Tag: writing

Don’t you

by Midnight Demon, posted in blogging, chronic physical pain, COVID19

Don’t you

Don’t you is a new song on Fearless Taylor version. It is my new favorite song. I have been listening to it since I left PT an hour ago. I have had a long day and I know I usually set a 500 word limit for myself but today has been a fucking day. I started the day with an appointment with urology. I have been given strict orders on how long between voids. I usually have 6 hours but they want it to be 4 especially if I have been drinking a lot and can’t go. Which means that if I can’t go on my own, I have to cath. I’ve also been given a hat to measure my urine. If I am going between the 4-6 hours and have a lot of urine >300mLs, I need to go more frequently. This is to prevent my bladder from stretching. Which means putting myself on a fricken timer for bladder reminders. Fuck. I thought I was done with this shit. Things were going so fucking well and now they suck. I really don’t want to be thinking of bladder function all the damn time. This just really sucks.

I came home and was dizzy. I had bought a Gatorade while waiting for the bus and drank that. I was going to wait to order food but as I was dizzy I thought I should eat something so I ordered a big mac. It’s all I’ve eaten today and probably will be. I just came home from PT and feel more dizzy than I did this afternoon so I am just going to drink Gatorade and rest. My blood pressure is normal so that is good. I know I am probably dehydrated because I haven’t been drinking throughout the day. I also been sweating a lot so that just adds to my exhaustion. I really hope that I can get up tomorrow morning for my vaccine appointment.

PT has gone well. My shoulder is much better than it was four months ago. Today was my last session for it. Next week I start the covid deconditioning program at the PT place. I already know it is going to take a lot out of me. I was working on one the machines today and did five minutes, twenty-two seconds and I was perspiring and exhausted from it. It is one of the machine the PT said I would be using so yay. She was testing my shoulder to see how I would do.

I am completely exhausted. But I wanted to write a blog because it has been days since I last wrote. I am going to watch China Beach and rest the rest of the day before med time.

Don’t call me daughter 6

by Midnight Demon, posted in blogging, chronic physical pain, CRPS, depression, gender dysphoria, grief, mental disorders, mood disorders, transgender

Don’t call me daughter 6

Yesterday I was in the kitchen with my mother and I was in a mood. I wasn’t feeling so great and just wanted to do what I needed to and go back to my room. My mother was there and asked what was wrong. She wanted me to talk to her. Fuck that. She lost that right when she refused to call me son. From now on I will correct her when she is misgendering me. But I am not going to talk to her for any reason other than what goes on in the house. I am not going to talk to her like I did before about my ailments and doctor appointments. She is getting to be the egg donor and if that is what it takes to cut off feelings from her then so be it.

I’ve been having a hard time with the cramps. I don’t know if they are uterine or bladder related but as an experiment, I cathed and felt relief at first only to have severe pain afterwards.  I don’t know what to make of it and I have cathed since. Taking a double dose of Miralax was a bad idea. I had colon blow and woke up with crap in my pants. Luckily, I didn’t get any on the bed. I had to shower and what is worse my mother had to use the bathroom so I was so embarrassed. I need to time taking it right. Thing is it is so unpredictable when it works. It could be a few hours or could be a day. There is no time table to expect when to go.

I am still have cramps and being really down about it. I called my gyn to make an appointment for the exam. It is in May. I see the uro NP this week so I am going to tell her and ask for a urine culture to be done just to be sure I don’t have an infection that could be causing this. I really am not looking forward to surgery again but there is little choice I have. Once the offending organ is gone is should be apparent what is causing what. I doubled my bladder spasms pill yesterday to see if it would help and it did a little bit. Maybe this is bladder related. I won’t know until the uterus is gone. I got my bladder on a schedule again. I didn’t want to do it but I have gone past the six hours I am supposed to go. I can’t keep holding on to my urine for so long. It could be why I have spasms as well.

I wonder if my mother is ashamed of me and that is why she doesn’t want to call me son. It would make sense. I don’t get the sense she is proud of me. I just don’t understand why she can’t accept her child. This bothers me so much. When you bring it up to her, she is dismissive. Then I think about all the abuse she put me through and it just makes me so sad and angry. She used her trust as a mother to do her evil bidding of abusing and touching me when she had no right to touch or look. I get mad at my pediatrician who documented all these things and didn’t do a damn thing about it.

ceiling fan

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Ceiling fan

It is really cold with the wind and it is coming in through my AC so I have my ceiling fan off. I should dust it while it isn’t in use. It’s got some serious dust bunnies on the blades, but only on one side of the blade. Weird. I want to clear off the things on my bureau too. Just throw them in a box and I will go through it later. I also need to empty my bedside trash can. It is filled. I have to find the trash bag that I had. It has become buried under some clothes due to an avalanche fall of one of my bins. I just can’t deal so left it like it is.

I had therapy today. I wish it helped but all it did was frustrate me more and all we agreed on was getting a bat and beating a pillow up. We talked about how my mother is treating me with the transgender. I told her I wanted to go into hiding. She said that would be a bad idea. She understood how much I was hurting. I told her I wanted to cry but there were no tears. I won’t be seeing her a second time this week. She doesn’t have any openings. I said that was fine. I am not in dire straits. I wills see her next week.

I didn’t brush my teeth this morning because the post nasal drip was bad. I was gagging up a storm. Once it settles down, I will brush. It has been working out better in the afternoon than morning. I still need to shave my head again. I have been trying to keep my hair as short as possible. I found out today while I was combing it that it isn’t even on top like I want it to be. I just asked my cousin who is a hair dresser if this is ok or not. Now I can’t decide if I want to grow it out or cut it to be all one length. My barber is very good but I don’t think he is great with scissors. He is very good with clippers. I like him a lot so I will stay with him. No one else will touch my hair.

I had two cups of coffee today and I am still tired. I want to nap so bad. I have been up since five this morning because I had to pee. It was hard getting back to sleep. I wanted to stay up but my therapy appointment was at 11 and I knew I would start to feel drowsy around that time. I sent a message to my psychiatrist about why I am tired and he hasn’t responded. I don’t think he will because I was kind of flip in my message.

I finally brought a notepad to my bed “office” area so I will write the essays I want to write. I think it will be better written out than typed. Less distraction. I wish I could do it in a coffee shop. I so miss going to Starbucks for coffee and writing. I feel trapped sometimes because I have no where else to go. I could go food shopping. I think I will go to the butcher shop today to get a steak. And maybe some burgers.

I don’t know what to say

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders, suicide

I don’t know what to say

Been a hard few days for me with pain and depression. I had therapy Wednesday and it was a disaster. I became suicidal after we went over some negative thoughts and then we both became frustrated. I told her I didn’t want to be in the hosp. She wanted me to join a group of some sort. I called the chronic pain support and they have a long waiting list so I won’t be able to go to that for a while. I got the impression she doesn’t know how to support me when I am suicidal. Yesterday I wrote her a message telling her about the suicide response plan and safety planning by Brown and Stanley. I don’t care which one we use but I think it is important to use one of them. I told her I prefer the suicide response plan because it is what Jobes uses for CAMS. I told her what CAMS was and how I find benefit from it but there are no CAMS trained therapists in Boston.

I got really upset and thought she didn’t want to work with me anymore because she said that she was tired of this cycle we get in when I get suicidal. She wants me to check the facts about this. I was sure she didn’t want to work with me anymore because I was too suicidal. I still feel like I might need another therapist but I know finding one now is going to be impossible because of the pandemic and because of my history.

Last night I had a runny nose and was sneezing my head off. I felt lousy. I still feel like I am coming down with a cold so I am trying to limit my exposure to my mother in case I am sick. I need to shower and shave my head. I got my haircut Wed. I didn’t have it all nice when I was talking to my therapist though. I had rinse out the hairs and it was messy. I didn’t care. I haven’t showered all week. I am trying to get enough energy to do it. I just feel so tired and don’t want to do anything. I really need to go to the grocery store to get more Gatorade. I have just six bottles right now. That is not going to be enough for the month, or even a week.

Yesterday I had PT and my deltoid is sore today. It feels bruised but there is no bruise mark on it. She did a lot of work on my arms yesterday. I got more stretches for my neck. I am glad because my neck has been such a pain. I need to put heat on it. Only thing is my family keeps moving my heat wrap on me so when I am in the kitchen, it isn’t there for me to throw in the microwave. It is the only way I can put heat on. PT also gave me some tennis balls for my back and hamstring. I have to rig something to have it between my shoulder blades. She said that I can use scotch tape but I think the balls will be too heavy for it. Will try it and see. Otherwise I will have to think of something else. Maybe a sock or something.

I got a letter from my pcp yesterday. He is leaving to go to the CDC. His last day is April 1st. This really sucks because I really liked him. He was a good doctor. I am going to miss him. I see him Monday for a follow up. It will be our last. Really sucks.