Category: mental illness

Sadness over madness

by Midnight Demon, posted in Bipolar Disorder, blogging, cauda equina syndrome, CES, Chronic pain, chronic physical pain, CRPS, depression, mental disorders, mental illness, mood disorders, physical pain

There was yet another shooting in the US. A hospital in Chicago lost an ER doc because of her fiance. We don’t know details because he is dead. An officer and a pharmacy tech were also killed. I am so sad over this. Docs are mad continues to happen while those in government do nothing. is becoming an every day thing. Innocent people are losing their lives because someone decides to take a life with a gun. I honestly think the more this is broadcasted the worst it will be. People must be thinking it is “ok” to do this, everyone is. Makes me so mad and sad.

I had to cancel my therapy appt last minute because I was stuck at the hospital trying to give a urine sample. My bladder was retaining so damn fucking bad. I felt I had to go. I knew I had to go. I had drank more than 1000 mLs of fluid. I was full or close to it but no, I wasn’t overflowing so nothing was coming out. I tried everything. It was so noisy in the lab. Soon as I went to a quieter bathroom, I finally was able to pee. I then had to walk back to the lab to drop off the sample. There was no way I would be on time. I would have like 15 minutes with him and that would be it. I hate having to cancel. Stupid bladder.

When I walked back to the station to go home, my heel was killing me. I don’t think it is plantar fasciitis. I am starting to think the steps I take are to harsh on my heel. It is so inflamed right now. I bought some gel inserts to try. I don’t know what else to do. My feet are freezing so I am not about to put ice on. I probably should. But with the whole CRPS thing, I fear I am causing damage than helping it.

My blood tests came back. My sodium is still low but higher than it was. My pcp sent me a letter but didn’t tell me if I need to keep doing the restrictions or not. Ugh. Idiot. So I emailed him back. Hope to get an answer tomorrow. I see him next week so will probably recheck my values again.

I was so damn exhausted. I ate a sandwich and then I passed out. I have no idea how long. I woke up with a bladder yelling at me. It was ready to explode. I was so disoriented. It was around 6 I woke up so I don’t think I slept too long. I was not rested. I just wanted to take my meds and go to sleep. But i was so cold. It was freezing in my room. It is a little warmer now. It is raining again. We are supposed to have a snow rain mix tomorrow. That is going to be fun as i got to go see the pain program social worker. I am going to be blunt like i usually am. I only had one session and canceled 2. I really don’t care anymore. I am not feeling well. I emailed the PT and OT about why I couldn’t make it. I am not doing the stretches at all anymore because it flares up my foot. I had a million and one pains last night. It was awful. I hadn’t hurt that bad in a while. Then when I was just about to doze off, my body jerk, causing my left rib cage to hurt. It was such a bad night. I have no idea how I got up this morning at 9 to be out of the house by 1030. I didn’t shower as I knew that would tire me out. I wish I went to therapy. The whole thing makes me want to quit. Like why bother seeking help when I have so much wrong with me.

My thoughts are with those employees of that hospital in Chicago. What a terrible thing to happen. It happened at my workplace. A secretary shot a cardiologist one morning. I was glad I was off that day. Total mayhem with police and news crews. The news were camped out for like a week. So stupid. Hope they all can talk about it so it doesn’t cause PTSD for them. That is my theory anyway. But sometimes it doesn’t work and does more harm than good.

Hope my pain eases and I sleep. Night all.

Another blog by phone

by Midnight Demon, posted in Bipolar Disorder, blogging, Chronic pain, chronic physical pain, CRPS, depression, medical, mental illness, mood disorders, physical pain, transgender

I am still feeling crappy. Yesterday in was so exhausted after seeing the doc, I slept, had dinner, took my meds. And pretty much slept through the night. I woke up once to pee and take a horrible selfie. I felt like taking the shot of T then but i was too tired to be that coordinated. I had to wake up early to check to see if my niece went to school on time. I got mad at my phone for waking me up, snoozed, got mad again, and never got up. I woke up a half hour later and went downstairs. She wasn’t home so that was good. It is freezing out. I went back to my room and fell back to sleep.

I got up around an hour ago. I had messages, one was a provider letter. I read that but it was just for my urine test results. I still haven’t heard anything about my blood results so I sent a message. My sodium is down again, lower than it ever has been. No wonder I feel so crummy. My psych said to reduce my water intake (I am not reducing coffee!!) This is hard because I kind of am thirsty since she said it. I’ve just been taking sips with my meds. Figures not eating and drinking would knock it down. I asked her if we could lower the oxcarb by 300 mg and she agreed. I feel a little better today but still feel so tired. I was supposed to meet up with my barber to get my baking dish but I couldn’t be bothered. I am just too tired. I will get it next week.

So I guess I am to just sleep until my medical doc figures out what to do with me. The rest is helping my plantar fasciitis. Heel was hurting so bad last night from all the walking I did. I didn’t ice it just rolled a tennis ball under my foot while waiting for dinner to be ready. It really helps reduce the pain. I have been doing the app thing for my foot. My scores are better but not 100 %, dammit lol. The OT wants it above 80%, which they have been so that is good. I see them tomorrow. I haven’t done the stretching because I’ve been in a flare. Even yesterday while on the way home felt like my sneaker was going to rip the top of my foot apart. It was fun going around the house with two feet hurting so bad. Yikes!! I’ve been doing the heat stuff so hope she isn’t going to be a bitch. I also been doing the heel lift she wants so 2 out of 3 isn’t bad. My foot is still bothering me today. I haven’t had this bad of a flare in a while. Hope it settles down.

Last night some idiot called with a restricted number. I thought it might be the doctor’s office so answered. It was some document recovery bullshit. They had a document I had to sign and would I be available between such and such hours. I was yes-ing them to death. Bastards never came. Assholes. I get these calls at least twice a year and it is always we are taking you to court and we can’t give you the information, you need to call the 800 number. Okay. Scam bastards.

I am not sure where my blog writing is going. If I feel up to it, I will write. Otherwise I won’t. I just don’t have the energy. Oh, and today is day 42 of my transition. I will write a separate post for that, though it will be just a paragraph as not much has changed.

More tiredness that is sticking around

by Midnight Demon, posted in Bipolar Disorder, blogging, Chronic pain, chronic physical pain, CRPS, mental disorders, mental illness, mood disorders, physical pain

So over the weekend I emailed my repro endo doc to say I’ve been really tired and described how tired I was and could it be the testosterone? She said most certainly not. I should see my pcp. Well today has been a real fucking day so why should calling my pcp be easy. He isn’t available until January. So again, I am seeing one of his colleagues, a doc I don’t think has any brains but is playing doctor. Okay, I will see him. I flew off the handle. Fucking January? I got to see someone else as my pcp. How are you to have a relationship with someone if you only see them every 4 fucking months? And when something comes up. You have to see someone else because your doc isn’t available. That to me is unacceptable. My former doc always saw me. Hell I remember one time I had to see his colleague and he purposely found a way for me to see him once I was in the office. That is my kind of doctor.

I had therapy today and talked his ear off about shit that has been happening. He brought up a good point, people around me don’t think I am important. I almost started bawling. I think I was at this point anyway but him saying that just brought more tears. [**I am typing on my phone so if you see a typo, please tell me**]

He gets that is most likely causing my misery. My family treats me like crap, especially my mother who doesn’t accept me for who I am. She has it in her head that I am this beautiful, cute baby girl and now I am turning into a man. Well I was all along but I had to hide myself for ten fucking years because I afraid she wouldn’t accept me. And I was right.

Halfway through session, I got a wave of exhaustion. Like I was completely drained. And I still had to go home. Fuck. I came home and I swear I thought I was going to pass out. I never felt that tired before in my life. I’ve had therapy sessions and appts and stuff and never felt that drained. Something is wrong. And I swear if this jerk of a doctor tells me it is a virus, my cane is going to be swinging. I want my blood count and thyroid checked. Though more so my blood count as testosterone can cause weird blood counts.

I got my prescription today. I had to wait in like and I swear I thought my heel was going to divorce me. It hurt so bad. I was walking with my cane because I had to take the pressure off my foot. I took it out when I got to city hall after therapy. I had to rest there for a bit. Both feet were barking. I wish I had money for an Uber. I hate that I have impulsive spending. I spent my last 8 bucks on nic sticks. I am so stupid. I nicked myself pretty good and had to use a bandage as the bleeding wouldn’t stop. Just hope it doesn’t get infected as I looked at the razor and there was some rust on it. My stupid mother never cleans it right. Or at all. Drives me nuts. She has her single edge but uses mine. Brat.

I am in pain and not sure if I am going to pull an all nighter or not. I just took a breakthrough med so I hope I will sleep. I just got to keep my damn foot still. Though it was still when it felt like someone was ripping off my 5th metatarsal. Ugh. CRPS sucks. You never know what kind of pain you will have next and for how long. Last night it took until 2 am for it to settle down. Probably would have been sooner but my fucking Kindle did an update and now won’t recognize the SD card. I had to find a thing to read it on my laptop to see if it was defective or the Kindle was. So annoying.

I did the calf stretching before I left the house. My heel wasn’t bothering me until I left Starbucks. I had to leave an hour earlier so I could fucking write. I finally had time to journal. I just wrote about all my fucking aggravation with the bus and shit. I fucking hate when people block the entry of the bus and people can’t get off or on. So rude!!!!! I sat away from the jerk or I probably would have muttered under my breath. The when i was on my way home. Guy came on preventing me from getting off. Fucking asshole. No one has courtesy anymore. Pisses me off.

I did the app exercises a few times today. I had varying scores. Sometimes i did above 90 and sometimes i did below. It is annoying me. I do it three times and if i don’t improve or get the same score i just stop. No point in going on. I haven’t done the warm heat. I keep forgetting to being the damn thing to the kitchen. Though how i am to apply it once it is hot i have no clue. It is my outer ankle so kind of hard to put on. All logistics. I’ve been using a heating pad as my damn feet get ice cold and tonight it took 4 hours to get hot. Frustrates the hell out of me. My right usually gets warm before my left (CRPS foot) but it was cold in my room so took as long as my left. I think it helped the plantar fasciitis pain. I haven’t stood yet but damn my ankle is fucking killing me (CRPS).

Hope I feel tired again so I can sleep. I got to be out of the house by 8 am for the doc appt. But with this pain, I doubt I can sleep.

Guess who…

by Midnight Demon, posted in Bipolar Disorder, Chronic pain, chronic physical pain, CRPS, mental illness, mood disorders, painsomnia, physical pain, transgender

I was able to shave and shower this morning. I had a ton of time before I had to leave. I took my time getting ready. I guess the bus I needed to take to the Square was delayed as the other bus came. I decided to take it rather than wait. I figured in doing so, I would have time to write when I got to Starbucks. I had to stop at the post office and it was busy. Goodbye writing time. The postal clerk didn’t even look where I was sending the cards to, just said I had enough postage and I went on my way. If they come back to me. I am gonna be pissed.

I got to Starbucks and ordered a sandwich, espresso, and lemon loaf. The sandwich had sausage but it didn’t taste right. I ate half and then dived into the lemon loaf. It was very lemony. I loved it. I just hope when I try to make it tomorrow, I can get the right consistency for the frosting.

After I ate and played on my phone. It was time for the train. I put another 5 bucks on my temporary ticket as my pass didn’t come over the weekend. When I got to my stop, the bus wasn’t coming for another 20 minutes or so. I decided to walk. My mother needed something at Walgreens so I went in to get it. There was a line for checkout. I waited and then left to walk to my therapist’s office. I got halfway there and needed to rest. I checked the time and had 10 minutes before my appt. I rested another minute and then went.

I showed my therapist what I wrote for the pain doc. He said it was perfect. I just hope the fellow and attending see the damn paper and read it. Then we talked about my anxieties that is going on for the week. Told him about how upset my mother made me yesterday. How she can’t accept me other than what she holds in her mind of me. Told him how my family has a pedophile they refuse to acknowledge as one. Then time was up.

I walked back to the station. I had less than 5 bucks on the card. When I got back to the Square and got on the bus home, I noticed it didn’t allow no payment for transfers. That was why I had to put so much damn money on this fucking temporary ticket. It was charging me the reduced fare on every bus and train I took. Fucker.

My legs were killing me by the time I got home. I’ll probably be sore tomorrow. My mother made dinner and after eating we both didn’t want to get up. We both hurt. I cleared the counter for her then went up to my room. Mail had came and my pass was in it. Weird they had my name change as the address but not on the fucking card! Ugh!!! Card doesn’t expire until 2023. Least now I can buy my monthly pass and not have to pay per fare.

I had some stuff from Amazon come in. A friend had sent me some eczema cream. It is a lower amount of colloidal something that I have so hope it will work on the patch under my eye. I stopped at my sister’s to talk for a while. We griped about our mother being ridiculous. I didn’t tell her that she laughed at me yesterday. I didn’t want to talk about it. I told her I’d be starting T Wed.

Hope I don’t flare tonight. Last night was horrid. I didn’t sleep till 330 am. Seems every time I got comfortable my foot or ankle or both acted up. I am really tired after all the walking I did. It is cold tonight so might have to put on the fleece blanket. I took it off my bed the other night because I was looking for something. I was working in an app on my phone when I accidentally disconnected my SD card. When I went to take it out, it went flying. Damn sucker was in the pillow case on my bed. I thought it was in the void in my room and I’m glad it wasn’t. I’d have to tear my room apart trying to find it. Luckily, I found the SIMM card on my bag for goodwill. Totally freaked me out. But all is right now. Wish the makers of Samsung would use a toggle rather than a pin thing to get the card out. Stupid design.