Tag: chronic illness

new music Friday

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

New music Friday

My top favorite artist, Mary Chapin Carpenter, came out with a new album today. It took some getting to buy as the Amazon music app sucks. I swear with each update it gets worse. I got the album and am listening to it now and there isn’t a bad song. My only complaint is that one of the songs has like a 2-3 minute music after the song ends. I hate that. It already has a minute intro.

I didn’t do anything today. I wanted to fix my bed as the foam topper is coming off but I still haven’t done it yet. I just am so damn tired from being in pain all day. Ankle has been rough all day and my back has been cramping for some reason. I am so exhausted and I have no reason to be. But being in pain is exhausting. It is so tiring. It just takes so much mental energy to deal with it.

I got a headache and I am not sure if it is because of the fluid or if it is the beginning of a migraine. I feel sort of nauseous so it might be migraine related. The pressure has gone up so I wouldn’t be surprised if it is a migraine. I will be going to bed soon. I can’t stay up as my eyes are so heavy. Trying to stay awake to finish this blog but it is so hard. I feel like I am in a cloud. I didn’t eat much today. I haven’t had much of an appetite.

I wanted to listen to Hamilton tonight and keep track of the Sox but I think I am just going to go to bed. I will listen the musical tomorrow. I might watch it again. It is a good show. Sox are playing the Blue Jays tonight. I hope they win. It will be the second game in a row they would have won. Their record right now is 4-8. I hope they get better but I am not hopeful as the pitching just isn’t there.

random thoughts 05082020

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Random thoughts 05082020

I went to buy some dark chocolate today and was rewarded with Godiva ganache hearts, which is the best of the best dark chocolate. It is so fricken good. I bought two packages. I could have bought all four that were there but I didn’t want to be greedy. I came home and I was exhausted. I made a bacon burger for lunch and then tried to nap but couldn’t sleep. I had coffee before I went to the store and it just made me tired. Tomorrow I might go to Starbucks before therapy and get a macchiato. I am in love with their Caramel Cloud Macchiato. It is so good. I think that will be good for me to go out. I am getting cabin fever staying inside all the time.

I wanted to shave and shower today but I am just too tired. Plus my ankle has been acting up so standing is an issue. I will try to do it tomorrow before therapy. I don’t know if my therapist has decided to meet twice a week because I am off my meds or what. But we have been the past week. If I end up seeing her Monday, I will know she really is concerned about me. I sent her a message that I thought made sense but when I read it, it didn’t make any sense whatsoever. Have no idea when I sent it. I think it was in the early morning hours when I couldn’t sleep the other night. I should have written what I wanted to and be done with it but my brain went a different direction.

Sox are playing now. I don’t care to listen to the game. They are playing at the Trop and I hate that ballpark. Sox are off tomorrow. Two of my favorite players are not playing tonight because they are in slumps. Both are left handed hitters and tonight’s pitcher was a lefty so I understand why they gave them the night off but it sucks because there are only so many games. The sox are not doing well anyways. I think their record is like 4-11. Least it was the last I checked. It has been good baseball has been back but it isn’t the same without fans at the game. The noise level isn’t the same and the energy the fans bring is obviously not there. Kind of sad.

I really like Taylor’s new album. My stupid phone only downloaded 14 of the 16 so I had to manipulate the settings to get the two songs I was missing. Of course one of them would be the number one song in the top 100 hits. I am so happy she made history by being the first artist to be number one on Top 100 Hits and Billboard’s 200. I have a feeling she will be there for a while. This is such a good album.

I hope I sleep tonight. Last night I woke up to pee at like 0330 and couldn’t go back to sleep till 5ish. It did me in as I was tired for most of the day. My level of depression has been high today. Gender dysphoria has been in high gear the past few days. I really hate my body right now and I don’t want to grow facial hair until I get my top surgery done, which is going to take some doing. I feel stuck and I guess I am as I can’t move forward with my transition until I lose weight. I don’t think it is fair that I have to lose weight to lose the things on my chest. It makes me so depressed. I hate being in this body and what is worse is that I have grown hair on my chest so I have hairy breasts. Totally fucks with me. Part of me wonders if I will be alive long enough to have this surgery. Right now I feel like I will be better off dead than continue to live the way that I am living right now.

Saturday Blog 01082020

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Saturday Blog 01082020

Rabbits! Rabbits! It’s the first of the month and I am not sure why people say rabbits, I was told once but since forgot. So I am saying it in case it will bring me luck this month. I haven’t done anything today but sleep. I just have been so tired. I slept good last night so I don’t understand why I am so tired. I didn’t eat much today. I just had graham cracker cereal. It is all I really wanted today. I might make a burger. I don’t know yet. I might make turkey bacon instead. I haven’t had it in a while.

I am feeling tired and depressed. I don’t feel like doing much and I am so stressed out about the upcoming surgery. I have been having anxiety attacks all day because of the stress. I feel like I can’t catch my breath. I’ve been clenching my teeth as all of them have been hurting me. I wish there was something I could take for the pain but there isn’t.

I need to shave again. I have decided not to let my beard grow in. I like it when I clean shaven. I just need to trim my mustache. That is the only hard part because I am not skilled in doing it. Hopefully it will come with practice.

I slept all day and I feel like I can go back to sleep. I am trying to stay up for a bit so that I can go to sleep when I take my meds. I feel so disgusting. My stomach is bothering me and not sure why. It has been hurting for the past two days. I know it cannot be because of constipation because my bowels emptied the other day and then I got diarrhea.

Monday I got to call PT and change the appointment to a virtual visit. I really don’t want to go but I got to do something while I am waiting for surgery. I ordered Chinese food because I wanted it. I really don’t feel like cooking.

I got Taylor Swift’s album stuck in my head. I might hear it after I have supper.

another day of excessive heat

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Another day of excessive heat, another day in my room

I wish I had energy to go with being cooped up in my room. I might actually get some stuff done but I have no energy. I again didn’t sleep or slept with weird dream of masks, gaming, and social distancing. I dreamt weird things and the dreams seemed to go on forever, like I was stuck in them unable to break free.

I finally got my pain meds from the pharmacy. My brother in law picked it up for me. I am back to being medicated. The barometric pressure hasn’t really been up nor down but the humidity is what has been bringing about pain waves. My ankle has been so sore. It has been alternating with severe pain. I need to wash my face and neck and chest because I have a fricken breakout. I woke up with three zits per side of my next and my chest is just a disaster. I got two under the skin zits that hurt so bad on my face where my beard was. I had to shave it off. I feel cleaner now and less sweaty.

Ankle has started up. I shouldn’t have said anything about it a little while ago. Feels like someone is digging in the side of ankle right at the joint. No matter what position I put it in, it hurts. CRPS is a bastard. So I am trying to write another blog for the second day in a row in wicked bad pain. Yesterday I was able to write without pain and more than 1100 words. My word count right now is 276 so I have some typing to do. I just don’t know if it is worth it. I feel so down with every blow of pain my ankle is giving me. And it isn’t just my ankle. The foot is also hurting. Feels like someone is trying to grab the metatarsal bones out from where they lay and rip them out.

I need a haircut. I wanted to get it done Friday but hell was unleashing so I stayed in. I was really tired that day anyway. Today is Sunday so my barber is off. I will try and get my hair cut tomorrow. Might be a sacrifice to the heat gods. I got another heat advisory warning and nearly died. WTF is it going to cool down??!! I am staying in my room until it is cooler. The house wouldn’t be bad if we had AC but we don’t so it’s murder. I am really struggling to write today because of pain. I just can’t get a clear head. I ended up washing my face and chest because I wanted to put the acne stuff on them. My neck has zits too, which hurt. I hate when they are on nerves. I just want to sleep right now. It is almost med time so I will wait until then to turn in. I have been turning in early the past few nights but it hasn’t helped me sleep better. I just have weird dreams about Covid and masks.

I am hoping to get called from uro to have urodynamic studies done. I called last week but no one returned my call. I also put in a referral for the pain clinic seeing as things are opening. If not then maybe I will get a virtual visit with someone. My ankle has been a real pain lately and if I can get a handle on the pain I can increase my physical activity once this hell has frozen over. I am not leaving my room except to use the bathroom and eat. And shower possibly, which will be the goal tomorrow.