Category: chronic physical pain

Just a stupid blog from a brain fogged brain

by Midnight Demon, posted in Bipolar Disorder, blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Just a stupid blog from a brain fogged brain

I went to bed at 7 am. I took my morning meds at that time because I didn’t want to wake up a couple of hours later to that alarm. I wanted to make cookies and shower/shave today. I just ended up making cookies. The oven, which is like 20 years old, is not working right. These cookies should have been done in 10 minutes or so, 20 tops. 40 minutes later, they were still not cooked. WTF. I took my infrared thermometer and found that the temp inside the oven was half of what I had it at. So my brilliant mother said to put it on 400 degrees, 25 more than what I had. Now I have a few burnt cookies and others that are crispy because they browned too much. UGH!!! She yelled at me for not looking at them. What am I supposed to do, look at them every two fucking seconds?? I don’t think they will cook if I am constantly opening the fucking door!! So then I had to clean up. I had dinner first and then tackled the dishes. I didn’t do the pans. I hate washing the pans because I get water all over the fucking place. I honestly don’t think they need to be washed any way because I used a silicone mat and parchment paper. They probably just needed to be wiped down and put back in where they belong.

After the dish washing, I had to rest. My feet were killing me. I shaved my head and put my T shirt in the hamper as it had flour all over it. I went up to my room. I must have rested for like 20 minutes and I had to stand up to grab another bottle of Powerade. HOLY FUCKING HELL!!! My bones in my CRPS ankle felt like it was being crushed! I felt like I was trapped as I couldn’t figure out how to get back into bed. Seems dumb but it is true. I was standing by my bed but couldn’t figure out how to turn around or at least sit on it to swing my legs over. That was how much pain I was in. The pain settled down but my bladder said it had to go. Fuck. I played on my phone like ignoring it would empty my bladder. I wish it worked that way. I stood up and the same thing happened. I grabbed my cane and carefully put on my slippers. I am glad I had the cane to support my leg as it was hard. I went down each step one by one and then when I reached the bottom, I let out a yell. I waited a few minutes before walking to the bathroom. My bladder was ready to lose it. I hurried as fast as I could, holding on to walls and stuff as I walked. I did the deed and washed my hands. I then carefully walked back to the staircase when my mother said I should sit and rest before going upstairs. She doesn’t fucking get CRPS. I was resting. Standing is what is causing me fucking pain!! I need to be in my bed so I could be in my comfy spot and maybe be sleepy enough to lay down and sleep. I don’t know. Pain is so bad right now I don’t think I will sleep even though I am fricken tired. My foot is cold and I put a sock on but I can’t feel it. I never do. I honestly can’t tell sometimes if I am wearing socks unless I look at my feet. Thank you Cauda Equina Syndrome for throwing away my proprioception. My feet are hot so I think I will take off the one sock I am wearing.

I won’t be spending Christmas Day with my family. My friend invited me over to her house so I plan on going. I haven’t seen her in a long time so it will be cool to spend some time with her and her family. I kind of feel bad about it but my friend is bring my older friend who hasn’t been feeling well lately and I really want to see him. He is 82 and it is rare that he is out and about on the holidays. I really would like to spend time with him because there might not be that many left, not that he isn’t in ill health but he isn’t getting any younger. I haven’t told my family yet.

Feeling horrible and slept all day

by Midnight Demon, posted in Bipolar Disorder, blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Feeling horrible and slept all day

I woke up around med time. My alarm went off at 8 instead of 9. Something is wrong with the app because it is not going off continuously to annoy me to get up. Just has the little sound and then nothing for the next 15 minutes or so. I don’t know what to do and am afraid of uninstall/reinstall thing. I would hate to input all my meds again. There are really just three that need alarms the rest are just as needed, when I need to keep track of when I last took them. I need to get in touch with the developer and see if they have an advice.

I took my meds and then used the bathroom but forgot to brush my teeth. I was kind of in a weird state where I really had no idea what I was doing there. I went back to bed, thinking I would sleep for a few hours and then I would get up to eat and make cookies. Did not happen. I woke up around 2pm after a weird dream about the Obamas and the White House. I don’t remember more than that. I used the bathroom and then brushed my teeth. I made some graham cracker cereal and found we were out of milk. That meant no cookies. I texted my sister to pick some up on her way home. My mother called to keep me in the kitchen until my niece came home so I could let her in the house.

I had coffee but it didn’t help. I went back to my room and succumbed to the sleepies. I thought I would sleep a couple hours but I slept until my night med time. Fuck. I wanted to order some steak tips but I think laying down so soon after eating the cereal messed up my stomach. Looks like the cereal is the only thing I am going to eat today. I feel horrible that I slept all day again today. Seems that on days I don’t have anything to do, like go to an appointment or something, I sleep. Granted the day after I have therapy, I am tired because I am usually up all night, but this time I wasn’t. I slept through most of the night at a decent hour. I just can’t force myself to stay up. I just feel like sleeping is better, but I am wondering how much of it has to do with depression and how much has to do with not sleeping and being in pain. I sent an email to my psych that the CRPS has spread to my whole foot. I am not happy about it. If you compare my left and right, the left is more swollen than the right and there is some redness at the arch. I hate this! I thought it was just because of the flare I had Monday but now doesn’t seem to be the case as my foot is still sensitive.

I am not liking all this sleeping. I don’t want to get in the habit of sleeping all day because I have the risk of being up all night and that is a bad thing for triggering my bipolar. I already had a few being up 15+ hours. I haven’t made it to 24 and I hope I never do. Closest I have ever come is 22 straight hours. I hate feeling terrible and after I had used the bathroom and went back to my room, and nearly fell because I almost lost my balance taking my slippers off, my foot then exploded in pain. Now I am not sure I am going to sleep again and I am pissed I woke up. Just let me fall into the death nap.

I have been worried about my eating, or lack thereof. I just did some calculation to figure out how many I need just to maintain my weight. But the problem lies with being male or female. If I am a male, it is over 1700. If I am a female it is 1600. I am a male but I am transgender and currently still in a female body so I am all fucking confused. I feel like I should go with the male because fuck, I am a male but yet in my medical records I am female. Fuck. I just am so fucking confused about this shit. I know it is a technical thing, and we are just talking 100 calories. That could be a protein bar, give or take. I know I have not been eating anything close to 1000 calories the last few weeks. Yet I haven’t lost that much weight. I maybe lost 1 pound or so in a week. And I have lost 8 pounds when I wasn’t eating anything, just a thing of ramen noodles for the day. The website I was at said that fasting like I have been aka not eating, can lead to gallstones. Great. Always wanted those, NOT. It is because I am breaking down muscle instead of fat. So I am losing muscle instead of fat. Lovely. I keep telling my doctors this but do they fucking listen?? No. do they order tests to see if my vitamins are okay and shit like that? No. so I could be malnourished and they don’t care about it. I hate taking vitamins and they aren’t cheap. I might take one here and there. But after a while, the gummy gets hard because the bottle was opened and air made them dry. I like gummies better than pills. But I am not going to buy a shit load of vitamins. I had the B vitamins that were sublingual. Those were good but then I stopped because I forgot to take them, and because they were under the tongue, you couldn’t put them in a med box. Plus they had red coloring that came off so if they stayed on your hand or some place, the red wore off. I hated this. I have no idea where I put them. I know I had a bottle on my bureau as I had two. But no idea where they are now. I wish there was a medical person I could talk to about this, someone that fucking cared about this shit and didn’t pass me off because they didn’t have a clue. I don’t even know who to see. Then I think of the trouble to figure it out and I don’t want to do anything. Add in the depression and nothing gets done about it. Fun. So I want to lose weight but no clue how to do it and yet I am barely eating because my appetite is fucked up. Just hope for my birthday, I have my pizza. Hope I eat more than one slice.

5 days before my birthday, good grief

by Midnight Demon, posted in Bipolar Disorder, blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

5 days before birthday, good grief

I had a list of goals today. I wanted to brush my teeth, make breakfast/lunch, shave and shower, and then bake. I got up around 11. I brushed my teeth. Then I made the steaks I bought yesterday. That was breakfast and lunch. I had two cups of coffee. Then my mother needed some help doing some stuff. So I helped her out. I then shaved. Trouble was, the trimmer died after like three swipes on where I was shaving so I had to then switch to my razor which took longer than I expected. I usually charge my trimmer before I use it but I forgot and thought it had enough juice to do the job. It is an old trimmer so I think the battery is going. I charged it as I was shaving. I then did my head. For some reason, my head isn’t as smooth as it was before. I don’t know why this is. My sides are but the back of my head is kind of rough even though there is no hair. I then showered. I did okay as I only had to sit once or twice. But my foot was hurting. I was getting really tired. I dried off and then talked to my mother. She asked why I was tired and I said I didn’t sleep again. My soft blanket last night was on the crook of my ankle and as I moved it, it felt like it was cutting into in. I barely touched it as I showed my mother where the blanket was. That was all it needed to set it off. Fucker. I couldn’t deal. I took some gaba, only a small dose, and my pain med as my foot was hurting, like it was being crushed. I played with my phone some and then I crashed.

I woke up a little while ago. I was expecting my mother to call me for dinner but I guess she made her own, and I was to do the same. I don’t care. I am not that hungry any way. . I have been wanting a graham cracker cereal for a while. I think that might be my dinner. I shaved my mustache last night and now my upper lip is bothering me and I don’t know why. Maybe it is growing back in.

I took my night meds at 7. I have decided to take them early rather than later because I tend to sleep earlier than later, if pain isn’t a factor. I used to take them early but I stopped because of the pain med. It was like I was taking my night meds at one time, pain med an hour later, and gabapentin at an hour later. That combo seemed to work good for a while. Then I decided to take every thing an hour later and just take the gaba when needed. It is so hard to keep track of the pain when I flare though. That is when no combo works. I am so tired. I hope I can sleep at a decent hour. I really wanted to make these fucking cookies today but after the shaving and shower, I knew there was no way I was going to bake. I needed a nap. I got to listen to my body when I need rest because it’s rare that I have these opportunities to nap. Usually, I go to my room with the intention to nap, and I end up playing with my phone or decide to read a book and then the nap impulse fades or I get more tired, which is not good. Then I become overtired and I am up all night.

Book gone live and other Monday things

by Midnight Demon, posted in Bipolar Disorder, blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders, suicide

Book gone live and other Monday things

I have no idea how many hours of sleep I got. I had a rough night plagued with suicidal thoughts, deep depression, physical and emotional pain, and restlessness. I know it was probably dawn when I fell asleep and then my alarm went off. I was so rushed because I had about a half hour to get ready before the bus came. I forgot to take my morning meds. I ended up taking the Trileptal when I got home from therapy.

I didn’t have that much funds so it was just a reward drink I got. I wasn’t hungry and I forgot to bring a pop tart with me in my haste. Wed I hope to have more time as I don’t have to leave early as I won’t be going to Starbucks. I will just have coffee at home before leaving. Therapy went okay. We talked about how my bladder is stubborn, my losing weight from loss of appetite, and editing my second book and then re-publishing it. OMG what a fucking hassle that was. Createspace joined Kindle so they are the same right now. And the stupid thing format was worse than Createspace. I couldn’t add a blurb about the author. I had to redo the thing to get the damn back cover blurb changed. Then I forgot to order a proof, which I am so mad at. I had hit click too fast. Amazon at least gave you the option before the final click! Then I check the website and my book is discounted by $15! WTF. I couldn’t believe it. And only 1 is in stock, which is bullshit because they print them as they are ordered.

On the way home from therapy, I went to the grocery store to use the last of my food stamps for some steak and coffee. I really like the iced coffee. No mess, just pour and serve. Easy. My mother is sick. I have no idea where she got it from as she has been home the last few days, unless she got it from her sister, I don’t know. I just hope I don’t get it. I made myself a steak and cheese sandwich and then what my mother wanted for dinner. I then went upstairs and rested and all hell broke loose. My foot yelled at me and my back was crying. I wanted another sandwich, though. I waited for the pain meds to kick in and when they did, I went downstairs. I gave my mother some cough drops and then made the sandwich. I didn’t use as much pepper this time. I feel a little better now that I have some decent food in me. I have enough steak for 2 more sandwiches. My mother doesn’t like steak so it is all mine!

I got to order more copies of the new edit next week when I get paid. My friend in Canada wants one and I think I am going to recycle the ones I have. I will just order about 6 copies as they aren’t flying off the shelves anyway. I don’t think I have posted to Facebook yet. I got to check my page. Sometimes I post things twice because I forget I posted. Or I think I posted but it was really on Twitter.