Bad Pain Day

Bad Pain Day

My day has not gone off to a good start. I woke up early, around 0630, and my ankle was hurting so took some pain meds. I went back to sleep faster than I think the pain meds kicked in. When I woke up a few hours later, I thought I was ok. I wasn’t in pain. Then I got up and stood. My ankle was killing me with the pressure of standing. But I had to go pee so had to walk and go down stairs. I don’t remember if I had something to eat or not. I just wanted to get off my leg.

Some time during the night a good friend IM’d me. She needed my input on some gender “privilege” questions. I found the questions to be scary and some of them offensive at the same time. I couldn’t answer them because I didn’t know what to say. Some were yes or no answers, others required more thought. It was very difficult. There were questions about bathrooms and such. I never gave it a thought because I am still my “assigned” gender. Until I have surgery, I will use the designated bathroom for women. I can’t picture myself using a men’s bathroom with knockers on. That is just asking for trouble, in my opinion. And the doctor questions were really biased. A medical professional shouldn’t have to ask what gender you are to swab your throat because you are sick. Strep doesn’t discriminate. But if you are being swabbed because of an STD, I think you should see a different doc.

After I went through these questions, I decided to make some dinner. My ankle again didn’t like me walking on it. Course, my mother was ever so helpful in saying “maybe I twisted it”. Yea, I twisted it while I was sleeping all afternoon. It’s been almost four years that I have been out of work because of my ankle injury and she still doesn’t get it. This is why I hate bringing up my pain issues with her or telling her I am in pain because I get dumbass responses. She still thinks I need to find a doctor that will help me. I guess the 15 that I saw before I was deemed disabled weren’t good enough. If 15 doctors can’t figure out what is wrong with me, I give up, because doctor numbers 16 and 17 still don’t know what is wrong with me. I wish I could see the ankle doctor that I saw when I first hurt my ankle eight years ago. But he is no longer at the location down the street from me. He was a good doc, straight forward, no horse shitting around the bush. I think that is when my ankle started to go downhill, but I will never know. It was the other side of my ankle that I hurt, not the outer part. For the most part, I would say it has gotten better because I am not in as much pain as I was 3.5 years ago. Resting has done it’s job.

But why my ankle would bulge when I put weight on it today, I have no clue. Once I start walking it eases up but soon as I rest and start standing again, holy hell. I was going to take a shower today. It’s no longer in the works. I will try again tomorrow.

My mood kind of sucks right now, not to say it was good to begin with. I still have a heavy heart and black clouds following me. I am really tempted to restart the remeron just so I can have some relief from this darkness. But the risk of gaining weight outweighs the benefits right now. I really don’t want to regain the weight that I lost. Sertraline will be better, if I can get a hold of my pdoc. I’ll start on a baby dose and then if I tolerate it, move to 50 mg. Of course, there is no guarantee that even at 25 mg I will not become nauseated. And there is always the possibility that my pdoc will say no. It’s doubtful, but a possibility. I just priced a new SSRI called ViiBryd and it’s $50/month. If I go on sertraline, it’s, no kidding, $1.35/month, at the 25 mg dose. Sickening.

I have been sleeping most of the day because what else is there for me to do. I am very tired anyways. I wish my CBC showed that I was anemic of some kind that would explain the tiredness, but nope. All came back normal. I hate when there is nothing physically wrong with you when you feel so rotten. It’s just so annoying. Like my ankle pain. Every x-ray and MRI showed normal stuff except for some swelling in a place that wasn’t near my pain. I thought so many times of stabbing myself in my ankle to prove there was something wrong. Even if I damaged a tendon, that would at least be something rather than nothing. There is nothing I can do about the darkness that is surrounding me. There is no x-ray or MRI for that. And it sucks.

25 years of mental illness: the beginning

25 years of Mental Illness

Twenty-five years ago, I started the world into therapy and madness. It was my aunt’s birthday. I stayed home because I didn’t want to go to the party. My father called me a liar and I lost it. I needed an escape so I started scraping myself with a pair of scissors, hoping to dig into a vein to end my life. The deeper the scrape was, the more it hurt. I barely exposed the adipose tissue but had scraped away most of the dermis. If I had continued, I probably would have reached the fatty layer. I didn’t plan ahead so I didn’t have a bandage to cover up my wound. It was burning as air hit it so I just covered it with my long sleeves. The next day, I went to school and carefully kept the wound concealed. I have no idea how I kept things together and just went on as if nothing had happened. The next night, my cousin had come over the house. He wasn’t supposed to be there. My father had banned talking to him because he lied to him, too. It was scary because I knew there was going to be a fight when my father came home for dinner.

And he came home. All was calm at first. Both men were civil towards one another and then my father’s explosive temper exploded. He wanted my cousin to leave. He refused. My father got really angry, threatening him. All I could think was that this is bad. Then my brilliant father thought of shooting my cousin with his rifle. I dissociated and was hearing bullets being fired. I felt like I was in a war zone but no gun had gone off. My father kept threatening my cousin and my cousin became indignant, refusing to leave. So my father got his gun. He loaded it and then threatened my cousin one last time. I snapped. I got between my father’s aim and my cousin and told my cousin to just fucking leave. I was so terrified that something bad was going to happen that night. My cousin threw me in my room so forcefully that I have a mark on my nose where I hit my heavy bureau and moved with it. He closed my bedroom door so forcefully, that I couldn’t open it. My mother then, I think, told my cousin to leave. He left. My father was still ape shit. Never had I seen him so mad before. My mother was in her bedroom and I think she may have had a hypoglycemic attack, I am not sure. I was in my room. I was fighting the voices who were going ape shit at me. They wanted me to talk to them, to ally with them. I couldn’t think straight. The voices wanted me to kill myself. The leader of the voices ordered me to kill myself. So I got out the pair of scissors from the night before and started over again until I felt no pain.

My father had taken the phone off the hook. My idiot cousin kept calling to see how we were doing. Asshole. He started the whole fiasco. How do you think it was doing?? I was so terrified that his brothers and my uncle were going to come to the house to kill my father it wasn’t funny. I barely slept that night. I was in pain, both physically from what I did to my wrist and mentally. I wanted to die so bad that night and prayed for death that never came. The voices were hounding me left and right. But I kept my mouth shut. Something told me that if I escaped to their world, I was never going to leave it. I had to stay in my century as bad it was. I lost faith in my father that night. He tried to kill a man for no reason except because he was defying him. He made no physical attack toward my father and my father didn’t do it either. But the damage was done that night. I had started cutting to save my life and I liked it. I was hearing voices on a continual basis, telling me what to do and no one knew this at all.

The next morning, it was just like the previous morning. Everything went on as if nothing happened. I got dressed for school, wore long sleeved sweatshirt, and left the house like I normally did. I got to the corner of the end of the street and lost it. I started crying. The events of the night before came flooding back. The voices were still trying to get me to talk. I was a bubbling idiot. The more I tried to control my tears, the more I cried. I don’t know how, but I finally got some composure and went for breakfast. Kids always copied my homework because I was the smart one in school. I gave it up and didn’t care if I got it back. I barely said two words for fear of crying again. I made it through my first period ok. But during homeroom, I lost it again. Someone asked me something and when I bubbled an answer, I lost control of the tears I was fighting back. My best friend noticed and asked what was wrong. I said nothing. My wrist was throbbing with pain. Thankfully because I wasn’t alone, the voices were just hiding out, just waiting to attack me when I was alone. I went to my second period and there my best friend told my teacher something was wrong with me. I wasn’t upset with her. I must have looked a mess from crying and keeping my emotions together. The teacher pulled me aside once she started a movie for the class. I thought I would be able to sleep with the movie going but she wanted to talk to me. I told her I was fine. Nothing was wrong. Then she rolled up my sleeves and I was caught. She said to wait for her after class. I felt like I was in trouble and I was never in trouble with a teacher before. I was always the nice one, the goody two shoes.

She took me to the nurse and they talked for a bit and then it was my turn. I think I told her I tried to kill myself last night, that I wanted to die. My father had a big fight. I didn’t tell them about the gun or my father trying to kill someone. I didn’t want the police involved. My father would kill me. My mother knew I had problems. When I was ten I told her I was going to kill myself but she didn’t believe me. Now, five years later, it took the word of the school nurse to believe me. We went to the county mental health center where I was evaluated. I was tired of going over my story again and again. I didn’t tell them about the voices and they didn’t ask. They just wanted to know if I was suicidal and I lied. Told them I was fine.

I kept in contact with the school nurse for the weeks following this traumatic night. Eventually, the nurse convinced me that I needed to see a school counselor and so I agreed to talk to her. I told her about my abuse, all of it. The sexual abuse at the hands of my cousin (same one that instigated my father) and my mother, the physical and emotional abuse of my father, and the neglect of my mother as well.

In my mind, I had killed my parents when I was 12 and had been an orphan since I was 10 when they died. It was the only way I could survive. I was tossed around between family members and no one wanted me because I was unloveable. Eventually, I started talking to the voices again. They didn’t want me to and were still telling me that I had to kill myself so that I could live with them, to start a new life. I never believed them. I must have had at least a half dozen voices in my head and most of the time they were all talking together, among themselves, about what to do with me. They knew I had to die. I knew I had to die. And so my path to the world of psych began and still continues to this day.

depression symptoms switching

Depression symptoms switching

Last night for the first time in like two months, I got the hungry horrors. I had left over Chinese food and that was what I wanted. I also wanted a Red Velvet pop tart. I ate one and left the rest for lunch today. I don’t know what changed, my mood certainly hasn’t, but my eating has. Now I just have to worry about putting the weight I lost back on. I am being careful by having small meals and watching portions and stuff. Even though I am hungry, I only have a few bites of something before I am done eating it. For my “breakfast” and lunch, I had some lo Mein, which wasn’t very good. It was chicken and I hate reheated chicken. I had to throw most of it away after I ate all the noodles. I feel better now that I ate as I woke up in a grumpy mood.

After lunch, I made a cup of tea. I thought of making coffee but it was too much trouble. Tea was easier. And besides, my throat is hurting so tea will be perfect. I don’t know why my throat hurts. It’s more of a muscle ache than anything else. I think I gagged too hard yesterday and might have pulled something. I hate when that happens because this soreness can last a few days. I’m hoping the tea will help heal it.

I thought about going out today but I think I will watch movies or read instead. Nothing seems to be going on on Twitter. My clinician friend is still ranting about racism and how we need to own it. What we do once we own it, I have no idea what we are to do. His conversation bores me sometimes because what he says, I have no clue. This has been going on for a couple of weeks now.

I don’t know what I did with the Lincoln DVD. I put it in some case but now I forgot which one. I love watching the movie. I might end up watching “Pretty Woman” again, too. That’s another one of my favorites. Baseball is playing right now but I don’t feel like watching or listening. I’ll just catch the info on Twitter. The games don’t really count during spring training so I am not apt to listen/watch them. It’s just another sign that I am depressed, not having interest in my favorite sport of all time.

I really don’t want to do anything today. I want to just go back under the covers and go to sleep. I am not in pain, yet. But I just feel awful. Last night the darkness entered my chest and it was not a good feeling. I knew it was coming but I thought I had another day or two before it entered. I was wrong. Now I feel like black clouds are hovering over me, just waiting to pour down on me, to drown me in sorrow. Then the heaviness will set in and I will be paralyzed, unable to move. If I ever get the appointment with my psychiatrist, I want to ask her to go back on sertraline. It will eventually make me sick, but it might just give me some relief before it does so. I could go back to the Remeron but that has the potential for weight gain and I don’t want that. I still would like to lose another ten pounds, if I can. It will be hard work, but I think I can do it. I just have to watch what I eat.

I love the song, “Sound of a Million Dreams” by David Nail. It is such a sweet song. I remember when the song came on, I was working on my How to Save a Life paper. I really wanted to get this paper published somewhere and that is when a friend told me about blogging it. Hence my blog was born. It started off as a platform to publish my papers but then it just became my personal journaling media. My numbers were pitiful in the beginning. But now they are averaging 50-70 views a day. As time goes on, the numbers increase. I am happy about it but I do have days where I barely make 30 views. I don’t know what I would do without this blog.

Soap Opera Season has Begun

Soap Opera Season Has Begun

It’s only day three of Spring training for the Red Sox and already it’s turning into a circus. Hanley can’t handle a throw from shortstop so gave Boegarts an error. I am lucky I didn’t see it because I would have been pissed. I am pissed just hearing about it. Then later this evening, a female Sox reporter resigns because her love life can’t include a member of the Sox. Supposedly she had relations with the skipper, Farrell. Whether these relations are continuing or have ended, hasn’t been publicly announced. I don’t understand what business it is for the press to be involved in such matters but they are just looking for a story. And it has begun. I am sure the drama at first base will continue as well as this developing story of the skipper’s love life. I wonder if baseball is going to get covered at all…

I texted my therapist several time today. I was giving her updates on the status of my appointment with my psychiatrist, which I still don’t have. My psych has not responded to the multiple emails I have sent her. I waited a good amount of time for a response. We’ll see if I get one on Monday. I am not going to bother emailing on the weekend, unless something comes up.

I also told my therapist that a slime ball inspirational speaker wants to meet my ex-therapist. I don’t know why I should care but I do. I wanted to respond with “yea, he is a great guy (therapist), but you are an asshole” but I didn’t. This guy, the speaker, pisses me off and I don’t know why. I am sure jealousy is an element on some level. He wrote a book about his experience with jumping off a bridge and surviving. When he was a teen. He is now an adult. I just find his story suspicious and every one is oooing and ahhhing over him. I understand how it is to go through a suicidal episode but you cannot tell me that he hasn’t once thought of ending his life since that day he was rescued. That he is “cured” of being suicidal. And I think that is what pisses me off about him, that he is selling something that isn’t true. I have never heard his story or read his book, so I really don’t know if there have been other suicidal episodes that he discloses. And yes I will admit to being jealous because I too wrote a book about my experience and got fucking no where with it. The only time I get an acknowledgement from the same people this clown hangs around with is when I write academic papers. Other than that, people don’t want to hear my daily struggle with suicide.

I am glad I have this blog because, honestly, I have met some pretty great people that are better than these professionals that I have met on Twitter. There is one clinician that will acknowledge me every now and then, but it’s mostly my physical pain that he responds to. I don’t know when I became a bitter person. Probably when the lab shafted me after 14 years of giving them 110% every time I worked no matter my mental or physical illness was doing to me. I was a body to them and a brain they needed to sort through the shit and foul ups of others. I’ll never forget when a resident came by the lab with four tubes of CSF and had no fucking clue what she wanted tested but expected us to know. Then when one of the tests were short, she didn’t know the difference between mad cow disease and Alzheimer’s. Really??? You are post medical school and studying neurology and you don’t know the fucking difference between these two diseases other than they affect the brain?? I memorized her name because I didn’t want to go near her. Course it has been some time now and I have forgotten it. My memory is not the same as it once was. I do know she became a pedi-neuro. Pretty scary that some parent is going to be trusting her with the life of the child.

Oh and before I forget, again, my oldest niece just published her first paper on E. Coli. I am so proud of her. It was a very HUGE accomplishment and there was a huge collaboration as the author lists just go on and on. She is listed as an acknowledgement but that is still pretty good.

I read the “do I need therapy” blog tonight because my therapist wanted me at my last session. I think it was a stupid blog because I repeated myself several times. I still don’t know what point I was trying to make. Maybe that I felt obligated to be in therapy because I feel like I owe my therapist that much. And I don’t mean monetarily wise. Like I told her in that session, I could owe her nothing yet I still would feel like I did.

My back is really hurting me. I need to lie down but if I go to sleep now, I know that I will wake up at three in the morning. I also want to keep checking my blog stats because I am 4 views away from 60,000. I haven’t taken any pain meds yet. I will once I feel a little more settled down. I got a lot on my brain.

I wonder if I should be in the hospital. I have been against it because there is no treatment there. You just get watched and drugged up and then sent home. Plus with my pain meds, they always fuck it up and I need to request it the way I take it at home rather than how it is written. I have been telling my PCP to change it even before he left but he still just left it at 1 pill every 6 hours. I usually take 2 pills twice a day, some times more, sometimes less. It all depends on what my level of pain is. He knows this and never changed it so I am screwed. Now he is gone and no one asks me if my meds are adequate. But the hospital won’t see it that way. I always get stigmatized about it. And don’t get me started on the pain scale I have to fill out at every single dose. That pisses me off more than the fuck up. Then I got to pack appropriately, write out my medication list, and be sure I can carry all the stuff on the public transportation. Last time I brought a backpack and a carry on. I was in an AFO at the time, so it took some maneuvering to carry everything. My bags were full because I had to carry at least a book or two in addition to my journal. I also carried a notepad with me just in case writing hit me. It’s been almost a year and a half since my last hospitalization but I remember it as if it were yesterday. I don’t really care what becomes of my father’s medication if I do go in. It’s not that hard, really. My sisters could do it if they chose to.