Tag: nerve damage

Want to go home

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders, suicidality

Today has been difficult.  I’ve had pain all day, sometimes excruciating and other times tolerable. I worried my morning contact person because the plan I took off the table, I put back on. It is staying on for now. I’m in a don’t give a shit mood. I’m tired of being in horrible pain. I haven’t done much yet I hurt so bad.

I really just want to die. I won’t do anything while I am here. I am kind of nervous about tomorrow and meeting with Bonnie (not her real name). I don’t think from here on out I’m going to be helped. It doesn’t help that I feel so hopeless that things will get better. My support group has been doing what they can for me but I feel like I shouldn’t share too much of my depression for fear of bringing people down.

I’ve been reading the Harry Potter and the cursed child for most of the day. I read it before taking my meds and I was in the wizard world for a while. Then I came back to reality and I didn’t like it. I really didn’t think I would like this book but I am, even though it doesn’t have too much description like a normal book does. It is mostly script with few descriptions of the scene. I know if it was written like a book it would be at least a thousand pages, minimum. But I am enjoying myself with it while I try to escape the pain and boredom of this place. I wish I brought my Kindle. Maybe I’ll ask my sister to bring it to me. A fellow patient who is being discharged tomorrow gave me some candy and tea. I was out of my regular tea as I didn’t think to pack it. All I have left is chamomile tea. I had two cups of Lipton today. It gave me the caffeine I needed. The coffee is wicked terrible so I don’t drink it.

My cousin said some things on Facebook that really got under my skin. I replied just as callous back. If he can’t understand my mental illness or physical pain, Fuck him. I’m not going to placate him. He could have said sorry to miss seeing you rather than he was disappointed. His choice of words, not mine. I’m tired of being judged by small minded people.

I have been sitting on my bed the last few hours. My tailbone hurts. Now it’s raining out so my spine is hurting. It was hot in my room so I had staff open my other window. Least it will get the air circulating. I really cannot stand heat. I miss my ceiling fan. The temp today has gone from 49 degrees to 60, which is kind of odd for Nov. I was freezing this morning but the heat seems to have kicked on high for some reason. Staff just looked at the controls for my room and it’s on cool so I don’t know what the fuck is going on. It is an old building so it does weird things.

I took another dose of Miralax for my bowels. I finally went though I still feel bloated. I’ve been trying to keep up with fluids because I woke up with a sore throat but that just made the feeling of being bloated worse. I am hoping all the food I ate gets digested by tomorrow. I hate this feeling of being full when I didn’t overeat. I know the strong pain pill is causing my bowels to be backed up but there is nothing I can do about it. I need it to help my pain as I can’t take it like I do at home. 

I’m hoping tomorrow I have a better sense of when I will be going home. I really want to leave. Being here is just solidifying my planning. It is going to be tough because no a whole lot of “work” has been done since I have been here. I have been doing the PT stuff because it is easier to remember to do. Imagery has been ok but I only get so far before I wander off. The depression makes it hard to really focus on anything. 

Exhausting painful day

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders, physical pain, suicidality

I woke up around 2 in pain so got some pain meds. I woke up around 8 after falling back to sleep. I wanted coffee but the damn breakfast dude had shut the doors to the kitchen. I don’t know why they do this for every meal. Drives me crazy. While I was waiting for him to open the door, my pain spiked and so did my suicidality. I just wanted to die. After I got the disgusting coffee and some breakfast, I met with my team. I told them I would retract the 3 day and the psychiatrist asked what changed my mind. I said the thought of going to a state hospital wasn’t appealing. After we talked, he gave me privileges just like that. After I told him I was suicidal. Whatever. I knew I wasn’t going to be able to go out today anyway. I just hurt too much.

I had a mental health counselor that I liked as my check in person and told her I hated being far away from the nurse’s station. She was able to have me change rooms to be closer. I had to walk back and forth with my things. That caused a flare up. I am staying in my room the rest of the night. I need to rest. I am wicked tired, like I’ve taken a sleeping pill. I am so wiped out from this chronic pain today. It has been fluctuating all day. 

There is a service dog on the unit. He is very cute. The bugger had learned to leave the patient’s room so he has been hanging out for most of the day. This is the 1st time I have seen a dog on the unit.

It has been a really warm day out and so the unit has been stifling. I was sweating when I was done with the room change. I didn’t pack shorts so I ended up making them out of some scrub pants when I was last admitted. I am much cooler now. My room has the windows wide open so it’s nice and cool. I like it. I can not tolerate the heat, which I think has contributed to my pain being bad the past two days. If dinner wasn’t in a few minutes, I would take a nap. I will after I eat. I’m kind of hungry.

I hope that because I got privs today that my discharge date might be next week. Least I hope so. I want the fuck out of here. My psychiatrist wants me to stick it out but I really don’t see the point. 

I went to two groups today. The 1st one was group therapy and I came out to the patients that were there. Everyone was supportive and I think there is another trans female on the unit. I hope we can connect but she seems very distant.

The other group was on stigma and I didn’t care for it. It was really boring. 

ugh another psych admit

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders, suicide

Ugh another psych admit

Met with my psych this morning. I should have known it wasn’t going to be a good day when the 747 bus never showed up but my cousin did to give me a ride to the Square. I gave her some sauce and a piece of my cranberry cake. Then she said she wanted me to go in the hospital. From her tone, there was no arguing with her. She didn’t like that I picked a date, again, or the dire emails I sent when my pain caused me to be suicidal, more than usual. I’m just grateful she let me go to my therapist’s office later this afternoon. I told her I wanted his input.

I came home waited for my new laptop screen to be delivered. I was expecting it around 1230. It didn’t come till after 1300, which left little time for a nap. I wasn’t in that much pain but knew I would need some when it got closer to my therapist’s time. Unfortunately, I didn’t bring my bag of all things, which contained a water bottle so I didn’t take my pain meds. I still felt good so thought I would be okay.

I talked with my therapist about what my psych had said. He didn’t see the point in going in except maybe learning a few things, if I went to the unit my psych wants me at. I thought about this as I left his office. I got to the corner of where his block was and the top of my foot felt like it was being smashed with a brick. Fuck! I had no water to take my one pain pill I had. I carefully walked to the station. Went down the stairs and the train was coming, a full one. Nope not standing three stops. I sat down and waited for the next one, which wasn’t too long. It was less crowded and I got a seat. By the time I got to the Square for the bus home, I wanted to cry. The pain intensified. I could have killed myself right then and there. I missed the bus by mere fractions and sat for the next one. I thought I was going to bawl as the bus was in traffic on the ride home. I was hurting so bad and I needed to get my meds at Walgreens. I honestly have no clue how I got home.

I wanted to tell my youngest sister I would be going in the hosp tomorrow but she was surrounded by her family and my middle sister and I didn’t want to bring it up. My brother in law is anti-mental health issues of any kind. I’ll text her later with it.

I did tell my mother, which is a huge step for me as I usually just leave her notes the morning of. We were talking when my psych called me. HAHA she is worried about. She asked how I was and I said not so great as it has been a long day. I then explained that I wanted to go to the unit she recommended and if I end up at the hospital I was in a few months ago, I will sign a 3 day (basically it’s a form forcing the hospital a 72 hour notice to decide if I need to stay (court will be involved), can go home, or will leave against medical advice). If I do go to the hospital and get assigned a different treatment team other than Bonnie and Clyde, I will stay as they may be helpful. There is one doc there I really like working with and he is sincere in trying to help anyway he can, unlike the Bonnie and Clyde couple. Bonnie and Clyde are assholes who after learning I wanted to leave the hospital to kill myself, then asked when I wanted to be discharged. Fuck you too! It was a complete waste of time and I won’t go back to their “treatment”. Plus those assholes put in my medical record that I have gender dysphoria so now all my medical records in this healthcare system know, whereas only my psych knew before. I am still steamed about this but once something is in the records, it cannot be removed without serious documentation and possibly a lawyer. Not worth it. I did bring it up to my psych, who was not happy to learn my PCP read her notes. He is okay with me being trans so I just hope it doesn’t make me a target of any discrimination, now or in the future. I told my therapist today that he will not be getting any releases from my long term disability folks. They do not need to know anything about what I talk to him about. Course they could just read my blog, which would be all they needed to either have me continue with their shit or not. I feel like their stuff is heavier than social security!! Once I get my newer laptop running again (crosses fingers and eyes), I plan on going to the website to see what exactly I am disabled. I am kind of in the dark as to whether or not it’s physical or psych or both. With my long term disability, it’s physical and depression, though how they determined that without my therapist’s notes, I have no clue. Must have gotten them from my psych, but even she didn’t get anything, so who knows. As long as they continue to pay me (the small amount) I am happy.

So tomorrow morning, I will be catching the first bus to the Square to go to the ER, where I hope I’ll be placed in the unit my psych wants me to go to. I am not feeling hopeful about it as we have tried to get on this unit many times and failed. I am very tired. I will be taking my night meds shortly and hopefully go to bed within an hour, if not sooner. I just hope my stupid foot pain doesn’t keep me up all night. I also hope I have access to my phone on this unit or I will not like it. I won’t be able to use the app for my PT. I can’t say that it’s been helping because my scores have been terrible when I am in high pain. Maybe that is a good thing. It will be nice to see if the scores change over time. I told my psych that PT is going to be a long process that won’t happen overnight. Unfortunately, I just don’t have the patience or the hopefulness to stick with it as my depression is so severe. Even my therapist said today I don’t look too hopeful that the hospitalization or anything will help. He is right. I have been let down so many times but usually just the change of environment has helped a little, even if the staff hasn’t been. Sometimes a hospitalization will help me see things differently but that was when I was dealing with mental demons, not pain demons. It is so unpredictable and that is what wears me out. As I was telling my mother tonight, there is no reason for my ankle to hurt doing “normal” movements that it should do. Physically there is nothing wrong with the bones, that I know of. I am still waiting to hear back about the bone scan. The tendons might be inflamed but after all the rest that I have given it the last 5 years, it should have been calmed down by now. If this is truly a nerve injury, I am screwed as there is no treatment and if anything, it should have shown some improvement by now if there was going to be any. The fact that the pain has gotten worse doesn’t help me feel too hopeful about the future. Hence why I get so suicidal in a flare up.

Sunday Blog 29 October 2017

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

Sunday Blog 29 October 2017

I woke up sore and in pain. I took some pain meds and an Ativan to go back to sleep. I didn’t want to face the day at all. I was starting to feel the effects around 9 and went back to sleep. I then woke up around 1400. I went downstairs to use the bathroom and then make something to eat. I wasn’t really hungry so just had a bowl of cereal. I figured if I got hungry later, I could have the pasta I made yesterday. There was a lot of leftover.

I woke up again around 1730. I wasn’t hungry and didn’t want to get up at all. I still need to fill my med box for the week. My mother had called but I haven’t called her back to see what she wanted. She never leaves a message other than call me back. Drives me crazy.

My hands are hurting today. They feel arthritic. It’s cold and damp today so that maybe why. My ankle/foot is still hurting. For some reason, I still feel bloated, even though I haven’t eaten anything but the bowl of cereal this afternoon. I felt sick after I took my meds last night. I think I am going to decrease the Zoloft to just 50 mg and see if that helps. I’m seeing my psych tomorrow morning. I am kind of nervous seeing her. I always am when I email her my dark moods.