Tag: nerve injury

just about eight weeks post op hysterectomy

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders, sports, transgender

Just about eight weeks post op hysterectomy

I am just about eight weeks post op (tomorrow will officially mark the eighth week) and today was the first full active day I have had. I woke up and got up before eight this morning. I made myself an egg and had a cup of tea as I wanted tea. My friend sent it from England as a recovery gift. It was good tea. A little later I had a cup of coffee with the last of my creamer. My groceries arrived in the afternoon so I was going up and down stairs a lot. Then I went to the bank to deposit money so I wasn’t in the red anymore. I had to borrow money from my mother. I just hope I can pay her back when I get paid.

I came home and I was out of breath. It took me several minutes to catch it and relax. I was sweating the whole time I was bringing the groceries up the stairs and I was sweating again when I came home. I had stopped at the pharmacy before coming home to pick up my meds and that little fucking hill I have to walk up plus going up two flights of stairs with two bags of Gatorade bottles was too much for me. I had my appointment with my psychiatrist and luckily I was normally breathing by the time he logged on.

I told him I was depressed and he could see that I was. He offered some trans support website which I sent out to. There was another one which I tried to email but for some reason I was unable to copy the email address from Zoom. I had to write it down. I am not sure I am going to email this person because they are far from me and I don’t have a car to get there should they meet in person. Plus insurance is a factor as well. I rather go to a free group than have it be a therapeutic one which I have to pay for. I told him about the increase in Pristiq and he said that by the time we see each other next (in Nov), he hopes the med will provide me some relief of the depression. I told him about my B&B issues making me a hermit in the house. I just don’t feel comfortable using public restrooms to cath. I still have to go to the lab to give a urine sample to make sure I don’t have an infection. I have been having some bladder pain lately and even though my urine is clear, I want to make sure it really is.

I called uro today to schedule the appointment for the testing but the doc didn’t “order” the test that they could see so I have to wait for the medical assistant to call me. I was hoping to hear back from her this afternoon but nope, no calls. Tomorrow I have an early dentist appointment and plan to go to the hosp afterwards to drop off the urine sample. I just hope I wake up like I did today or the appointment might be missed. I have to leave a half hour before the appointment because I will be going uphill and I know I will be short of breath. I want to be sure I am breathing close to normal when I go to the office.

I am making a chicken pot pie for dinner. Tomorrow I might make a small marinara sauce so I can have spaghetti and meatballs. I hid my spaghetti so no one will eat it. Every time I want a particular pasta it seems to be gone as my nephew eats pasta all the time.

I had Starbucks while out so I am caffeinated for tonight’s ballgame. The stomach tightening has already begun with the stupid stat predictions and shit. If we can get to the starting pitcher early, we might have a chance to win. But our pitcher has to be nasty Nate or we will be in trouble. It is a win or go home kind of game so if we lose, we are done. Baseball season is over for me, at least with the Sox. It will continue with the winner of the game.

I think I did too much with the bags I had to carry. 45 bottles of Gatorade and 10 gallons of water I had to bring up the stairs. I am not supposed to be lifting anything over 10lbs at least for another four weeks. I am considered healed though as I am at the eight week mark. I wish my bladder was in better condition than what it is. I really hope the urodynamic testing gives me some answers that are favorable. Even if it shows that I don’t have to cath every time, I still have to cath for residual as I am not emptying my bladder when I void. I don’t know how going to a trans support group would be helpful with my medical issues but maybe having just someone that understands the dysphoria will help.

back out and game 162

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Back out and game 162

I had things to do today and my back is out. I can’t even so much as change my pants it hurts too much. I asked my niece to pick up my meds. That is the most important of the errands that need to be done today. I can possibly get the half and half tomorrow while I am out for my morning appointment, if I remember and I am not in a huge rush to be home for my therapy appointment.

I couldn’t write yesterday as I was too tired. I had slept most of the day because I just couldn’t get going and when I did my back hurt. It has been a struggle to cath because I have to stand and it hurts my back. I just posted a cute cat pic. I had started “watching” the game via MLB.com and Twitter. By the 8th inning, I had to listen to the game. The suspense was killing me. I am glad I did because the bats became alive in the top of the 9th and we won the game 5-3. It was a nail biting game. Sale is pitching today. He is was one of my favorite pitchers and he is good so I am hoping if the Sox give him run support, we will win today.

I am hoping to shower and shave today. I smell. I have been sweating even though it has been cool in my room. I have to shave my head today because it has been almost three days since my last shave. It just gets rough if I don’t shave frequently. I am starting to get sort of a bowl top as the sides have grown in since my last haircut at the barber. I won’t be able to get another haircut until my next pay period. I am in financial straights right now as my stupid bank allow three transactions to go through without sufficient funds. Now I am in the negative and I have no idea how to get back to black. The fees alone are going to kill me. I am freaking out about how much I am not going to afford my bills next month being in debt the way that I am.

I need to make sure I am up tomorrow early so that I can go to the lab for my urine tests. I am having so much trouble with the stupid urge when I cath. I have an eye appointment in town. Hope my hip is better for walking tomorrow. I have a long walk to the office from the station. Hope I can walk to and back without problems. There is a Starbucks across the street so I can treat myself when I am finished. I just set two alarms so I am up. Hopefully I won’t shut them off and then doze off. That won’t be good!

writing on a Monday

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Writing on a Monday

I’ve had two cups of coffee to ward off tiredness and the second cup has finally fueled my fire! Tomorrow evening I will be going to a webinar about writing as a caretaker. I hope this helps with some of the frustration I get with my mother and her chronic health issues, particularly her diabetes and chronic pain. The person leading the webinar is a renowned writer at the Massachusetts General Hosp. I have known her for years, by name only so this will be a treat to finally meet her. I took out my portfolio and was glad to find that one of my favorite pens was inside. That will be excellent writing material.

My appointment with my therapist is less than 3 hours from now. I am kind of nervous about going as I am in a bitchy mood. I want to text my therapist to tell her this but last time it didn’t go well and I got more angry and annoyed. It has only been a week since I last saw her but it feels like ages.

I just emptied my bladder and I am having pain. I don’t understand why. I wasn’t that full. I was just emptying my first cup of coffee. I will be emptying my second in a couple hours. I also need to brush my teeth. I bought Listerine so I can try and get rid of this canker in the back of my mouth. I know salt and water would probably work but it makes me gag so I rather use mouthwash.

I am finally out of the haze the flu shot put me under. Past few days have been rough with me sleeping all day. Today I am feeling a little more alert. I didn’t sleep well. I woke up at 6 and gave up as I was just resting my eyes and not really snoozing or sleeping. I had woke up to pee around 4 and just couldn’t get back to sleep. I probably will take a nap after therapy. I usually do.

I wore underwear and a pad last night. So far, pad is clean. No discharge, which is awesome. I am waiting for the nurse to call as she said she would check in with me. I hope it is before my appointment with my therapist. She also wants to call to see how my wound is. I think it is better as it has closed up. I have a band aid on it right now to keep it clean.

I am going to try and keep myself hydrated today. I have been really bad about that the past few days because I was sleeping on most of the day. I have to clear the recycles that have been accumulating on my bed and empty my bedside trash. Sox are off tonight. They have eleven games left in the season. They have a chance of playing in the wild card if they continue to win games. I already am feeling nervous about these final games. Going to need Ativan for listening to them.

legs don’t want to work

by Midnight Demon, posted in blogging, chronic physical pain, CRPS, depression, mood disorders

Legs don’t want to work

My legs hurt today for some reason. I wish I could say that it is because I walked too much or something but I haven’t done anything the past few days. Other than leaving the house Monday for my MRI, I haven’t left the house. I just showered and I feel a little bit better. My groceries will be arriving soon. Just hope I can go up and down stairs.

My surgeon got back to me. I will see her next week for the discharge that I have. Sucks that I have to go through this another week. I was hoping that it was done but when I looked at the pad before taking it off for my shower there was some yellow stuff on it. I don’t care I am wearing boxers today. I will change into underwear before bed. I was getting chafed by the underwear elastic because I got a size too small. I need a break. I still have a stitch on my belly. I don’t know why it is still hanging on me. I tried to gently remove it but it is stuck on me pretty good. I will have the surgeon look at it if it is still there next week.

I don’t know what to do today. It is cloudy and muggy. I might go to the square this afternoon to mail my letter and get some cheese. I want to make a grilled cheese sandwich. I am really craving a bowl of Chex cereal. My groceries came and I don’t feel like doing anything now. I am so damn tired. I made quiche for lunch and am pretty full. I also had my second cup of coffee. I have been having at least two to three cups a day and I am still tired. It was muggy in the kitchen so I opened the door. It is cooler outside than it is in the house. I am sweating though. My mother called me to tell me to pick up the milk from my cousin. Going up and down stairs really exhausted me.

I am glad I checked when I am seeing my uro NP tomorrow. I thought it was at 2 and it is at 1. We have a lot to discuss. Since stopping the Flomax I am finding it easier to cath. I don’t get the urge as much but I keep track of the hours in between caths. It still hurts when I void so I cath when I can. I also increased the tolterodine and that has helped a lot. I don’t know what the NP will say to this but we will see. I think she will be ok with it.