Category: physical pain

Saturday blog 10 Feb 18

by Midnight Demon, posted in Bipolar Disorder, chronic physical pain, CRPS, depression, mood disorders, physical pain

I didn’t go to sleep till around 5 am. I was in pain all night. I was in severe pain when I woke up 5 hours later. I took some more meds as it was close to 12 hours since my last dose. I feel like shit. My mother made pork chops for dinner. I was glad as that meant I didn’t have to cook. I wanted bacon though so I heated it up. It was the pre-made kind.

I will be taking my night meds soon and going back to sleep. I am so tired. I have no energy to do anything. I might make a cup of orange spice tea. It is herbal and no caffeine. I finally remembered to buy it on my last grocery order. I started making another order the other night when I couldn’t sleep. Just my Powerade and ribs alone was $50. I go through like 20 bottles of Powerade a month. They are kind of expensive and not really on sale. Another grocery store has them for less but they don’t carry the flavor I like.

Tomorrow is the wake for my aunt. I plan on just wearing jeans and a dress shirt. I don’t have dress/casual pants that fit me. I hate being so heavy. I’ve been trying to watch what I eat but it is hard. I will be seeing family members I have not seen in a long time.

I sent my psychiatrist an email but I don’t think I made much sense. It was late and I don’t even remember what I wrote. She didn’t respond so I guess that is a good thing.

Pain is creeping up again. Hope it doesn’t keep me up another night. It will be the third night in a row. I am so tired of being in severe pain all the time. It really sucks.

discouraged and fatigued

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, CRPS, depression, mental disorders, mental illness, mood disorders, physical pain

I have serious mental illness that disrupts my thoughts and shifts my mood to hopelessness and suicidal in an instant. I lose motivation to do things. Just getting out of the house is hard. 2 this condition is flat out driving me insane.

I asked my physio what are the goals of therapy and she laid it out for me and stressed I need to be doing the home exercises to regain what I have lost. It is stressing me out that going to my appts and then having to rest the day after or two is not working. I’m still in pain. She wants me to go to some functional program. But it takes full commitment, 2 or 3 days of being there 8-2pm. I honestly don’t know if I can do that. Some days I can’t get out of bed because I’ve been up all night in pain. Monday’s are worse because I have to walk to my therapist’s office. I just don’t know what to do. I just want to lay around the house and go to Starbucks and write. But pain is limiting me to even do that. I’m not adequately controlled with my pain so how the hell can I do these exercises if I hurt. Just fed up and want to quit everything.

I don’t know what to do anymore. My PT emailed me with goals and wanting me to go to a functional program at a different SRH location. My depression makes doing anything hard. Pain compounds this. I haven’t been doing much with the home exercises because I am exhausted after going to an appt the day before or even going to PT appt. PT is saying I need to commit to the therapy to regain function (haven’t had function in my ankle for 17 yrs mind you) and decrease fatigue in my foot/ankle. I’m starting to feel like a failure but I am not getting adequate pain control and I don’t know if I ever will. Just making breakfast today and taking out the trash hurt me. Making the squash killed me. Going up and down stairs hurts every single day and I do that a lot. Add the PT and it will overflow me. I feel like I am drowning. I am out of the house at least 3 times a week. I just can’t keep up. I move I hurt. I don’t move I hurt. How can I win?

If I don’t get adequate pain control soon, I am just going to end it. Why bother?

Sunday blog 28 Jan 18

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, CRPS, depression, mood disorders, physical pain

I didn’t have s good day. I had a hard time sleeping because of pain. Woke up every few hours to take more meds for relief. When I woke up during the morning hours, my back was hurting. It had started last night before I laid down. I had sneezed earlier in the day. I think I pulled a muscle. I wanted to use a tennis ball some time today to massage it out but never did. I feel so useless. I had bouts of anger today at my condition.

I don’t want to continue with physical therapy. I keep going back and forth. I just want to call tomorrow and cancel my remaining appts. Only thing is, I just ordered a mirror from Amazon last night. Couldn’t sleep so I was browsing. Found one that I think might work. I don’t know if it will help me. A couple of people in my CRPS group are doing it but they aren’t sure about it either. I think I just want to be better now and it is not going to happen. It is going to take time like dealing with the depression. You don’t want to wait for the meds to work in 6 to 8 weeks, you want relief now. It is very hard.

I had a somewhat good time when I went over my cousin’s last night. I ate more than I should have. Oh well. He really doesn’t understand chronic physical illness. He said that he knew someone that was like me, that canceled on short noticed. He said he “understands” but he didn’t. I brought it up to him that it is hard to be social when you are in pain. I had a better time talking to his walls. Jerk. The whole time he talked about his anxiety and money issues. His phone kept ringing and he would answer to say he has company. He smoked 4 cigarettes while I was there. I had to shower when I came home.

I wanted to bake today but it never happened. I have to use the zucchini soon or it will go bad. Maybe Tuesday I’ll make it. Depends on how I feel. I have back to back appts tomorrow so will be out most of the afternoon. I don’t know what kind of stress that will cause. Just hope I can sleep at a reasonable hour tomorrow. I’m going to read a chapter of my baseball history book. I wanted to read at least two so will settle for one. I haven’t touched the book in a week. Seems I only read on weekends. Least I am reading something other than social media.

Lunch with a friend and other things

by Midnight Demon, posted in Bipolar Disorder, blogging, Chronic pain, chronic physical pain, CRPS, mood disorders, physical pain

I went to bed around 3. Pain was being such a fuck. I was getting hopeless and depressed. I sent my psychiatrist a message but she never responded. I see her Monday. I hope that she understands what I am going through.

I woke up around 6 and then around 830. I didn’t want to leave the comfort of my bed. I didn’t have to leave the house till around 1030. I had a list of things to do after I saw my friend for lunch. It would depend on how much pain I was in but I would try.

I went downstairs to put the groceries away. The delivery came and I just put away the frozen and refrigerated stuff. I left everything else as I wanted to sleep. My mother was up. She asked why I left the stuff and I told her why. I did three trips to the kitchen, my office, and the back porch. I was exhausted afterward. I didn’t feel like showering. I went upstairs and got dressed. I brought my tote bag with me as I didn’t feel like carrying my backpack. I grabbed my mug for coffee. I needed coffee.

It was cold and the wind made it colder. I didn’t wear my scarf. I wish I did. The bus seemed to take forever. It finally came after twenty minutes. I thought about ordering a mobile order for Starbucks but I didn’t know what I wanted to drink. Even when I got there, I was staring at the menu. I finally decided on a toffee latte and a cheese danish.

I brought my journal along in case I had time to write but I didn’t. I took a few sips of the latte to make room for the lid and then left for the train station. As I was walking to the station, my friend messaged me about meeting 15 mins later. That was no problem. I waited for her at the restaurant.

We had a good time catching up. The food was good. We talked about all kind of things. The last conversation we had was about our friend who died by suicide 2 years ago. It was something we were hoping to avoid but couldn’t. Chris was a close friend to her than I was. She told me aspects of his life I didn’t know and it made me angry the his partner treated him wrongly. It was sad that he took his life for reasons only he would know.

My friend and I parted. She went back to her building and I went off to do my errands. I literally went around one big circle, with the train station being the starting point. I did all the I wanted and added one. I made an appt with a new eye doc as my doc retired. I need new glasses as I have been having trouble reading with the ones I have.

I went back to the Square and froze as I waited for the bus. I missed the 1420 so had to wait for the 1520. It was on time. I was feeling ok pain wise. Least I was until I got up at my stop. Then it felt like a rod went through my ankle. I limped the rest of the way home.

I got home and there was mail and some packages for me. I brought them inside, sorted them, and then dashed up the steps. I needed to use the bathroom. It was too late. I wet my pants and I wasn’t happy. I changed and then opened my packages. Some were for the kitchen as I bought a new electric can opener. Hope it is easy to use. The rest of the stuff I brought upstairs. My feet were ice cold. I put on a pair of socks. My mother was making the cod I bought yesterday for dinner. It was really good.

After dinner I was really cold and sleepy. I decided to take a nap. I wasn’t expecting the door bell to startle me awake. I woke up all disoriented, not knowing where I was or what time of day it was. I was still cold. I didn’t go downstairs to see what was going on. I snoozed for a bit before my bladder told me to get up again. I went downstairs and it was really cold. I turned up the heat a notch. Probably will regret it but least I’ll be warm!