ramblings 355

Ramblings 355

My brother in law made some shrimp scampi and I had some. I really shouldn’t have but it was good and I over ate. I really wanted to stay up till 2100 but I couldn’t. I ended up going to sleep around 2030. I had to take my antibiotic so I didn’t sleep too well. Around 2300, the light in the hallway was on. I figured my mother had gone downstairs to use the bathroom. I listened carefully but didn’t hear anything. Then I started thinking the worse and that woke me up. I took my antibiotic and then went downstairs to see if she was okay. She was. She had watched a movie and then decided to empty the dishwasher.

I used the bathroom and then tortured my mouth again by brushing and using the rinse. My gums are starting to feel better but brushing my teeth is still kind of sore. I’m glad my gums aren’t bleeding anymore. I went back up to my room and I was awake. I couldn’t go back to sleep. Then my ankle started acting up. I took my pain meds with some water. I hope my prescription is ready to be picked up tomorrow because I only have a few pain meds left. Damn medical assistant got my strong pain med and regular one mixed up. She thought it was the same thing. Oi. Dumbass. It’s like saying Amoxicillin and Penicillin are the same thing. Sure, they are the same class of meds but they work differently. I don’t get it. I thought you had to pass a pharmacology course to be a medical assistant. I guess they don’t stress that anymore.

After I see the dentist tomorrow, I will call my PCP’s office to see if my script is ready to be picked up. If I have to camp my ass in the office to get it done, I will. I can’t be without my pain meds. That will just not be good.

I had slept for most of the day because I was up most of the night. Now it seems like I will be up most of the night again. I am just not tired because my mother freaked me out and gave me a scare. I don’t know why she emptied the dishwasher at 2300. She sounded okay so she wasn’t in a hypoglycemic (low blood sugar) state. She does weird things. I am just glad she is sleeping now. She can sleep at the drop of a hat. I can’t. It takes a long while for me to get to sleep.

One of my Twitter friends suggested that I write a blog about how therapists are picky about the clients they choose. He said it would be a powerful blog. I have been thinking about it but I really don’t know where to start. I have seen so many therapists over the years but none of them have rejected me because of my suicidality or hospitalizations. It’s trying to find a new therapist that is the problem. I will write it, eventually. I have a lot to say on the matter as I am pissed off about not being able to find someone for the reasons I stated. Makes me really wonder why they chose clinical mental health and not some academic position. Makes no sense.

never ending. It just goes on and on

Never ending. It just goes on and on

I’m trying to settle down for sleep but a new pain keeps popping up when I lie down, when I sit up, when I take my meds, when I move it, etc. It is fucking never ending. I am not doing a damn thing tomorrow, least that is the plan for now.

I sent an email to my psychiatrist asking her if I was a difficult patient. I briefly discussed my therapy session with my therapist and that the therapy group down the hall from him contacted me. Unfortunately, it got filtered to my junk mail so I didn’t get it until I got home. My phone doesn’t get junk mail for they could be viruses embedded in what they send. Last thing I need is a virus on my phone.

I just sent an email to my neurologist asking her if she could help me out by confirming that I do indeed have CRPS as my PCP just wants to pass me off to another doctor. I am tired of seeing new doctors who aren’t helpful and then just want to pass me off or not treat/see me anymore. I see my neuro in two weeks. It was kind of a long email but I don’t care. My stupid phone kept on inserting different words as I typed, which annoyed the crap out of me. I should have just typed it on my laptop so I wouldn’t get aggravated. Lesson learned.

My foot feels like it is being strangled. There is such a pressure on it like it’s going to burst. I am so tired that I am reaching the over tired stage, which is dangerous because I could catch my second wind and then be up all night. I took an Ativan because along with the strangulation, my ankle is pulsating. The little muscles are twitching. This condition is so frustrating because there is never ending different kinds of pain. I wish I could see a doctor at this hour so they can see or I can try to explain to them what living with this condition is like. All I can do is send them an email and then not get a response. But at least by writing it out, it helps me because at least I have documentation that I wrote this to a doctor.

I still am shocked that in the great medical hub of Boston, I have not found a doctor that is willing to help me. Sure, my PCP gives me pain meds to alleviate my pain. I appreciate that. But he doesn’t want to stop there. Right now my diagnosis is in the air and it is making everything seem like we haven’t tried enough. I am tired of this merry go round. I want off. I asked my neuro if she could possible give me a concrete diagnosis and staple it on my PCP’s head. Well, I didn’t say that. But if she could send a note to him saying I have this dreaded condition, then maybe I don’t have to see yet another new doc. There is no treatment for this condition. I know this. My PCP knows this, my neuro knows this. But opioids help me and if I don’t have them, I am good as dead. I have exhausted physical therapy. I have tried injections. I have tried rest. This is no longer a case of tendonitis. It is deeper than that.

The pain is changing all the fucking time, all over my ankle, foot, toes, bones. It hurts every where. Normally, at this hour, I would be writing a morbid story about ending my life. That is what this blog was about. My suicidal thoughts in the cybersphere. But then one day someone took it too far and called the cops on me so I no longer talk about those things, even though it relieves the tendencies to act. Thoughts are NOT the same as feelings. And feelings does not mean act upon them. It is okay to feel. It is ok to think. Here is a quote from the father of suicidology, Edwin Shneidman that I had the pleasure of talking to him before he died.

“Never kill yourself while you are suicidal. You can, if you must, think about suicide as much as your wishes and let the thoughts of suicide –the possibility that you could do it- carry you through the dark night. Night after night. Day after day, until the thoughts of self-destruction runs its course and a fresh view of your own frustrated needs comes into clearer form in your mind and you can, at last, pursue the realistic aspects, however dire, of your natural life”. –Edwin Shneidman, Suicidal Mind, p166

I write these blogs because I still am struggling night after night, day after day. Pain increases my vulnerability to think of self-destruction. I have the means though no one talks about restricting them. I told my psychiatrist I have something that will end my life but still, she doesn’t ask about it when I see her. She never does. Poor assessment of risks. So does my therapist who knows damn well that I have chronic suicidal thoughts. It makes me angry that I am not treated the way I was with my former therapist, Bozo. She was annoying, I will give her that, but she fucking cared and if I had a method she damn well tried to take it away from me the best she could. I really miss her. Yesterday was her birthday. I wonder if I will be alive to see mine. I really am surprised that you CAN get anything off of Amazon. While I was searching for my method, they had machetes. Machetes!! I don’t think I would have the will power to use it to chop my ankle off but I know a chainsaw would do the job. I refuse to search for it because I know in my darkest of moments, I may just buy it. I’ll go all Scarface on my ankle and groin to sever my artery.

I am once again plagued by dark thoughts. All because I can’t sleep and I am in pain that is never ending. It just goes on and on.

very tired, weepy, depressing day

Very tired, weepy, depressing day

I woke up around 4 in pain. My jaw hurt and my ankle was berserk. I took some more ibuprofen and pain meds. Luckily, I went back to sleep. My alarm went off and I didn’t want to get up. I thought I had snoozed it but I didn’t. My new phone has a lit up screen with the day and time and any notifications. I glared over and saw it was almost 0930. I had to get up, brush my teeth and wash my face. Then I put on deodorant as it was going to be hot today. I then got dressed and was really feeling frustrated that again I got no help when I seeked it.

I had emailed my PCP last night before bed to tell him I was in the ER. I got a response asking if I wanted to be seen and if I did I should call the office. I didn’t feel like being examined again, so I told them I pass and my pain levels were “normal”, whatever that is. I didn’t get a response back so I hope they go away.

I had my espresso and a steak and egg wrap that I like. Unfortunately, chewing was difficult. And it hurt. I tried to eat on my left side but it was hard. It was the only thing I had to eat all day. I bought a scone but I couldn’t bring myself to eat it. I saved it for tomorrow. Before I knew it, it was time to see my psych. The train was late. I just made it to my appointment. My psych was getting worried as I am always early. I explained the train was late and so therefore I was. We talked about the ER and she read me the notes. She jokingly said I was aggravated because my BP was up. HAHA. I wasn’t lying about that! The notes said I had diminished sensation on my foot in various parts and decreased range of motion. Tell me something I don’t know. She reassured me that I wasn’t having a recurrence of CES. She said it so sternly that it kind of freaked me out and then I became weepy and annoyed. I started to cry a little. I was really depressed and just wanted my pillow. When I said that she asked if I wanted pills. HAHA no, just my pillow will be fine. We have an appointment next week as then she is on vacation for three weeks. She stressed that someone else would be answering her pager while she was away. I told her I would just email her. Unless I was in dire straights, I don’t think I will page her covering doc.

I left and fell asleep on the train so I missed my stop. Sucks because I missed the bus as well so I had to wait an hour for the next one. I just tried to snooze as I listened to Bon Jovi. I was still weepy and felt relieved I didn’t have CES again. I think that is why I was so tearful. But still, if someone looked at me the wrong way, I was bound to cry, that’s how sensitive I was today.

I came home and my mother said I looked exhausted. I told her I was. I told her I didn’t want anything to eat. She made me a plate and then called three times. I told her my jaw was still hurting and I just needed something soft. I opted to drink an Ensure rather than make boiled eggs. I am hungry but I just don’t feel like aggravating my teeth right now.

I did a dumb thing. Last night I put in a refill for my Zoloft. It was an older prescription but I didn’t see the newer one. In my “history” the refill wasn’t there. That was because there were no more refills and I had just had it filled on Monday. I am a dum dum. I put away the meds that I recently got.

I took 2400 mg of Neurontin to try and sleep. Unfortunately, my neighborhood had other plans. There were sounds of hammering and other construction noises. Every time I tried to relax to sleep, some noise woke me up. I was so annoyed. I eventually fell asleep. Now I am feeling groggy and foggy. I took my night time meds plus my pain meds and ibuprofen. I think ibuprofen and I are going to be friends for a while. The dentist was concerned because the novacaine numbed the right side of my nose. He called me this morning to see how I was. I called back when I shuffled around trying to wake up. I told him I was fine, sore but fine. I was kind of nervous though because while I was eating my wrap, I felt like sand was in my mouth. I hope a filling didn’t come out. I was too tired to go back to the office to get checked out. I will be back in two weeks for another filling so I will have him check it then, unless it hurts really bad or something.

I talked to my psych about my therapist and the coordinator for the pain group. I told her I am still looking for another therapist but haven’t had any luck yet. I jokingly said I must be on some kind of blacklist. HAHA. She said no. She did find it odd that no one called me back. I hope to hear from them within a week or so. Otherwise, I will try another place. Until then I will continue to see the nail picker. I am going to try and ask him if he is mocking me or just throwing things out there to show he is listening but not offer any advice to help me. I really don’t feel a connection to him. He is just there for me to ramble but that is not what I want. I want someone that is caring and is willing to help me find new ways in dealing with my problems. I thought that was what therapy was all about, not just rambling on about shit.

I kind of got suicidal when I got home. It was just passing thoughts but I just wished I was dead. I feel nothing inside that makes me feel alive. I am in so much physical pain all the time, it’s just draining the life from me. Like is this how I am supposed to live the rest of my life?? I know suffering is part of life but must it happen on a daily basis? I cried when I was in my room as I thought about this stuff. I couldn’t help it. I hate feeling miserable. I rather feel nothing or depressed. I am just tired of fighting all the time. I don’t get a break from it. It’s going to kill me eventually. I will be another Chester Bennington, but a no name.

having a rough day so listening to Taylor

Having a rough day so listening to Taylor

I only got about 4 hours sleep. I was up all night and didn’t go to sleep until 0600. I didn’t think I was going to get to sleep but I took an Ativan and slept a little bit. I made coffee and finished Huck Finn. My sister made a burger on the grill and I am having a beer. I love Sam Adams Summer Ale. I still need to go to the liquor store to see if they have Zima. That is my all time favorite drink. But it’s only limited edition so once it is gone, it is gone.

After I had the burger, the pain in my ankle came back. I took some pain meds. I don’t care that I am drinking a beer with it. One beer isn’t going to hurt me. I’m hoping it will make me sleep for a bit. I am really tired. It has been a long while since I was up all night. I had emailed my psych but haven’t had a response. I really don’t know what I wrote other than I was fed up with my condition and I didn’t want to go in the hospital unless they would amputate my ankle.

It’s another hot day but I don’t care. My sister wanted me to help her with the lawn stuff. HA, No fucking way. I am just glad she got the grill up and running. I miss having BBQ food. There is a chicken kabob recipe I got on Facebook that I want to try. She needs to show me how to work the grill though as I really have no clue.

I was going to change my sheets today but that isn’t going to happen. I am much too tired to attempt such an ordeal. I’ll attempt the task tomorrow. I still need to bring down my recycles. I have two bins now full. I’ll take them down tomorrow as Thursday is trash day, least I think it will be. I’m not sure because today is a holiday.

Can’t believe I am still hurting and I haven’t done a thing for the past half hour. I am starting to feel a little drunk. Doesn’t take much to get a buzz off alcohol these days. I am almost done with my beer. I was hoping it would tone down the pain but I guess not. I am so depressed about it. Seems like nothing helps this pain and I am just forced to live with it. What kind of life is that? Not one that I want to live through. I much rather be dead. But I am a coward. I have a plan and yet I am scared to execute it. I don’t know if I will succeed this time or if I will be saved because I will be in a public space. But it is where I want to die. I hope one of these days I get the guts and go through with it. My only other fear is that it will be too far to walk to. I don’t know. I just know I don’t want to exist anymore.