Category: chronic physical pain

abuse finally told

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, suicide

Abuse finally told

****trigger warning****

Wednesday, my mother set off my PTSD. I had such anxiety most of the day that it was driving me crazy along with the intrusive memories and feelings of shame and humiliation. I couldn’t sleep the whole night. I was up because of pain so around 0430 before I went to finally rest, I sent a text to my therapist asking if I could still see her today despite canceling the appointment. She responded like an hour or so later saying yes, I could come in.

I wasn’t sure how I was going to go about this. I had so much on my mind. I needed to ask her input on how to set boundaries with my mother and she said that it is not going to be easy as this is going to be coming from left field with her (my mother). I knew it would be I was just hoping something I could say could diffuse the situation. Really didn’t come up with anything so I started talking about the stuff she did to me. She said if this had happened today, child’s services would have been involved. I still feel sick about all of it. When I told her what she wanted the doctor to do and then I couldn’t tell her what went on at home, with her holding me down to do what she wanted to do. I pretty much told her everything that she ever did to me. She (therapist) thinks my mother is psychotic. She is not trying to take away from what she did to me. My therapist told me what she did was abuse and I was both relieved and scared about this. I always got that what she did was of “motherly concern” so therefore was not abuse. And because when I confronted my mother at 16 she denied it as well as I was told how could I say such things about my mother, it just made me shut down. I denied it because I had to. Now I cannot because it is causing too much turmoil.

The abuse happened when I was a toddler up until I was fourteen. It made the gender dysphoria so much more present and also messed with me in other ways. I feel dirty and I don’t think I will ever be clean. This is all I can write at this time. I wish I could write more but it is hurting too much and stirring up too many emotions.

feeling grumpy and hopeless

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Feeling grumpy and hopeless

Monday I saw the concussion doc. I am doing better but he still wants me to go to PT. I was supposed to start Friday but this urine infection is giving me bladder pains and cramps. I just don’t want to do nothing. After the appointment I saw my therapist who let me go after 15 mins of being there. I was so uncomfortable with my bladder that sitting was hard. I wasn’t talkative so she just let me leave. I have mixed feelings about it. I then canceled our appointment for tomorrow. I just cancelled all the appointments I had for the rest of the week. I just feel so miserable and depressed. I don’t want to do a goddamn thing. Yesterday was a complete blur. I didn’t sleep Monday night or kept waking up so I think I slept all day. I know I didn’t eat anything except M&Ms peanut candy and Ensure. I think I just left my room to use the bathroom and that was it.

I woke up in miserable mood. The urine culture came back with some bugs in it. Now I am just waiting to see if the doc wants to treat it or not. I am still having bladder pains. I had called yesterday but they said I had to wait till today for the culture to come back. I thought my depression was getting better but now I feel so much worse. Next week when I see the psychopharm I am going to ask her to see if increasing the duloxetine would be good. The nortriptyline isn’t helping my mood as I am on a low dose but it is helping the pain a bit. My neurologist gave me more than a week’s supply of a muscle relaxant. It is working as I am no longer getting spasms in my feet. They would come on while I was in the shower and omg I thought I was going to die just standing there while my feet spazzed out on me.

Right now I don’t have an appointment with my therapist. I responded to her message but haven’t heard anything yet. I got a few appointments next week. I see the behavioral psychologist and then PT. I also see the psychopharm. I feel so blah and overwhelmed with all these appointments.

I am fricken livid at my mother. I was in the bathroom cathing to pee and she just barges in to throw something in the hamper. WTF she couldn’t wait five fucking minutes??? I am so damn mad that she does this to me all the time. I know I need to tell her to stop but it is so hard talking to her because she doesn’t fucking hear what you tell her half the time and need to repeat it several times for her to get it. Then she thinks about what you say and she goes on a different tangent. Drives me fucking nuts. I want to hit the lottery so I can have my own apartment. I will hire a cleaning lady so I don’t have to worry about dust or the bathroom being dirty.

I have been fighting the urge to nap the past two hours. I am just so damn tired. I woke up three times to pee during the night. I try not to drink but the meds make my mouth dry. I got to switch back to Powerade as Gatorade is like drinking water. Soon as I start drinking, I just want more and more and before I realize it, the bottle is gone. Then I have to stay up to wait for it to go to my kidneys so I can empty my bladder for the night. I think nights of sleeping all night are over. There is like this internal 2-3 AM alarm clock that goes off saying I got to pee. It sucks. And once I go downstairs, do my business, then go back to my room, I am awake for a couple of hours.

I don’t plan on doing anything the next few days. I might get my haircut but that will be all. I just have no motivation to do a damn thing. I just want to sleep but the payback is being up all night. I haven’t eaten today and I don’t think I am going to. I haven’t even had an Ensure. I just had a cold brew and a cup of tea. I made the tea perfect. I love when I do that. It is so good. Wind is picking up. I got an alert that an advisory is in effect. Great. Hope it doesn’t keep me up.

Friday Blah

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Friday blah

Temps went up to around 50 today. I sweated through my PJs despite having the window and fan on. I was so damn hot. My foot woke me up around 1pm. Bladder did too. I have urine infection so I have to go every couple of hours. I hope the medication works for it and the bladder cramps.

I just had to pick up my meds at the pharmacy today. My mother wanted me to go to the bank but she had my nephew go. She didn’t think I was going to get up. I really didn’t feel like going but it makes me walk around the block so I don’t mind it so much. When I came home, I wanted to create a document for the psychopharm for a kind of safety plan. I found an old journal with the Suicide Status Form but it must have been from the early days of when it was being devised. It only had like five items on it, a question about whether the client can keep themselves safe and their signature. No clinician input at all. I created the document and just added a clinician signature to it so that we can both agree to my safety. I will print them out for my therapist and the psychopharm Sunday night. I had sent my therapist a message about our appointment not being in the web thing calendar and she must have put it in today because it is there.

I have two appointments on Monday. I see the concussion doc and then I see the therapist. I have two hours in between appointments. I am going to be fricken tired. As I was going through Twitter last night, Dolly Parton had her song, I will always love you, in a clip. Made me think of Whitney Houston and I tried in vain to get one of her albums downloaded but fricken the Amazon app wouldn’t cooperate. It was having issues and customer service wasn’t helpful. So I downloaded it on my laptop and will transfer the songs after I listen to them for a bit. She has such a talented voice. I remember when I first heard her song, the Greatest Love of All. My aunt, mother’s sister, had come over and told us what the song means. I took it to heart and became an even bigger fan. I was deeply sad that she ended her life a few years ago. I’ve never been a fan of Bobby Brown and when she died, I blamed him for her death.

This weekend I am going to try and change my sheets. I just need to find a clean set of sheets. I have no idea where I put them. I hope they are in my drawer and not in the pile of clothes I have that is turning into a mountain. I think if I am able to change my sheets tomorrow and have a free day Sunday, I will tackle this mountain. I just need to sort through the clothes to decide where I want to put them. Once I take down this mountain, I will have access to my closet and then those clothes can go in there. That is the plan anyway. Probably won’t happen but we’ll see. I just hope my back can get through some of the dismantling.

Ocean 2

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, gender dysphoria, mood disorders, transgender

Ocean

This is a new song by Lady Antebellum called Ocean. It is such a good song. I cannot wait for their new album to be out as I know it is going to be kickass as every single that has come out has been superb. I love this group so much and I am SOO happy they got back together.

I saw the uro. The cath came out. She wanted me to find some new catheters but I didn’t like the selection the nurse brought in so I will stick with what I got. I probably could do with a longer one but as long as this one is doing the job, that is all I care about. After the appointment I was so drained. I went to Whole Foods for some Indian but they didn’t have any. So I just had some Chinese food that they had. The rice was good. I also had some shredded beef that was amazing. It wasn’t part of the Chinese selection but in the Spanish section. I love that they have different varieties of food to choose from. Now I am back on a timer/schedule for my bladder. The uro wanted to know what the neurosurgeon had said and I told her he thinks I might have a tethered spinal cord and I think surgery is going to happen. She said she would redo the urodynamic testing two months later to see if there have been any changes made to stop progression of the bladder problems. I told her that he wanted a family member and she said that seems to indicate he is thinking surgery. I agreed with her. I feel so screwed. I really didn’t want to have surgery next year on my back but seems like it is going to happen.

My mother and baby sister is sick. Hope I don’t get what they got because there are some nasty viruses out there. My middle sister was the first to get sick and I think she spread it. She will deny it though. I got the flu shot so hopefully whatever my sister and mother have, it isn’t that. I know my mother did not get a flu shot.

I think I am recovered from the horrible depression that has plagued me for most of this year. I don’t feel like that black cloud is holding me so tight anymore. I am not saying that it isn’t there. It is. I just don’t feel its presence as strong as I did. I am back to my baseline depression, which I guess is a good thing. I didn’t think I was ever going to feel like this again.

I forgot to weigh myself this morning. I did when I came home and I am 3 pounds less than I was the last time I weighed myself. I had gained like 4 pounds now lost 3. I will check it tomorrow but I don’t think it will be a big difference. I knew I had lost some weight because my PJs were starting to get loose and I have an elastic waistband! I might be a size smaller. I had just bought a bunch of new PJs in size XL. I do not want to buy new ones. They can slide off me, I don’t care. I ate today for the first time in what feels like days. I wasn’t hungry but I just made myself eat something. I still have no appetite. I don’t know if it is because of the depression or meds or what. With the nortriptyline and gabapentin, my appetite should be off the scale but it isn’t.

I love my uro who is always courteous and mindful about me being a FTM. She explained it perfectly to a fellow nurse what my situation was. I am so glad the staff are always nice about it. I really lucked out. One of the trans women I follow on Twitter just posted as this is the decade she is going to be her to her full being. It will be similar for me. I am out and on HRT. I am transitioning. If I have to have back surgery this year I hope I can also have top surgery. My only fear would be spread of CRPS. I don’t know what it will be like or if the surgeon knows about CRPS and removing the breasts. I know that I cannot survive another year with these things on my chest. They are depressing me so much especially as they are getting hairy with the hormones. It is so distressing. Sets off the dysphoria so bad. I hate being in the wrong body.