she would say something supportive and then move on to her problems. She has MS and is prone to falling. One time we were texting and she told me she fell. I didn’t hear back from her till the next day. I was going out of my mind about what was happening to her. Sometimes she would end up in the ER because she needed stitches. Why would you tell someone you fell and then not respond afterwards with what is happening?? I was getting annoyed because this happened more than once. A few times she was in an emotional crisis and then I wouldn’t hear from her for hours. She fell asleep from the meds she took, usually her klonopin (not lethal dose). It was emotionally draining. I loved her but I didn’t like being used as this support and not having it returned. She said she loved me all the time but I was questioning that love because she said it so easily yet I felt they were just words she was saying without no meaning behind it.

After I found out about the neighbor and she was still “friends” with him, I couldn’t stand it. How could you continue to see someone that 1) takes advantage of you and 2) rapes you because they got high?? I started being distant with her. On our last contact, after she said she wanted to “jump my bones”, I told her I didn’t want to see her next summer. We had other words but I don’t remember what they were and I deleted her messages. We didn’t speak for 2 days and this was because I was in a flare with my ankle/foot. I pretty much was in bed and sleeping for those days. She didn’t text me at all and I didn’t care. But she was upset that I didn’t text her. I didn’t fall for the bait this time. She called me a freak and said to delete messages from her. So I blocked her number on my phone and on Facebook. I didn’t say anything else other than to thank her for calling me a freak. I then said bye. If she has tried to contact me, I have no clue. I still care about her even though I don’t love her. I’m just worried that she cut herself again with ending our relationship. I know that isn’t my fault, if it happened. I still think about her. I need to stop thinking about her. But my brain is still analyzing the situation.

Thanksgiving 2017

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

Thanksgiving 2017

I woke up around 3, my foot still ablaze in pain. I somehow managed to go back to sleep and then woke up at 11. I only got up because my bladder said I had to. Holy pain!! I barely made it to the bathroom. I wanted to brush my teeth but I couldn’t stand too long. I went up to my room and took pain meds. I really just wanted to stay in my bed all day but knew that wouldn’t fly with today being a holiday.

I went back to sleep for a bit. My brother in law never replaced my ceiling fan. He was on call at his work and of course, got called in, three times! Guess there were problems with water heaters. My sister called me to say dinner was ready around 1400. I put the boot on and went to my sister’s. I am glad I didn’t have to leave the house. By the time I came down, everyone had made a plate. I made one and then sat down at the table. My goofy sister wanted everyone to go around and say what we were thankful for. When it was her turn, she kept on being a goof and so was naming everything and anything. The turkey was made by niece. It was ok, though I like when my mother makes it. I later found out she put in a clove of garlic. That was why it tasted different. I was so full for dessert but had a cup of tea and some pumpkin pie. The other pies that my brother in law bought were not good. He said he is going to take them back. I hope he gets a credit for them. They were terrible. The apple pie dough was not cooked!

My mother went upstairs after dessert. We were all just hanging out when we heard a thump. We asked my niece to go upstairs to check on my mother. She was moaning so we all went upstairs. She had tripped over a chair and fell on her knee replacement knee. It bruised up right away. My brother in law helped get her up and then we all helped her to the living room. She won’t be going upstairs to her room tonight. She is really sore. I feel really bad she is hurting so much. I gave her some ibuprofen right away to help with pain and inflammation. She is icing it but can only do it for short periods as it hurts to touch it. She has neuropathy from the diabetes so touching any part of her leg hurts her. I just finished putting a sheet on the couch, getting my mother’s night meds, and her pillow for her. My foot is thanking me in HUGE shocks of pain.

Other than helping my mother around the house tomorrow, I am not planning on doing anything else. I am going to try and stay off my foot or be in the boot if I have to be walking around the house. My foot/ankle just don’t want to move the way they should and if I try to, they hurt like hell.

The radiology report is finally in my online records where I could read it. Doesn’t sound too good. I don’t know if my bones are going to get worse over time or not. Never know with CRPS. I know that it could spread, either up my leg or to other areas of my body or even to my body itself. There are a few people in my UK support group that have it in their organs. It is a very painful condition. It also looks like the “opioid epidemic” is not just in the US but in the UK as well. Someone in the support group said their pain doc just told her her body is “fine” and that she doesn’t need pain meds. Even her GP, who doesn’t know her, cut her pills. I hope she is able to find another doctor that can help her and treat her pain. I would kill myself if I didn’t have the few pills that I have. I know that I want to be put on a longer acting pain medication for night time, but don’t know if I ever will. The chances of me having to increase the strong pain pill dose might happen down the line. I try not to take it but it seems to be helping with this bone pain that isn’t being helped by the regular pain meds. My psychiatrist thinks I should be on methadone for pain control but I really don’t know anyone on it for that. I just know of people with substance use disorders who take it. She has wanted me to be on this drug for a long time. I honestly don’t want to be on it because I don’t think it will help me. I know some people in the UK are on low doses of naltrexone (LDN), which is also used for substance use disorders but in larger doses. I don’t think LDN is used in the US and only certain doctors can prescribe it. What kind of doctors those are, I have no clue. I am guessing substance use treatment doctors, which are a handful of docs. It’s so weird that they want you to be treated for being addicted to opioids, like heroin and illicit Fentanyl, but your primary care doctor cannot prescribe this medicine to treat them. They need to see a specialist or go to a treatment center of some kind to get these meds. And the stigma surrounding addiction furthers prevents seeking help because there is the mentality that it is not a disease, but a character flaw, which is utter bullshit. Addiction is a disease, unfortunate, but with the right help, people can be clean and lead productive lives. Unfortunately, chronic pain patients are the ones suffering because we need the opioids for our pain and do so legally yet are monitored more closely by government officials than doctors. This is because they know heroin, which is an opioid, is not regulated so they can’t go after dealers or those that use it. People don’t go to the pharmacy for those meds. Just sucks because I know one day my meds will be cut off because of politics and my doctor will sign my death certificate. Not the politician, but my doctor who treats my pain. Pisses me off.