Tag: complex regional pain syndrome

Out of memory

by Midnight Demon, posted in Bipolar Disorder, blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders, suicidality, transgender

I had 21 updates to my apps on my phone and nearly half of them didn’t go through because I don’t have enough internal memory on my phone. I just spent the last half hour trying to make space and didn’t get anywhere. Will have to go through my apps and see what can be transferred to my external memory card.

I had such a hard time last night that I barely remember freaking out. I didn’t get discharged today as it was too soon, I’m suicidal, and they want to see if the new med works. I wish the doc I had today was the regular doc. He is so easy to work with. He changed the med order so I can have one of my pain meds every 6 hrs up to 4 times a day. I’m glad or I would have insisted on being discharged. 

I so wish I brought some shorts rather than long pants. It’s hot on the unit as the AC isn’t working well. I hate being hot. The only pair of shorts I have are my Jean shorts which is not very comfy after a while. 

I’m still in a lot of pain. My ankle crapped out on me in the morning so had to wear the AFO the rest of the day. Even then, it didn’t stop my ankle from hurting but did prevent me from having to limp. I’m really fluctuating between feeling ok and intensely suicidal. I still want to purchase my lethal method Amazon. I think I told the doc what I planned on doing. Tomorrow I will have the regular doc that can be temperamental with me. So far, no one has shown me any coping skills to help me deal with the pain and suicidal urges. I think the social worker is useless. I so wish I had the team I had my last admission. They were great and actually wanted to help me.

I’m kind of feeling dissociative tonight. I just feel so spacey and like things are out of reach. I also feel really hopeless. I was talking to a gay woman who is married to a transman. We exchanged contact info tonight. It was good talking to her tonight as she gets it. I told her I planned on changing my name soon. It was a hassle for her husband but glad it was done. I just hope I can have the guts to do it. It will be a big step for me.

I am so not used to writing my blog from my phone or my Kindle. I mostly use the WordPress app to check my stats. Not write blogs. Stupid phone likes to change words on me so I have to really pay attention while writing. Today I have zero tolerance for errors so I am getting frustrated. 

Don’t know what leg to limp on

by Midnight Demon, posted in Bipolar Disorder, Chronic pain, chronic physical pain, CRPS, depression, disability, mood disorders, physical pain

So I’m inpatient. The nurse’s station is down the hall. My fucking foot has exploded (one with CRPS) and my good foot has an Achilles problem and hurts. I don’t know what leg to limp on. I can’t take pain meds for another hour because that is when the shift changes and the fucking computer system will allow me my meds. I just want to die right now. The pain is so bad. I know I sat down too much today. Having my leg down just causes me more pain.

I had a bad check in with my contact person. He got smug when I said I was going to go off on staff if they woke me up early. The new med is kicking my ass so I feel hungover when I wake up. I just want to sleep in. It will be Sunday for crying out loud. But he said I need to be up at fucking 800 for meds and vitals, which is bullshit because I can refuse both. Asshole wants to play games, I’ll play games back. I know my rights.

I am tired but I can’t sleep because I’m in a lot of pain. Another 30 mins more till I can hobble to the nurse’s station. This is why I have my pain meds by my bedside at home, so I have easy access during a flare. I might take some more ativan to help me sleep. I’m kind of upset that the flares have continued while in the hospital. The last time I was in, I wasn’t in so much pain. I was still on my meds but for some reason, the flares have gotten worse.I don’t have an explanation for this that I can say this or that caused the flare. I just know that I hurt.

I definitely need new sneakers. I think that will help the Achilles problem. I still need to see the specialist for it. But the office is outside of Boston and you need a car. I’ll have to use the zipcar to get there. When I can think clearly, I’ll make the appt.

Now my ankle has joined in the fun. Fuck. Why can’t I die???

Out of spoons by the time I had the pan on the stove

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

Out of spoons by the time I had the pan on the stove

My rough day continues. I made my coffee and then started preparing for the sauce/dirty gravy. I went to Walgreens for my scripts, leaving my coffee behind. It was still hot by the time I came back. I prepared the garlic, put oil in the pot, and then added the garlic. While that was going on, I tried opening the cans of tomatoes. I forgot the can opener was broken. I had to go back to Walgreens to buy a new one. By this time, the mugginess had gotten worse after the rain. I was a hot mess by the time I came back to the kitchen. I was out of spoons and I didn’t even start what I set out to do.

I sat down and rested for a few minutes, trying to drink my coffee. I had shut off the gas to the pan so I didn’t have to worry about burning the garlic. I still had my sneakers on as I didn’t want to go up to my room to take them off. After a while, my little toe on my good foot started hurting. Fucking A. I took them off, but left them by the stairs.

I opened the cans of tomatoes after the garlic browned a bit. Then I put them in the pan. Then I added a can and half of water. I also started putting in my spices and pepper. I added a half teaspoon of sugar and then stirred. I let it come to a boil. Next was to cook the beef. I didn’t want to wait an hour for the sauce to cook first. It would still taste the same. I cooked the beef, breaking it into little pieces as it cooked. Then the tomatoes came to a boil and I let it boil for about five minutes. In between, I was sitting down, resting my ankle. I had my music playing.

The beef was cooked and then I simmered the sauce on low heat. It was already starting to smell so good. I love the smell of gravy. Hint to anyone that makes candles, the scent would be awesome as a candle!! It just means home to me. I was letting the sauce cook as the beef was cooling. After about an hour, I put the beef into the sauce. I waited another 45 minutes or so and then it was done. Time to cook the pasta!

I made penne pasta and had two bowls. It was so good! Then I went up to my room to freeze my ass off. I was dead tired. A friend of mine started texting me so I talked with her for a bit. Then I couldn’t keep my eyes open anymore and took a nap. Now I am feeling MORE tired and weak. I absolutely have no energy left to put the gravy away in containers or clean up. My mother made a salad for suppah. Guess she didn’t want to cook. It’s so hot in the kitchen. Least with me going in the hosp, I will be surrounded by AC. I will bring my long sleeve shirt with me just in case I get cold but I love the cold anyway.

For some reason, my good foot is hurting me. It’s throbbing really bad. I thought sleeping would make it better but it didn’t. I took some Advil hoping that will calm whatever it is down. I might have slightly twisted it while walking in the rain this morning. I need to get new sneakers that are more supportive and comfortable. I just hope it’s gone by tomorrow. I am sure cooking for a few hours didn’t help it.

rough morning

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

Rough morning

I had a decent sleep but I can’t seem to get going. I went to Walgreens to fill my scripts and that just sucked whatever energy I had. It was pouring when I left the store and I didn’t bring an umbrella. Oh well. The rain was cool and refreshing but I had to walk fast so I didn’t get soaked.

I came home and wanted to get started on the gravy but I just don’t feel up to it right now. My ankle is throbbing. Think I will wait till the pain meds work before I am on my feet getting things ready.

Some idiot is doing some kind of work with a high pitch drill or some other power tool. It is annoying me so bad. I can forget about trying to nap. I’m feeling so worn down. It’s really depressing me. Great. The noise has stopped but the damn birds are chirping.

I have told my groups and some friends that I will be going in the hospital tomorrow. I need to leave early, before my mother gets up, so that I can leave without too much trouble or questions. I have charged all of my electronics and placed my cords for them in my backpack. I also packed one of my favorite Starbucks mugs so that I can use that rather than the hospital cups. I mostly just use it for juice. I mix orange and cranberry to make a punch. I like it. I can’t carry my powerades because it’s too heavy. I am taking one bottle though.

I need to go through my coloring books because they are heavy for some reason and I don’t want my back to be hurting me while I am in there. I packed a suitcase for my clothes and a backpack for books and cords and stuff. It’s been packed for months now because I was supposed to go in Feb, then March but one thing or another prevented me from going. I just hope my foot isn’t in severe pain like it was a few weeks ago. I would have gone in then.

I usually have at least one hospitalization a year. It has been that way since I was a teenager. It gives me a respite and a break while also giving me some routine to the day. I sometimes follow the same routine when I get discharged. Only thing is, I take more naps while in because the meds make me sleepy or I am just bored. Weekends are horrible because there are no groups or anything. Just a bunch of free time. I don’t think I will have any visitors. I usually don’t. I don’t have my family visit because it just annoys me, especially when my mother comes. She asks a million questions and then tries to get answers from the staff. I don’t let her visit. This is why I usually pack everything I can so I don’t have to bother my sister with it.

I might be able to get one of my cousins to take me home when I get discharged. If not, I will just take the T (public transportation). I have done it before, even though it’s a pain in the ass. Getting to the ED won’t be a problem but getting home usually is because it’s farther west of Boston, which means more bus and train rides.

I really don’t want to do anything today. I am so tired and I just woke up. I hate it when I more tired than when I went to bed. I had slept good so I should be more awake. Maybe I will make some coffee and that will perk me up some. The rain has cooled off but it’s still muggy in the house. Going to be fun being in the kitchen making the sauce.