Tag: complex regional pain syndrome

Another day, another night of pain, another…

by Midnight Demon, posted in Bipolar Disorder, chronic physical pain, CRPS, depression, mental disorders, mood disorders, suicidality

I had a hard time sleeping last night. I got hit with pain and it kept me up. I fell asleep some time before 0200. I was listening to Taylor Swift on my headphones to help distract. I some how fell asleep and woke up in the sitting position. I took the headphones off and laid down. The pain was better by then. Though it came back a few hours later and I needed more meds around 0530. 

I didn’t want to get up this morning. I had some breakfast and got my meds and stupid vitals. One of the mental health counselors yelled at me for not getting my vitals before my meds. Tough shit. 

I was kind of in a haze for most of the day. I went to group therapy. I tried to pick other patients brains on coping stuff but they all told me things I already tried. It was worth a shot. Then my team called me from group so we met. The social worker wanted to know more about my suicidal urges and I told her pain exacerbates it. The doc didn’t say too much. Just went over the med changes the covering doc did yesterday. He wanted a tentative discharge date so we are shooting for Thursday. I’m kind of mixed on it because I fear I will be more apt to buy my new method while in a flare than not. Doesn’t mean I’ll act on it but I could. I keep fantasizing my death, though. Been doing it for months so I don’t think more time in the hospital will change that.

I put in a request for an appt at another therapy center. I’m waiting to hear back from them. I’d like to see if I can find another therapist. I really don’t think it is going to work out with the guy I am seeing now. He is just annoying me more than helping me.

I am feeling kind of dizzy after I had my dinner. The contact person thinks it’s because I didn’t drink enough today. I hope it’s not a withdrawal from my other antipsychotic. That would suck. They stopped it as of last night. Other than that, i have no idea why I could be dizzy.

I talked to my mom tonight. We talked in general terms like we always do. She wanted to know if the docs here are helping with my pain. I told her no one knows my condition as I’ve had to explain it to practically everyone. No one gets CRPS. She asked why and I told her it was a psych unit not a medical one. She doesn’t understand the difference. 

I’m hoping the storms don’t kill me tonight. My pain has been up and down all day. It’s really muggy outside and it is stuffy on the unit. It just started raining now. Hope it cools off some.

Out of memory

by Midnight Demon, posted in Bipolar Disorder, blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders, suicidality, transgender

I had 21 updates to my apps on my phone and nearly half of them didn’t go through because I don’t have enough internal memory on my phone. I just spent the last half hour trying to make space and didn’t get anywhere. Will have to go through my apps and see what can be transferred to my external memory card.

I had such a hard time last night that I barely remember freaking out. I didn’t get discharged today as it was too soon, I’m suicidal, and they want to see if the new med works. I wish the doc I had today was the regular doc. He is so easy to work with. He changed the med order so I can have one of my pain meds every 6 hrs up to 4 times a day. I’m glad or I would have insisted on being discharged. 

I so wish I brought some shorts rather than long pants. It’s hot on the unit as the AC isn’t working well. I hate being hot. The only pair of shorts I have are my Jean shorts which is not very comfy after a while. 

I’m still in a lot of pain. My ankle crapped out on me in the morning so had to wear the AFO the rest of the day. Even then, it didn’t stop my ankle from hurting but did prevent me from having to limp. I’m really fluctuating between feeling ok and intensely suicidal. I still want to purchase my lethal method Amazon. I think I told the doc what I planned on doing. Tomorrow I will have the regular doc that can be temperamental with me. So far, no one has shown me any coping skills to help me deal with the pain and suicidal urges. I think the social worker is useless. I so wish I had the team I had my last admission. They were great and actually wanted to help me.

I’m kind of feeling dissociative tonight. I just feel so spacey and like things are out of reach. I also feel really hopeless. I was talking to a gay woman who is married to a transman. We exchanged contact info tonight. It was good talking to her tonight as she gets it. I told her I planned on changing my name soon. It was a hassle for her husband but glad it was done. I just hope I can have the guts to do it. It will be a big step for me.

I am so not used to writing my blog from my phone or my Kindle. I mostly use the WordPress app to check my stats. Not write blogs. Stupid phone likes to change words on me so I have to really pay attention while writing. Today I have zero tolerance for errors so I am getting frustrated. 

Don’t know what leg to limp on

by Midnight Demon, posted in Bipolar Disorder, Chronic pain, chronic physical pain, CRPS, depression, disability, mood disorders, physical pain

So I’m inpatient. The nurse’s station is down the hall. My fucking foot has exploded (one with CRPS) and my good foot has an Achilles problem and hurts. I don’t know what leg to limp on. I can’t take pain meds for another hour because that is when the shift changes and the fucking computer system will allow me my meds. I just want to die right now. The pain is so bad. I know I sat down too much today. Having my leg down just causes me more pain.

I had a bad check in with my contact person. He got smug when I said I was going to go off on staff if they woke me up early. The new med is kicking my ass so I feel hungover when I wake up. I just want to sleep in. It will be Sunday for crying out loud. But he said I need to be up at fucking 800 for meds and vitals, which is bullshit because I can refuse both. Asshole wants to play games, I’ll play games back. I know my rights.

I am tired but I can’t sleep because I’m in a lot of pain. Another 30 mins more till I can hobble to the nurse’s station. This is why I have my pain meds by my bedside at home, so I have easy access during a flare. I might take some more ativan to help me sleep. I’m kind of upset that the flares have continued while in the hospital. The last time I was in, I wasn’t in so much pain. I was still on my meds but for some reason, the flares have gotten worse.I don’t have an explanation for this that I can say this or that caused the flare. I just know that I hurt.

I definitely need new sneakers. I think that will help the Achilles problem. I still need to see the specialist for it. But the office is outside of Boston and you need a car. I’ll have to use the zipcar to get there. When I can think clearly, I’ll make the appt.

Now my ankle has joined in the fun. Fuck. Why can’t I die???

Out of spoons by the time I had the pan on the stove

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

Out of spoons by the time I had the pan on the stove

My rough day continues. I made my coffee and then started preparing for the sauce/dirty gravy. I went to Walgreens for my scripts, leaving my coffee behind. It was still hot by the time I came back. I prepared the garlic, put oil in the pot, and then added the garlic. While that was going on, I tried opening the cans of tomatoes. I forgot the can opener was broken. I had to go back to Walgreens to buy a new one. By this time, the mugginess had gotten worse after the rain. I was a hot mess by the time I came back to the kitchen. I was out of spoons and I didn’t even start what I set out to do.

I sat down and rested for a few minutes, trying to drink my coffee. I had shut off the gas to the pan so I didn’t have to worry about burning the garlic. I still had my sneakers on as I didn’t want to go up to my room to take them off. After a while, my little toe on my good foot started hurting. Fucking A. I took them off, but left them by the stairs.

I opened the cans of tomatoes after the garlic browned a bit. Then I put them in the pan. Then I added a can and half of water. I also started putting in my spices and pepper. I added a half teaspoon of sugar and then stirred. I let it come to a boil. Next was to cook the beef. I didn’t want to wait an hour for the sauce to cook first. It would still taste the same. I cooked the beef, breaking it into little pieces as it cooked. Then the tomatoes came to a boil and I let it boil for about five minutes. In between, I was sitting down, resting my ankle. I had my music playing.

The beef was cooked and then I simmered the sauce on low heat. It was already starting to smell so good. I love the smell of gravy. Hint to anyone that makes candles, the scent would be awesome as a candle!! It just means home to me. I was letting the sauce cook as the beef was cooling. After about an hour, I put the beef into the sauce. I waited another 45 minutes or so and then it was done. Time to cook the pasta!

I made penne pasta and had two bowls. It was so good! Then I went up to my room to freeze my ass off. I was dead tired. A friend of mine started texting me so I talked with her for a bit. Then I couldn’t keep my eyes open anymore and took a nap. Now I am feeling MORE tired and weak. I absolutely have no energy left to put the gravy away in containers or clean up. My mother made a salad for suppah. Guess she didn’t want to cook. It’s so hot in the kitchen. Least with me going in the hosp, I will be surrounded by AC. I will bring my long sleeve shirt with me just in case I get cold but I love the cold anyway.

For some reason, my good foot is hurting me. It’s throbbing really bad. I thought sleeping would make it better but it didn’t. I took some Advil hoping that will calm whatever it is down. I might have slightly twisted it while walking in the rain this morning. I need to get new sneakers that are more supportive and comfortable. I just hope it’s gone by tomorrow. I am sure cooking for a few hours didn’t help it.