Tag: mental pain

you never loved me like I loved you

by Midnight Demon, posted in blogging, cauda equina syndrome, Chronic pain, chronic physical pain, CRPS, depression, mood disorders, suicide

You never loved me like I loved you

I am listening to Brett Young because his song “Mercy” is in my head. I am feeling low. Despite the soundwaves bothering me, I am listening to music because I need the distraction. I wish I could say that I had some kind of day but I can’t. I’ve been sleeping most of the day. I have no recollection of when I went to bed. I know that I took heavy duty drugs as I feel so hung over. I said in a tweet that I “OD” on gaba but whatever I took was not gaba as I was so out of it. I wet my underwear because I woke up too late to get up to pee. When I did get up I was a fucking zombie. I really haven’t drank anything. I tried the last few hours as I needed to take some miralax as the bowel have been stuck. Now that it’s about midnight, I think they are going to unleash.

I thought about telling either the psychopharm or therapist or both about what happened last night but I don’t think I am going to be cause I am too afraid of being punished. Or worse, being forced into another hospitalization. I am not saying I don’t need to be in the hosp, I probably do, but I don’t want to go there because my ankle is being a fuck right now and if I can’t control it with my meds at home, there is no way I would be able to control it while on a unit somewhere. Worse case is that the NP restricts my meds to a two week thing which will suck. I am so afraid of that happening because I am so suicidal but I don’t have any intention of overdosing on my meds. I just want to take ginger or a knife to the chest to end things.

Last night I was curious on how my psychologist friend died. I did a google search and found out. I wish I didn’t. He died by suicide. I broke into a million pieces. He is the second friend of mine to die this way in the last five years. I wish there was something I could have done to prevent it. He had been posting just once a day, which is kind of not like him. I met him on Twitter. I even went to his office to drop off cookies. We talked about cooking and stuff. He loved to cook. He sent me this awesome Christmas recipe for a cake that I love so much. It is Nantucket Cranberry cake. It is so damn good. I am hoping to get some ingredients tomorrow for my chocolate zucchini bread. I want to give some to my therapist and to share some to my friends on Thanksgiving. I don’t think she will mind a few pieces gone. Least, I hope so. I would make two, and maybe I will. I have never been good at separating batter so I might have to make it twice so I can have some for breakfast. I really love it. Sucks I was out of it today as I wanted to make cookies. Guess it will have to be another day for that. I just want to make the zucchini bread and that will be all. I think I can do it both at the same time so I don’t have to wait for one to be done for the other to go in the oven. HA. Genius!

You are king so go into the light…

by Midnight Demon, posted in blogging, cauda equina syndrome, Chronic pain, chronic physical pain, CRPS, depression, mood disorders, suicide

You are king so go into the light…

These are the words the voices have been telling me since Tues. I haven’t had commanding voices that were severe until tonight. I contacted a couple of friends and they helped me to get through until the medication kicked in. It has been a week that the voices started. This never bodes well. I know it is because of the stress of the death of my aunt and going to the wake and funeral. My family is very loving so it wasn’t like I was awkward or anything. I just didn’t want to say goodbye to my aunt. It hurts so bad having her gone. But she has been gone longer than her physical body ceased to exist. Parkinson’s dementia made her into a shell of a person that just became silent and I think that was when we really lost her. I feel so bad for my cousins who watched her deteriorate. It must have been so painful and I really hate that this disease not only affected my aunt, but her son and his family.

I seem to have caught the family crud that has been making its rounds to all the family members. I am congested. I took a mega dose of vitamin D and will take another tomorrow to ward off the virus. I had my flu shot so I hope I don’t get a strain that is not in the vaccine. I honestly haven’t been really sick since 2008 when I got double pneumonia. God I was ill for a month and took forever to get my strength back.

Beginning of Dec I have a lot of appointments. I have an appointment with the psychiatrist that was assigned to me when my psych left. If the NP does not give me my Ativan, the way I take it and a 30 day supply, I will go back to him. I am tired of this “discussion” where it is only her points she wants me to see not mine. And I don’t think it is a good idea to mess up someone’s med regimen because of long-term effects. I just cannot tolerate this. I see the NP Monday and I will calmly explain that I understand her concerns but I do not care about the effects.

I hadn’t peed in six hours so I cathed and as I was doing so, it was a long void. I was trying so hard not to clamp off the catheter but a spasm occurred and urine flow stopped. Now I have to try again so I don’t wake up before 6 am. I am going to try in about a half hour or when I am finished with this blog, whichever comes first. I really hate that this is my life now. That I will be having to catharize myself forever now or end up in the emergency room because I don’t have the urge to pee. I feel so humiliated. Just increases the suicidality. I found out today at the OT appt that this is nerve damage. I thought it might be due to medication but she said not according to the urodynamic study. I feel really sad about this. It’s just another nail in my coffin. I can’t take my back constantly being broken down and worrying about facing surgery all the time.

Monday I am supposed to talk with a behavioral med psychologist. I hope it isn’t because my “team” told him I was not compliant with my care, meaning not taking my medication or skipping appointments, etc. I go to mostly all of my appointments except if there is good reason not to, like feeling sick or being in pain. I just am having a major problem with the urine thing because it just screams at me that I am disabled where before I knew I was but I really didn’t want to face it. Now it is staring at me in the face and I can’t deal. The depression is making me feel like I would be better off dead. And now the voices I should just take a bottle of pills so I can be king to go into the light. I have already decided I am going to end my life before my next birthday. It is just a matter of time and a few weeks away. I just hope I don’t end up back in the hospital when I see the NP next week. I don’t know if she will think going into the hospital will be a good idea and I hope she doesn’t because it is NOT a good idea, especially before a holiday. Just really bad to go into the hospital around a holiday.

exhausting week

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders, suicide

Exhausting week

Sunday night I realized I was an absolute idiot. Even though going out to play chess was probably good for my mental health, it was not good for my physical pain. I had a very rough night sleeping. I sent some texts to the therapist and I saw her that afternoon on Monday. I got dressed up because I didn’t want to get dressed twice but that ended up happening anyways as after therapy, I went into my PJs for a nap that never happened. I never showered. I just couldn’t be bothered. I was and still am so profoundly depressed. I thought things couldn’t get possibly worse and they did. Tues morning while at the church, I read one of the psalm books and it had the word “breaking” in it. Well, my brain just saw the “king” part and the voices started chanting “you are king, go into the light” over and over and over again. I sent a message to the NP. She wanted me up to 6 mg but it was going to take a few days to work. I told her I have no idea if I have an infection (I don’t) but the uro wanted to do a urine culture. The NP said she thought about ordering other lab stuff and putting me on another medication. She was going to be away the rest of the week but would monitor the message system if I should send a message. I did tonight as the voices are still saying “go into the light” though I have no idea what the fuck it means and it is on a fucking loop that is annoying the crap out of me. The meds are working as I feel more sedated and less agitated than I was. Other than the voices kicking up, the funeral and reception went well. I spent yesterday in bed. I didn’t do a damn thing. I was supposed to have therapy today but decided to cancel. I am glad because the occupational therapy appointment took so much energy from me and then I went grocery shopping which further taxed me. I am so wiped out it isn’t funny.

I was hoping my writing was going to be a little more frequent but some days I can’t write. I had so much emotion that I was just overloaded and couldn’t get my thoughts out but then, when you are actively psychotic, it is so damn hard to think. I got to ask my therapist how old she is, well at least if she is younger or older than I am. It is bugging the crap out of me. She freaked out when I told her the year I was born. I don’t understand why as she has my record in front of her. Makes no sense. The professionals I see are always shocked when they see my age. They will say, “oh, you’re 43? I thought you were 20 something.” Um, hello. I am not lying if you have my record there in front of you! I know I don’t look my age (don’t act it either, LOL) but come on.

As I was walking back to the area where the shuttles were to the train, I just crossed the street. Didn’t look and almost got hit by a passing car. I was like oh shit. It was a cop car too. I am just glad they didn’t give me a ticket because I didn’t cross at the crosswalk that was like 20 feet away from me. I still have this heaviness in my heart left by my aunt that passed. My cousin sent me a pic of my godfather last night. It was a pic that was taken at my cousin’s house way back when his kids were little. I miss him so much too. He has been gone for about 6 years or so now. I know he would have accepted me as trans. He was such a good guy with the kindest heart.

painsomnia has returned

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders, suicide

Painsomnia has returned

With the depression making me so damn tired, I had escaped for a little while from the pain induced insomnia or just insomnia in general. The temps have dropped considerably (currently in the 20sF) so my pain is beyond measuring right now. I took some extra pain meds and hope that it works and that I don’t have to take more meds. It’s a little after 2 right now. I hope I can sleep by at least 4 or so. The pain is like a slew of nails being shot into my foot and ankle joint. I cannot describe it beyond that right now. It is making me very suicidal but I have no intention to act on it. I don’t have anything to really act with. I gave my container of ginger to the therapist a few weeks ago. The ones that I have, have proved pointless. Either 100 mg of ginger root is not enough to cause a reaction or I really need the real thing like ginger beer or shaved root.

I met with the therapist yesterday. I had to because I was getting worried I might attempt again. Plus the voices have increased because of the stress or god knows what. Think just worrying that I having a repeat of my episode of 1994 where I was in and out of the hospital with intermittent suicide attempts on the side, one that landed me a two month stay. I didn’t become psychotic during that episode. I am really freaking out because if this does develop into a psychotic depression, I don’t have my psych here to help me guide treatment options. The psychopharm (NP and MD) have wanted to increase the antipsychotic I have been taking for a while now but I have been reluctant. I fear that if they have to play with this medication to get me stable again while my mood is out of order, I think I will have no choice but to go back to the hospital. I would feel better with this being done in an inpatient setting because the voices can be tricky to deal with outpatient. Once they start telling me to do stuff, which they are starting to, I have a hard time ignoring them. They are already making fun of me because I failed in killing myself, again. I haven’t been eating anything all week. I have been drinking Ensure and Gatorade just to make sure I don’t completely lose it. I am slowly losing the will to live. I don’t care about food. My favorite holiday is coming up. A very good friend invited me to her house but I have no idea what kind of shape I will be in. My friend is more like my sister from another mother. We are close and we understand each other. We make each other laugh, especially when we get going with our dirty minds. I am trying to remember to eat something every day but when there is no appetite, it is kind of hard. My food stamps just came in so I can go to the grocery store to get some cold cuts or some ingredients to make something but I don’t really know what I want to cook. I started my grocery order list and it’s almost $200 again. It was just $100 with just my drinks and the few things I buy every month. I have no idea what is in it now. I know I put some ice cream and cookies on there. I will probably take them off. If I go to the grocery store, I will get the chocolate Reese’s peanut butter cup ice cream I like. Least it will be something in my stomach.

Because I was up in the middle of the night, I gave my T shot so I don’t have to worry about giving it before leaving the house. It is going to be hard when I get to sleep because I have to leave early. I have therapy at noon. I sent my psych an email about how the psychosis is starting to get out of hand and that I don’t trust the providers without her guiding me. This is so flipping hard. It’s been four months since I last saw my psych and started seeing the therapist. I can’t call the therapist “my” therapist because I don’t trust it 100% yet. I am still waiting for her to drop me. She wanted me to write something about the benefits of going to partial hospital. I don’t have much to say about it. I haven’t been to a partial program in more than 10 years. I didn’t like it then and I doubt I will like it now. I don’t want to go mostly due to financial concerns as well as having to be a morning person. I also would have to worry about how this is going to affect my pain levels by being out a minimum of eight hours a day.

Going to try this thing called sleep. It’s almost 4 am. I got to be up in four hours. Yay.