Category: chronic physical pain

Bugger of a day

by Midnight Demon, posted in Bipolar Disorder, blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Bugger of a day

I got up around 11. I needed coffee and something to eat as I barely had anything yesterday except protein bars. I went to my sister’s apartment to use her Keurig. My mug that my BFF in Canada was there. Sadly, whatever they did to wash my mug, all the lettering had come off and what remained was the heart. I feel really bad about this because the mug means so much to me. A person who loves me sent me something they made out of their love for me. I shouldn’t have left it downstairs but I forgot it and didn’t think it would get “wrecked”. Anyways, I made my coffee and then brought it upstairs so I could make an egg burrito. I could barely finish the burrito.

My sister had texted me saying to go through some stuff in the living room. My ankle was already flaring even before I made my coffee. After I ate, I had some stuff thrown away, some to good will and the rest I kept. I have one chess set I will be donating to a chess club in the town over from me. The meet in a square not too far from me, just down the street with the bus. I sent them a message so I hope I get a response. I didn’t go through the clothes that were in my closet. My back and ankle were already telling me to stop so I did. I retreated to my room. I saw the likes of my bed and I had to do the bedding today. I rested for a bit after taking some pain meds. I played on my phone until I started to get really “lazy” and then started taking off the bedding. I had to rest because my back kept cramping up on me. Then I got the clean sheets and put them on after I positioned the foam where it should be. I know it isn’t going to stay in place; it never does. I need to get either a mattress thing to hold it or for another $25 buy a gel foam topper. I am kind of hesitant to get the gel foam only because people that have reviewed it says it makes them hot. I cannot tolerate being hot so I don’t want to spend the $50 for it and then suffer. The one thing that is sure of is that it won’t slip like the foam.

After I did that, I had to shower. I was sweating and smelled because I had not showered in a few days. By the time I shaved and showered, my foot/ankle and back were killing me. I was done. It took me three fucking days to change my bedding. I hope that I can keep my bed clear of stuff, though every time I say this, it never happens. Shit in the one corner accumulates and then when I need to change my sheets, it is overwhelming. I am going to try and clear out one drawer of my bureau so I could put my boxers in it. I have to decide what I am going to do with my old scrubs. They no longer fit me as I have gained so much weight. I guess I will send them to goodwill. I don’t know what else to do with them. I have two drawers that I use for different things other than clothes. One is to store my medication and supplements, the other my memorabilia of my beloved Sox. I honestly have no clue what the bottom two drawers and the last drawer hold. But whatever is in it, can be given to goodwill as I haven’t worn it in years.

I hope my foot doesn’t act up but I can tell it is already. It started to get cold about an hour after my shower. It still feels cold and is getting painful. Last night I took Neurontin around six. Seems like I will be doing the same tonight, though it is half past right now. I had not done much the past two days. I went out yesterday just to get some more Gatorade. I also checked on my prescription and was told it would be in today. I had called and they said it would be about two hours for it to be ready. Next thing I know, my PCP’s nurse called to say that my doc will be sending it to another pharmacy because the one I sent it to didn’t have it in stock and doesn’t know when it will be. I was bullshit! I sent a tirade to their Twitter account. The fact they didn’t have the decency to call me is absurd! I don’t think I will be their customer anymore. I have had it.

Because my foot is bothering me, I am just going to try and finish the Harry Potter book. I haven’t read it in a few days because it is the part where Voldemort comes back and I *hate* reading it. But soon as I finish this book, I can move on to the next one, The Order of the Phoenix. I like that one better, even though Sirius dies at the end. I should ask JK Rowling what happens to Ron, Hermione, and Harry as they didn’t have their last year of Hogwarts and didn’t take their NEWT exams. She never talked about it at the end of Deathly Hallows. I am just curious. I have no idea if there is a graduation party like we have with high school or do they not get a diploma? I don’t know if the question has ever been raised. It is interesting though to think about.

another pain day number 983747

by Midnight Demon, posted in Bipolar Disorder, blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Another pain day

I went to bed at what is turning out to be my normal time of between 3 and 4 am (or later). I had woken up around 6 so used the bathroom and then took my morning meds so I wouldn’t wake up in a few hours. Then fell back to sleep.

I woke up with someone walking up the back stairs. My cousin, who has schizophrenia, came over and was fricken yelling for my mother to open the door. He wasn’t coherent in his speech as she kept asking him if he was at the back door. All the yelling back and forth made me stay in bed even though my bladder was close to bursting. I did not want to see my cousin at all because he starts a conversation and it always makes no sense. He left about a half hour later and I rushed to the bathroom.

I made some coffee. I wanted to change my sheets today but didn’t know if I would because my legs were killing me. My right calf is still being a fuck and my left hammy is still sore, though not as much as it was yesterday. I finished my coffee and then went back to my room. I had cleared off my nightstand so I could put my cup of coffee but no use for it now. I got back into bed and decided to clear off some of my office. I started putting the books and notebooks on the cleared area of my nightstand. It turned into a pile! I have no idea how this accumulated. I took off the few clothing items I had. I had to sit every so often because my legs were being stubborn. I had just one corner, the one that accumulates shit like weeds, to be cleared off. I had to use the bathroom again and when I came back, I cleared it off. I sat for a while. I know I couldn’t change my sheets. There was no way I could stand long enough for that to happen as my calf was already giving me fits and had started cramping. I had tried stretching, kneading, massage, rubbing all to no effect of relieving the soreness. Finally I put the heating pad on and that has helped a little bit. I didn’t want to because I was fricken hot but it had to be done.

I had my comforter full of my finger pickings and somehow nails that had escaped while cutting them. I took it off the bed to wash. Now I just got to change the sheets, which I will do tomorrow. I still got to have some energy to shave my head, although I am kind of sleepy so maybe it will wait till tomorrow.

I had given myself the T shot soon after midnight. My left thigh was not happy. I tried to lay down to sleep afterward but I kept getting knee pain. I had to put a lidocaine patch on that area for it to calm down. I knew giving the shot was risking as my thigh has been bothering me for the past week. I hope it is just sore from the injection and not something else. I guess I will find out tomorrow.

Tomorrow I am going to try and go to Stop and Shop to get more Powerade. I only have one bottle left. I would have had more had there not been a fricken tainted lot that tasted like orange. It was so potent even as I emptied the bottle, the smell was overwhelming. I now know to avoid that lot. If you drink lemon-lime Powerade that is regular, not zero, it is the lot that ends with PWC1. I don’t know if I will go, depends on if I change my bedding or not. I am getting closer to having this done though! Such a bloody task to do.

gender dysphoria flares again

by Midnight Demon, posted in Bipolar Disorder, blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders, transgender

Gender dysphoria flares again

I had PT today. I didn’t get to drink more than one cup of coffee. I could barely finish the cup as I had to run. I was in slow mo today as I was just so tired. I had another bad night sleeping. I really have no idea what time I fell asleep but I know it was after 0230. I got dressed and wore my favorite flannel shirt that I found last night while going through my clothes.

Because of the standing and sort of half bending I did (with breaks because my back wasn’t having it), my hammy on the left and both calves were killing me. I could barely move which further slowed me down. I had the button down flannel on and it was a little tight in the chest area, so much so that it triggered my loathing of the things on me. I tried to ignore it and listen to my music but it was like a band around me and I hated it so bad. I thought about top surgery again. I honestly don’t know if I can do it, especially as I am really suicidal right now. I just don’t feel that is a priority right now. At the same time, I want these stupid things off. I hate myself for being in the wrong body. It also sort of throws gas on the suicidal fire that is going on.

I came home after getting some pizza at one of the local pizza places. I got the Sicilian kind as I really wanted it. I found five bucks in the shirt so it was sort of a reward. By the time I got to my room to change, my fucking legs gave up on me and both feet were killing me. I got my laptop and was scrolling through Twitter. There was a physician weekly chat and the topic today was insurances, specifically how they deny services or delay care due to prior authorizations. It made me think of top surgery and moving forward with it as I am not sure my insurance will cover it and then I will be screwed. My PCP had mentioned that it will take some doing with both of my insurances to get the surgery covered. There is a meeting of transmen I am thinking of attending the first week in April, if I don’t end up ending things before then.

I’ve had it with my fucking mother. She has been calling me my birthname the past few days and today with all the gender dysphoria going on, I just can’t deal. It is sending me further down the black hole I am in. She refuses to call me by my legal name or use the right pronouns. I am so fucking upset. I just feel like I am a fucking outsider in my own home. No one in my house respects me. I give it to them. I guess I am not worth the same in return. I am just done. I got three more notes to write. Hope I can do it. No one is to blame except me.

Bad mood kind of day

by Midnight Demon, posted in Bipolar Disorder, blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Bad mood kind of day

I was up half the night again. Yesterday, I spent a few hours helping my sister go through my stuff she is clearing from my office. First she wanted me to do one thing and then later that evening, she wanted me to do something else. Well, in order for me to do the something else, I need to do the first thing she told me, which was to organize and go through my clothes. I got rid of about two bags. I had a bag of my button down shirts that I was going to take to the cleaners but they probably don’t fit my anymore so I just got rid of them. I haven’t worn them in years anyways.

Last night I was in a worst mood. I felt really overwhelmed with what my sister was telling me about my things and how SHE wanted it to be. I felt like I couldn’t have MY room the way I want it. It’s bad enough most of the stuff in my office now needs a home in my room, which means I have to clear it up and get rid of some stuff. I am not fucking happy about any of this. She was telling me I don’t need a lot of binders and other office supplies. Sorry, but I do a lot of writing and DO need those things, especially when I print off my research articles or other papers. I am not going to get rid of them just so I have to buy more later on. They are fricken more expensive now than they were back when I was in college!

I was also getting stressed because I got a pain flare up that kept me up most of the night. I had sat and stood for those few hours I was doing things, even though I rested in between doing the different things I did. CRPS doesn’t care if you rest, you are still going to hurt. I talked to a couple of friends of mine from the CES group that understands you can’t be doing shit without consequences. I was in such a mood, I emailed my psych to tell her and then told her a little about the prep I have done to end things. I didn’t say when or how I would do this, or if I was really going to go through with it. Then I had moments where I wanted to go through with it last night. It took all I had not to get up and get my means.

Yesterday, as I was eating, my back tooth started hurting me. It has been hurting on and off the past couple of weeks. I meant to call the dentist this morning but I was so damn sleepy I didn’t. I don’t know if I was up at 6 am or if I woke up, but I took my meds and then slept until noon then fell asleep again till 3pm. I never called the dentist because I forgot. I will try and call tomorrow as I got a lot of time tomorrow to do so. I have PT so maybe I can do it before I leave or when I come home.

I have been craving pizza the past few days. Think I am going to get some before I come home tomorrow. I don’t know if I want Sicilian or regular. I will get two slices. Not sure I will eat both but at least I will have it later if I don’t. My appetite has been awful lately. Yesterday, I just had a burrito, and even that I had to force myself to finish it. I don’t know why my appetite is gone. I was able to make an egg burrito when I got up before I did anything as I was hungry. I just been eating one meal a day or maybe a couple of protein bars. I have lost like 11 pounds in about 2 and a half weeks. I am not sure it is real because sometimes I weigh myself on the scale and it will say I am down and then I go a few days later and I weigh more than I did in the beginning.

I emailed my PCP’s social worker to see if I can see her. I told her that I don’t think she could do anything but at least she is someone I can talk to until I get a therapist. I haven’t called any places because I am waiting for my damn heel pain to be less than what it is. There is one place I am thinking about but I am not sure where it is and how far I will be walking. There are two locations, one in my town and the town next to me. I think I will try the one in the next town over as Google maps says it is where my ex-therapist used to be. It is a block from that location and close to Harvard Square. I don’t know if it will be easier getting there like the therapist I was with and have a temporary hold on. I kind of want to go back to see him but then I don’t. I don’t even know if this place will take me or not so, no point thinking about it until I call. I want my foot/ankle to get a little bit better before I do call. But until then I am stuck without anyone to talk to. UGH. I hate this. I have never been without a therapist this long. It is going on for at least three months now.