24 Aug 18

24 Aug 18

I have had a not so great day. My alarm went off a couple of time, I am not sure. I finally shut it off but had no intention to get up. Then my med alarm went off and shit, had to get up because I had to catch the 930 bus. No time for breakfast, coffee, or shower now. I quickly got dressed after trying to balance myself as my legs were jelly. I have no idea how I didn’t fall. I was scared of the stairs but I did okay. I used the bathroom and brushed my teeth. I grabbed my headphones and my bag. I went downstairs to put on my braces and then left. I was in such a grumpy mood. I left earlier than I should have but that meant I caught the earlier bus, which also meant I had time to grab a cup of coffee. I didn’t care it was going on my debit card, even though I looked at my bank balance and somehow had to finagle the bagel again because I somehow overspent, again.

I rode the bus with my headphones on and got a couple donuts with my coffee. I wanted to try a new coffee at DD but I didn’t remember the name of it so I had a dark roast. It was the strongest they had. It worked. I wasn’t so grumpy. After I ate the donuts, I left for PT. My PT was a little late but I didn’t care. I didn’t even want to be there. She called me in and told me a PT assistant would be doing a test. I said okay. I was to walk around the place with the assistant holding a measuring thing. I could rest as much as I wanted to. I must have taken like 2 laps around before my CRPS ankle acted up and I had to rest. I had to walk another three minutes. I didn’t like this test. It was flaring my ankle and I didn’t like that one bit. The last 10 seconds I had to stop. I walked over 800 feet in the five minutes and it freaked me out. I asked what this was for and she said it was for my insurance. I am getting sick of my insurance. But whatever. I told her the difficulty of me trying to do that for 8 hours and she agreed it would be impossible for me to work if I had to walk that much because just getting there would tire me out and cause pain. I felt a little reassured but was still nervous as my benefits could be in trouble.

Then we did stuff with my sprained ankle. One exercise kind of cramped the muscle in my foot but she said that was normal because my foot is weak. She and my neuro had a discussion and both want my right leg to become as strong as possible as I need it for support as my left leg is hurt and can’t do much. I agreed as well, but it is going to take some work and I am just overwhelmed. I was almost crying on the way home because the pain in my bad ankle was so bad. I had taken a BT med before I left PT. The burning was so fricken intense. I felt like someone was trying to filet my foot from the ankle to my pinkie toe. The suicidal ankle pain was there. I was just in so much fricken pain.

I got home and I had to rest. I also needed food as I haven’t eaten since the two donuts. I wanted egg with toast but didn’t know how I wanted the egg. My foot pretty much exploded soon as I rested. This was not fucking good. It was only like 1 pm. I stayed an hour on my bed and realized I wasn’t going to make the cake I wanted to bake. Then I looked at my foot and the swelling was unreal. I had to put on the compression sock. I knew that most of the pain was because it was swollen. But with CRPS, you can’t ice it. It makes it worse. I found the sock hiding under my blanket. I was hoping that my foot wasn’t going to be sensitive and I could wear the sock for a couple of hours at least rather than a few minutes. It has been several hours now and the sock is still on. I will probably take it off before I sleep.

I made dinner for my mother and I though I didn’t want to. Then I took the stinky trash out, got the mail and some ice for my mother, then went up the damn fucking stairs. I was done. I am not doing dishes tonight. No fucking way. I am sitting with my AC and fan on listening to music until the game is on, though I am feeling kind of sleepy so might take my meds and then go to bed early. I always think this then I lie down and can’t sleep. Last night was hard as my foot was so sensitive the sheets were bothering it. I took some Neurontin to calm it down but I didn’t get to sleep until 2. Chronic pain just sucks. I finagled the financial bagel and have some money left over for the month. I bought my nephew chihuahua some Star Wars PJs. I have been seeing doggies with PJs on and OMG so fricken cute!! It made me feel better that my friend sent me his picture last night. I wish I could have a pet but my mother won’t allow it. I want a cat or kitten so bad. I am afraid that I wouldn’t be able to pay for the Vet though. It’s hard just paying for my therapist, which I am behind on his bill a little bit. My credit has been used up. I had a credit because I overpaid him a lot the end of last year. Have no idea how that happened. Probably kept paying him the monthly charges not taking into account the days that I didn’t see him. Oh well. I have been good about keeping my appts but when the cold weather comes, that might be a different story.

Diagnosis, pain, and other things on 23 Aug 18

Diagnosis, pain, and other things on 23 Aug 18

I saw my neuro today. I have been seeing her for over 10 years. She called me by my birth name and I had to correct her. She said she didn’t notice it before I said something. I said you’ve known me for a long time and it was after I last saw you, so I am not surprised. She thinks the balance issues I have been having is because of CRPS and my ankle instability at the moment as I have a sprained ankle. She said she would email my PT to tell her “more exercises” in my right leg as I need to strengthen it to support me. We also talked about the thigh pain and she thinks it maybe a tightening up muscle. Also need PT for that as I can’t bend my leg behind me and pull my ankle toward my body. I haven’t been able to do that since my CES and now will be impossible as I can’t touch my ankle. I had horrible sensation pains last night that I had to keep my foot uncovered. I don’t think I fell asleep until after 0100.

Walking to the hospital was okay but set off my allergies as the pollen count is high. I also had to walk around while in the hospital because the café I usually go to was closed. I had to go to the main one which I had never been to before. I then kind of got lost going back to where my neuro was as I couldn’t find signs for the building. I was so annoyed. I get to the office and as I am taking my seat in the waiting room, my foot does the inward turn because it was fatigued as I wasn’t wearing my brace. I still had to go home so this was not fucking good. I talked about that with the doc as well and she just wanted PT. I have no new neuro stuff going on, which is good as I was thinking the worse and almost had a breakdown in the waiting room because of the turn. Walking back to the train station, I was wheezing bad and didn’t have my inhaler. I calmed down a bit but soon as I got home, I took my mother’s inhaler because I my ankle (CRPS) acted up big time. I foolishly side kicked the front door to shut it and my foot didn’t like the extension.

I bought pizza for dinner on the way home. My mother complained about it like she always does. Too thick. Too salty. Blah blah blah. After I ate, I went upstairs. I thought it was hot in my room so I had turned on the AC so it was fricken freezing in my room. I turned that off and the ceiling fan. I stood in the dark for a few minutes because I forgot the light was on. Shut off the power and both goes out. I so wish they were separate and I had a remote for them. Anyways, I am on my phone and I get an email saying I have a message on the patient web thingy that my doctors use. I check it and it was a message saying that I had a new visit note from my doctor. I scroll through it and nothing interesting pops up until I get to the diagnosis section. My neuro added that I have CRPS type 1 in left lower leg. HOLY SHIT I LOVE HER!! Finally, it is in my damn record I have CRPS!! No more denying that I just have chronic pain or chronic ankle pain. Maybe now the other idiots I see will READ and know this. I am so sick of them looking at my ankle and them saying I just have pain. It is more than that. So much more. I couldn’t have my sheet on my foot last night. It felt like it was burning me. That is how CRPS is.

I am in a lot of pain now and probably will be until I sleep. Sox had a day game so I won’t be up late, I hope. I had some orange spice tea as I am writing this. I am trying to wind down so I can sleep. Sox won their 90th game of the season. No one else in the MLB even has 80 wins! And to have it before September is so fricken awesome. There are roughly 30 games left in the season. If we can win 20 or more of those, I will be so happy as the Sox have not won more than 100 games in my lifetime.

Still emotional, thanks gender dysphoria

My pcp is still a dickhead. I asked him if he would fill my female hormones and his nurse said sure what is it. I answered now I have to see the repro endo doc. He doesn’t want to do it. Fucking asshole. I’m still a wreck from yesterday and hate, absolutely HATE having to still take these hormones because my Testosterone therapy got pushed back because of him. Almost a year now he has been dicking me around, one thing after another. I am so sick of it. Am I supposed to just see him for cough and colds? It is looking that way. I don’t need a referral for my insurance so if I want to see a specialist, I am just going to. No point in seeing him first. Just a waste of time I could use to make an appt with the specialist.

Saw the pain program doc today. He is okay. Can’t comment more as all he did was repeat my medical history and type really fast. He wants me to continue to see my pain doc and I told him I might not as he is reluctant to increase my meds to give me some quality of life. How I am supposed to work in this program with horrendous pain, I have no clue. I also need to get a PT eval for my thigh as the program PT is 2 months away. I can’t wait that long. I am going to email my current PT and see what she says but I don’t think I can see two PTs at once. So fucking frustrating.

I had to make a pit stop to the Square because the bus that would take me home was longer than the bus to the square. I don’t care, though my sprain ankle is hurting. I didn’t wear the brace because I didn’t want to be bothered taking off two braces. I’m wearing 2 different sneaks and don’t fucking care.

I had a snickers latte today because I need it goddamn it!! Also had something to eat because of the emotional stuff. I feel better now. I need some protein bars. Getting irrational when I don’t eat is getting more frequent. Hope my diabetes test comes back within normal limits. My psych ordered it but I haven’t had a chance to get it drawn yet. Might get it done tomorrow if I am not up at the crack of dawn. My therapist is back from vaca. I see him tomorrow and I can’t wait. Got a lot to talk about.

My mother needed some things today so as I am out, I got to get them for her. I am going by that way so no big deal. I will get some protein bars with her cash as I am broke until tomorrow.

When i see my psych next i am going to ask her if i can go back to the LGBT clinic for T therapy. I just hope i don’t have to start the whole process over. It will send me over the fucking edge.

20 Aug 2018

20 Aug 2018

I went with my mother to her doctor’s appt. The ride to the doc’s was late. My mother got the return time mixed up. She thought it was later and it wasn’t so the driver wasn’t happy. Then we went to the bank to deal with some issues and we were there for nearly two hours. It was hard on my mother and I. She did okay going home and up the stairs. It was dinner time so I heated up some gravy and she wanted raviolis. They were good but later we both had a bowl of cereal as we were still hungry. I didn’t have anything to eat today except for a crumpet with my coffee.

My mother upset me today. We had gone to the bank to have them change my name on the accounts we share. She asked me why I changed it and I said I wanted a more male name. She said I wasn’t male, I was female. OMG, I wanted to fucking die. I was already having a hard time this week because of the things on my chest and here she is telling me the obvious by pointing to the incorrect body parts. I swear every time she said daughter today I wanted to say no, son, but I didn’t. It hurts so fucking bad that she does this. And I can’t write anymore as I am upset.