Tag: mental pain

ugh another psych admit

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders, suicide

Ugh another psych admit

Met with my psych this morning. I should have known it wasn’t going to be a good day when the 747 bus never showed up but my cousin did to give me a ride to the Square. I gave her some sauce and a piece of my cranberry cake. Then she said she wanted me to go in the hospital. From her tone, there was no arguing with her. She didn’t like that I picked a date, again, or the dire emails I sent when my pain caused me to be suicidal, more than usual. I’m just grateful she let me go to my therapist’s office later this afternoon. I told her I wanted his input.

I came home waited for my new laptop screen to be delivered. I was expecting it around 1230. It didn’t come till after 1300, which left little time for a nap. I wasn’t in that much pain but knew I would need some when it got closer to my therapist’s time. Unfortunately, I didn’t bring my bag of all things, which contained a water bottle so I didn’t take my pain meds. I still felt good so thought I would be okay.

I talked with my therapist about what my psych had said. He didn’t see the point in going in except maybe learning a few things, if I went to the unit my psych wants me at. I thought about this as I left his office. I got to the corner of where his block was and the top of my foot felt like it was being smashed with a brick. Fuck! I had no water to take my one pain pill I had. I carefully walked to the station. Went down the stairs and the train was coming, a full one. Nope not standing three stops. I sat down and waited for the next one, which wasn’t too long. It was less crowded and I got a seat. By the time I got to the Square for the bus home, I wanted to cry. The pain intensified. I could have killed myself right then and there. I missed the bus by mere fractions and sat for the next one. I thought I was going to bawl as the bus was in traffic on the ride home. I was hurting so bad and I needed to get my meds at Walgreens. I honestly have no clue how I got home.

I wanted to tell my youngest sister I would be going in the hosp tomorrow but she was surrounded by her family and my middle sister and I didn’t want to bring it up. My brother in law is anti-mental health issues of any kind. I’ll text her later with it.

I did tell my mother, which is a huge step for me as I usually just leave her notes the morning of. We were talking when my psych called me. HAHA she is worried about. She asked how I was and I said not so great as it has been a long day. I then explained that I wanted to go to the unit she recommended and if I end up at the hospital I was in a few months ago, I will sign a 3 day (basically it’s a form forcing the hospital a 72 hour notice to decide if I need to stay (court will be involved), can go home, or will leave against medical advice). If I do go to the hospital and get assigned a different treatment team other than Bonnie and Clyde, I will stay as they may be helpful. There is one doc there I really like working with and he is sincere in trying to help anyway he can, unlike the Bonnie and Clyde couple. Bonnie and Clyde are assholes who after learning I wanted to leave the hospital to kill myself, then asked when I wanted to be discharged. Fuck you too! It was a complete waste of time and I won’t go back to their “treatment”. Plus those assholes put in my medical record that I have gender dysphoria so now all my medical records in this healthcare system know, whereas only my psych knew before. I am still steamed about this but once something is in the records, it cannot be removed without serious documentation and possibly a lawyer. Not worth it. I did bring it up to my psych, who was not happy to learn my PCP read her notes. He is okay with me being trans so I just hope it doesn’t make me a target of any discrimination, now or in the future. I told my therapist today that he will not be getting any releases from my long term disability folks. They do not need to know anything about what I talk to him about. Course they could just read my blog, which would be all they needed to either have me continue with their shit or not. I feel like their stuff is heavier than social security!! Once I get my newer laptop running again (crosses fingers and eyes), I plan on going to the website to see what exactly I am disabled. I am kind of in the dark as to whether or not it’s physical or psych or both. With my long term disability, it’s physical and depression, though how they determined that without my therapist’s notes, I have no clue. Must have gotten them from my psych, but even she didn’t get anything, so who knows. As long as they continue to pay me (the small amount) I am happy.

So tomorrow morning, I will be catching the first bus to the Square to go to the ER, where I hope I’ll be placed in the unit my psych wants me to go to. I am not feeling hopeful about it as we have tried to get on this unit many times and failed. I am very tired. I will be taking my night meds shortly and hopefully go to bed within an hour, if not sooner. I just hope my stupid foot pain doesn’t keep me up all night. I also hope I have access to my phone on this unit or I will not like it. I won’t be able to use the app for my PT. I can’t say that it’s been helping because my scores have been terrible when I am in high pain. Maybe that is a good thing. It will be nice to see if the scores change over time. I told my psych that PT is going to be a long process that won’t happen overnight. Unfortunately, I just don’t have the patience or the hopefulness to stick with it as my depression is so severe. Even my therapist said today I don’t look too hopeful that the hospitalization or anything will help. He is right. I have been let down so many times but usually just the change of environment has helped a little, even if the staff hasn’t been. Sometimes a hospitalization will help me see things differently but that was when I was dealing with mental demons, not pain demons. It is so unpredictable and that is what wears me out. As I was telling my mother tonight, there is no reason for my ankle to hurt doing “normal” movements that it should do. Physically there is nothing wrong with the bones, that I know of. I am still waiting to hear back about the bone scan. The tendons might be inflamed but after all the rest that I have given it the last 5 years, it should have been calmed down by now. If this is truly a nerve injury, I am screwed as there is no treatment and if anything, it should have shown some improvement by now if there was going to be any. The fact that the pain has gotten worse doesn’t help me feel too hopeful about the future. Hence why I get so suicidal in a flare up.

Release

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders, suicide

Release
Song by Pearl Jam:
I see the world
Feel the chill
Which way to go
Windowsill
I see the words
On a rocking horse of time
I see the birds in the rain

Oh dear dad
Can you see me now
I am myself
Like you somehow
I’ll ride the wave
Where it takes me
I’ll hold the pain
Release me

Oh dear dad
Can you see me now
I am myself
Like you somehow
I’ll wait up in the dark
For you to speak to me
I’ll open up
Release me
Release me
Release me
Release me

I love this song and I am glad it came on my Pandora playlist I created called, Pearl Jam. I am in a shitty mood. I have been thinking about a story that has been brewing in my head the last few months but have yet to put it into words or write it out. I just haven’t had the motivation.

Tonight, I am in a lot of pain. I had taken my foot out of the covers because I had burning pain. After a few minutes, it calmed down. After a few more minutes, I got the worst pain down my foot. I put it back under the covers and it didn’t calm down. I still feel this pain. Most of my pain tonight is in my foot. The ankle seems to have settled down some.

I’m feeling very despondent, like nothing matters. I want to go to sleep but I got a lot on my mind because I want the pain in my foot to stop but it shows no sign of stopping. And even though it has been hours since I ate, I feel bloated. Seems like my meds make me feel this way. I swear it is like eating another meal when I take so many meds at night.

I was thinking of writing a blog called “should I die” or “if I would die” but I lost my train of thought and never wrote it. This is the third night in a row that my suicidality is high around the same time of night. I don’t know why this is. Psychache is also high and when mixed with physical pain, it is a bad combination. All my thoughts are about death and dying.

I told the social security person while I was filling out the paperwork for name change that I was trans as it asked what sex I was. Apparently, without a doctor’s note, I had to put what I biologically am. I am saddened by this. Just another kick me while I’m down. I wonder if I’ll ever be truly male. Right now I’m in so much pain I really don’t think it matters. I don’t matter. Nothing matters. Heart hurts and there is no pill for that kind of pain.

Painful Sunday, too

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

Painful Sunday too

Not having a good day. Woke up with my ankle screaming, particularly my ankle bone. Took some meds and then went downstairs. I brushed my teeth and used the bathroom. Went back up to my room where the pain then spread from the bone down to my pinky toe. I took an Ativan and a strong pain pill and tried to go back to sleep but couldn’t. I got hungry around 11 so I carefully went downstairs to have a bowl of cereal. I then made a cup of tea as I didn’t have anymore half and half. The one I had had gone bad and there was no way of me going to the store in my painful state. I texted my brother in law and asked if he was going to the grocery store, to pick me up a quart of it. He said ok. I was grateful.

I brought the tea back up to my room and just read Twitter. The game was on and there were a lot of tweets about it. Then my feed got filled with news about Nebraska hiring a new athletic director. I couldn’t tell if this was a good thing or not or what it would mean for Mike Riley, their football coach. The Huskers are having a horrible season. Riley has been with them for the last three years. They have not had rankings or championship games for a while now.

The Pats won and I was happy. Brady, our quarterback was not happy that he had a helmet to helmet hit that wasn’t called. I don’t blame him. That is how you get brain injuries. I am glad they won. After the game, I went downstairs for dinner. I was going to have sliders but my mom made pancakes. I wanted to make them today but couldn’t because of pain. I scored! I had three or four of them before my mother yelled at me. She thought I was going to eat the whole plate, LOL. That would be too many for me. I finished the one I was eating, washed my hands, and then went upstairs again.

Pain shot out of the woodwork. My bones in my foot were now hurting. I took some more pain meds. I cried because I am in such pain I just want to die. I seriously was going over my plan, except I changed the location of where I would do it, again. I thought of calling my psychiatrist but she would only tell me to go to the hospital and what are they going to do besides aggravate me? I tried to get into BPDChat but they were talking about emotions and I just couldn’t deal. I was in a bad place and didn’t want to contribute or talk about how I was feeling. I always get ignored anyway. I haven’t attended chat in quite some time. I just am not up for it or I forget about the time.

I had emailed my PT about how I was not able to do all that she wanted me to do because of pain. Today I used the app and did poorly on it. I just can’t focus. I also told her I was feeling hopeless about everything and not sure if PT is going to help me. I’ll still go but not quite sure how it is going to help seeing as a nerve injury is not something you bounce back from right away like a sprain or a broken bone. I still am trying to wrap my head around this. I’m glad I have therapy tomorrow. Hopefully talking it out helps me a little bit. I know he isn’t going be suggesting things or anything. It’s just not his style, which is pissing me off. I wish he would validate what I say I little more. I just want to be heard and understood. Is that so terrible?

I emailed a friend to see how she was doing and I found out she is off social media sites so the best way to contact her is email. She is doing well, which I was happy to hear. I told her I was thinking of using Kratom as a pain relief med and she gave me the pros and cons of it. The sucky part is that it’s not in pill form. It’s a powder that is very bitter and that you need to sweeten to swallow it and drink fluid with. There is also a lot of trial and error with it as the dose varies from person to person. Great. Not something I am into then. She told me about cannabis and how it is helping her as an edible. I don’t want that either so I guess I will stick with what I have.

I’ve been thinking of my father today. I was tempted to call my sister to see if he was coming over today. Then I remembered he is no longer with us and I was sad. The other day when I was coming home from PT, the bus drove by his apartment building. It stung. He has been on my mind ever since.

Ok my laptop is driving me crazy with the stupid screen. Next week can’t come soon enough. I only have one appt next week (other than therapy) and I can order my new screen and hope it solves the problem. Otherwise I am screwed!

another month of existing

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders, suicide, suicide attempt

Another month of existing

Despite being suicidal for almost 16 days straight, I lived to tell the tale. I honestly don’t know what gets me through the hardest of moments when I am in so much pain and all I can think about is death. I think fantasizing my death has gotten me through, only because I was so immobilized by pain, I couldn’t act on my thoughts. Then the next day, the pain was down and I didn’t feel so terrible. I didn’t feel like ending my life.

Sometime in the beginning of September or the end of August, I thought that if I had 41 consecutive days of suicidal thoughts, that on day 42 I would end my life. If by some chance, I had a day that I didn’t think those thoughts, I would have to start all over. I kept a spreadsheet of the days. Some nights when I was in pure agony, I would bargain with myself saying just x many days more and then I would end it. I kept these thoughts pretty much to myself. I had texted my therapist this plan but we never talked about it. I don’t remember if I let my psych know either.

I don’t know what really changed that stopped the suicidal feelings from occurring. I still had pain every day and night. But after my PT evaluation, I felt like things could be better. I was sad that the days of me working were truly over because too much time had past for me to recover. I was diagnosed too late with CRPS, Complex Regional Pain Syndrome. Now I just want to be able to make pancakes without having to take breaks in between the prep, the mixing, and the cooking. Small stuff but it would be a goal. I left the PT office feeling a little hopeful that things might change for the better. It didn’t take away my suicidal feelings completely. I still thought about ending my life, but there was no urgency to it. I just put it in the back of my head.

Suicidal thoughts have become so much apart of my life that I can’t imagine my life without it. Will I my life end one day at my own hands? I don’t know. I think so and have felt that way for quite some time. Little things stop me. My nieces or nephew’s love and care. A friend online that needs me. Having a low pain day so I could get out of the house to have my espresso at Starbucks. Being able to shower, make breakfast, and then go out to do what I have to do. It doesn’t happen every day as some days I can barely get out of bed, either because of pain or my mood. Sometimes both. Sometimes a good word from my therapist or psychiatrist is enough to lift the heavy coat to make it through the day. I honestly didn’t think I was going to make it through September without making a suicide attempt. But I did.

Tomorrow starts a new month, with the same challenges. Hell, I have appts all this week with no rest days at all. It’s going to be hard. I hope it doesn’t set me off in a flare for days on end. The weather is also going to be cooler. If it remains stable, I should be okay. If it fluctuates more than 10 or more degrees, I am going to hurt more than any activity that I do. I have a lot of appts this month. I don’t know how that is going to make me feel, physically and mentally. Dealing with chronic pain every day is difficult to say the least. I have mixed feelings about this month. I hope that I survive and I hope that I die. We’ll see if I make it to Oct 31st.