New slippers and more pain

New slippers and more pain

I had to buy new slippers because the ones I have been wearing for almost three years now are worn out. They were my father’s. I put them in the box the slippers came in. These have more support than the old ones and are much softer, which is why my CRPS foot hated them. I am not sure it will get used to them. Some times the allodynia isn’t this bad. I am still in a sort of flare so hoping when the weather is back to above freezing, I won’t hurt so much with the top of my foot. It has been doing the sweating but staying dry and cold thing all day. It is driving me nuts. I would put a sock on but because it feels like it is sweating and is sensitive to materials right now, I don’t think it is a good idea. If it becomes a block of ice, I will have no choice.

I put through a couple prescriptions today and one of them was more than it was last month. I had to call my insurance to find out why and they said because the cost of the drug was low so it had to be charged a dispensary fee. Crooks. It is only a dollar more but if any of my other meds are more than that, I am screwed as I made sure to have enough money for meds this month. I have five meds I need a month that I cannot get through mail order. I am all set with my mail order meds at least through maybe April, I think because I had refilled them all the end of December. Last year they didn’t cost me much for a 90 day supply and I hoping for the same this year. But the 5 I get at the pharmacy all have different fill dates so I have to remember to have the cash for them. I am hoping my T dose will increase when I see the doc on Friday, which means getting a new script for it. I budgeted for it but if she say gives me two vials, I am screwed because I just budgeted for one. All tricky trying to remember this shit only because I am an impulsive buyer and will spend when I think I have enough when in reality I really don’t. Thanks Bipolar Disorder! I wish one of my checks took into account the cost of living like SSD but it doesn’t so I just have a fixed amount every month. I buy little things when I know I can afford them. I really need to stop it but I can’t help it. I see something, I want it.

I bought an OTG (on the go) thing and didn’t realize my phone wasn’t compatible with it. And because my brother in law took down the recycle, I no longer have the packaging it came with so can’t return it. I am not going dumpster diving for it either. Too fucking cold out. I thought it was a neat thing. Maybe when I eventually upgrade my phone it will have this feature. I might end up selling it for whatever. I don’t know. I am too tired to think about that right now. It was like 8 bucks so not a huge loss.

I hope I can sleep tonight as I slept late today. My med alarm went off and then I went back to sleep, which hasn’t happened in a long while. I took Benadryl before I went to sleep last night so I was kind of still hung over. I need to read Harry today. I haven’t been able to read since Sunday I think. I hate when pain ruins my reading rhythm. Harry is the only book I can read on a daily basis or close to it. But once I stop, seems I just forget about the book and it will be a while till I pick it up again. If I can get another book in this month, that would be good. I am doing another reading challenge. I know I shouldn’t but otherwise, I don’t think I will read the books I buy.

A couple of months ago, I had a problem with my music where, after Amazon told me to uninstall/reinstall their app, I thought I lost music. Turns out, I didn’t. And in downloading all the songs that Amazon app had lost, I created duplicates of the songs. It turned out that the app I was using just wasn’t showing the music on my phone! So I junked it, which I hated doing because I had paid for the no ads thing. I went through different apps and found one that was kind of good. Only thing that sucks is that I needed to remake my playlists. One playlist, rock, had a lot of songs on it as I just downloaded whole albums or artist in. I couldn’t remember who it was and then there are songs I didn’t want. The nice thing about this new app that I have been using is that once you delete a song from the playlist, it is gone unlike the app I paid for. So I just created my Mary Chapin Carpenter playlist. I got distracted and put one of her albums in the wrong list. UGH. I had to redo it. There are two albums of hers that I do not want in my playlist because they are the same songs as her previous albums so I didn’t want duplicates. In her latest album, Sometimes just the Sky, it has some of her previous songs but recorded differently. The album is okay and I do like it but there is one song that I do not like, even though she does, LOL.

So today is day 140 of my transition. I posted yesterday my update but thought I would do here as it has been a while. I might make this a short post for those that are following so be ready for a duplicate, lol. Things are still the same. The only thing I have to report is that the hair on my chin is growing in more finely than before. Also, I shave my head. It used to be that I would have to keep up with it daily or up to three days. Now it is daily or every other. My hair is growing really fast and pretty soon I am going to need to seriously budget barber expenses to put my barber’s kids through college, lol. I keep a military cut and even though I got it cut last week, it is the length I had it before seeing him. So I will have to work out something with my barber to get haircuts on months I can’t afford to see him. I tried cutting my own hair and it was a disaster so not doing that again! I need to shave before I lose the lines where I am supposed to shave. It is tricky in the back because I can’t see but I can feel where I need to and if I goof up, a few days time is all I need for it to regrow.

There have been no other changes. My voice is still in and out at times. My family hasn’t noticed a change but that might be because I am around them all the time. Hoping with increase in dose, that won’t be the case. I really look forward to the day I come downstairs with stubble on my face and my voice like a man’s. HAHA shock my mother day!

Tuesday 29 Jan 19

Tuesday 29 Jan 19

I had a rotten night. I was in a lot of severe pain and my mood sucked really bad so the suicidal part of me came out. I was talking to a guy on Twitter that said I had to watch this spiritual video and then say Jesus to be helped. I find all the crackpots. If he reads this, sorry buddy, you aren’t my cup of tea! I didn’t have a response to anyone last night except my CRPS group but they were all the same like me, wanting to cut their limbs off. It was nice to be able to share these things without people getting all horrified. Like when you talk about suicide and they freak out. I really hate that and do anything to stop the conversation.

I woke up when my med alarm went off, which was about 4 hours after I fell asleep. I didn’t sleep laying down but kind of in a reclining position. I had a stiff neck because my neck was hanging instead of being supported. I then got rid of the pillow that was supporting my knees and just when I got all nice and comfy to go back to sleep, my bladder had to use the bathroom. Fucking asshole. I was pissed. My mother was up and was noisy as all hell. I was getting mad and didn’t go into the kitchen. I did my business and then went upstairs. I took some Neurontin, Ativan, and benedryl after sending an email to my psychiatrist about whether or not my PCP would be receptive to talking about pain management again. She never responded, which means she either didn’t have time to answer or didn’t want to answer. I ended up emailing the chickenshit because my bones were hurting me. I don’t remember the time I mailed him but it is now well after 4 pm so I doubt I will get a response. My high ankle bones are hurting really bad and the last time this happened, which happened to be last week, the pain traveled down to my lower ankle and foot bones. ALL OF THEM! I was delirious from lack of sleep so I just laughed. I honestly never experienced that before so I didn’t know what to do about it. Because he didn’t answer, I ended up taking a pain pill, which means I will be short tomorrow because I just am in so much pain with the weather being a dick. Tomorrow is going to snow and then turn to rain. Then the temps are going to plummet. So ya, pain storm ahead! I kind of am anticipating pain but what I am to do about it, I have no fucking clue! I am beyond pissed I have no help from the doctors. I have to rely on just so hokey pokey shit and hope it works. Most of the time though, I am just trying to distract. I will go on Facebook or Twitter or YouTube and just scroll through. I sometimes watch the videos because after someone posts one, there is a list of more after it. And they are usually more fun to watch then the one posted. I found a lot of baby ones one night. It was so cute! They were being so funny especially the twins.

I really want to make a cup of tea and have sugar cookies but not sure that will cause me pain. I got to take my night meds soon and I am really tired. I should be sleeping but I am fighting it. I just keep expecting bone pain because I keep having the high ankle bone hurting me. My foot is buzzing so that isn’t good either. So if I can sleep, I better get to it.

Happy Fucking Monday

Happy Fucking Monday (*** warning more swears throughout rest of blog***)

So I had shit sleep. I didn’t go to bed till after 330. I think I last looked at my phone to check the time and it said 349. What time I actually fell asleep, who knows. Needless to say that when my med alarm went off I wanted to chuck my phone against the wall. I just checked to see if I actually took my meds and I missed a Lamictal. Oh well. Least I took the majority of them. My alarm to get up went off and I grudgedly sat up and checked the messages on my phone. As I did so and hating the fact I had to leave the house in a bit to go to my therapy appointment I didn’t want to keep, my mother starts screaming my name at the top of her lungs. WTF does she want? A call came through on her line asking for me that was “computer related”. UGH I told her to have them call my cell. Both feet were killing me in the short few steps to the bedroom door to scream at her this message.

A few moments later in my bad mood, the idiot calls me. He had an Indian accent and said they were trying to get access to my computer as “they couldn’t get the signal” and they needed to send an important “security patch”. At this point I became sarcastic as fuck saying really? Are you calling from Dell? No, Microsoft. Oh Microsoft? Wow. That sounds really important. I said you are full of shit. He then says “no we are legit. I can send you our license number.” I said you can send to 800- I don’t fucking believe you! And hung up. Fucking dickwad. I was hurting so bad but had to get ready for this appointment I didn’t want to go to. I went downstairs for some coffee after deciding fuck the bus I’d take a cab as I wasn’t going to Uber. I wasn’t going to be driving all around town picking up other people before my destination for $4. I’d pay the $12 for a single way of getting to where I want to go.

When I got downstairs, I told my mother it was a scammer and the next time hang up. She gave the “I don’t know”. I told her I NEVER give her number out so they wouldn’t be calling you, they would call my cell. She doesn’t fucking think. UGH!!!! I had my coffee and a couple of cookies. Then I thought I better eat something more so I am not hungry later. I made a roast beef sandwich and I think I forgot to put back the stuff. I didn’t care. I then decided I better put on the fucking lace brace. My mother had redone it but I still had to take the top laces out to put it on. My mother blamed the swelling. Fuck. There is no swelling the thing is made to be fucking tight! I put the thing on and then had her help me lace it up as I couldn’t move to see where the holes were. Just as we are doing this, she get a call from her doctor’s office and the line is staticky so she goes to the kitchen line. Fucking fuck. I am still in my pajamas and the cab is going to be here in 20 minutes. I fucking did the best I could with the damn fucking thing and went up to my room to get dressed. I was going to wear jeans and a button down shirt but fuck it. I decided sweatpants and sweatshirt as it was cold out.
Went downstairs to put my shoes on with the other brace for my left foot. I chatted with my sister. My new pens came. They are so pretty! I love them. I don’t care much about the mechanical pencil but it was 50% off so who the fuck cares. That made my day somewhat.

I went to therapy and no fucking lie, the dipshit told me to Google relaxation techniques for my PTSD/”anxiety” for the trouble I am having going to sleep. I am afraid to lay down to go to sleep because I don’t want my foot to go berserk. What the fuck am I paying him for if I have to Google shit?? I was so fucking mad. I decided to walk to the train rather than take an Uber. A guy that smelled like piss and shit got on the bus ride home. It was a pleasant ride. But it wasn’t over. I still had to go to Walgreens for my dear mother. There was no prescription ready for her so I walked all over the store for nothing. My foot loved that. I went to the register and decided to get the stamps she wanted. The girl was knew and didn’t know how to price check. FUCKING FUCK. Her trainer had gone off to help another customer. So I waited. The trainer didn’t know about the stamps (price had gone up but still rung up as old price) so I paid the old price as they couldn’t figure the fucking thing out. My feet were ready to divorce me at this point. I was in so much fucking pain. The brace was tight and I needed to get it off.

Came home and went upstairs to my room to change. I was getting settled after wrestling the damn brace off my foot when my damn fucking bladder said it had to go. Fucking little bitch couldn’t tell me when I was downstairs. So I go and then ask my mother if a package came for me (the one that Amazon said they delivered but really didn’t). No package so I went back upstairs and my right foot is so bloody angry right now. I am ready to look on Amazon for chainsaws. My mother is making dinner and wanted my help and I said no because I can’t stand. I am hurting too much thanks to you waking me up and have me racing to the bedroom door for a fucking scammer! She is hurting but I don’t care. I went out and did shit, she has been home all day. So happy fucking Monday. Can’t wait for Friday’s double header with doctor appointments.

Sunday Blog 27 Jan 18

Sunday Blog 27 Jan 18

I’ve had an okay day today despite Amazon not delivering my package today. They say it is in a “secure location” but didn’t specify where that was. Then when I called they said it could still be out for delivery and to call back if I don’t receive it by 4 PM. OK. I usually don’t have a problem with Amazon but I think their own delivery service where people use their cars to deliver their products is shady. I just have found the delivers are whenever. I should have screenshotted when they were close to my house to prove they were in my vicinity. But I didn’t think because I’ve never had a problem before but whatever. I hope my package gets delivered tomorrow or they issue me a credit.

I’ve been feeling kind of blah since maybe 730pm. Just had the sinking feeling of depression where everything seems so bad yet nothing is really bad because nothing went on today. I didn’t have an argument with my mother. I really hate when these depression episodes happen because I don’t know what to do. And then if pain hits, I just become really suicidal, which reminds me I need to find that paper so that my family can pay for my funeral expenses. Dammit. I don’t really want to do this financial piece but I know funerals are expensive after what we went through with my father. Just don’t want them to be shorthanded. I guess I just feel hopeless since my psychiatrist sent me the email about wanting me in the hospital for the sleep/wake cycle bullshit, which means she didn’t read my blog about why I have insomnia. I just am done with doctors and just see them because my life will be worse if I don’t. I want to cancel my appointment with her this week but I have another doctor’s appointment that day so I will be killing two birds with one stone. I am not mad at her as I know she cares about me and just wants the best for me but going to the hospital where they may or may not give me my pain meds and worse, screw up the way I take my meds or miss my meds because they don’t have them, no thank you. I can do without that headache. And it isn’t like they treat you for anything. They spend 15-20 minutes with you and then it off until the next day. How can you call that treatment? It is more like an appointment or something. They screw up talking with you anyhow so why get fucking frustration when you already are. I told her I would only do so if I attempt. I didn’t tell her I was planning again. I don’t think I have told my therapist. He doesn’t really care anyways.

PTSD has been around lately. I just have been having a hard time laying down for fear of pain and I have no idea how to get over it. It isn’t until I literally can’t read my phone anymore that I finally lay down. But sometimes I have to kind of sit up and talk to the voices to finally get to sleep. These are the good voices not the bad ones. Right now my foot is acting up. I am not sure if it is nerve pain or something else. I just took some Neurontin before I take my pain meds because if it is nerve pain, it will go away. If it is not then I take pain meds. Temps I haven’t notice anything. Yesterday the barometric pressure was fucking crazy. I have no idea if it was today because I didn’t keep track of it. I wasn’t in horrible pain like I was yesterday. I really don’t like this buzzing feeling I am having now as it could explode so I am a little anxious about how I tonight is going to go. My back is killing me so I won’t be sitting up for that much longer. I am tired so hope the Neurontin does its job and then I can sleep.

I got therapy tomorrow. I wanted to cancel but I might cancel Wednesday because there is going to be snow and I am not running around town in snow while both fucking ankles aren’t stable. Not happening. I could Uber but they are pissing me off with picking people up as they go and then going all around town to my house rather than taking a shorter route. No thanks, I don’t need that aggravation. I wish I could afford a cab but those are more expensive than Ubers. I honestly don’t know if I am going to stay in therapy because I am not getting anything out of it. I tell him I get PTSD and he doesn’t give me ways to cope, on anything! Talking about what happened is not helping me! I am just getting annoyed and stuff. Then my mother today was like make cookies for my niece’s birthday party. When? I might be able to make them Wed if I don’t see my therapist but that is only if I don’t flare and it is supposed to snow that day so I most likely will be in pain! I just want to stay in bed or just go to Starbucks without an anxiety attack about a pain flare or that I need to get home because I feel safer there should something happen. I am just pathetic. I just don’t know why when I seek help, it fails me miserably. And if anyone says I am the problem, you are an asshole.

Psychache is happening. I kind of miss my former therapist, who by now should be called ex. She left me because she couldn’t deal with me anymore. Or whatever reason we ended, which I still am not sure of because she never told me. I just said end and she said yes. Guess that is the end of the story. But if I brought up the PTSD stuff she at least helped me cope with it rather than do nothing.