Evening Saturday Blog

Evening Saturday Blog

For the first time in the last two weeks, I missed my afternoon dose of trilafon. I am kind of beating myself up about it but there is nothing I can do about it unless my symptoms come back in full attack. They haven’t so I think I am okay with just taking 4 mg tonight. It was one of those, yea I will take it in a minute and then forgot when the minute passed. I do the same thing with my blood pressure meds, which is why I have an app that reminds me to take my meds.

I usually take my first dose of trilafon a few hours after waking up, usually after or while I am having my coffee. I figure if I take it with the coffee it fights off the drowsy effect. Today I had two cups of coffee and I was still tired by the end of the baseball game. I pretty much watched it from beginning to end, well, watched a couple of innings and then listened to the rest of the game. I am happy they beat the Skankees again. When Sandy Leon was batting, I just had a feeling he was going to hit a homerun. I didn’t say anything because that jinxes it. And when I heard Joe Castig say that ball is gone, I was whooping up and down on my bed. It was so sweet. That made it 5-1 at the time. The final score was 5-2. It was a good game.

I finally finished one of the books that I started but my Kindle ran out of juice. That is the only problem with technology, needing power. A regular book doesn’t need that kind of power. You just have to remember to carry it with you. I had already finished the single but at the end it had the beginning chapter of another Keller series. I think I already read it as it sounded familiar. The book is written by my favorite author Lawrence Block. Keller is one of his characters that I like. He plays a professional assassin. Block’s first book that I got hooked on was “Eight million ways to die”. He had this series by another one of his characters called Matt Scudder. I just fell in love with Matt when I was 15. He was struggling with his issues with alcohol and I was struggling to stay alive with my suicidal thoughts. Block’s books gave me the much needed distraction to keep going. I feel like I should write to him, but I don’t want to sound corny. I do have his email address because what I have to say will be longer than 140 characters in a tweet. I am not that tactful.

Now I am trying to get into a Scudder-like mystery/crime novel written by Robert Galbraith aka JK Rowling. I read the first chapter this morning and it was so meh. It was just so ordinary. It reminded me of a book by Block, “out the window”. I know that I shouldn’t be judging this like a Block book but when that is all you have read for the past two decades, you kind of have a standard. But this book, “The Cuckoo’s Calling” was a National Bestseller so who am I to judge it.

I have been reading my blog from two years ago. Seems like almost every day I wrote more about my pain than about the suicidality I was feeling. My blog has taken such a turn from being about my suicidality to chronic pain that I had to change the brief description as it was more about my physical pain than my psychache. I know I don’t write about my suicidal thoughts that much anymore. I still get them when my pain is off the charts. But it’s mostly my physical pain that is off the charts lately. My psychache seems to be in check. I guess being on an antidepressant has benefitted me the last few months. There was a time back in September 2015 after my New York Times article was published that my depression got worse. I am so used to it that I hardly remember when the episodes start and when things get worse is usually when things start clicking that something is wrong. It’s rare that I get physical symptoms of depression. But that is how bad things got. I just wish the weight I lost was more significant than it was. Only because I gained it all back, sadly. I was so damn close to losing my ideal weight but nope, it wasn’t meant to be. I am just grateful that my NP isn’t a big weight freak like my PCP was. It was really stressing me out and actually caused me to gain weight than lose it.

I have no idea where my writing is going. I have thought about it a million times but nothing comes to mind about what I want to write. It’s been months since I wrote something. The only thing that I did write while I was in the hospital was the first hour of my father’s home visit before he died. He lived only two hours after bringing him home from the nursing home. I still haven’t written it up. Nor did I finish it. The last hour was difficult to write without having PTSD symptoms. I never wrote it. Tonight I was thinking about the last time I saw him before he died. It wasn’t as painful as it once was. I also wrote a lot about him in 2014 in the blogs that I read. That was when he had a GI bleed and his hydrocele surgery. I didn’t write in detail about his illnesses because it is my blog and feel that I should be writing more about my feelings than him. He was the source of my suicidality for a long time. Now that he is gone, I am less suicidal. Don’t get me wrong, I still get suicidal. It’s just that his joking and torturing that made me want to die is gone. He just made you feel like a nobody. And that is how I felt whenever he was around. I also felt like I didn’t matter, that his needs were more important than mine, because they were. He had to come first and if he didn’t, he got so mad. That was how he was. And unfortunately, I miss the bastard.

Stay a Little Longer and Enough is Enough

Stay a Little Longer and Enough is Enough

The past three days the songs Enough is Enough and Stay a Little Longer have been piggybacking in my brain. They have been on either repeat or shuffle. No matter what other music I listen to, these songs break through. I was even hearing “Enough is Enough” while I was on the phone with my therapist. I feel like I am losing my mind. I have been taking the trilafon faithfully every day, sometimes twice a day if I feel stressed.

I don’t know if the lyrics are trying to tell me something or it’s just a song that keeps playing in my head. Whatever the reason, it’s really stressing me out. I am hearing the songs almost the full time I am awake and when I am not I am hearing the voices talk to me.

My therapist read the blog I sent her last week. She said I was describing negative symptoms of psychosis, whatever that means. I told her my psychosis was going on longer than I thought it was, since the middle of January of this year. That was when I was talking about voices being loud and her wanting me to take PRNs. I didn’t take the PRNs because I thought they were just because I was stressing out over my MRI results at that time. Of course, the stress of that was exchanged with the stress of my father’s illness and ultimate death. That in turn, caused my psychosis to unleash itself to what it is today.

I am still grappling with it and still think I need to be in the hospital but because of my mother’s health, I can’t do that. It’s so frustrating to be dealing with this. I had taken 4 mg of trilafon while I was talking with my therapist and then another 4 when I came home a little while ago. The bus had me all freaked out. There was a little girl that kept licking her hand and then touching everything while licking her lollipop. I was trying to not look at her but she was right in front of me. And there was a stench of something really bad on the bus. I don’t know if it was a fluid smell or urine smell but it as bad.

I don’t really remember what I talked about in therapy other than her telling me I was describing negative symptoms. After therapy, I went to Starbucks for my bacon sandwich and coffee that they made really sweet. I swear I was going to get diabetes from that sugary drink. I didn’t finish it because I just couldn’t. I like sugar but only so much. I felt like adding coffee to it to make it less sweet but I didn’t want a caffeine high.

I saw my NP today. She is not leaving the practice, just taking vacation for a few days. I did find out one of the other PCPs is leaving. I liked her, too. I think the new computer system is getting rid of good doctors. It’s a terrible system. I wish they had seriously thought of the impact it would have before implementing it. I just hope my psychiatrist doesn’t decide to leave because of it. I would be so sad.

I just realized that by the time I see my NP again next month, I will have, potentially, my new name. I still need to find out if I need an appointment to change my name or not. I have two weeks to find out. That is when I get paid next and I would like to do it sooner rather than later. So my disability decision for my loans better come soon. Then begins the process of changing everything to my new name. I am both excited and scared at this process.

feeling wicked down and depressed

Feeling wicked down and depressed

I woke up early because I had to pee but I couldn’t get out of bed so went back to sleep. When I woke up two hours later, I really had to run to the bathroom. My bladder was overfilled. I brushed my teeth because my mouth felt like a sewer. That was all I needed to do to get my ankle going. It hurts so bad right now and it got me depressed. I have to out today. I took some pain meds but I still am not sleepy and the pain has, thankfully, lessened a bit. Sometimes the meds are enough to knock me back out and sometimes it doesn’t.

My mood is terrible right now. I really just don’t want to be. If I had the means to really carry out my thoughts, I would so go through with them right now. I feel so lowly. All I can think about is death. I keep wondering what it would be like laying in a casket.

I have therapy today and then I have to go out to my appointment with the NP for my pain meds. I really don’t want to go out. It’s already muggy. I put the AC on to cool down my room. I’m not going to shower because I know I will be sweating when I go out. I will shower when I come back home.

I hate being in this irritable mood. I woke up kind of okay but the pain caused my mood to dip very low. Now all I can think about is death. I am so tired of feeling this way. I never feel “better”. I always feel gloomy and sad. The voices are always there reminding that I am a piece of shit.

I got three hours before my therapy appointment. I am going to try and get some sleep now. I hope I don’t wake up.

Decisions are hard when depressed

Decisions are hard when depressed

I am still struggling between the voices and the grief and the depression. I couldn’t decide what I wanted to have for lunch. I had just coffee for breakfast. I didn’t feel like eating so around lunchtime, I was hungry. I had to use a coin to decide whether to make hot dogs or a tuna sandwich. Tails won for the tuna. I was glad because making the tuna sandwich was easier than making the hot dogs. I always had my back up of eenie meenie minee mow to fall back on, but the coin was better.

I honestly don’t know what I want to do today. I know I don’t want to go out. I am just not up to dealing with the public transportation system to get to the Square nor dealing with people. I made the decision to go to a PT place down the street from me. However, I need to fax the prescription to SRH before they will call me to schedule an appointment. I wish I could just scan it and fax it but I am not that tech savvy to do things like that. Plus, I don’t have a scanner. I know one of my Twitter buddies can fax on his phone so I will look into apps that do that. Maybe I can take a picture of the script and then fax it that way. This will cut out a middle man of either giving the paper to my sister or going to UPS store.

My pens have made their way back to my town and are on the way to being delivered to me. I hope it’s today and not tomorrow. I also got confirmation that the stamps I ordered are on their way to me as well. I feel like today is Christmas. I can’t wait to stamp “Ex Libris” on my books. I also can’t wait to write with my new pen. It’s a Jetstream but a fine point and a clicker. I’m not that crazy about fine points but it looked cool so we’ll see. Sometimes I do like writing with fine point pens. All depends on my mood.

I was talking to someone on Twitter this morning who was saying something about suicide prevention. He went to my profile and saw my pinned tweet. He then retweeted it with a comment saying “suicide will pass”. I don’t know if he was saying this to me indirectly or to other Twitter people. Either way, it pissed me off because that isn’t the point of the quote that is pinned.

I guess I am kind of angry today for some reason. Little things have been pissing me off. I told my sister that my depression sucks and that I was “crazy”. She wants me to talk to my doctor. Thanks for being supportive. She doesn’t get it. I don’t know why I opened up to her. I guess if I land in the hospital again, she won’t be too surprised, which might happen if the damn psychosis gets worse. The voices have been twisting things and lately, while reading, things have been weird. Words will sort of fly around as I read them. It’s worse when I am on the Kindle. I have been really getting into one of the books I am reading. It’s called “creating an online presence”. It’s a good book and I can’t seem to put it down. It’s my new obsession. I thought I had lost the download because last night before bed, I couldn’t open it or find out how to open it. I must have spent a few minutes just repeatedly touching the document and it wouldn’t go to Kindle. And then I went to Kindle app but it wasn’t there. It was scaring me because I just finished reading it that morning. I did find it on one of the screen pages called “recent” on the Fire. So I guess that is where to go if I want to continue reading it. Very frustrating.

Last night, I had to use the Crisis text line. The voices were really bad and wanted me to not only take my meds, but the entire bottle of the various meds that I take. They were very insistent. I don’t know why they are worse during the night than the day. It’s like the static that I hear during the day turns into the voices that are speaking and they are telling me to do things. I wasn’t going to act on what they were saying but I just was annoyed and didn’t know what to do. It was late at night and I knew that if I paged my psych, she would tell me to go to the ER or take my PRN. I am getting dangerously close to losing control. So far, I am okay. I am not impulsive but I fear that if I get agitated because I am angry and annoyed, things might change.