Category: disability

Another frustrating day on the psych unit 

by Midnight Demon, posted in Bipolar Disorder, blogging, Chronic pain, chronic physical pain, disability, mood disorders

The crummy SW came back. We met for less than 15 mins. No plan on helping me, just go with the flow. Met with psychiatrist who spoke about the anxiety suicidal ideation brings to clinicians. He wants a way to basically stop me from going there but acknowledged that it was basically my go to escape plan. No other plans for getting me out sooner were discussed. I am frustrated. I don’t want to be here but I need a safety net before I can fucking go. Told him I needed to work with my therapist on that, which I cannot do while I am here. I don’t think he got it. No plans for discharge were talked about. Bastard.

Contact person got me a shower chair. I just took some pain meds so in about an hour, I’ll take off my boot, see how my ankle and foot are, then try to shower. Hate that all these steps need to be in place for this activity but that is what it is like living with chronic pain.

I am getting really annoyed every single time I need a pain med the nurse asks me what my pain is. Then asks what will this bring it down to. Um, I don’t know? It could help, stay the same. Get worse because I move it, the pain could change to something else? Fuck. There is so much stigma around the damn pain and pain meds yet if I ask for an Ativan, they don’t ask me what level of anxiety or agitation I’m feeling. What the fuck is the difference? Just shut up and give me my meds!

As you can probably tell, I am very disgruntled, to say the least. I am a bit aggravated and annoyed. I only went to the group therapy group today. It was the only appealing group. I have read some more Harry potter this morning but now I am too discouraged to go back to it. It is the only book I brought with me so I am trying to stretch it out as I don’t know how long I’ll be here. 

I have no idea with the SW asked if I was dating. She always asks weird questions when every admission. Dumbfuck. Like dating would help me when I want to end my pain. Pfffttt. Last time I was here we spent a good amount of time going over my transition, which was not the reason for my admission. So annoying because when it was the reason I went into the hospital, they didn’t want to talk about it at all.

I’ve been having the same contact person nearly every day, which is good because then there is some continuity. I don’t have to go over my story every shift. I might take a nap before I take a shower just to see how my foot/ankle responds to no boot. If it doesn’t explode, that will be good. I could use a low pain day today. It is raining out and the week is going to be cold. But least no snow is in the forecast.

Really annoyed

by Midnight Demon, posted in Bipolar Disorder, blogging, Chronic pain, chronic physical pain, depression, disability, mental illness, mood disorders, physical pain, suicidality

I’ve been trying to sleep the past 2 hours but every time I lie down, my ankle and/or foot acts up. So I take something and that particular pain goes away only to be replaced by another pain in a different area of my foot or ankle. It is driving me nuts. Right now I have a brace on my foot. I had some medical tape on. That helped some of the pain until I moved my foot upward. Every time I move it, I’m in excruciating pain. It makes me want to die right then and there. I pound my pillow and I moan. No one can hear me. My mother is sleeping and deaf.

I posted a pic on Instagram with the brace on. I posted suicidal. I hope the cops don’t show up at my door tomorrow. I don’t know why I did that. I’m going to take it down. I don’t want trouble. Fuck. I am pointing my ankle downwards and I’m hurting. WTF. I’ve had enough of this bullshit.

I’m canceling my PT appt for today. The weather calls for flooding rain. I don’t want to go out just to get soaked waiting for the bus. I’ll email my PT after I cancel to let her know why so she doesn’t think I’m blowing her off. If I had a car, it would be different. Traveling by public transportation sucks sometimes.

I think the Zoloft is causing me to be nauseous. I had lowered by dose last week and was doing fine until tonight. I had to take a zofran to get rid of the feeling. I really dont want to puke. I’ve been on Zoloft for a year and a half or so. I’m not surprised it is making me sick. That was why I had to come off it. Most SSRIs cause nausea with me. When I see my doc next week, I’m going to ask her to possibly switch to something else, maybe venflexitine (Effexor). It has been the only drug I haven’t been on. I might have to have a break between meds or it could cause serotonin syndrome, which is not fun.

I took neurontin tonight to help with the burning. I hate when the physical pain is gone and it is replaced by nerve pain. I was reading an article about how there are few meds that help with nerve pain. What pissed me off was that it didn’t say what meds worked. Left you feeling like what is the purpose of the damn article. Hate that.

I had to put lidocaine on my big toe because it was acting up. I don’t know why some nights the top of it really hurts like it is being torn apart.

I hate when I am so very tired yet I can’t fricken sleep because of pain. I’ve taken all that I can. Just wish it would let up a little so I could sleep. I can imagine what my sleep study is going to be like. Always takes me forever to settle down to sleep. I even took an extra Ativan and I’m still up. Pain just doesn’t care what I take. Pisses me off. Think I’m going to brush my teeth. I need to go to the bathroom anyway. Stupid bladder! Walking downstairs is going to be fun. I need an immobilizer for my ankle so it doesn’t move. Maybe that will help. I just need it at night because that is when the pain is worse.

Can’t pass out due to pain

by Midnight Demon, posted in Bipolar Disorder, Chronic pain, chronic physical pain, CRPS, depression, disability, grief, mood disorders, physical pain, suicidality

I’ve been fighting sleep for the past two hours. Every time I think it is safe to lie down, my ankle or foot acts up after about 10 to 15 mins. I took this and that but I’m still awake. In a few mins I’m going to take more pain meds as I’m due. Man, I wish my doc would put me on extended release pain meds so I don’t have to take them around the clock.

My sister ordered food and invited me to have some. I couldn’t say no to pizza and fries, even though I had something to eat about an hour before. Now my stomach is hurting because I ate too much. Oh well. I really should be watching what I eat but I hate doing it so I don’t. My weight is a yo-yo anyways. I lose and gain the same 5-10 pounds. I have been drinking more water instead of soda. Small changes which I hope will help in the long run.

I’ve been thinking about therapy. Maybe in my next session I’ll see what he really knows about the different modalities. I’m tired of talking about myself. I just feel like I ramble and don’t get any feedback so why bother. Or he’ll throw out some analysis but it will stop there without a way to help me. How am I supposed to get better if he doesn’t help me along the way? It’s just getting frustrating. 

I really would like to sleep. With all the meds I take, I should be knocked out with a few hours. Pain is a bitch. It is really draining me the hell out of me. I should look into getting an adjustable bed. Maybe then I can sleep while sitting up without it hurting my back. My mother bought one but she doesn’t like it. 

I have been thinking bad thoughts about how to get rid of my ankle. I just don’t want it anymore. It is too painful. And the pain travels down my foot into my toes, all on the outer part of it. Only exception is when my big toe acts up for whatever reason. 

The whole thing is making me very depressed and suicidal at times. I don’t want to be disabled. I want my crummy job back or maybe go back to school to finish my degree. But I can’t last more than a few hours out of the house and I can’t walk very far without severe pain. Depressing.

Do not disturb

by Midnight Demon, posted in Bipolar Disorder, chronic physical pain, CRPS, disability

I didn’t go to sleep till 4. I was in pain all night and wanted to die. Then staff got me up around 9ish for meds and vitals. Seemed every time I tried to get back to sleep, there was a knock on my door. I was very tired and still in pain. I thought of a plan to kill myself. I want to be discharged tomorrow. I don’t want to be here any more.

I didn’t want to see the rounding doc, but she saw me anyway. There was nothing she could do for me anyway. After she left, I felt like hanging a do not disturb on my door. I really wanted to sleep. I finally did after lunch. I slept for about two hours. The pain settled down. But when I started moving around, it flared up again.

It was the next of shift so I asked for pain meds. I was told it would be the last dose of the day. I figured OK, I have my strong pain meds so not a problem, right? Wrong. They capped that out, too. I’m only allowed 2 doses in a 24 hr period. I’m fucking bullshit. I’m so upset, I’m crying. I just want to go home or die.

I was looking at ways to kill myself today. For less than $20, I can get what I need to end my life. All because of pain, I’ll be ending my life. I won’t be telling anyone this because I won’t be discharged. I hope I don’t have another night of pain. Being sleep deprived won’t be good. The new med is still causing me to be hungover in the morning.

I don’t know what will happen tomorrow. I just know I am bullshit and angry that I can’t get my meds.