in the pit of despair

In the pit of despair

I have been in severe pain since 1500, so basically the last 12 hours because it is now 0315. My foot and ankle have been playing the divide and conquer game, giving me different pain in different parts of my ankle and foot, all at once. I don’t like this game at all. I can’t keep up with the pain and I don’t know what medicine to use to alleviate it. It is very frustrating.

My jaw/face was swollen so I put ice on it. It brought down some of the swelling. It is still giving me a hard time though when I eat as it feels like food is stuck there but it’s not. It’s just inflamed gums. It is so annoying. Tomorrow I go back to using the yucky rinse that causes my tongue to tingle. Fun stuff. The dentist wanted me to use the toothpaste that he gave me but I told him that it hurts to brush just once, let alone twice. He said not to use it on the hurt area. I was like, that area is where you WANT me to use it, which is why you prescribed it to me, ya Schmuck. I am not using the special toothpaste until my mouth is healed. My mouth, my choice.

I am trying not to get depressed but that is easier said than done. I feel my heart imploding and there is nothing I can do about it. It hurts and no amount of pain meds can take it away, as if it were that easy. Matters of the heart are never solved by medication. What it is solved by remains a mystery. The internal hurt that never goes away.

I was thinking of my father today. I have been flooded with memories of how he treated me, not all good. For some reason, while trying to organize the pics on my phone, his pics from when I got them loaded on my phone, including the one of him in his casket, are first in the order rather than the most recent ones that I have taken. I never thought I would forgive my father for his wrongdoings because he would never admit that he did something wrong. We were the ones that “made him” do the things to hurt us. As time is going by, and he is no longer here, I am finding a sense of peace from him knowing he can’t hurt me anymore. No more calls, no more threats, no more vengeance to the people he hated. Most people would say that my father is in heaven but I know better. He is either in Hell or purgatory. He never apologized for his sins before he died and he never would because “he did no wrong”. Asshole. But the bastard is on my mind these past few days. I got to put the pics of him in some kind of folder so I don’t come across them so frequently or it is going to drive me mad, well, madder than I already am.

I joined a suicide attempt survivor group on Facebook and a depression support group. Both are very busy and take up a lot of my feed. I’m not sure if I am going to stay in the depression group. People there are really rock bottom depressed and it doesn’t make me feel hopeful that things will be better. The other group, I am not sure about either. There is a lot of talk about suicide and suicide attempts though the rules state you can’t be talking about it. I have posted my story and someone there thinks I have season affective disorder because for three months I am depressed and suicidal. Being suicidal is not part of the SAD criteria. I have no other symptoms of being depressed other than being in despair and wanting to end my life, and of course, psychache. Those three symptoms are no where near the SAD criteria so I do not have SAD. It is part of the bipolar cycle. Most people with bipolar disorder will have this downfall about now through the fall. Studies have confirmed it. I think it is in the book Night falls fast or maybe touched with fire both by Kay Redfield Jamison. I am always good at remembering shit like this but not the source. It is my downfall.

Even though I feel despair, I really just feel nothing. I am numb. My heart is so heavy I can’t feel anything. I just want to be done with this. Being in pain sucks every day. One of the groups thought being in physical pain would be better than psychache. I said I thought the same until I had chronic pain and now it just makes me want to end my life all the more. I wonder what keeps me here, from not acting on my feelings and thoughts of suicide. They are frequent but more tolerable. Sometimes it is a passing thought, but tonight it is on my mind a lot. I haven’t picked a date or anything. I haven’t done that in months. In some ways, I think not seeing my ex-therapist has helped me be calmer about my suicidality rather than keep it heightened.

My psychiatrist has been trying to get me into a pain support group for months now and every time we get in touch with the coordinator, we are met with red tape. I really don’t care for this group. It can go to hell. But my psych really wants me to go to it. She thinks it can help me. I rather just not exist anymore. I mean, what is the point? I stay in my room most days and only go out when I have an appointment or feel like getting an espresso. Some days when I don’t leave the house, I don’t even make coffee. It has been having the opposite effect on me lately, making me tired rather than awake. I sleep. I have no friends outside of social media to talk to or hang out with. I am alone. I kind of like it but being in severe pain lately has really spun me around. I have been thinking of the plan that I came up with while in the hospital. I am just too cowardly to do it, I think. I just want to be gone. Away, permanently. Why is that so hard to understand??

busy Monday morning

Busy Monday morning

I had a shitty sleep. I fell asleep sometime after 0200 only to wake up around 6 because my foot was in severe pain. I took my pain meds and slept until my alarm went off. I didn’t want to get up but I had to be at the dentist office by 0800. I dragged myself out of bed, got dressed, brushed my teeth, and headed out. I had to wait until the dentist was available to see me. He said that I had severe inflammation of the gums but wasn’t too sure what was causing it. He wanted it to go down and for me to finish my antibiotics before taking x-rays.

I left in time to catch the bus to the Square. While I was waiting, I called my PCP’s office to see if my prescription was ready to be picked up. It was. I had breakfast at Starbucks. I ordered a snickers latte rather than espresso. I felt like treating myself to something good. I had 6 espresso shots. It was stronger than I thought it would be but still good. I went to my PCP’s office after I finished and then went to the pharmacy. My foot was in severe pain by the time I came home. I hadn’t taken any pain meds with me and the last time I had taken them was around 6 this morning. I was overdue. My foot was also on fire so when I came home, I took my pain meds and Neurontin. I also rinse my mouth out with the antibacterial rinse. It doesn’t go well with powerade but I can’t take the Neurontin with water because it is gross. Guess it was the lesser evil.

I wanted to get my meat sauce for supper but my mother is making lazy man lasagna. I will save it for another day. It’s not going anywhere. I have been wanting to have it with penne pasta for a while now. I haven’t had lunch yet. I will finish off the White Castle burgers. That should tie me over until supper time.

I am going to try and stay up but I have a feeling I am going to take a nap. I am really tired from all that I did this morning. I was out for 4 hours. I am glad I don’t have therapy this afternoon. It would suck. My mood sucks right now. I am just exhausted from hurting and not sleeping. I am so tired of waking up in severe pain. It’s really mentally exhausting. The hard part is that I have absolutely no control over it. It flares up whenever it wants to whether I am sleeping, trying to sleep, or just plain resting.

My fricken bowels are going nuts. Whenever I have Starbucks milk, it seems I am intolerant to it. I don’t fricken care because I have been backed up the last few days but the cramps are horrible. I just hope I don’t have an accident because that will kill me. I also hate having to go up and down the stairs a lot because of it. I so wish there was a half bath where the bedrooms are.

I’m trying to make plans with a friend that I met while in the hospital. Every time I ask when to meet up, she is vague or doesn’t answer. I really don’t want to go out tomorrow, except to Walgreens because idiot me forgot my strong pain pill script to get filled today. I had it on the edge of my bed so I wouldn’t forget it but I did. I also need to mail a birthday card for a friend of mine. Maybe I will get some pizza when I drop off the card to the mailbox, though I have been thinking of getting a pastrami sub lately. I love pastrami.

One of my blog readers suggested I get input for the blog about therapists who shaft clients for the suicidality or hospitalization history. If you would like to contribute, please email me at Collerone at Yahoo dot com or use my contact page to send me a message. I’m still mulling over ideas for it so you have time to also contribute if you would like. Please get it in by this week though. I’d like to write it up by the weekend. I think it’s important to get the word out that there are therapists and organizations out there that just don’t want to deal with severe mental illnesses.

no McDonalds today

No McDonalds today

I had breakfast and made coffee. I went up to my room to read and drink my coffee. I finished the book The Adventures of Maya the Bee. It was a cute little story. After finishing my coffee and the book, I was getting hungry and wondering what to make for lunch. I was thinking of going into town so I could get McDonalds as there is not one in my town that is easy to get to. There is one on the border but getting back home would be a hassle. But those thoughts faded as my pain shot up from a 5 to a 20 in a heartbeat. I was hurting and still am, so bad that the pain brought tears to my eyes. I couldn’t move my ankle at all and then it started pulsating. I took the strong pain med because I can’t take the regular med for another couple of hours. I also took an Ativan to calm myself as I am just craze with suicidal ideas right now. I felt like emailing my psych that I would take the bottle of Neurontin and call it a day but knew that would get a phone call. I put on Pearl Jam and tried to distract until the pain meds and Ativan work their magic.

The pain is down to the bone so I doubt lidocaine can reach it. It feels like someone is stabbing me and pulling me apart at the same time. It’s awful. I just want to chop my ankle off. Or die. I just feel really horrible. I want to take a nap but I fear that lying down will increase my pain and set off PTSD.

My neurologist got back to me last night. I am really happy to say that she does think I have CRPS, so it’s no longer a guessing game. She does want me to see the new neurologist that I have an appt with in Oct. See what he thinks. She asked if they were a part of the system and I told her he was. I forgot to ask her to send off a flare gun to my PCP to tell him that I do indeed have CRPS and to stop sending me to every Tom, Dick, and Mary that has an MD. I am tired of seeing doctors. I have no idea what this neuro in Oct is going to say or do. It’s at 0800 so my pain levels will be low, provided I get enough sleep to make the appt.

My mother came home from shopping. She was at my Aunt’s house before she went shopping. Then when she came home, she got into an argument with her on the phone. I had to stop the music I was listening to to see what all the yelling was about, and who was yelling. It was my mother. I called her when she hung up and she was very annoyed. I asked if she was okay and she just said yeah. I left it at that. I really didn’t care what the argument was about, probably something stupid. I just hate when my mother gets aggravated because of her heart condition.

I’m trying to think of ways to soothe myself while my ankle is going off like fireworks but nothing is really working. Pearl Jam is helping to take my mind off the stupid pain. I can’t go on Twitter because the feed is all about the situation with North Korea and the US. Two toddler leaders with nukes is not a very good situation. And the Cheeto keeps saying there is a “leak” in reports when he, himself, is the leaker as he tweets about things he shouldn’t. Dumbass. Wish someone would take his phone or whatever he is using to tweet away from him. WWIII doesn’t need to be started because of an insult.

Sunday Blog 6 August 2017

Sunday Blog 6 August 2017

I thought I would wake up early as my med alarm was to go off around 7. I don’t remember shutting the alarm off or taking my meds so I must have been really in a deep sleep. I checked my spreadsheet to see if I did log in my pain meds and there wasn’t an entry for today. I went almost all day without pain meds. I wasn’t in pain so I guess that was good.

I woke up around 1330 and had breakfast. I brushed my teeth before hand and then ate. My gums are still sore from the dental work. I made coffee but by the time it was done, I was getting sleepy again. I must have had a few sips, went to my room, had a few more sips and then took a nap. It was Pike not my expensive coffee so I didn’t care that it got wasted. My mother called me to make sure I would be making supper. I woke up a few hours later due to my bladder. It was 1600 and I wasn’t in pain so I just made supper.

I made ribs and they were good. Unfortunately, one tried to escape and got on my shirt as I saved it. So after supper, I took a shower. I needed one anyways as the last time I took one was Wednesday. After the shower I filled my med box for the week. I hope my doc calls in my hormone pills because I just used the last week. I’ll have to keep an eye on it because I don’t want to miss a dose next week. My ankle started to hurt when I was done so I took some pain meds.

I missed the ball game, though they won. That makes it 6 in a row. I am so happy for my guys. We are still narrowly in first with the Skankees in 2nd place. We play the Evil Empire the end of the week. Those games will really count toward the standings as we are so close.

I got to call the dentist tomorrow because my gum line is still so sore whenever I eat anything. I have been taking ibuprofen, which as helped but the soreness is still there. I just don’t want it to become infected or anything. That would suck really bad.

I got a comment on one of my popular blogs, Knackered, today. The woman has a daughter with Cauda Equina Syndrome. I then checked my stats and there are 23 views from that blog alone for today. The UK is really reading my blogs with 21 views, so far. I am a stats geek, though I do not like the new format of WordPress Stats. But, can’t do anything about it. As long as I can get my daily tally, I am good. I just miss being about to click on a blog and see the total stats for it. I haven’t quite figured it out with the new format. I also miss seeing my total views. I need to change screens and it’s a pain. I used to take screen shots of it and post it on FB but it’s hard to do now. But now that I can screen shot on my phone, I think I can post it.

I’m getting really excited because this coming Saturday I will be going on a booze cruise around Boston Harbor to benefit Autism. I will be going with my youngest sister, who is also a mutual friend of the person running the cruise. It should be fun. I haven’t been around Boston Harbor in years so I am really looking forward to it. I love my city! I really can’t imagine living anywhere else, least not permanently. I have always wanted to go away to grad school somewhere because the tuition is cheaper. Now it doesn’t look like it will happen because I can’t afford to finish my bachelor’s degree. It still hurts. Just hope to win the lottery one day…