Hospitalizations: Fifteen Minutes of Fame

Hospitalizations: Fifteen Minutes of Fame

I had therapy. My therapist read my “Brick Wall” blog. She asked if we could talk about the bricks and we spent most of the session going over them. I also told her about my book problems, that I think it is disorganized. She said that it is her most prized possession, so I think she is biased in my writing abilities. She said my short story was heartbreaking to read. I haven’t gotten too many likes on it. I may have to play with the tags a bit. Anyway, talking about the bricks was difficult because it lead to where I was in my last hospitalization, where I wrote the story. I told her how no one was looking at the bricks, that they were just looking for the cement to dry before sending me home, so to speak. That is all they cared about. Stabilization and discharge were the key focus of what they wanted to do. What brought you in the hospital, they didn’t care about. Or if they did, it was always, “we’ll talk about it tomorrow” but never did. I hated that my needs were ignored and patronized. I flatly told them I was going to kill myself when I left the hospital during my initial few days when they wanted to discharge me. And it was true. I needed help and was going to stay inpatient to get that help. Except the help came back to me looking for help from outside services. The social worker that was working with me didn’t care about my needs. I ended up having to call places to look for outside support. I tried to get it but never had a call back or even an email back, though one place the email came back as undelieverable. It was a trying time. I wanted to kill myself so badly and yet I was supposed to make all these phone calls to show that I wanted to live? To do the work my team was supposed to be doing? I just don’t understand their mentality. Yet it has been nine months since I left the hospital. I am still here because the anti depressant they put me on really help stabilize my depression. Too bad it no longer works. I stopped taking it in December.

My therapist thinks I should write a blog about past hospitalizations and current ones. Thing is, I don’t remember much. I know things are different today than they were back then. For example, there are no longer any outside passes given. If you want outside passes, you are basically discharged. When I was in the hospital in August, they wanted to give me grounds privileges. This meant that I could go out for staff walks. I told them adamantly no because I was scared I was going to run. They gave it to me anyway. Granted that at the time, I was in an AFO so I know I wouldn’t get far, but they still took that chance of letting me go. Stupid, I tell ya. I should have gone away from the group and tried to escape. I don’t know what that would look like but I know it wouldn’t be good on either side. I would most likely get reprimanded like a child, even though I am an adult. But that would be on them. I told them I would run and if I did, it was on them, not me.

I remember a time when I was in the hospital 21 years ago. I was severely depressed and suicidal. I had attempted suicide and was hospitalized against my will, in fact the admitting staff forged my signature on the consent form. I went through my records after discharged. Anyway, back then they had ground privileges, which meant you could leave the unit unaccompanied by a staff person. Just as long as you stayed on hospital grounds. Well, I decided to walk around the block after working hours and got “caught” by off duty staff. My privileges were revoked the next day as I broke the “rules”. I never kept my privileges too long. I always did something to revoke them. One weekend I had to beg for an outside pass just to pay a bill (I was there for more than a month and if I didn’t pay the bill, my phone was going to be turned off). I told them I would be back within an hour and I did. It was the first time they trusted me to do this. It was tough because I was so suicidal and they weren’t going to let me try again, hence why my stay was 2 ½ months. That was my longest time in the hospital. It did help me but the demons were still there. I had major issues that I still don’t talk to anyone about, not even my current therapist. It’s just too scary.

Last night I was looking for former therapists. I came across one, Dr. B. She helped me probably more than all the rest. She was the longest therapist that I have seen till that point, three years. All the rest of the therapists that I have seen were year or less. I am going to send her my book and email address. I wrote about her in my book. It was hard not to include her because the opening introduction has her in it as that was my first serious suicide attempt. I had made other attempts before that one, but this one landed me in the hospital and then I was there for a long time. That is when you had good care and one on one contact with someone. Now they have these “teams” where there are all the staff from the unit meet with you for fifteen minutes or so and then decide what to do with you. Fifteen minutes to decide if you need further stay or discharge. It is nothing like the care I had 21 years ago. You met with your inpatient therapist, then a social worker, and then your contact person who was a staff member for that shift. This no longer happens and it’s sad. No longer do you feel safe in the hospital or cared for. It is the end of the era for hospitals. I will never go back, no matter how suicidal I get. They can just kiss my ass goodbye.

Pain and suicide

I started off my day in pain, around 0400. I hate waking up in pain. I stayed up for a little while and finally gave in to taking pain meds around 0800 when I just couldn’t take it anymore. I texted my therapist and she gave me a time for today. I really need someone to talk to. I feel like I am losing my mind with this loss of sleep. I went back to sleep after I had breakfast and the pain meds kicked in. I had weird dreams about my psychiatrist. We were on a boat and she wanted to give me a cortisone injection in my hip. That was the first dream. The second dream was also on a boat but other than that, I don’t remember much. What was weird, is that when I woke up, my hip was hurting me. I think I need to go back to physical therapy to get it looked at. It has been bothering me for some time now, since November of last year. I sneezed and pulled my back out. It took me a month to recover and then I sneezed again right before Christmas and took it out again. I have been limited in what I can do. Today I walked to Walgreens which is only a block and half from my house. By the end of the block, my hip was in agony and I didn’t think I was going to make it but I pushed through. It got a little better by the time I reached the store. I only went in for a couple of items and by the time I reached home, I was still sore. I haven’t done any lifting or sneezing the past few days so I am not sure why my hip is bothering me so much. I know it’s muscular because if I rub where it hurts, there are knots there. I just hope that it’s not the beginning of getting my nerve condition again. I have no other symptoms, like radiating pain down my leg or increase in loss of my bowels or bladder to make me think I am in trouble. But the thing with CES, Cauda Equina Syndrome, things can escalate quickly and without warning. The main reason I don’t want to make a fuss about it, is that I know most physical therapists don’t understand nerve injuries. Yes, muscle pain is common in back injuries but my back muscles have been injured because of nerve damage. That is why my hip goes out when I have a horrific sneeze attack.

My foot still hurts. It has been hurting more since I came back from the store. I can’t stand that I am still having trouble walking after all this time. Last night, I had swelling, severe pain, and the veins popped out in my foot. I don’t get how this is not CRPS, Complex Regional Pain Syndrome. I know the skin changes are not that drastic. But then when I see a doc, I don’t have the worse pain of my life. I might be a 3-5 on a scale of 1-10 when I see a doc. What annoys me is that my PCP doesn’t believe that I have this condition, even after three doctors have told me I have it. It just makes me want to kill myself in frustration. Severe pain always brings out the suicide part of me, not like it isn’t already there to begin with. The pain just gives me the little push I need to think about it more. I just feel trapped. I know that if I kill myself, more than 115 people will be crushed. The people most devastated will be my family and psychiatric team (therapist and psychiatrist). It is this reason why I haven’t attempted. I think that if I had a place to go to, I might be more willing to try. I don’t want to kill myself at home because I don’t want my family to find me like that. But I can’t afford a hotel room and I can’t risk someone finding me in a public place, like a park or something. I can picture myself going through with any of my methods that are running in my head, but I just don’t have the guts to actually go through with it. I am pathetic.

Brick Walls

7-Aug-14 Brick Walls

I am currently on a psychiatric unit in a hospital. I’ve been here for a week now, with no hope of getting out anytime soon. I am here because I am profoundly suicidal. All I see are brick walls surrounding me and they keep on closing in on me. It’s like a prison that only I can see. I am surrounded by these bricks and no one cares how high they get. And they certainly don’t care how they got there.

I want to take my life because I am stuck, just like these brick walls. The cement has hardened each brick into place so you cannot move it. My thoughts of suicide have also hardened to the point where they don’t budge. I feel very hopeless that this hospitalization will not help detach one of these bricks so that I make break free of the confinement I feel. If enough bricks fall, I may see the light at the end of the tunnel. But I doubt that will happen. I never see the light for long. I am always in a dark place. I am always feeling hopeless. And hopelessness and suicidal thoughts are not a good combination. They seal the cement and lock me in to this confinement that I am in.

The doctor and staff are trying their best to keep hope alive for me, but I just don’t see it. All I see is the brick wall that is impenetrable. Nothing or nobody can get through it or to me. It will take more than a jack hammer or two to get through to me right now. And it seems that no one owns one. The staff is too busy to care about the bricks. They just want the cement to fall to force me to see the light as the bricks become loose. Just so they can discharge me. They don’t care how the bricks were formed. And this hurts because no one takes the time to see how much I am hurting like they used to.

I have been trying to stay in the moment but my moments are just filled with suicidal thoughts and feelings. They are also filled with plans on how to end my life. Each thought makes the brick wall stronger so no one can breakthrough. Each brick has been mounted with feelings of inadequacy, shame, indignity, depression, hopelessness, worthlessness, and unbearable pain. Pain is the biggest brick. It lies in the center surrounded by the other bricks that I just mentioned. It exceeds all others in thickness and size. It is killing me, literally and physically, to be in unbearable pain all the time. The pain stems from just left of the sternum of the chest wall and captivates the entire left side of the chest cavity. It is a pressure felt day in and day out. In essence, it is like a ton of bricks weighing on my heart.

As the cement hardens around the brick, making it so difficult to breathe, the pressure on the chest increases. No medical tests exists to identify this weight. It’s not visibly present. That makes it difficult to explain without the feeling of sounding crazy. Who is going to believe a suicidal person that there is a weight on the chest when no one can see or feel it? It is not measured by tests or electrocardiograms. It is just a heaviness that fills your soul. And the soul cannot be seen or felt. Nor can it be measured. No one’s pain is the same. Each is unique to that individual. And my pain is what is strangling me in this moment of time.

The pain is always present in times of despair. It ruins any hope one might have and increases the weight of the bricks bearing down on you. Nothing alleviates this pain. There are no pills that can ease the pressure or painful despair. It’s ever present and deepens the despair because no one understands it. All the symptoms of depression and suicidal thinking makes it very difficult to treat. And the longer it lasts, the higher the brick wall is built. Will the doctors and social workers have what it takes to help bring down the brick and mortar? Very unlikely. They don’t have the time to really get to know me, much less help me. I have resigned myself to stay within these brick walls until they envelope me so I can no longer breathe. Each day they move closer, causing me to feel more isolated and the feeling of suffocation grows stronger. Love doesn’t have any effect on these walls that have surrounded my heart. My heart has become stone a long time ago. Only negative feelings are allowed to pass through. I have given up on positive feelings ever passing through my little barricade. It took years for the brick wall to be built. It might take years to be torn down. But the suicide demons won’t allow that. This time the brick walls will win. I no longer have the energy to chisel my way out of my own prison. But then, I am in a psych ward where chisels are not allowed. You just expected to go to groups to cope with the demons rather than allow them to fall.

And because no one knows the depth of my prison, I am here for a long time, in solitary confinement. The walls are dark and gray, just the way that I feel inside. I doubt I would ever get parole from this darkness that fills my soul. If I do, it is only for a short time before I am back in solitary. The light barely has a chance to touch me before everything becomes dark again. That is why I don’t trust happiness or feeling good. I much rather be content about things than feel happiness. Happiness, to me, is a fleeting emotion that is hard to hold onto. It is slippery like silk, never lasting more than a few minutes and devastating when it leaves you.

So I sit here in my room, surrounded by darkness so the sunlight won’t come in, staring at the brick wall and it staring back, trapped in my own prison.

Cinco de Mayo 2015

Cinco de Mayo 2015

I got my S’mores frappucino with a shot of espresso. I had to have a real caffeine kick. I didn’t think I was going to go out because all the stuff I took for my bowels suddenly worked, all morning, for me. But things settled down after lunch and I was able to go out.

Had therapy and my therapist doesn’t remember reading the blog I sent her last week. The part she did remember was the nest part, which to me is similar to a hope box. She didn’t call it that and said she wanted to have things remind me of how important I am to people and such. It’s hard to do that when I am still in an environment that doesn’t fully support me in my illness. Today, I told her that my mother made me feel bad because I don’t do things “useful” around the house. My mother wanted me to put her breakfast plate in the sink to be “useful” and it made me upset. I don’t get why my mother has to be mean to me. I feel that giving her half of my paycheck every month to cover the bills of the house should let me live here, too. I just don’t get it.

I got really angry today so I posted on Twitter my feelings. A fellow CES sufferer saw a doctor today for her disability claims. He discounted her having CES, Cauda Equina Syndrome, saying she HAD CES, but once you have surgery, you no longer have it. That infuriated me. Infuriate is my word today as I have used it several times. I don’t get how a doctor can say something like that. If she had a stroke, the result would be the same. I just don’t get it. I really don’t and the more this happens, the more I distrust the medical profession. To me, despite their high degree, are all bozos, unless proven otherwise. I have yet to find a doctor that helped me with my ankle. No one wants to believe that I still have nerve damage in it. That the weakness is just from tendonitis. Just pisses me off, big time. So I have to take pain medication to quiet the pain. Normally, tendonitis heals with rest and therapy. I have been resting for three years now and I still have flare ups of pain. And no one can tell me why I am in pain or why my ankle swells up and all the veins in my foot pops out when I am in severe pain. Course, a doctor has yet to see this happen because it only happens in the after hours, late at night with the pain so bad I want to kill myself. It doesn’t flare up during appointment hours or even during an appointment. I am hardly in pain during the day, usually. But after seven in the evening, almost every night, the pain will rise and if I don’t start taking pain meds it becomes out of control. I have been fortunate that lately I have stayed on top of it. I am kind of lucky that I no longer work because if Friday was any indication, I would not be able to walk and stand eight hours a day. I would be in too much pain. Friday I walked more than I should have and paid heavily for it. Only reason I walked too much was because the eyeglass place made my glasses wrong. If the idiot explained to me what he meant by distance, we wouldn’t have had this problem. I still haven’t gotten my glasses back yet. I will call tomorrow and find out when they will be ready. I need them to read Dostoevsky. The glasses I am currently wearing can only go so far and then I start straining my eyes to see with them. It sucks having bad eyesight. I have been wearing glasses since I was in first grade.

My therapist and I talked about the chat that had me upset Sunday night. It’s like, am I smarter than all these clinicians and therapists in this chat when it comes to suicide prevention? I understand they want research and evident based treatment, but the research is there. If I know about it, why don’t they? I don’t get it. I don’t even hold a bachelor’s yet I know what needs to be done for a suicidal patient. Understanding, compassion, empathy, and the client telling his story. Treatment can be DBT based or CBT. I understand not everyone is trained in these modalities. There is a “short” kind of CBT, Cognitive Behavioral Therapy, that seems to help veterans in as little as five sessions. This is from what I have gathered on the internet vines and through the research of Jobes. So why do they not trust these kind of therapies is beyond my understanding. If they are looking to predict a suicide, they will have to wait a really, really long time for that to happen. You can’t predict a suicide anymore than you can predict cancer in a patient. And if this prediction is what they mean by prevention, they don’t understand anything about suicide at all.