Tag: cauda equina syndrome

a migraine rant

by Midnight Demon, posted in Chronic pain, depression, medical, mental disorders, mental illness, mood disorders, suicide, suicide attempt

3-Dec-2012

I got a migraine today and it sucks. My face is numb and it feels like someone is driving an ice pick in my right eye. I don’t think I will go out today as the weather is too bright. Sometimes I wish I could put a dimmer switch for days like today.

 

I am scheduled for an MRI tomorrow night. I find this kind of scary because I know my head is going to be examined and my back is going to pay the price. I can’t lay flat for too long. I am going to need a muscle relaxer and pain meds to get through this. The reason I am going for the mRI is because I have been experiencing blurry vision despite getting new glasses. I don’t know if it is migraine activity that is causing this or what but I don’t like it and my eye doc is concerned. I have made an appt with a neuro-opthlamalogist. I saw this guy last year when my visual field showed some new defects. I still have the unexplained defect. The doc thinks it is just an atypical migraine causing this. I just hope that that is the case and nothing more serious is going on.

 

Sometime this week I have to trek out to Brookline and pay a parking ticket so I can renew my driver’s license. Sucks that this is the hold up to me renewing. I already paid Cambridge. Hopefully this is the last time a parking ticket stops me from renewing. Last time I had three tickets, all from the city I live in because of “ticket day” A.K.A street cleaning. I swear it is just a way for the city to collect revenue as the machines do not clean the streets anyways. I am glad I don’t have a car anymore to worry about which side of the street to park on. It’s now I think $100 per citation. CRAZY!! Just to “clean” the street. It is awful.

 

I think I’ll make myself some coffee. Maybe that will kill this migraine…

Never made the coffee as I was too lazy to clean the pot. I use a French press and I have not cleaned it out. I did tonight so I can make coffee tomorrow. Migraine has subsided though my vision is still messed up. It keeps on going in and out, the more I try and focus, the worse it gets. It is pissing me off to no end.

 

On another note:

I am HATING the commercials for Cymbalta. I am hating how they are promoting an antidepressant for back pain. I take Cymbalta, and it does not help my pain one bit!! And I have been taking it for a long time. It does help with my depression. I find that I am less weepy and suicidal when I take it. Hence why it is an ANTIDEPRESSANT!! I think it is false advertising in the FULL effect for this drug. It also helps with the neuropathy some what that I have, which is another use of this drug and I am on a low dose (20 mg). I find that my burning foot hurts less when I take, though it will do nothing for the flare ups I have when I spasm/cramp up. I can see people overdosing on this because they will just think it is “safe” because it is not a narcotic. So when they are in pain, they will pop it like Tylenol. I find this disturbing. And I don’t like the depression hurts bullshit. I have also found it does NOTHING for my psychic pain. Yes, depression does hurt. In fact it can lead to suicide and hence kill you. But like I say, people who are in pain can become desperate very quickly, like I did and maybe a little more should be paid to that. Would it kill a PCP to ask if they are suicidal before prescribing this medication? I don’t see how anyone but a neurologist or a psychiatrist can prescribe this drug for the safety of their patients. My neurologist takes the time to get to know me and actually wants me to live a happier lifestyle. But I can never be happy because I am not a happy person. I suffer too much and when you suffer you just cannot put on a happy face all the time. It becomes exhausting. I think that is why since going on disability I have felt a certain freedom. I know it is because I am no longer forced to pretend that I am happy, to show the world the other side that no one sees. Course I will say I am kind of lonely because I don’t have any contact with my co-workers nor do I have an active social life anymore. I might go out with a friend once a month, if that. But that is it. I have not left the house since Friday. I just cannot be bothered to get dressed to get a cup of Joe. I just sit in my room, playing on my laptop, writing blogs, and listening to my Taylor Swift. I order food and have gained a lot of weight because of my inactivity. Do I care, not so much. I have never been concerned about my weight. Course it is a thing I hate about myself but the only other thing I can do is starve myself and what fun is that? I love food and it loves me. What difference does it make I don’t know. Should I diet? Yes, I should but diet implies that I actually give a shit. I just got a twitter message that says the human body needs 1000-1500 calories a day to survive. If I stay within that limit, maybe I will lose weight. I will eat protein bars and have smoothies. Which reminds me I still have yogurt in the fridge I have not eaten yet. I am addicted to Chobani’s Champion yogurt. It is a Greek yogurt and is mixed berries. I love it!

today’s activities

by Midnight Demon, posted in cauda equina syndrome, CES, Chronic pain, depression

MY pdoc today said that she is a fan of mine. I found it amazing that she would say something so sweet. We also talked about our anniversary and I said that we should go out for dinner but that would be over stepping a boundary.

I did tell her about my pseudo attempt and she understands why I get that way. I told her all my plans went out the window and it’s so hard to reach out when you are in so much pain. She didn’t say much but she understood that when pain hits, I become a suicidal maniac until the pain eases up.  If I did call her that night, I am sure she probably would have wanted me to call my PCP and tell him I needed more pain meds to get it under control. Probably but its not like they can call in for a narc over the phone or without being seen.

I am not in a good mood after today. I am hurting physically and am angry about it. No matter what I do I always seem to be in more pain for doing things I want to do, like walking to my doctor’s appt. Doesn’t seem like I am doing much but it takes so much out of me. Plus not sleeping has been annoying me and making me cranky. I am so cranky right now that I could dope slap anyone right now if they pissed me off in any way.

 

I saw my PCP’s colleague today because he wasn’t available. I wish I had waited until he was. I have to get another head MRI to rule out something on it and had a blood test for Myasthenia Gravis to rule out that. I am so tired about this and still can’t see that I am typing without my glasses because my eyes hurt. I am going to take a migraine med tonight to see if that helps. The doc thinks it is an atypical or ocular migraine that I am experiencing. I don’t care what it is I just want to be able to read and write again without agony. It’s almost 6 pm EST so I am going to take a nap and then the heavy drugs to go to sleep. I need to rest my head before it explodes so maybe I do indeed have a migraine going on.

100th Blog (ramblings 13)

by Midnight Demon, posted in cauda equina syndrome, CES, Chronic pain, depression, mental disorders, mental illness, mood disorders, psychache, suicide, suicide attempt

This is my 100th blog. I had wanted it to be meaningful but I am still working on the meaningful part. I started writing it today on the father of suicidology and a man that means a lot to me. I got half way done and then got interrupted. I couldn’t finish a thought to save my life. I hate it when that happens…

I did get my glasses fixed today. It just needed a small adjustment and now I can see without things in my bifocal part being blurry. I ordered my bibliography program and my dad’s x-mas gift. Now I just need to get my mother, sisters, and kids something. One down and I don’t know how many others to go…

Been thinking about what happened the beginning of the week. If things had gone the way that I had wanted to, I wouldn’t have been here for Thanksgiving, or I would have been somewhere other than home. I can’t seem to get the desperation out of my head and now every time I have a pain that is a 5 or 6 I wonder if it will trigger something bad inside me. The demons really came out last Monday. I couldn’t stand because of pain and spasms. I just wanted it to end. And if I had the bottle of anti-spasm meds by my bedside, I know I would have taken the whole bottle until things did stop. I have had severe heartburn since that night. I think the stress of me becoming that way again is overwhelming me. I mean, I didn’t really do much that day except possibly stand too much and walk a few extra steps than I had to. I didn’t do any more stairs than to my room that day. And for whatever reason, just lying in bed reclining was enough to set off both of my feet into agonizing pain and spasms. I really just wanted to die because I couldn’t take my meds, couldn’t walk the few feet to my bureau to get them. I only had what was near me and then I passed out only to wake up at 0230 am. Sleep has not been good the past week. I think that has contributed to my mental deterioration. I sleep for a few hours and then I am up again. I just tired of everything but I just can’t sleep. Sure I can nap for a couple of hours but I don’t want to get into that habit. I really just want a solid six hours of sleep. I don’t think I am asking too much.

Golf ball post

by Midnight Demon, posted in cauda equina syndrome, CES, Chronic pain, depression, mental disorders, mental illness, mood disorders, psychache, suicide, suicide attempt

I should write a song about golfballs being an ankle. That is the type of swelling I have right now and it hurts like hell. I guess I did too much cookie making this morning. Course last night I ended up taking a few too many of this and that. I am really surprised I woke up today. If I didn’t I would be happy. I hate not being able to sleep for more than a few hours these days and not being able to see with my new glasses. Is that asking too much??

Because of my medication OD, I swear to God I thought today was Wednesday all day. Wed I am supposed to pick up my niece at 12. Well seeing as I got my days wrong, I went to the school anyway and at 12 was wondering why no one was coming to pick up their kids. Place is always a mad house when school is let out. I go on playing with my phone and then realize today is TUESDAY not WEDNESDAY ya dummy….so I walk home. Only to reach the front steps of my house when my cousin kindly reminds me that I should get rid of my junk box and get a car. If another family member on my mother’s side tells me I should just buckle down and get a fricken damn car, I am going to put a sock in their mouth!! A nice dirty smelly sock!!

So I am going to go off to dream land for a bit. I’ll probably be back around 3-5 am when I wake up to use the bathroom or just wake up to start the day. I kid you not, the past few nights have been torture and trying to get back to sleep has been hell…