Tag: disability

one that got away

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders, suicide

One that got away

I’ve been in a writing mood today. I seem to be writing in the late evening as I have a lot on my mind. The therapist responded to the texts I sent her. She said things are always going to be tough (no shit!) and maybe talk about additional “treatment factors”, whatever those are. I guess I will find out Thursday. She did say that she is open to whatever I bring in so that is good. I am glad she isn’t rigid in what she practices like past therapists. But then the one I saw for 16 years was and then she ended on me. I blame myself for it and the stupid CM went along with it all because I asked her if we should end.

I didn’t do anything today. I wasn’t feeling up to doing anything today. I crossed my room to get something in the hallway and my ankle acted up. There was a ten degree change in temperature so I am guessing that is why it is still hurting me. It got cold so I have a thermal sock on it right now. I missed having them while in the hospital because my feet got cold on more than one occasion and I needed a hot pack to warm it up. There were a few days, around the same time, where I felt like there was cold water on my foot. I kept feeling my foot to see if it was wet but it was dry. Then it would become really cold. It always happened around shift change, which annoyed me because there were no nurses to give you a hot pack. I am not sure staff could but it was just ridiculous!

I charged up the study watch but now I am having trouble with the app. It logged me out when it updated and I can’t seem to sign back in. I put in a message to the tech people but I haven’t heard back from them yet. They gave me a new login password but it still doesn’t work. I don’t know. I will just have to wait. I didn’t tell them about not wearing it the past three weeks.

I was scrolling through Twitter, like I always do, when I came across the nowmattersnow.org tweet about how going to the website reduces suicidal thoughts. I thought I would give it a try. Instead of helping, it made me feel worse because the pain they are talking about, is psychological not physical. I may have intense emotions that are causing me to feel the way I do because of my physical pain but it is a situation thing. One of the videos said that suicidal thoughts were actually an okay thing because it makes sense as it is a relief from the intense emotions. Unfortunately, I gone from suicidal thoughts to actions. I plan on acting on my thoughts when the pain is less or within a few days of having intense physical pain. The pain I am feeling right now is not excruciating enough to think about suicide but it is lingering. Pain just changed because I moved my big toe. Hurts so much that I had to take a breakthrough med. UGH. I cannot be free from high pain, ever. I find this hopeless to think things will get better because with pain, nothing ever gets better.

I am really tired so I will sign off here. I am not sure I will be here the end of the week. All I can focus on right now is right now. I hope that is enough.

Saturday Blog 28-9-19

by Midnight Demon, posted in Bipolar Disorder, blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Saturday Blog 28-9-19

Finally had the new pumpkin cream cold brew coffee. It is meh. Tastes a bit watered down with pumpkin cream. I ordered a venti and I doubt I am going to drink all of it. Wish the coffee part was stronger. It is my first coffee since coming home from the hospital. I tried having a cold brew at home but the half and half was spoiled so had curled cream at the top. Gross.

I shaved before leaving the house and when I did, I forgot my headphones because I am using a different bag. I brought my laptop to Starbucks to write and maybe be creative. So far nothing is really coming to me so I might just surf the web and social media.

Last night pain had hit and I was again suicidal, though not to the degree I have been in the last few months. So I started thinking of what to talk about with the therapist. I am going to bring a few things about suicide safety planning as well as the paper I wrote about how she can help me. It is three pages plus the Crisis Response Plan. I also thumbed through the 2nd edition of CAMS and found a new page in the initial form. It is called CAMS stabilization plan. I think I will print off that sheet only and if the therapist is interested in the SSF, I will bring it the next session. I might ask her to meet twice a week but I don’t know if that is doable. If it is, I just want it to be a few weeks as I have just been discharged from the hospital. I sent her a couple of scheduled texts that discuss this and I hope she is open to it. I sent her the link to the Stanley/Brown safety plan site. I hope she can go to it and see what I am talking about. There is no plan that I have found yet that has clinician and client sign in an agreement. If she isn’t open to this, I probably won’t bring up my suicidality to her. I just feel like it wouldn’t be worth it if she isn’t open to my ideas on what could help me. Sure I can do it on my own but that hasn’t been working out. Hell, if I could fix myself I would! This needs to be a collaborative effort. I can’t tolerate any less than that.

I have no idea how the psychopharm is going to take my hospitalization. I am going to tell him I want off the Lamictal. I really don’t think it is helping me. We can get off it and if need be, go back on it should the hypomanic stuff comes back, which I don’t think is likely. It is something to monitor though. I will take the odd day that I feel euphoric though. I just hope he is open to me coming off and not going on another mood stabilizer. I have thought about going on Depakote but I really don’t want to go through the blood draws. That was one of the reasons why Lithium sucked so bad, other than the side effects.

Since last night, I have been having severe bladder cramps. I know it is because I am switching alpha blockers again. I had to take another one while in the hospital because the one that my uro prescribed was not in their formulary. I have had increased leakage and less voiding. I haven’t been drinking regularly either so that doesn’t help the bladder issues. If I am full, I am not getting the sensation. I am just in so much fucking pain. I am tempted to send a message to my uro to see what can be done about it until the medicine is back in my system. I took Ativan while in the hospital to quiet the cramps and I could do that now that I am out. I have free rein on my meds so I can take them as I damn well please rather than have a doctor order for when I need it. I just took my night meds which has an Ativan along with my pain meds. I hope that this helps the cramps and pain. I am so sick of hurting. My ankle pain has just decided to kick itself up. I hope this isn’t a long night of pain like last night. I didn’t go to sleep till almost 3 am. I think I read a chapter of Harry Potter and then went to sleep as I couldn’t keep my eyes open anymore. I am reading the 6th book, the Half-Blood Prince. I like and hate this book because we learn about Horcruxes and sucks because Dumbledore dies. I forget who runs the school in the 7th book, but then, Harry wasn’t attending due to chasing down Horcruxes. The 7th is my favorite even though a lot of characters died. I don’t know how JK Rowling could create these beautiful characters and then kill them off. I am sure it affected her, too. I am not sure I could ever create characters and kill them off just to tell a story. But that is just me.

pretty smile

by Midnight Demon, posted in Bipolar Disorder, blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Pretty smile

I did some errands that needed to be done. I also went grocery shopping which killed my legs. I had to take an Uber home because I just couldn’t walk to the bus stop to go home. It worked out. On the way, I realized I forgot half and half. Oh well. I still have a quart that I bought with last month’s groceries. I didn’t get groceries this month as I really didn’t need much. I bought cold cuts, chicken patties, and a pizza my nephew and I like. That should last me a week or two so I have my food that I can make quickly should pain or fatigue be an issue. I gained about 5 pounds while in the hospital, which was the weight I loss prior to being admitted. I see my TG doc in a few weeks so I hope I lose some of it by then. Hope with all the walking and standing I did today I don’t have a flare. I am hurting right now but it is mostly soreness. My thigh is still bothering me and I don’t know why. I don’t know if it is nerve pain or muscle. I think it is nerve because it feels like someone is poking me really hard. If It continues, I will just put a lidocaine patch on it. That really helps it.

I talked with my psych again. It was good talking to her. I said I wanted to get off the Lamictal and will tell the new psychopharm about it. I really don’t think it is helping. If I do become hypomanic, I will get off it but we’ll see. I haven’t had a hypomanic episode in a really, really long time. I have been depressed more than I have been the past 10 years. She wants me to use the therapist and psychopharm as supports. I just don’t know if I can do that. I have a hard time trusting people because I have been burned so much. Also the conversation I had with the therapist yesterday didn’t ease my thoughts on it. She was being sneaky in her questioning of who to contact when I am feeling unsafe. I told her I felt comfortable with contacting my psych and then she said she wanted me to contact her but she can’t stop me from contacting my psych, like WTF. Why didn’t she say that first? Because it was “helpful to know where my thinking was.” Really? Wanted to tell her to fuck off at that point. I responded with you know I have a better relationship with my psych, right? I wanted to say more about what to work on with regards to my suicidality but I couldn’t fit that into a text message. So I said we can talk about it next week and that I would let her know so both of you are on the same page. I never got a response from that text. Fuck. I am going to print out the thing I wrote that my psych suggested I do as I put things better in writing than I do talking. I think I need to add to it some more. I also need to find the 2nd edition of the David Jobes CAMS book as there is a new crisis response thing that I think both patient and client signs as an agreement but I am not sure. I only just glanced at it. I still mean to update the SSF as there have been some changes to it.

Last night, a suicidologist I follow was looking for research articles and books on suicide. I sent her my EndNote file that I had that listed all the suicide papers/books that I have collected over the past 10+ years. Made me realize how much I miss academia. I wish I could go back to school. I think it would help me structure my time a little better.

I am glad I am home. I didn’t like coming home to find that my stuff that was in the hallway has been all packed up. No one told me this and I am really pissed about it. My bookcase is empty and my sister wants me to get rid of it. Fuck no. Why should I get rid of something I fucking paid for?? We also talked about how I have to clear my room out (in a week!!) to place stuff in the alcoves and also do the little remodeling in my room. Where my stuff/furniture is to go, I have no clue. I really don’t want to be sleeping on the couch as that has been my niece’s sleeping spot. But where I am to sleep while the rug is torn up and the wall fixed, I have no clue. I might have to sleep at my sister’s place until the room is done. I will have to repaint my room, which I want to be Fenway green. Paint is probably going to be expensive but I don’t care. It is the color I want my room. Probably will take a few weeks to do. That is if I don’t end up ending myself. I still think about it all the time. I’ve done the last few things I needed to take care of. Now is just a matter of when I will go through with it. And with my stupid pain starting to flare up from today’s activities, I really don’t see how I can’t go through with it.

Ok maybe a little blogging

by Midnight Demon, posted in Bipolar Disorder, Chronic pain, chronic physical pain, CRPS, depression, mood disorders, psychache

Been doing a fair amount of walking today, which wasn’t my intention. I tried to nap but noise kept me up every time I thought I was going to doze off. Foot/ankle are all swelled up and hurt like fucking hell. Pain is easy a 12 right now. Feeling so fucking suicidal. Bones are just aching and feeling crushed. It is always the trigger. One day it is going to set off the gun and swear once it is in motion, I am not going to stop. Be foolish to. I can’t take pain getting worse or my back being a time bomb. It is always half my goddamn foot/ankle. Going to be a long night. Glad I took my pain meds early, though might need another one in a few hours. Hate taking pills all the fucking time for this.

I got the start of PT next week but with my voice being shot, I don’t think I will go. I will just get a referral when I can speak without it hurting so bad afterwards. I am supposed to go back to laryngology in 3 months. The PA said I can cancel if I am “better”. Honestly the woman is whacked. Should send her a message and see if she knows why the whatever it is is making it hard to speak. I never asked her that.

Temps are supposed to drop tomorrow so I am going to be hurting. Temp went up to fricken 80 today. I thought we were done with hot temps. But that is Boston for you.

Mood has been awful today. Just feel so hopeless and with pain hitting me at night, just makes it worse. Really don’t see how this is going to change. Was supposed to have therapy tomorrow but I canceled. Too painful to talk. Never thought I’d lose my voice in so many ways. First is writing and second is literally. Guess my psych is not going to see that book published.