Tag: mental illness

NP idiot

by Midnight Demon, posted in Bipolar Disorder, blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders, suicide

I had an appt with a nurse practitioner that apparently got her license from a cracker jack box or maybe the Boston Globe. She was insistent on me having plantar fasciitis even though my PT ruled it out but didn’t I read the newspaper, not a medical journal, saying that plantar fasciitis is the new back pain?? Are you fricken serious? I didn’t know reporters had their medical degree. Also pissed me off that she thought unilaterally and bilaterally were the same. Ugh!!!!! I had to literally fight for an MRI. She wanted an xray and didn’t even ordered that right as they xrays the outer part of my ankle not the inner where the damn lump is!!! I am so frustrated. I got to call radiology to see if I can have the MRI sooner than next week and during daylight hours. I might go to a different site. Ugh!! Oh and she was telling me the same damn things to do my PT has been telling me. Guess she was deaf on that part.

Oh and the kicker was that she walked in asking if I was having surgery. When I said no, she said you aren’t having gender reassignment surgery? And then she got all concerned and crap like she never had a transgender patient before. Omg I am not a specimen for your study!!! I got very upset by this behavior. I mean, shit. Seriously? I emailed my psychiatrist to ask her what to do. I want to file a report on her as I think what she did was inappropriate. I mean, hell, I was seeing her for foot pain, not a transgender issue! I am so pissed. I hate that she was so dismissive about what I was telling her about being in physical therapy and then dismissing what my PT said about me not having plantar fasciitis. She just wasn’t hearing me and I am glad she ordered the MRI. I already got a report on the X-Ray and surprise, nothing was revealed except for some spurs that have been there for a while.

I had a webinar when I came home on CAMS, the Collaborative Assessment and Management of Suicidality. OMG It was like having Dr. David Jobes in my room! It was awesome. I love him so much and have so much respect for him. He basically covered all that I know about CAMS. I love the new research he is doing. Sadly, one of the trials had two suicides. It is a risk but sadly not something you want to see. I wish I could share this with my current therapist but he is so anti-CAMS it isn’t funny. He just thinks talking about things is the answer. I know it is my fault in keeping him but fuck, there aren’t a lot of therapists taking new clients AND wanting to deal with chronic suicidality! I had one therapist not call me back in the Harvard area. I tried out of my comfort zone and that hit me in the ass with a don’t come back. I wish someone was dealing with suicidality in clients rather than just passing them off. If I could sprinkle some of Jobes’s kindness and humanity I would. It isn’t something I take lightly. I have been in the model of what he teaches and want to spread it around but hell, some therapists like the one I was seeing before my current one, was adamant about learning something new. In her words, she wasn’t a suicidologist so she didn’t have to learn it so what that said to me was if she had another client that was suicidal, she was NOT using CAMS/SSF with them. It makes me sad that there is this level of what you think a therapist should be and the reality is they just don’t exist. I don’t know why people become therapists if they aren’t willing to deal with the hard issue of suicide. I don’t know, maybe I have it backwards.

I saw a sign at my PCP’s office that they are moving location, and it is not even within their building. It is a building like 4 blocks over from the train station. I can’t walk there. Maybe on a good day, but those days have been so rare lately that I seriously doubt if I am sick, I will be able to make it. I think there is another way of going there. I just have to find out if the shuttle from another train station still goes by there, and where that stop is as the last time I was in that area, there was construction which had the sidewalk blocked off. This sucks because it adds to my commute and worse, no Starbucks, LOL

I just wrote a thread on Twitter and I am going to paste it here. I think it is important:

“I’ve been thinking about the @UniteSurvivors webinar with @lab_jobes and what he was saying about drivers (what drives ppl to suicide) and how those with lived experience can help. It took me to all the times the past 2 years I’ve been in horrible suicidal depressions/states, mostly due to my chronic pain. Dr. Jobes talked about a “life worth living”. Frankly I don’t even have a day worth living but somehow I am still here. I don’t want to be. I am in a chronic pain flare right now. My thoughts instantly go to suicide because it feels like my bones are being crushed and I am being stabbed in my ankle. How do you survive this while being suicidal? Frankly I don’t have a clue. It is probably because I don’t have lethal means near me when I flare (whether consciously or subconsciously I am not sure). I don’t have a large dose of meds by my bedside or knives. I don’t own a gun, though I sometimes wish I did. Guess these small measures have kept me here. My blog where I can write to Express myself. Have online connections to my support group which is invaluable. Different time zones are a life saver. B/c when it is 3 am, no one is up Boston time. I’ve learned to do this not through a therapist or hospitalization but mostly on my own. And having my psychiatrist email at 2 am is handy. Thank you Dr. Dave for CAMS and the SSF. It combines my thoughts of suicides to practical practice. I know I wouldn’t be here without it. I should add I am an autodidact suicidologist.”

I just read what I wrote and though some of it doesn’t make sense, I didn’t want to fix it because the essence of what I am saying is there. Anyways, that is all I have for today. There is a huge thunderstorm happening right now and I want to publish this before I lose power, if that should happen. Go SOX!!!!!

Long day with no nap

by Midnight Demon, posted in Bipolar Disorder, blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Long day with no nap

I didn’t sleep well. The gastritis continued most of the day until I moved my bowels and then I felt better. I think I was so backed up, stuff wasn’t moving until the other end did. I am feeling better now but I got the sharts and just had a false alarm so decided to take a shower anyway as I needed to. I meant to take one this morning but didn’t wake up early enough. I thought I would be able to see my doc today but there were no openings. I had gone to Starbucks and had something light for breakfast. I didn’t have my espresso as I knew that wouldn’t help my stomach. I had a caramel macchiato and I think the milk is what is making me feel all lousy in my bowels. I usually have soy and Starbucks milk just doesn’t agree with my bowels. I am fine with whole milk but not the 2% shit.

I wrote in my journal until it was time for the bus. I came home wanting to nap but I just couldn’t. I wasn’t hurting too much except for my right foot. The golf ball came back and every step hurts. I wish I was seeing a doctor tomorrow but I am seeing a nurse practitioner. I will be demanding an MRI as this has been going on too long. Three weeks is an awful long time, especially with PT and stuff.

I made the burgers I bought. I made all four of them as they were starting to go bad. I had one as they were 1/3 lb. The buns I bought were smaller than the burger! That kind of sucked. I just put mustard on. If I thought about it, I would have put pickles.

So the Dotard in Chief and his minions are trying to erase trangenders. Like seriously?? We are back to this bullshit?? It’s basically erasing everything President Obama decently did while he was in office and burns this administration so damn bad. I am so fucking sad and angry and I don’t know what. I don’t even know what to say. I knew it was a possibility and a lot of LGBTQ’s ended up killing themselves the day after the dotard was elected. That was almost two years ago. Tomorrow will be my 1 year anniversary of changing my name and having my sex changed on my license. I have no idea if that will still be the case with the “real ID”. I’ll find out in four years. I need to get my passport renewed and that I am not sure if I will get hassled.

Crap. I just farted again and it was a guess fart. I am ready to put on a damn diaper so if I do shit, at least I won’t be changing my underwear after every fart! I am so tired of nerve damage messing up my fucking life, or what is left of it. I will be damned if I am going to be called a her or miss. I will just slice my throat or something. Fuck. These elected idiots have say over whether I am a guy or not? Fuck you. It is bullshit. Plain and simple. I am so done with it. And they don’t care about anything but themselves. I am sure they are leaking shit to the press to stir shit. Hope Mueller is closer to doing something because I swear this can’t be going on for much longer. The lies, the bullshit. We are the laughing stock of the crowd. And the asshole thinks the world is laughing with him? Yea, keep dreaming dotard, keep dreaming.

it’s Midnight and I woke up with heartburn

by Midnight Demon, posted in Bipolar Disorder, blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

It’s midnight and I woke up with heartburn

I don’t know why they call it heartburn when it really is your esophagus burning. Anyway, I woke up with it and I had it most of the day, severe gastritis that at one point had me sitting down from the pain. It was awful and I have no idea why. I just had two eggs and toast, something I have had many times. I think I put too much pepper on it. Then I had orange juice and I think that did me in. I have been taking Mylanta most of the day. I had to take Miralax to shit. I can’t remember the last time I went. I know I didn’t go Friday or Saturday so I had to go today. My mother’s stomach was bothering her too. I think it was because she was constipated as well. I told her she could take some Miralax but she said she didn’t want the shits. Fine, be constipated then.

I have been in a mood most of the day. I Saturday I made Keto pizza. It was alright. I don’t think I will make it again. My mother didn’t like it, at all. I still haven’t made the burgers I bought. I made chili cornbread casserole today but because my stomach was a mess, I didn’t eat it. I didn’t think spicy would be good. I am upset over this because I really fricken wanted it! That was the whole purpose of me making it! I am going to give it to my barbers.

I got to go to the doctors tomorrow. I have a lump on my foot. It is a lump my PT has been trying to get down but icing it and exercises haven’t been helping it. Yesterday, I could hardly walk. The lump is down now. I have been taking pictures of it. There still is a little lump and it hurts to walk. I have no idea what the fuck I did. I hope I get an early morning appointment because I don’t want to wait around all day. I might have to forgo my espresso if I still have stomach problems later today. I hope my meds aren’t causing it. I don’t think the Prevacid is working anymore. I really don’t want to see a gastroenterologist. All they want to do is put things down your throat. No thanks. I’ve never been scoped and I like to keep it that way. I know they knock you out good but I am just scared I will wake up in the middle of the procedure and freak out. I hope this doesn’t mean no more coffee. I will be so sad!!

I’m going to try and go back to bed now. I hope I can sleep. I haven’t had much to eat because my stomach is a wreck. Wish I had come rice. Looks like I might be on a bland diet for a few days until my stomach calms down.

depression creeping in slowly

by Midnight Demon, posted in Bipolar Disorder, blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Depression creeping in slowly

I didn’t want to blog today. I slept most of the day until my stupid mother called me to see where I was. I am 42, not 12. Then I got the why are you sleeping? The answer is the same. Pain kept me up. I couldn’t settle down after the Sox win last night. Then pain hit me and well. Three o’clock came by and I was still up so I tried sleeping and I finally fell asleep until reflux woke me up at 5 am. Oh joy. Burning in my esophagus. I drank some of my Powerade as I couldn’t stand as my thigh was killing me. I think I need to move the Mylanta to my bedside so I don’t have to get up when I have a tummy ache.

I woke up just before my med alarm went off. My friend that I was supposed to meet up with called me. Said if I was in pain, we can reschedule our meeting. I said okay. That meant I could stay in bed, not having to rush to meet up as I was still hurting and wasn’t sure I could make it to the bus stop in time. I was grateful she understood. My support group, OMG. I don’t understand some of the people there. Two people said that cannabis helped them, either vape or oil. I don’t remember. But it wasn’t like I was looking for help sleeping. I was just annoyed my mother woke me the fuck up. Thanks but no thanks. I didn’t respond to their posts because I would have gone off and that wouldn’t have been good.

Then I read a blog Anne Wheaton wrote and my mood just tanked. It was tanking anyway. I’ve been battling a migraine headache since I got up. Sounds have been super loud and annoying. Lights have been really bright even though they are the same lights I have been using for months. I wanted to go back to sleep but I was too annoyed. At least the coffee I had was good. I wanted my pumpkin cake which is going to go to waste in a day or two but I had a pop tart so I didn’t eat it. I keep forgetting it is there. That is what happens when I make something and it has to be refrigerated. It is like it goes into the void and then it goes to waste. I then have to toss it. This is why I like giving it away so it doesn’t go to waste. I will try to have a huge slice tomorrow morning before I head to the Square. I want burgers. I also want to find the pre-cut onions so I can make the chili cornbread casserole. I am craving it for some reason. I want to make the keto pizza but I want the chili thing more. LOL I am so weird. I got to take the burger meat out of the freezer, shit. I will when I go downstairs next, if I remember.

I’ve been depressed the last hour or so. I just feel so worthless and hopeless. I am alone. I live with my mother. I haven’t done anything with my life. I am disabled but everyone thinks I am not because I can fucking walk. Big deal I wear an AFO (ankle foot orthotic). I am still upright. Yesterday while waiting for the bus that was late, there was a lady in a wheelchair. I remember my days when I was in one. Not by choice but because I didn’t have use of my legs. I remember how fucking painful it was to relearn to walk. I still hurt from that, emotionally and physically. I still have nerve pain. I don’t know if the nerve pain is from cauda equina syndrome or CRPS. I just know I hurt. My doc increased the gabapentin to try and stop the dystonia (trembling of the muscles in my foot/ankle) I have been having. So I am even more tired during the day. I just feel like a huge lump in a log that doesn’t go any where. I don’t do anything that makes me happy because it causes me too much pain. I try and do sedentary things but I get too anxious and want to move around. But that causes me pain. Or I get to Starbucks and then have to go home because I am too anxious to stay there to write or read or whatever. I feel like such a loser.

I bought another new book. I bought like three of them in the past three weeks. The one I got today was by the guy that played Hamilton in the musical play, Lin-Manuel Miranda. It is very inspirational. It was of tweets that he collected and put into a book. I love it. It is short and moving. I love that I have it in book form rather than Kindle because he frequently says, “you have it in your hands.” The book has the new book smell. It was printed this year. I really like it and I hope I can finish it. I tried putting it down and it was hard. I kept saying one more page. And then I forced myself to put it down once I found a something to hold the page. I used to have a stack of bookmarkers. Now I have no clue what happened to them all. I just use ripped paper or something.

I am not feeling well. I just want to go to sleep. I took my meds early. I haven’t taken my gaba yet. I take that a couple of hours later as that can really make me sleepy within an hour. I take it will my pain med which I take around 9pm. But seeing as I am taking meds early, I will take it now at 8 pm. I don’t know why I feel so miserable. It is like the black clouds are back. I am trying not to think about how bad I feel but I know it will cover me soon and I won’t be able to break free for a while. Every episode is the same way. I just got to hold on to this thing called hope that it won’t last long. I hate that it is starting around the time that I am starting the pain program. Trying to find motivation to do the home exercises while I am like this is going to be a huge challenge. I don’t now if I can do it without them kicking me out.

Last night, I was trying to pay one of my bills and I thought I could change the date and I put it through. It went through without me changing the date. Fuck. I hope my bank kicks it out or I am going to be in the negative before I get paid. I was already charged a “service fee”, which I have no idea why. I am going to have to call them or go to the bank tomorrow to find out what that is about. It might be that I didn’t have enough debit card transactions for the month. I can’t help it. I only get paid monthly so whatever is paid, gets paid, which doesn’t leave me much to use my card. I’ve been using my credit cards to get things I need. Not a good thing but when you don’t have money in the bank, it comes in handy.

Just realized for not wanting to write a blog, I am on page 3 in word and up to 1281 words. Probably all gibberish. The point of all this is, if you have read this far, is well, I am not sure. I feel depressed. I am trying not to feel suicidal. I see my therapist Monday, the one that likes to pick his nails all session and not really give me anything useful to go by. I really don’t want to see him anymore but I am so drained at trying to find a therapist that takes my history and wants to actually help me. I am now picky in what I am looking for. After 27 years of therapy, I should hope I know what I am looking for, sort of. Is there someone for me, I don’t know. I am tired of let downs. And finding out that the therapy world lost a good therapist really hurts me. I still have no idea how he died. I know it was sudden. He was just three years older than me. I pegged him as a few more years older than that. I feel for his partner and family and his clients. I’ve been fortunate not to deal with a therapist’s sudden death. Just their leaving for various reasons. It makes me feel like I don’t have hope and that I am a hopeless case. Maybe that is what is bringing this depressive episode on. I don’t know but I will end here as I have bored you enough.