Saturday Blog 27022021

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Saturday Blog 27022021

I had breakfast and now I am thinking of doing something for lunch. I don’t know what I want. I should make a bacon sandwich. I bought some turkey bacon that needs to be used up. I just don’t know if I am up to cooking as my legs hurt today. It is snowing so I don’t plan on going out. It’s turned to rain now but still raw so hasn’t changed my decision to leave the house. I ordered Chipotle for lunch and man it was so salty. I couldn’t eat it all.

I am so tired. I want to sleep. I might get a nap after I finish this blog. It will be my reward for writing one. I’m trying to get back to daily writing but all I can do is take one day at a time. I think I am going to have to push myself to write something every day even if I don’t get to 500 words, which is my minimum goal that I have.

I asked my friends on Facebook if they would read my blog if I posted it and so far a few said they would. Just trying to have some accountability with keeping this blog going. Been nine years almost that I have had this blog. That is a long time.

I have been having pain down my leg the past few days. It flares up my ankle. I think the CRPS is spreading to my high ankle area as I have been having a lot of pain there lately. It also has been swollen. My left hamstring has been such a bother lately and really painful. No amount of stretches help it. I also got fricken cramps and this really bothers me as I don’t know if it is uterine or bladder.

I bought a new shampoo that I hope will help my dry hair. I hope to take a shower tomorrow so I can wash my hair with it. I love the smell of it. My nephew bought it and I just refilled it basically. Anything that makes a shower more appealing I am for. It is so hard for me to shower lately because of pain. I wanted to shave my beard off tonight but it didn’t happen. I want to be clean shaven for a little while. I just can’t bring myself to do it though because I have been in a lot of pain.

I have been in a depressed mood and been thinking of some medication that will sedate me. I am just afraid that if I take it, my therapist will hospitalize me. I am no longer on this medication and I have it just to kill myself with it. I have been planning on ending it with this medication for some time but I just can’t seem to go through with it. I am too afraid that it will fail or I will be found before I die. The medication might help with sleep as I have been having so much trouble staying asleep lately but I keep waking up with pain so I don’t know if it will work. So many variables.

pain, pain, and more pain

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Pain, pain, and more pain

I have been severely depressed and in a lot of pain with my shoulder and neck the past few days. Yesterday I went to PT for some more dry needling. She checked my progress and I have improved a lot since first going to her but the pain and sleep have not gotten any better.

A psychiatrist I follow on Twitter told me about some Taylor Swift journals so I had to have them. I just got them today and they are purdy. I can’t wait to write in them. I am still writing in a Harry Potter journal. I haven’t been writing lately. Been so hard for me to write down my thoughts lately. I know it has been a while since I last blogged. I have been really struggling with the depression. Pain has been making the depression worse so it cycles. My therapist thinks that I am in my head too much. I don’t know what that means. I got to ask her when I see her Mon. We are going to do the CBT pain workbook together. I hope that this book will help me.

I emailed my neurosurgeon asking him if my weight restriction could be increased to 15 lbs. Right now I am not supposed to lift more than 5 lbs. He gave me the okay as long as I didn’t get a headache from doing so. I feel like I have made some progress. I still am deconditioned as I brought my groceries up the stairs by myself and got really winded. It took me like six trips because there was six bags. I only bought ten Gatorade. It wasn’t the flavor I wanted but that is ok. I will go to the grocery store tomorrow and get the flavor I like. It is supposed to snow tomorrow so we’ll see how that goes. There is supposed to be some good weather next week so hopefully I can go then if this weekend’s weather is shitty.

I am in so much pain in so many body parts it isn’t funny. Mostly the pain is on my left side. I want to cry. But the tears aren’t coming. It has been so hard to cry lately. I feel like I should, I probably would feel better but I just can’t seem to let myself. I feel like watching old baseball games or Sox highlights of the 2004 and 2007 games so I can cry. It will be the same release, except instead of sad tears they will be happy tears. I am such a wimp. I watched the 2007 series DVD and cried throughout it. I swear I went through a box of tissues.

I just tweeted to the psychiatrist that I got the new journals so now we are having a conversation about how to get another lyric printed. This is so fun. Another therapist friend had a predictive text for therapist and this is what mine said “my therapist told me I am not going to be in a relationship because of my favorite country artist”. HA HA. I love it. I can’t wait to show her on Monday.

pain and therapy

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Pain and therapy

I had therapy today and I was in a rotten mood. We talked about how scared I was about my mother being in the hospital and her heart being dysfunctional. Then I talked about how I wanted to die. I told her to just write me off as hopeless. She said there are no hopeless cases. I really wanted her to say ok, I won’t see you anymore just so I could off myself. But she isn’t going to do that. We set up another appointment for the week and we will start the managing chronic pain book. I asked if I needed to keep the appointment and she said it would be for me if I keep it.

I don’t know if I am going to keep it. I got the fuck its big time and just don’t want to do a damn thing except kill myself. But I can’t right now and that sucks. I am in a lot of pain with my shoulder/neck. I started hurting with leg pain before my suicidal melt down. We were talking about how PT really hurt and I wanted to die but instead told the PT that I wanted to cry. She said that I couldn’t cry so she put some biofreeze on me. Thing me sweat so bad. My shirt was soaked by the time I got home.

I have PT tomorrow. I was talking to a friend that has had shoulder injuries and she said it could be years for knots to be taken out. I hope that doesn’t happen to me. I will hate being in pain for years with this. I will definitely die if that happens. The pain is horrible. The pain goes around my ear and in my jaw. It is so awful. I am hurting something really bad and I can’t go on like this. I just can’t.

I finally changed my sheets today. I am in my mother’s bed as the new foam topper takes shape. It could be up to 48 hours for it to hold shape. UGH I didn’t know this. So tomorrow my niece will help me make my bed. I tried today and my back wouldn’t have it. I folded my clothes and it took all the energy I had to do it. My back was so bad. I would have done the dishes but I was hurting too much. My ankle has flared up now so I am stuck in bed. I took double my BT meds. I hate doing that because I can’t take more if I need it. But sometimes two work better than one pill. I am getting tired so I should be going to bed shortly. I just wanted to write this down while I was still up.

Saturday blog 20022021

by Midnight Demon, posted in Chronic pain, chronic physical pain, depression

Today started a little late because I felt like sleeping in. I didn’t get up till around noon. I took my meds and then went for coffee. I don’t remember if I brushed my teeth or not. I made coffee as I felt like shit. I had to do laundry today so I had some breakfast and then went upstairs. I stayed in my room until I heard my mother come up the stairs. She had plans of her own. I went downstairs and started throwing clothes in the washer. My sister was telling me my mother was adamant about coming upstairs and taking a shower. But after she came up the stairs, my mother was exhausted. She almost passed out and was unresponsive for a few minutes. We called an ambulance. Her sugar was okay and so was her oxygen so we didn’t know what was wrong.

After testing in the ED, it was determined my mother’s heart valves aren’t working right and she is dehydrated. She is going to spend a few days in the hospital. I am glad it wasn’t a TIA (transient ischemic attack). I don’t know if covid is responsible for her heart troubles or not.

After I found out the news, the pain in my neck returned. I just put heat on and it didn’t help. I just took some meds. I did two loads of laundry and dishes plus made dinner for myself. I am tired but still have this nervous energy.

I am hoping tomorrow I can change my sheets. Might ask my sister for help if my neck is bothering me too much. I feel awful. I just hurt so much with my neck and shoulder and ankle. I hope that it is just taking time to loosen these muscles up. I still have a few more sessions with my PT. She is really good with what she is doing. I just don’t know how much longer it is going to take.