never ending. It just goes on and on

Never ending. It just goes on and on

I’m trying to settle down for sleep but a new pain keeps popping up when I lie down, when I sit up, when I take my meds, when I move it, etc. It is fucking never ending. I am not doing a damn thing tomorrow, least that is the plan for now.

I sent an email to my psychiatrist asking her if I was a difficult patient. I briefly discussed my therapy session with my therapist and that the therapy group down the hall from him contacted me. Unfortunately, it got filtered to my junk mail so I didn’t get it until I got home. My phone doesn’t get junk mail for they could be viruses embedded in what they send. Last thing I need is a virus on my phone.

I just sent an email to my neurologist asking her if she could help me out by confirming that I do indeed have CRPS as my PCP just wants to pass me off to another doctor. I am tired of seeing new doctors who aren’t helpful and then just want to pass me off or not treat/see me anymore. I see my neuro in two weeks. It was kind of a long email but I don’t care. My stupid phone kept on inserting different words as I typed, which annoyed the crap out of me. I should have just typed it on my laptop so I wouldn’t get aggravated. Lesson learned.

My foot feels like it is being strangled. There is such a pressure on it like it’s going to burst. I am so tired that I am reaching the over tired stage, which is dangerous because I could catch my second wind and then be up all night. I took an Ativan because along with the strangulation, my ankle is pulsating. The little muscles are twitching. This condition is so frustrating because there is never ending different kinds of pain. I wish I could see a doctor at this hour so they can see or I can try to explain to them what living with this condition is like. All I can do is send them an email and then not get a response. But at least by writing it out, it helps me because at least I have documentation that I wrote this to a doctor.

I still am shocked that in the great medical hub of Boston, I have not found a doctor that is willing to help me. Sure, my PCP gives me pain meds to alleviate my pain. I appreciate that. But he doesn’t want to stop there. Right now my diagnosis is in the air and it is making everything seem like we haven’t tried enough. I am tired of this merry go round. I want off. I asked my neuro if she could possible give me a concrete diagnosis and staple it on my PCP’s head. Well, I didn’t say that. But if she could send a note to him saying I have this dreaded condition, then maybe I don’t have to see yet another new doc. There is no treatment for this condition. I know this. My PCP knows this, my neuro knows this. But opioids help me and if I don’t have them, I am good as dead. I have exhausted physical therapy. I have tried injections. I have tried rest. This is no longer a case of tendonitis. It is deeper than that.

The pain is changing all the fucking time, all over my ankle, foot, toes, bones. It hurts every where. Normally, at this hour, I would be writing a morbid story about ending my life. That is what this blog was about. My suicidal thoughts in the cybersphere. But then one day someone took it too far and called the cops on me so I no longer talk about those things, even though it relieves the tendencies to act. Thoughts are NOT the same as feelings. And feelings does not mean act upon them. It is okay to feel. It is ok to think. Here is a quote from the father of suicidology, Edwin Shneidman that I had the pleasure of talking to him before he died.

“Never kill yourself while you are suicidal. You can, if you must, think about suicide as much as your wishes and let the thoughts of suicide –the possibility that you could do it- carry you through the dark night. Night after night. Day after day, until the thoughts of self-destruction runs its course and a fresh view of your own frustrated needs comes into clearer form in your mind and you can, at last, pursue the realistic aspects, however dire, of your natural life”. –Edwin Shneidman, Suicidal Mind, p166

I write these blogs because I still am struggling night after night, day after day. Pain increases my vulnerability to think of self-destruction. I have the means though no one talks about restricting them. I told my psychiatrist I have something that will end my life but still, she doesn’t ask about it when I see her. She never does. Poor assessment of risks. So does my therapist who knows damn well that I have chronic suicidal thoughts. It makes me angry that I am not treated the way I was with my former therapist, Bozo. She was annoying, I will give her that, but she fucking cared and if I had a method she damn well tried to take it away from me the best she could. I really miss her. Yesterday was her birthday. I wonder if I will be alive to see mine. I really am surprised that you CAN get anything off of Amazon. While I was searching for my method, they had machetes. Machetes!! I don’t think I would have the will power to use it to chop my ankle off but I know a chainsaw would do the job. I refuse to search for it because I know in my darkest of moments, I may just buy it. I’ll go all Scarface on my ankle and groin to sever my artery.

I am once again plagued by dark thoughts. All because I can’t sleep and I am in pain that is never ending. It just goes on and on.

very tired, weepy, depressing day

Very tired, weepy, depressing day

I woke up around 4 in pain. My jaw hurt and my ankle was berserk. I took some more ibuprofen and pain meds. Luckily, I went back to sleep. My alarm went off and I didn’t want to get up. I thought I had snoozed it but I didn’t. My new phone has a lit up screen with the day and time and any notifications. I glared over and saw it was almost 0930. I had to get up, brush my teeth and wash my face. Then I put on deodorant as it was going to be hot today. I then got dressed and was really feeling frustrated that again I got no help when I seeked it.

I had emailed my PCP last night before bed to tell him I was in the ER. I got a response asking if I wanted to be seen and if I did I should call the office. I didn’t feel like being examined again, so I told them I pass and my pain levels were “normal”, whatever that is. I didn’t get a response back so I hope they go away.

I had my espresso and a steak and egg wrap that I like. Unfortunately, chewing was difficult. And it hurt. I tried to eat on my left side but it was hard. It was the only thing I had to eat all day. I bought a scone but I couldn’t bring myself to eat it. I saved it for tomorrow. Before I knew it, it was time to see my psych. The train was late. I just made it to my appointment. My psych was getting worried as I am always early. I explained the train was late and so therefore I was. We talked about the ER and she read me the notes. She jokingly said I was aggravated because my BP was up. HAHA. I wasn’t lying about that! The notes said I had diminished sensation on my foot in various parts and decreased range of motion. Tell me something I don’t know. She reassured me that I wasn’t having a recurrence of CES. She said it so sternly that it kind of freaked me out and then I became weepy and annoyed. I started to cry a little. I was really depressed and just wanted my pillow. When I said that she asked if I wanted pills. HAHA no, just my pillow will be fine. We have an appointment next week as then she is on vacation for three weeks. She stressed that someone else would be answering her pager while she was away. I told her I would just email her. Unless I was in dire straights, I don’t think I will page her covering doc.

I left and fell asleep on the train so I missed my stop. Sucks because I missed the bus as well so I had to wait an hour for the next one. I just tried to snooze as I listened to Bon Jovi. I was still weepy and felt relieved I didn’t have CES again. I think that is why I was so tearful. But still, if someone looked at me the wrong way, I was bound to cry, that’s how sensitive I was today.

I came home and my mother said I looked exhausted. I told her I was. I told her I didn’t want anything to eat. She made me a plate and then called three times. I told her my jaw was still hurting and I just needed something soft. I opted to drink an Ensure rather than make boiled eggs. I am hungry but I just don’t feel like aggravating my teeth right now.

I did a dumb thing. Last night I put in a refill for my Zoloft. It was an older prescription but I didn’t see the newer one. In my “history” the refill wasn’t there. That was because there were no more refills and I had just had it filled on Monday. I am a dum dum. I put away the meds that I recently got.

I took 2400 mg of Neurontin to try and sleep. Unfortunately, my neighborhood had other plans. There were sounds of hammering and other construction noises. Every time I tried to relax to sleep, some noise woke me up. I was so annoyed. I eventually fell asleep. Now I am feeling groggy and foggy. I took my night time meds plus my pain meds and ibuprofen. I think ibuprofen and I are going to be friends for a while. The dentist was concerned because the novacaine numbed the right side of my nose. He called me this morning to see how I was. I called back when I shuffled around trying to wake up. I told him I was fine, sore but fine. I was kind of nervous though because while I was eating my wrap, I felt like sand was in my mouth. I hope a filling didn’t come out. I was too tired to go back to the office to get checked out. I will be back in two weeks for another filling so I will have him check it then, unless it hurts really bad or something.

I talked to my psych about my therapist and the coordinator for the pain group. I told her I am still looking for another therapist but haven’t had any luck yet. I jokingly said I must be on some kind of blacklist. HAHA. She said no. She did find it odd that no one called me back. I hope to hear from them within a week or so. Otherwise, I will try another place. Until then I will continue to see the nail picker. I am going to try and ask him if he is mocking me or just throwing things out there to show he is listening but not offer any advice to help me. I really don’t feel a connection to him. He is just there for me to ramble but that is not what I want. I want someone that is caring and is willing to help me find new ways in dealing with my problems. I thought that was what therapy was all about, not just rambling on about shit.

I kind of got suicidal when I got home. It was just passing thoughts but I just wished I was dead. I feel nothing inside that makes me feel alive. I am in so much physical pain all the time, it’s just draining the life from me. Like is this how I am supposed to live the rest of my life?? I know suffering is part of life but must it happen on a daily basis? I cried when I was in my room as I thought about this stuff. I couldn’t help it. I hate feeling miserable. I rather feel nothing or depressed. I am just tired of fighting all the time. I don’t get a break from it. It’s going to kill me eventually. I will be another Chester Bennington, but a no name.

Bollocks and Bullshit kind of day

Bollocks and bullshit kind of day

I had shit for sleep so I am extremely irritable. I again woke up in the middle of the night in pain. Slept for a few hours, then my alarm went off. Good thing I woke up because my groceries came a few minutes later. I have been up since then. I put all the groceries away and then went to Starbucks for espresso. I didn’t feel like making coffee at home.

I was feeling groggy and sleepy so after an hour, I caught what was supposed to be the next bus but it never showed up. I was bullshit. I tweeted the MBTA and got no response as to why there was no bus. I had to wait an hour for the next one. My bladder didn’t like this. I went to walgreens for an errand for my mother and got a snack. I didn’t buy any snacks in my grocery order just food and water. By the time I came home, I was in a lot of pain. My foot was and is in severe pain. I couldn’t take my regular pills so I had to take the strong one. The pain is so bad that that didn’t even calm it down. I am in agony. Then I get a text saying my new phone was delivered. So I hobble down the stairs to get it. The box feels light for 2 phones. I open it and there is just one fucking phone. That is when I start swearing and using Bollocks because it covers more swears than I can think of.

I call sprint and they tell me one phone is on backorder. I checked and it says shipped on my status page. I was on hold with someone from Sprint and they transfer me to someone else that had a bad connection. He said that I needed to file a police report and I am like for something that didn’t ship?? He is like but you have the S5. I am like I ordered two S8s and only one was in the box and the invoices says QTY 1 so there was no other phone shipped, where is it and when will it be shipped. You didn’t upgrade. I said I got an email saying I did and my bill is now nearly $100 more a month so what the fuck are you talking about??!! This went back and forth, he kept putting me on hold to “check” things. I am getting bullshit and mad. My foot is ready to fucking explode and so is my damn head. Finally when I say I want to talk to a supervisor, he is like oh, we’ll put this in some kind of order resolution claim and you will be called on Monday. He then asks for a number I can be reached. After a fucking hour on being on the phone. Fucking fuck.

I complain on Twitter for this bullshit and now they are trying to help and taking their blessed time. I have had the secure window open for an hour now and they still haven’t responded to my inquiries. I am ready to shut the window and call it a fucking day. After I got off the phone with these idiots, I call my mother and tell her she needs to make dinner tonight because my foot is being a fuck. She asks how to cook the ribs and I tell her to follow the instructions on the package. Easy, peazy.

I got a call while I was on the phone with the idiots. It was the pain group coordinator. She left me a message saying I needed to redo the intake interview and her office will call with an appointment. Fucking great. Another damn interview with this lady who is a bitch. I emailed my psych to let her know and that I was in agony. I didn’t tell her I was suicidal from the damn pain that has gone on for almost 24 hours now. I pleaded with my support group to PM me or comment to have someone to talk to as I am in agony. This is the worst pain I have been in since last week and again, I didn’t do much to set it off.

So now that I know this phone is really my niece’s phone, I can set it up for her and play with it for a little while to get used it. It is sleeker than the S5. I really like this phone. I hope playing with it gets me more acquainted with it when I get MY phone, whenever the fuck that is. I am so bullshit it’s not funny. I had talk to two people who said there was 2 devices in the shipment that was shipped out and they lied. How is that good customer service??

CBT for Preventing Suicide Attempts: A Review

CBT for Preventing Suicide Attempts: A Review

I have been reading CBT for Preventing Suicide Attempts edited by Craig Bryan, PhD and these are my thoughts about the book by chapter. I also describe what each chapter is about.

Chapter 1: Deals with the problem of suicide and how it’s on the rise. It also describes the difficulty of knowing what works and what doesn’t. The authors goes on to what the book is about and how CBT has been shown to be useful in some clients with suicide ideation.

Chapter 2: Describes the dreaded nomenclature of suicide attempts, ideas, suicidality, etc. The authors describe how the term SDV (self-directed violence) is a more accurate term and also other terms to decide pathways on treatment protocols. They term the entire suicidality as SDVCS-Self-Directed Violence Classification System. It is used by three large federal organizations- the CDC (Center for Disease Control and Prevention), the VA (Veterans Administration), and the DOD (Department of Defense).

This chapter gives good examples of how different researchers, clinicians, and other professionals can use this classification system. I didn’t review the system pathways and yes/no guidelines because terms don’t mean that much to a suicide attempt survivor writing about my lived experience. I’m either suicidal or I’m not. I don’t need to classify and put myself into a category. But if you are a clinician/researcher or other academic interested in suicide prevention, the nomenclature is pretty good and better than what Silverman et. al. proposed in 2007 a and b (see this blog post on my thoughts about their terms).

Chapter 3 deals with what works and what doesn’t in suicide risk. It talks about studies pertaining to talking therapies and psychopharmalogical treatment of suicidal behaviors. I found this to be more of a review of what I know as of right now in terms of evidence based practices (EBP) and what is not. Some studies were really small and others were large. Most centered around Borderline Personality Disorder (BPD) as that is a high risk group. What I found upsetting is that those with bipolar disorder or those that were psychotic were excluded from most of the studies. As I suffer from psychosis and bipolar disorder, my participation would not be included and I find that disappointing, especially since bipolar disorder and other psychotic disorders such as schizophrenia have a higher incidence of suicide than major depression alone.

Chapter 4 was an eye opening chapter that I really liked. It talked about all of the suicidologists that I have been following for the past eleven years. It discusses different theories and models of suicide and risk assessment. It also discusses protective factors of suicide such as reasons for living/dying. I found this chapter to be really good and a lead off to how all of the things talked about lead to the next chapter, which is a case example.

Chapter 5: In this chapter, a case is described step by step of a suicidal older gentleman and the cognitive steps, consent, etc. are used by a play by play dialogue. Things like safety planning, coping cards, and hope kit are discussed in detail and how to implement them in therapy using cognitive therapy.

Chapter 6 talks about a brief cognitive behavior treatment (BCBT) for inpatient units called PACT (Post Admission Cognitive Therapy). It discusses the criteria for engaging patient, pros/cons of treatment and how not everyone may be suitable for this type of treatment, e.g., those with active psychosis/mania.
It would be good if this could be implemented but as the treatment is 5-6 days and on average most admissions are 3 days, I don’t see how this is to be helpful. Discussion of staff resistance and burnout are also discussed.

Chapter 7: This was very interesting as I’ve never really read about military psychotherapy before. The chapter gives specifics on how to approach a veteran or active military personnel in crisis or dealing with suicidal thoughts. It talks in detail about Brief Cognitive Behavioral Therapy (BCBT) and the steps per session. Not all persons will respond within the 12 sessions. It is individualized for each person. The chapter also talks about hot to discuss lethal means safety and means restriction (see chapt 9 for more information; e.g., gun safety in particular). When the sessions are down to the last two and command of previous exercises are demonstrated to be efficient, end of therapy is initiated. Booster sessions are discussed in case of future crises should happen. I found this therapy to be specific not only for military but can be used for any type of suicidal behavior. It’s a collaboration between therapist and client.

Chapter 8: Emergency departments are the top places suicidal people end up, either with an attempt, ideation, or crisis. Sadly, if the right precautions are not set (e.g., inpatient care or some type of follow up care), individuals are more than likely to die by suicide.
This chapter talks about the challenges and brief interventions that can be initiated so that death by suicide does not occur after a visit. The authors describe specific suicide safety planning that is individualized for that person to help them cope with stress that makes suicide appealing. It also gives crisis numbers, either a trusted person they can talk to in time of need and/or the National Suicide Hotline (1-800-273-8255, text 741741 (US only)). Once a little role play is done and the individual can demonstrate they will use this plan, patients are discharged to follow up outpatient care.
Only trouble I have with this approach is that not all EDs are equipped with mental health professionals and don’t have the 30-45 minutes or so it would take to implement the safety plan, even though it is crucial this should happen.

Chapter 9: As more and more evidence is building that suicidal individuals are seeing a primary care provider prior to death by suicide, it’s become imperative that PCPs have the training to ask patients for means restriction. The author suggests several ways to initiate the conversation and lists steps to do this. If patients are resistant, the use of motivational interviewing techniques are employed. The end result is a means restriction receipt where PCP and patient have agreed to restrict their lethal means. If possible, a supportive person is asked to help secure the means.

Chapter 10: This chapter talks about the use of psychotropic medication and the use of CBT or BCBT in suicidal patients. To date, there has not been studies where therapy and medication has been shown to be effective in reducing suicide risk. It is suggested that despite the thoughts and black box warnings of the FDA, suicide ideation is still likely to occur of not treated or dealt with at the beginning of pharmacological treatment. The author also discusses the risk of substance use and dependence disorders that can increase the risk of a suicide attempt. PTSD has also been discussed as hyperarousal states can increase suicide risk.

Concluding thoughts: Overall, I found this book to be extremely helpful, concise, and important in the prevention of suicide attempts. With the right intervention at the right time, Brief CBT can help decrease the suicide risk and possibly the overall suicide rate.