Tag: nerve injury

random thoughts 21102020

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Random thoughts 21102020

I’ve had a day. I met with my surgeon and things are good. I told him about the bowel issues I have been having. He said to contact my pcp as it wasn’t neuro related. I was pleased to hear that. I contacted my pcp and we decided to decrease the magnesium and see if that helps.

After the appointment, I went to the grocery store as I was out of half and half. They didn’t have the big container like I usually have. They didn’t even have a quart of the kind I get so I bought an organic kind as my choices were limited. I bought some ketchup and a half gallon of juice. My bag was heavy. I just managed to get to the bus stop, huffing and puffing. I drank my iced tea that I bought. I had some time before the next bus would come. I was thankful as I needed to rest. I got a text from the pharmacy that my prescription was ready to be picked up so I went to pick it up instead of going home right away. This was not a good decision. I couldn’t walk up the street to my house. I had to call my brother in law to pick me up. I didn’t have to wait too long, thank god.

I came home and turned the AC on in my room. I was drenched from sweat as it was kind of warm today. My brother in law said he was making tacos so I changed into my PJs and a different T shirt that was dry. I was exhausted by the time I was finished with the tacos and going back up the flight of stairs to my room. My legs are killing me. I hate being so out of shape. I know when I see PT on Friday I am going to be as exhausted.

The suicidal ideation that had been flowing in and out the past few weeks have gotten worse. I texted my therapist that I think I should see her and she sent me a time for next week. We have a lot to talk about. I just hope she is willing to listen to what I have to say. I plan on writing down the stuff I want to talk about so I don’t forget. I have my notebook ready. It is the one I have dedicated to therapy.

I hope I sleep good tonight. I meet with my psychiatrist tomorrow. I wish I didn’t have the appointment. I just want a day of no appointments but that is not happening this week. I am just glad I don’t have to go out until Friday for PT. I am so exhausted and my ankle is starting to smart. My back is already hurting. I forgot to tell the surgeon about the cramping. I think I will sent him a message and see what he says.

Sunday Blog 18102020

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Sunday Blog 18102020

I have been in pain most of the day. I made my breakfast and my back cramped up on me. No matter what the fuck I do, my back cramps up on me and I don’t know fucking why. I am so annoyed. I hope when I see the PT on Friday she can give me some answers. It is the middle of my back more than the lower back where I had surgery. I hate these cramps/spasms so much because I can’t do things. Even folding laundry my back was cramping. WTF.

I did my exercise today. I walked the length of the house four times as I brought my mother a cup of coffee before bringing my tea upstairs. By the last leg of the walk, guess what happened? My back cramped up! I am in agony right now and am contemplating taking an Ativan because the Zanaflex doesn’t seem to be working. I am so damn tired from it though, which is why I made some tea. It is tea from England, a Twining Everyday tea. It is really good. I still have my Yorkshire tea that I have not had in a while.

I just talked my mother into making grilled cheese for supper. I have been craving it the past few days. I would make it but I always seem to burn it. I don’t like burnt grilled cheese. My mother makes it better than I do anyways. I don’t know why that is. I got to watch her make it to find out her secret. I think she puts more cheese in it than I do.

I have been reading a book by Glennon Doyle. She is a gay author and a feminist. I am learning so much from this book. It is making me want to write a second memoir on feelings or something like that. My first memoir was good. I sold and continue to sell copies. I think more than 100 books have been bought, between Amazon and my personal signing. I haven’t written a book since 2016. That is a long time.

I see my surgeon this week and I am going to tell him about the spasms/cramps in my back. Maybe there is something he can suggest that I can do or take for it. I also see PT later this week. I have a jam packed week of appointments every day this week. Tomorrow is therapy, Tues is pain psychologist, Wed surgeon, Thurs Psychiatrist, and Fri PT. I am going to be tired. Luckily the only appointment I have to leave my house for is PT. The rest are virtual. I am nervous about seeing the pain psychologist because she isn’t the one I wanted to see. I wanted to see the guy because he isn’t heavily into CBT. I have sort of that with my therapist and I don’t like it like I thought I would. It is a lot of work.

Tomorrow I am going to bring up the last blog I wrote that was only 165 words. I started writing about my grief and things ended there. I couldn’t really go on writing so I just ended the blog there. I am not happy about it because it was so short, probably the shortest blog I have ever written. My therapist knows that when I feel powerful emotions I tend to stop. It is something to work on.

My ankle has been bothering me since around noon time today. It feels like someone is trying to stretch the fuck out of it. I just feel this pull on it. It hurts so bad. I took a pain med for it but it doesn’t seem to do anything. I have tried keeping it in the “L” position and that hasn’t helped either. No matter what position I have it in, it hurts. This is the umpteenth day in a row that my ankle has been hurting. Walking seems to temporarily stop the pain but soon as I am in a resting position the pain comes back. I can walk the length of my house but my back cramps up on me. I fucking hate being in pain every single day with either or both my ankle and back bothering me. It is getting me down and I don’t see getting out of it. It is making me feel hopeless. I hope the pain psychologist can help with some of this stuff, which is why I am seeing her. My only goal in seeing her would be to better cope mentally with physical pain. I just hope she doesn’t give me fricken DBT shit or I will lose my shit.

Saturday Blog 17102020

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Saturday Blog 17102020

I have had a tiring day. I again woke up in the early morning hours so I felt sleepy. I took a shower and that made me more tired. I wanted to make myself something to eat but my sister was using all the available kitchen space to make muffins, a pie, and a chili. I envy her energy because I would have stopped at the muffins. When she had finished putting thing back and there was counter space, I made myself something to eat, which caused back spasms to happen. They happened while I was showering so I was getting beat down.

I felt so depressed the past few days because my uncle died yesterday. I am filled with grief. My father’s side of the family is gone. My aunts and uncles are all dead. I just have my cousins now. And for this to happen close to a year since my aunt passed away last year is just too much.

sad news from the home land and other things

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Sad news from the home land and other things

I just got a text from my cousin who got a call from my cousin in Italy saying that my father’s surviving brother is not doing well. He just turned 94. I met him years ago when he came to America. A very gropy man with no shame. I hope he doesn’t die but his time might come. There will be no surviving family members when he goes. He is the last of the family to be living of 9 people. I am sad that he is not doing well. I hope he doesn’t go but I know that he is loved by all of us cousins.

I got a call from the pain clinic office. My appointment with the pain psychologist got moved to another psychologist at a later time the same day. I wanted to meet with the male psychologist because he wasn’t so true to CBT. This psychologist that I will be seeing is a CBT therapist. I already work with one so I don’t think it will work out. I am not liking CBT because it doesn’t allow for free association. I am having a hard time with therapy because not only is it virtual but I am attracted to my therapist a little bit. It is hard talking to her because I am afraid she will laugh at me and no matter how many times I try to overcome this fear, it never works out.

In my last session with my therapist, she said that I am not accepting my mental illness and it is harming me. She sees accepting it fully as wanting to change it. I don’t see it that way. I think I have accepted it and just think it is what it is. I honestly don’t see things changing but she has me do skills and meditation videos. I am supposed to do one meditation video per day until I see her next. I think I found one that I can do. I looked at YouTube for 5 minute ones. Yesterday I looked at this one when I was feeling down. It didn’t change anything but I felt calmer afterwards.

Today I went to the pharmacy to pick up my meds. It was a nice walk as it was gorgeous outside. I like this weather because it is easier to breath in. I am not so winded when I came home. I don’t know if it is because I was wearing a different mask or not. I had a Red Sox one that I washed and now it is missing. I am so mad about this. I had three masks and they are missing now. I don’t know what happened to them. I also had one that a friend made me and it is missing, too.

I need to take a shower one of these days. I have been so bad about taking them. Past few weeks I just been taking one per week. Most of the time I wait until I stink before I take one. Taking a shower is very exhausting for me and sometimes painful as my back can cramp up on me, forcing me to sit down a few times. I don’t like showering for this reason. I used to love taking a shower but now it is such a chore.