Tag: back pain

Saturday Blog 20062020

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Saturday Blog 20062020

I just woke up about a half hour ago. I finished off the second piece of steak that I made the other night. It was good but I will never buy a marinated steak again. It takes too blah and definitely needed steak sauce to eat it. I enjoyed it none the less. I made iced tea and had it with my meal. It started to get hot in the kitchen so after I finished, I retreated back to my room where it is much cooler. I need to shower today and probably will after I write this blog.

Last night I was journaling and wrote some thoughts about my therapist and how she has been treating me. I feel like she wants me to dump her for some reason. I think that is what she wants. I see her on Monday and will discuss this with her. I feel it is important because she doesn’t want to have contact outside of therapy and that bothers me. I know therapy is the place to talk about stuff but sometimes you need some contact outside of therapy to know you are doing okay or at least to know there is someone who cares. I am feeling like she doesn’t care about me and thus wants me to dump her. I don’t know how real this is and I won’t until I talk to her on Monday. But it was good getting the feelings out on paper.

I need to shave. I think I will do that before I shower. I also need to shave my under arms. It grows like a weed in there. Seems like I shave it and then I have to do it again in a week or so. I hate all this hair that I am having. I broke out with cystic acne on my chest and upper back. Hurts like hell. I don’t know what to do for it. I might have to ask my doctor for something because the OTC stuff isn’t helping this kind of acne. I just hope I don’t have to see a dermatologist to get some relief. It could be a while before I can see someone. I just hope my back doesn’t act up while I am shaving. Lately if I stand more than a few minutes, it cramps up on me and I am unable to do anything until I sit down for a few minutes or sometimes more than a few. I can’t wait till I start PT so I can get the kinks out so I can live my life again without pain in my back. I really hope the PT can help me with this. I know it isn’t going to be an overnight thing but if it helps, it helps.

tired of feeling exhausted

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Tired of feeling exhausted

I didn’t sleep well last night. I woke up around midnight and then woke up at 4. I couldn’t go back to sleep. I just lay in bed and half snoozed. I kept using my damn shoulder as a pillow so would wake up in pain or my arm was asleep. I couldn’t find a spot that didn’t include my shoulder no matter how many pillows I put under my head. I tried going back to sleep once I took my morning meds but I didn’t succeed. I made iced coffee and it was good. I like the ice function on my keurig. I am definitely going to use it this summer.

After I had my coffee, I checked the bus schedule to see when the next bus to the Square was. I just missed it so I fiddled around until it was time for the next bus. I was so tired, I didn’t really feel like getting dressed but I needed to get my blood work done. My back was giving me fits while I was getting dressed. I knew this wasn’t going to bode well for me. I am so tired of being exhausted all the time. I had gone down the stairs to leave when I realized I forgot my mask. I had to go back to my room to get it. This made me feel more exhausted. I nearly fell asleep on the train to the hospital. I just couldn’t keep my eyes open. I had to stop twice while walking to the building I needed to get to because my back was spasming. After I got my bloods done, it took me a while to get back to the station. I just felt like I was walking in mud. Every step was so tiring.

I came home and had something to eat. I hadn’t had anything to eat most of the day. All I had was coffee. I had a cold cut sandwich and some ice cream. I tried to eat the ice cream fast because it was hot in the kitchen but it was too cold for my teeth. I had to let it melt some. I wanted to go to the store to get Oreo ice cream but I was too tired to go. It would have killed me and I was already expended. I nearly collapsed after I ate. I tried taking a nap but I couldn’t relax enough. I just laid down and closed my eyes. I shut my light off and tried to rest but then my blood results came in and I had to look at them. My white count is normal but my inflammatory marker isn’t. I am not surprised. I know I have a lot of inflammation going on with the CRPS. Sadly, there is nothing they can do to bring the level of this marker down. Nothing to keep it from going up either. Just one of the things to keep an eye on.

appt with neurosurgeon

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Appointment with neurosurgeon

I took a shower today because I wanted to get the loose hairs from my haircut out of my head. I also didn’t want to stink. It was hard because I was exhausted and the whole process of showering made me more tired. I couldn’t nap though so I just rested in bed before I had to leave for my appointment.

I was thrilled my surgeon said I didn’t have to have another surgery for the fluid. He is going to keep an eye on me and my white count. I was to have bloods done today but the lab was closed so I will have to go tomorrow or Friday. Depends on what my energy levels are tomorrow. I am still exhausted so I hope that I can sleep well tonight. I am to contact him should something else arises. I am cleared for PT so I will be making my Ride appointment tomorrow for the appointments that I have. I am so glad I can start PT again. I am so deconditioned and even he said that I would be as I haven’t done much since surgery. This complication has wrecked my recovery.

Right now I am really tired and want to go to sleep but it is too early. I go to bed now I will wake up around midnight and then be up for a few hours, totally throwing off my sleep more than it already is. I will wait till my meds kick in some and I am totally brain dead. I also got to keep an eye on my bladder as it hasn’t been functioning the way I would like it lately. I am back to voiding on my own but I don’t know how long that will last. I haven’t felt like I have an empty bladder when I do void so I probably will need to cath before going to bed. Back is killing me so when I am finished blogging I am going to lay down and just read for a bit. I haven’t read since Friday. I wanted to finished the Linehan book this weekend but my brain had other plans (do nothing apparently!) I want to start the Dante Club by Matthew Pearl. It seems like a good book to read. I have read his other books and like his style of writing.

I goofed on my Powerade order. I accidently ordered the “zero” kind of white cherry. It has sucralose in it which I do not like. It is drinkable but I rather have sugar in my drinks rather than the fake kind. I have to be careful when I order more next time. I had dinner and it was a good piece of steak that I ate. Why am I still hungry?? I might make a burger.

All day my left leg has been hurting me. The only time it didn’t hurt was when I was meeting with the surgeon. Damn thing. I don’t know why it is angry today. But my back is killing me as well. I hate that I am in so much pain. Hope that my night meds help ease some of the discomfort. Surprisingly, my CRPS ankle/foot has been behaving. That is the weirdest thing that has been going on the past few weeks. I don’t know if it is because something else is going on with me or what but I will take the pain free days. Just hope I haven’t spoken too soon. That will suck.

listening to Taylor Swift

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Listening to Taylor Swift

I decided to listen to Taylor because it has been a while since I listened to her music. I really love listening to her. I am listening to all her music that does not include her recent album. Her lover album is so different from her earlier music that I couldn’t put it in the playlist. It is not an album I like.

I spent most of the day sleeping. I again had an early morning awakening and couldn’t go back to sleep. I was tired most of the day. I went to the pharmacy to pick up my meds. Seems I am there every other day for one prescription or another. I hate that I am on so many meds. My antidepressant med I take two pills to give me a dose that helps me. I am surprised that it hasn’t made me nauseous yet. Usually they make me sick after a few months. But I haven’t had too much stomach problems yet. I am glad because being sick all the time is no way to be.

I have decided that I am not going to text my therapist about anything anymore. She is just not receptive to it and can careless about how my particular day is going. She doesn’t want me to become dependent on her yet she wants me to be open with her but only when we meet. It is still difficult to talk via the computer and I blank out. I try to say something, anything and nothing happens. It is like the thoughts are just sucked out of my brain. I hate that I am not talkative. We have been having a later time in the day and it has helped with me being awake during sessions. My brain still hasn’t woken up though enough to talk for 45 mins. I am sure we will work it out but I am so tired of having silences during our time.

I need to shave with my razor as my electric razor doesn’t seem to get that close as I would like. I also need to trim my sideburns. I completely messed up my mustache when I was trying to trim it so I had to shave it off. I hated to do it but the damn trimmer kind of did it for me. I think I need to try with a razor next time. I want to get it in a thin line but I am not sure I can do it. I will have to play with it. I want to get it like my uncle’s mustache was. His was always neatly trimmed. I really miss him. He probably would not accept me as a guy but I know he would still love me. He was a good man.

I am going to try and shower today. I don’t know if I will be successful as I am really tired and have no energy. I know the shower will suck whatever energy I have. I hate that it takes so much effort to wash up. I miss the days when a shower was refreshing and not a hassle. I envy my sister and nephew who can take a shower without a problem. I have sort of decided that I would take a selfie if I showered to show off my shower head hair. It is usually all messy and stuff and looks kind of cool. I don’t remember the last time I took a shower so it has been a while. If I shower today it will be the last time I will have long hair on top. I made an appointment with my barber for next week to have my haircut. I want the top short again. I can’t stand it being long anymore.