Never thought I would ever be on so many meds for one illness. If it was for my mental illness that would be one thing. But for chronic pain there are like 4 or 5 plus patches and gels and ointments. I’m tired of taking them when flares hit. And there is nothing I can do but let the pain be a 20/10 and hope morning comes so the hell will be over. A family member once said you are on pain medicine, why are you still in pain? Because it is not the pain it was meant to be dealt with. Nerve pain is different than physical pain. Then you have the pain go away and another pops up in another place on your fucking foot or ankle. Chronic pain sucks and need different things to keep it in check and then there is nothing to keep it in check. It just is. That is what CRPS is. Complex regional pain syndrome. So I am off taking another pill that might work. And if it doesn’t or changes to something else, go through the list. So exhausting. This is why I constantly think of death. I have no strength left
Category: physical pain
Blog of the day 2 Jan 19
Pain is gonzo, like totally out of control. Since lowering my mood stabilizer, pain flares have been increasing and harder to control. They also last longer. Had enough of this shit. Fuck. Now question is who the fuck do I tell and beg them to kill me or treat me? Not looking for more pain meds (though wouldn’t mind an increase) but mood needs to be controlled before I have to go back to hosp. Not sleeping, feeling depressed then wired so I am up 20 hours. If I sleep during the day it is my crash. Nerve pain right now is nuts. Bones are killing me, all of them in my ankle and foot. I am scared this is will be it. See psych on Friday and tell her I want to try one anticonvulsant again. Not ideal but shit something needs to be tried. The mood stabilizer I am on was the last of the last. I am fucked if I have to play trial and error again. But pain feeds mood and mood feeds pain so…hoping psych can be my gatekeeper (she is better at it than my chickenshit pcp).
Saw therapist today. Found out my private insurance mh benefits suck so will be staying on Medicare as he is planning on not being a provider of the private insurance. I will be billed $10 then when he leaves them, probably whatever the 20% Medicare doesn’t pay. I am glad this sort of worked out. I just got to change insurance with my psych since it is a new plan. Fun new year shit to go through. Lease my prescription coverage is the same for now. I goofed on the T. I could have had it refilled before the new year but because my sleep cycle has been awful. I never checked it or made note of it. If I made a mental note, haha it went out to pasture. I am glad I got a planner because I am writing it on paper. Helps to see it more. I use my phone calendar a lot but it connects to Big Brother so I rather have paper. I tried to see how much my pain meds would cost but the pharmacy won’t know unless they run it through. So got to wait till next week.
I wanted to write this earlier but brain was mush and pain was just starting to get ugly. I am so tired and hope I sleep tonight. Supposed to snow tomorrow. Just a coating so not bad. My mother wanted me to do an errand for her but it can wait till Friday when I am out again. Be easier for me.
I have been sending my BFF in Canada vids of me being a goof. She loves it. Then her hubby asks why she is laughing. Man it is gonna be weird seeing her in person one day. She loves my accent. I honestly didn’t think I had one. But I played what I recorded today and oh my god. Too funny. I’m glad I can laugh at myself.
Today is transition day 92. Voice is changing. Face is not as smooth as it was so maybe hair is coming (fingers crossed). I shaved my moustache a couple weeks ago and it is just coming in. Don’t know why the sides are thicker than the middle. Weird. I also noticed my sweat is smelly. Got to remember to wear deodorant. I don’t use it much because I am in the house but lately with stupid heat system, I am either too hot or cold. I woke up a couple times so hot I thought I was on fire. Hate winter. Think I got to open the window. Maybe that will even things out. I need a cold room to sleep. Here is a pic of two kittens. One is ginger and the other is black. The ginger has its paws around the black kitten’s head, like it is hugging. The black kitten face is like I know now let me go. Perfect depiction of my BFF and i. I love that pic. One day when we see each other we will make it. Haha

New Year 2019
I may throw in some goals but I really don’t expect them to come to fruition. I’ve been having a hard time sleeping past few nights. Pain has been making sleeping at night impossible. So I sleep during the day to wake up at night to stay up all night. Fun cycle.
Last night I was trying to sleep. I would slightly doze and then wake up in pain, either my foot or ankle or hip. 3 am my hip was hurting because my body was one way and it wanted to lay flat rather than on my side. Had to use a heating pad which needs replacing because it is worn out. It doesn’t get hot like it did only on high setting. So I had this on my hip. And waited for pain to calm down. Then put of the fucking blue, my foot/ankle explode and I am instantly suicidal. Like I want to kill myself right this second. I didn’t know how but as I lay there immobile, I thought of ways. And I swear if I could have moved and acted at that moment, I would have. I was so pissed off. I was a lot of things i don’t remember now nearly 24 hours later. I took an ativan when these thoughts and impulses passed and I could move my hip without screaming. I think I might have taken another pain med too because I was in pain. Around 6, I took 1 neurontin hoping for an hours sleep. It never came. My brain was just fantasizing all these things I had to do today and just wanted to say fuck it and sleep. Did I do that? No.
Around 1030 I got up to start the day. I had to cook 6 pounds of chicken wings for my sister’s party. I had two glasses of coffee before I started. I had to cut the chicken, wash, then cook it. It was falling off the bone when it was done and it was way too early for people to come in. So it just sat on my sister’s counter because my mother had to use our oven for her stuff.
It was a good party. I had two glasses of spiked eggnog. Hoping that would dull the physical pain. Nope. I had stuff to eat. Talked with my cousins. The pain started to get worse. I could barely walk. Noises were affecting me severely. Like I couldn’t handle the loud talk of anyone or the screaming of the two babies or my cousin playing something on his phone. It was just making pain worse. I left. I said happy new year good bye. I got upstairs and didn’t know if I was going to make it. I thought the eggnog was going to come up. I took some zofran. I was late with my meds so took them. I could not lie down. It cold in my room and my foot was so swollen my slipper made an indentation mark. And it was ice cold. Turn on broken heating pad! Luckily it never got painfully cold but did get painfully hot. I am still trying to sleep and failing. I should be tired because I technically have been awake since 30 Dec 7pm! I am not fucking tired. I should be. And after this, I am shutting off the lights and trying for sleep. I realized I probably been having problems because I turned up the heat a degree. Bad choice. I need cold. I should have known when I was sleeping with just my sheet on it was too hot in my room.
I don’t have any 2019 goals like I said. I wanted to end my life 24 hours ago and it is still fresh. I emailed my psych but she is out of office until Wed so probably not going to get a response. I don’t need the hospital. I really just need to stop having flares or have meds to control flares. And then longer I don’t and the longer they last, I am going to be a suicidal maniac. I am hoping it was just the stress of the holidays but I got huge financial worries this month. I got to pay for my meds which I knew but still impulsively bought shit off Amazon. I won’t know what anything costs until later today, I hope. I still won’t know if my therapist is a provider until I see him Wed. And then I will probably need to decrease our sessions because I can’t pay for them. Fun pit in my stomach right now. And then I worry my pain meds won’t get covered or T. We’ll see. I need a refill sometime this month. But if it is really expensive, I don’t know if I can afford it.
So more stress = more pain. Lovely cycle.
Blogging from phone: hectic day
My grocery delivery was late. I hate a 10-12 slot and it didn’t come till after 12. I quickly put away my stuff. I had 4 large cookies to finish off the batch I made a couple days ago. I will be making another batch this weekend as I got the flaxseed meal.
I sat on my bed for 10 minutes figuring out the bus schedule and time it would take to get dressed, do an errand, and then wait for the bus. I really didn’t want to go out. But I needed to pick up my scripts and get my blood drawn. Off I went.
I didn’t being my bag with me. I just grabbed my coat and scarf as it was cold out. I had coffee at home so I wasn’t going to Starbucks. Bus came like 20 minutes minutes while I was waiting. I was already exhausted. I got to the hospital and went to my pcp’s office. Then I went to the blood lab. My doc didn’t put in the order. I had to wait an hour for all to be done. I got a new phlebotomist who was afraid to draw me so another guy that I knew did it. Ugh. I left and then went to the store. I had to pick up stuff for my mother and also wanted steak for dinner. There was no steak I wanted. I left to catch the bus home.
I went to the pharmacy to fill my meds. They didn’t have a full quantity. I would have to go to another pharmacy. Ugh. Tomorrow is going to rain so now I will have to get wet. I am not happy. I wanted to sleep tomorrow. Least the temp will be a little warmer.
I had my mother make some eggs for dinner. Then I got hungry for the 1st time in 2 months. I ordered some steak tips and mozzarella sticks. It was good except the steak had a bunch of peppers and onions with it. Yuck. I saved the leftovers. Now I am quite tired. My ankle is killing me because while taking off my pants to change into my PJs, my ankle got caught and felt like I was ripping it off. It still has not calmed down. My mother had me do the few dishes in the sink. I debated on blogging but felt like I had to.
My sodium is at the same number. I was shocked the doctor called me with results. He was very nice. I didn’t know my psych was out of the office. Oh well. I decreased the mood stabilizer again so am taking 300 twice a day. Hopefully in a few days my energy comes back. I hope I don’t have to go off my med. I see my psych next week so we’ll see how I feel.
I bought a mango habanero sauce I want to try for my chicken wings. I forgot to get then while I was out today. Maybe I will get them tomorrow. I want to have them for the New Year’s eve party my sister is having. I have to buy a lot of wings. Not sure I can do it or afford it. All depends how i feel.
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