physical pain and suicide

Physical pain and suicide

 

Past two weeks I have had two episodes of really bad physical pain that had me in tears and wanting to end my life. I didn’t do anything to spark this pain, such as dropping a brick on my foot or stubbing my toe. The pain went deeper than that. And despite taking pain medication, I still was in agony. People think that all you have to do is take a pill to make pain go away and most times it works. But what do you do when you have a condition that doesn’t allow for that?

I have what is known as Complex Regional Pain Syndrome, CRPS for short, in my left foot. I got it because of another long name diagnosis called Cauda Equina Syndrome, CES for short. I got this former condition as a result of a ruptured disc when I was twenty-five. I didn’t know that it would result in the CRPS until now. Since I was twenty-five, I never learned how to walk correctly and pulled muscles that were not meant for walking. Because of this overuse, I developed CRPS after eleven years of dealing with CES. I have been suffering with CRPS for the past 2 years and it sucks. Every pain flare up feels like it is going to last forever. I am on disability because I can no longer work as a lab assistant. I can’t walk long distances, or stand too long on my feet, which working in the lab you do all the time. You are constantly getting up and down going to the different areas of the lab for the different testing that we do.

The pain started after I sprained my ankle on some ice in the winter of 2011. I went to several different doctors but no one could tell me what was wrong. All the x-rays, MRI’s, and physical condition of my ankle were normal except for some minor swelling near my peroneous muscles and tendons. It is when these get really swollen that I am in agony. As I am typing this, my foot feels really cold, like it is soaking in ice water. But to the touch, it is warm. I have a sock on it to prevent it from cramping. I have to protect my foot at all times from the cold to prevent cramps that are eye popping and then my foot becomes really sore. I don’t have any physical discoloration like typical CRPS. I think if I did I would have an easier diagnosis.

This pain drives me to suicidal crises every single time it flares up. The last time this happened was last week. I didn’t do anything, but I really wanted to die. I am almost out of my pain pills as I have been gobbling them up like candy to try and take control of my pain. I see my PCP next week to get something for flare ups. If he doesn’t do anything for me then I am afraid that things do not look good for me, at least mentally. I wrote a letter to my psychiatrist when I had this pain flare up. She understands the only time lately I become suicidal is when my physical pain becomes unbearable. And my pain is never during normal business hours. It is during the after hours, wee hours of the morning. I can be up all night because of pain. And no matter what I take, once it starts it seems never ending until exhaustion comes into play and I get some relief. Only then do I become a “different person mentally.” The events of the night before seem remote, like they happened to someone else. I guess you can say I dissociate from the pain and what is killing me.

Pain flare ups are hard to predict. Sometimes they come up when I do too much. Making cookies one time caused a flare up. Washing dishes will cause another. Standing more than a half hour for the bus will cause another. I never know what to do when I feel the pain coming on. My first instinct is to pop a pill and try and relax. After a bit I will take a muscle relaxer to prevent anxiety and spasms/cramps. Sometimes this will work, sometimes it won’t. It’s when it won’t that the suicidal self goes into play and all I can think about is death. I often play my fantasy of what the doctor will say if he doesn’t give me pain medication. That truly terrifies me. I often come up with me telling him to sign my death certificate, because that is what will happen. I can’t live with this level of pain every day. Right now it is not so bad. I have restarted another mood stabilizer and it seems to be helping but I still feel I need a longer acting medication that I can use for flare ups and to get me to sleep better. Because without the benefit of sleep, nothing is worth a dime.

grumpy today

Still in a grumpy mood. My Pdoc has not called back yet and I don’t think she will. Today is Taylor’s birthday, which means in ten days, it will be mine. I am depressed and don’t know why. I restarted the trileptal, taking 300 mg at night and tomorrow I’ll start taking it in the morning and night. I hate doing this on my own but my doc trusts me and like I said she hasn’t called back yet or returned my email.

Got out of the house today to get some coffee. I am worried that if I didn’t I’d get a blood clot in my leg from inactivity. I’m drinking a Panama. It’s stronger than the Hawaiian and Blue Java I usually have. If I complete this writing project, I think I will buy the Hawaiian Ka’u rather than get my ring fixed.

My sisters have been asking me what I want for my birthday and Christmas. Every year for the past several, I have no idea. I had wanted the Nebraska and Ohio State hoodies but it doesn’t look like they will be getting me those. Other than that I really don’t know what I want except for my key lime cake, that I will be making.

I don’t know why I am so grumpy. I just woke up the other day like that and it has continued. I think it is because I haven’t been sleeping the past week. I woke up today with blurry vision in my left eye. It has now resolved. I can’t wait to see the neuro-opt guy next week. Next week is going to be busy because I see my pdoc Monday, therapist Tues and Wednesday, PCP Wednesday, and then the neuro-opt Thursday.

I changed all the ringtones for the different email accounts that I have. Now when one of them goes off I don’t know which account it is. Brilliant isn’t it? I am sure I will get used to the tone once more of them come in. I was tired of it all being the same ringtone. I never knew which account it was.

MG wants to renew tis writing project of ours. I am not sure I want to do it. Don’t get me wrong it has been fun and all but I just don’t know if I can write something every single day. I know I journal and all, but my blogging is different. I like that to have some meaning and lately I feel that it is just a picture of what my daily life is like than a specific topic or something else. I haven’t responded to her email yet; I just need time to think about it.

I just go dressed today, didn’t shower or brush my teeth. I just couldn’t be bothered. I have been meaning to at least brush my teeth but I just can’t muster enough energy to. I hate that everything I do takes so much out of me. I just want to die because there is no way I can handle being “old”.

I’m never getting a Panama again unless it’s iced. It tastes different hot. It’s making me nauseous but I don’t want another drink because the bus is on its way soon.

I had a bagel and candy bar for breakfast. That is all I have had the mood for eating today.

addmendum: Pdoc never called me back because she never got my page. I just got an email from her now.

weepiness and not enough sleep

Have not been myself the past few days. I have been wicked emotional since my TG piece got posted. I had 19 people read it so far and only 1 comment. No likes but it still is early. My first piece didn’t get anything until weeks later and then it was on fire.

I think I put a lot of myself out there and that is why I am still in a weepy state today. I just am emotionally drained from writing it as well as what my therapist says, I hide myself pretty well. I haven’t left my house. I have not showered in a few days time. I don’t think I have had the energy or inclination to brush my teeth. My eyes have been blurry today and I don’t see the head honcho of the neuro-opt until next week. It’s driving me crazy that I can’t see, even with my glasses on. My left eye seems to the trouble today. I just can’t focus.

Tomorrow I am supposed to go see my dad but I think I won’t. I don’t need his antics when I haven’t been having a good few days. He always makes me feel like a shitbag. But that is just the way he is.

I think the whole mess of not being able to work anymore and collecting disability has finally sunk in and I just have been so weepy. It’s hard because I have always been a good worker and now that I can’t it harder because I don’t have something to look forward to every day. I have my writing and blog but I don’t have the outside contact of being with someone or people contact that I normally get. And just when I think I can go back to work, I stand for longer than I should and have a pain attack that night. It’s really depressing me not having something to do except writing. I could clean my room but I don’t have anything or anywhere to put all my clothes. I don’t have bookcases for my books and other office style stuff. I can clean my office but I get so overwhelmed that I just end up not doing anything at all. My office has become one side of my bed, which probably has contributed to my sleep problems. A sleep doctor would have a coronary if he ever evaluated me. But then I always have had trouble sleeping. I had trouble getting to sleep, staying asleep, and going back to sleep. I know it doesn’t help that I have my laptop next to me in bed or my books or my journal or the 3 notebook/pads I have for writing my ideas down.

What ever is causing this weepy business, I hope it stops and I hope my pdoc calls me back. I want to get started on a new/old medicine to try and help me sleep better and stabilize my mood.

A Day in the Life of Midnight Demon

Talking with Bozo, aka my therapist, 3x this week. Don’t know how that happened. I called her Thursday because I was in severe pain Wednesday night which seems like ages ago today. She asked if I wanted to meet Monday and like an idiot I said yes. We talked about M today as I am upset by the whole thing. People who are not in the situation are quick to judge about what to do. I had a response to M’s blog and one person said that I should do something as she obviously “wants help”,  as she opened up to me. Thing is she doesn’t know the battle it takes to deal with the effects of chronic illness day in and day out. No one knows how hard it is to deal with this unless they have been there like I have. I feel M’s pain as if it were my own because I have been where she is and I know what she is going through.

M is going to the doc today and I hope they do something for her but I doubt that she will open up to them about her plan or much less about what is really going on with her. She seems convinced to go through with whatever she is planning and it sounds like she has been poisoning herself slowly to die a slow death. It’s awful that she has to go through this alone. I feel so helpless. But I understand where she is coming from.

Now my Left foot is vibrating right now. It’s driving me nuts. And it’s not even night time. It’s weird that I would get nerve pain at 2 pm in the afternoon.

Today I also went to the bank and bakery for my mother. Also mailed her mail. Then came to Starbucks.

I’m getting a little bit tired like I can take a nap but I won’t. I got to stop taking naps even though it’s the only way I get the REM sleep. It really sucks to sleep during the day but I wake up sometimes restful, other times groggy. I really want another coffee, maybe a Blue Java from Indonesia! I really love that coffee. I had some yesterday. I love that I can make it whenever I want. But I’m at Starbucks so I can get another coffee if I want it dammit! And I did get it. Two cups of coffee in one day. I’m going to be up all night. Coffee is so much different than at home. But it still tastes as strong as home. I miss my Galapagos. That was the best mild full-bodied coffee. But the Pats game is on tonight so I will need all the caffeination I can get!!

I got to go home and find my Roxio cd so I can burn CDs again. I don’t know why I should be worrying about it. It’s not like the thing is going to work on my new laptop any ways.

If my father had a DVD player I could have made him a DVD of his pictures rather than his photo book that is crap. Jerk better like it or I will be wicked upset with him.