discouraged and fatigued

I have serious mental illness that disrupts my thoughts and shifts my mood to hopelessness and suicidal in an instant. I lose motivation to do things. Just getting out of the house is hard. 2 this condition is flat out driving me insane.

I asked my physio what are the goals of therapy and she laid it out for me and stressed I need to be doing the home exercises to regain what I have lost. It is stressing me out that going to my appts and then having to rest the day after or two is not working. I’m still in pain. She wants me to go to some functional program. But it takes full commitment, 2 or 3 days of being there 8-2pm. I honestly don’t know if I can do that. Some days I can’t get out of bed because I’ve been up all night in pain. Monday’s are worse because I have to walk to my therapist’s office. I just don’t know what to do. I just want to lay around the house and go to Starbucks and write. But pain is limiting me to even do that. I’m not adequately controlled with my pain so how the hell can I do these exercises if I hurt. Just fed up and want to quit everything.

I don’t know what to do anymore. My PT emailed me with goals and wanting me to go to a functional program at a different SRH location. My depression makes doing anything hard. Pain compounds this. I haven’t been doing much with the home exercises because I am exhausted after going to an appt the day before or even going to PT appt. PT is saying I need to commit to the therapy to regain function (haven’t had function in my ankle for 17 yrs mind you) and decrease fatigue in my foot/ankle. I’m starting to feel like a failure but I am not getting adequate pain control and I don’t know if I ever will. Just making breakfast today and taking out the trash hurt me. Making the squash killed me. Going up and down stairs hurts every single day and I do that a lot. Add the PT and it will overflow me. I feel like I am drowning. I am out of the house at least 3 times a week. I just can’t keep up. I move I hurt. I don’t move I hurt. How can I win?

If I don’t get adequate pain control soon, I am just going to end it. Why bother?

Can anyone understand??

Can anyone understand?

So flipping fed up. After I made my squash and was putting it away my whole ankle and foot seized up. Told my mother I wasn’t sure how I was going to go upstairs. She says I need to rest until the pain goes away. Frack!! Really? I could rest for days and it will still hurt. Then she says I go up and down the stairs sometimes like it is nothing. No. It still fracking hurts. I still have pain. Then she says not to yell at her, it’s not her fault. JFC. So fucking done. Taking an Ativan. Can’t deal anymore!! No one fricken understands. If resting worked, I should be cured by now.

I watched cat and dog videos after I sent this to my psychiatrist. I am just having a bad pain day. I am so stressed out. I am worried about tomorrow as I will be seeing a new doctor. I have no idea how it will go. I have been trying to stay together just for this appointment. If it goes poorly, I don’t think I can handle it. I feel like there is no understanding anymore. I am skeptical this doc will allow me to get hormones to be the man I know I am. It is just so difficult. I have chronic pain that is driving me insane and the walk I got to take tomorrow to get to the building is a ways from the station. I plan on making a detour so I can get my Starbucks before the appointment. I wish someone was going with me but at the same time I don’t think I could handle company. I have no idea when the bus will come as I usually don’t take it that early in the morning. My appt is at 0830 and I got to be there early as my name has changed since I was there. I have decided not to use Medicare as my insurance, just keep my BCBS. I think it will be easier that way. I am paranoid that if I use Medicare for my transition, I might be on a list of some kind and the government will get me as long as Cheeto is in “charge”.

I made the butternut squash, as I said before. I used too much brown sugar so it is really sweet. I used half a cup. I should have went with a quarter. Oh well. It was still good. My mother is making a stir fry tonight with rice so I will have it as well. I bought a Pyrex loaf pan with a lid so I can make the zucchini bread and have a place to store it. My mother is using both her cake storage containers so I don’t have a place to store the bread once I make it. I will see how I am Saturday, though I plan on changing my sheets then. All depends if this pain settles down some. I can function if it is below a 7. Right now it is close to a 13 and am just crying. I took my pain meds though I didn’t want to. I really don’t think they work for me anymore. I am just dependent on them. Either that or my pain has just been so bad there is nothing to take for it. It is a new pain, not my normal kind of pain, that I have been experiencing.

I emailed Dell to find out if I could get a memory upgrade or if I am stuck with what I have. I think I can upgrade my hard drive but I am not sure. If I can’t use the memory that I bought, I will sell it on Amazon or someplace. I doubt I can return it. Still mad at myself that I bought a cheap laptop to stay cheap. I only need more RAM so I can run Facebook without the memory flag going off. So stupid.

I think I am going to put on some lidocaine. It might not help 100% but it might just bring my pain down to bearable. Fucking 13 is not fun. I seriously am thinking of cutting it off, and probably would if I had the implements to do it.

I forgot to take my morning blood pressure pills when I woke up this morning. I will take the night dose. I have been checking my BP to make sure it doesn’t get high or low and to keep an eye on my pulse.

screwed up with my laptop

Screwed up with my laptop

My RAM for the laptop came in. I took the laptop apart and found that there were no memory slots. I emailed Dell and they said the unit came like that. WTF. I am going to see if I can return it. No use in having it if I can upgrade it. In the process of fiddling with it, I somehow caused the mouse to become non-functional. I will have to take it apart again and see what I messed with. A wire might be loose or something.

I went for blood work this morning as my psychiatrist wanted to check my chemistries. Everything came back within normal limits. The phlebotomists sucked. They stuck me twice and were poking with the needle. Assholes. I wasn’t feeling like picking a fight with them so I just let it be. I was tired and hungry and just wanted to leave. My foot has been bothering me all fricken day. I canceled physical therapy. I am so tempted to cancel my remaining appts. I am just fed up with being in pain and nothing really helping. It’s really hard to do the home exercise routine when you are in pain worse than you were the day before. I am trying to do at least one thing but that doesn’t always happen. I keep blaming myself for this, which I know isn’t helping but at the same time I can’t help but think I am not trying. Yet if I am able to go to Starbucks for the day, then that is something more than just doing some exercises.

Can’t believe in two days I see the LGBT doc. I am really nervous about it. I keep imagining the worse, which is him saying no, I can’t have hormones ever. That will just crush me. I know there might be some hinderances, especially with my damn current reproductive system that may or may not cause delay. My biggest fear is that I will need an MRI to check my pituitary before I start hormones. I hate brain MRIs worse than back MRIs. I am a little claustrophobic and because they have your head in this cage thing, just makes it worse.

I need to change my bed sheets this weekend. It’s a chore I fricken hate with a passion but needs to be done. The foam topper is sliding off the mattress and because of the nice straps I bought, they are keeping the sheet in place, which makes it hard to move the foam back in place. It is very annoying.

I need to make the vegetables that I bought last week. I really want to make the butternut squash and mash it with brown sugar and butter. I’m not sure what to do with the zucchini. I wanted to make chocolate zucchini bread but my mother is using both her cake holders. I won’t have a container to put the bread in when it is done. I might cut it up and put it in Tupperware containers or something. Depends on how I feel tomorrow as I don’t want to be hurting all day tomorrow as I need to get up early Friday morning for the doc appt. I will be going in the opposite direction of the Square as I need a different train to get to the doc’s office. It is right by Fenway Park, which I will drool a little bit as baseball season is around the corner. Seemed like forever for it to come. Just two weeks away from pitchers and catchers reporting. Going to be an interesting season with the new manager. Man, I miss baseball. I need to finish the history book I am reading. I only have two chapters left. I wanted to read one this afternoon but my damn laptop distracted me. I will read one before bed. So much for reading 1 book a month. I am disappointed in myself for not being able to do this.

Another twitter rant on suicidal thoughts

Another twitter rant on suicidal thoughts

Severe pain is an apparent suicidal trigger for me as I am sure others with Chronic Pain are too. In that moment, you just want to die as you don’t know if relief is coming or not. With CRPS, pain changes. Bone pain could become foot pain. It is never ending. Suicidal thoughts are fluid in people with chronicity. I can feel it for a few minutes to hours to days. It just takes a spark to ignite. Add hopelessness and the longer it lasts. If I feel trapped, I start planning my death. Sometimes I will give myself a date. Having that date comforts me. I can act on that date if I am still as intensely suicidal as I was in the moment of planning my death. Otherwise, the day passes like an ordinary day. Tonight I just had the passing thoughts of death and intense feelings of Joiner’s interpersonal theory of burdonsomness, better off without me feelings. I still don’t know why I am still here. I don’t wish to be. Guess I am just a coward to act. I have felt intensely suicidal a lot. I’ve given myself so many dates it is not funny. I fantasize about my plans and going through with them. Yet I am still here. As long as I have the fantasy of death, it keeps me here. It is a great escape, especially when pain keeps you from moving. Hopelessness intensifies the suicidal feelings more than being depressed or sad. I don’t have to be depressed to think about killing myself.