Tag: psychache

Fat Friday cancelled

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

Fat Friday cancelled

I really, really wanted to get donuts today. A dozen and some munchkins (basically donut holes). I went to the Square as I got up around 0900. I had a turkey bacon sandwich and my espresso. Then I decided that if they had lavash bread, I’d get some turkey breast and have it for lunch rather than buying donuts. They didn’t have lavash bread so I got flour tortilla. It will do perfectly. I’ll also put in some cranberry sauce and it will be a yummy roll up. So my fat Friday was cancelled.

On the way home, I stopped at a convenience store to get quick picks for the lottery. The powerball just went up to half a billion dollars and the Mega Millions is like 300 million. Either would be nice to win. Then I went to Walgreens to pick up my Zofran. I was disappointed that the pills weren’t the ones that you put under your tongue. It was tablets. Oh well. The covering doc gave me a 90 day supply. I am lucky if I go through 30 in a year. I don’t use it that often, only when I get a migraine with nausea. Usually I’ll have the nausea before I get the migraine. So I am set for the next two years with this med.

Last night, the pit of despair surrounded me. Every year from Aug to Oct, I get really depressed and suicidal. This has been happening since 1994, when I had my first major depressive episode that landed me in the hospital from Aug till Jan 1995. I think that if I didn’t have a great psych resident at the time, I would have taken my life. Things were awful. I couldn’t go to school or work. I just slept all day and was in a severe depressed state. Nothing really happened to trigger it, as far as I know. But it has been happening every year since then.

I emailed my psychiatrist before I went to sleep last night. I had a hard time falling asleep because of pain and psychache. I joined a suicide attempt survivor group on Facebook. I hope it is a good group in which I can get support when I am feeling suicidal. The next few months are going to be rough. I can already feel the depression starting to set in. Maybe that is why I have been sleeping most days the last few weeks.

Last night I was talking with a friend. She can be a little bit too caring and set in her ways. I told her next week is going to be rough for me because I have back to back appointments. It’s going to be exhausting for me. She just replied that I should get a ride to the appointments. I tried to tell her that wasn’t the point and then she said at least I wouldn’t be walking. I told her sitting is just as bad for me. I really don’t want to use the ride because it costs money and I hate being a passenger with someone I don’t know driving. I also hate traffic. I rather take the T to where I am going. I know it will be exhausting so Wed I am not going to plan on doing anything. It’s the only day that I don’t have plans. Mon I have therapy, Tues is my neuro appt, wed rest day, Thurs seeing a friend for coffee, and Friday seeing the dentist for a check on my gums. It’s the first week that I have a busy schedule.

I need to call the place that made my AFO. The part that braces my leg is very dirty and worn. I tried cleaning it with a baby wipe but only some of the stuff came off. I noticed there were cracks in the material so I think it needs to be replaced. Only problem is I need a car to get to it as it’s not T accessible. It kind of is, but it’s a long walk from the station and I can’t walk that far. I noticed today that the part is removable. I am going to try plain old soap and water. If that doesn’t work, I will call. It’s been 6 years since I’ve had the AFO so it might need some tuning up.

I’m hoping to finish Tom Sawyer this weekend. If I do, I will move to some SE Hinton books called Tex and Rumble Fish. I haven’t read those books in a long time. I follow SE Hinton on Twitter and she is a very nice person who responds to any question, usually. I’ve loved her since I was a teen. She is one of my favorite authors. She wrote an adult book called Hawkes Harbor. After I read Tex and Rumble Fish, I will start that book. I think that is all the books that she wrote, other than The Outsiders, That was then, this is now, and Taming the star runner. I love all her books. I wish I could write like her. I keep thinking of writing a short story about sci fi and Star trek but I can never think too much about where to begin. I’ll write it one day. I just need to try and write if from a third person rather than first. I tend to do that a lot in my writing, only because it’s easier for me. Maybe I should take a creative writing class or something. I did take one in college but because of my psych issues, I had to withdraw from class midsemester. I miss school.

busy Monday morning

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

Busy Monday morning

I had a shitty sleep. I fell asleep sometime after 0200 only to wake up around 6 because my foot was in severe pain. I took my pain meds and slept until my alarm went off. I didn’t want to get up but I had to be at the dentist office by 0800. I dragged myself out of bed, got dressed, brushed my teeth, and headed out. I had to wait until the dentist was available to see me. He said that I had severe inflammation of the gums but wasn’t too sure what was causing it. He wanted it to go down and for me to finish my antibiotics before taking x-rays.

I left in time to catch the bus to the Square. While I was waiting, I called my PCP’s office to see if my prescription was ready to be picked up. It was. I had breakfast at Starbucks. I ordered a snickers latte rather than espresso. I felt like treating myself to something good. I had 6 espresso shots. It was stronger than I thought it would be but still good. I went to my PCP’s office after I finished and then went to the pharmacy. My foot was in severe pain by the time I came home. I hadn’t taken any pain meds with me and the last time I had taken them was around 6 this morning. I was overdue. My foot was also on fire so when I came home, I took my pain meds and Neurontin. I also rinse my mouth out with the antibacterial rinse. It doesn’t go well with powerade but I can’t take the Neurontin with water because it is gross. Guess it was the lesser evil.

I wanted to get my meat sauce for supper but my mother is making lazy man lasagna. I will save it for another day. It’s not going anywhere. I have been wanting to have it with penne pasta for a while now. I haven’t had lunch yet. I will finish off the White Castle burgers. That should tie me over until supper time.

I am going to try and stay up but I have a feeling I am going to take a nap. I am really tired from all that I did this morning. I was out for 4 hours. I am glad I don’t have therapy this afternoon. It would suck. My mood sucks right now. I am just exhausted from hurting and not sleeping. I am so tired of waking up in severe pain. It’s really mentally exhausting. The hard part is that I have absolutely no control over it. It flares up whenever it wants to whether I am sleeping, trying to sleep, or just plain resting.

My fricken bowels are going nuts. Whenever I have Starbucks milk, it seems I am intolerant to it. I don’t fricken care because I have been backed up the last few days but the cramps are horrible. I just hope I don’t have an accident because that will kill me. I also hate having to go up and down the stairs a lot because of it. I so wish there was a half bath where the bedrooms are.

I’m trying to make plans with a friend that I met while in the hospital. Every time I ask when to meet up, she is vague or doesn’t answer. I really don’t want to go out tomorrow, except to Walgreens because idiot me forgot my strong pain pill script to get filled today. I had it on the edge of my bed so I wouldn’t forget it but I did. I also need to mail a birthday card for a friend of mine. Maybe I will get some pizza when I drop off the card to the mailbox, though I have been thinking of getting a pastrami sub lately. I love pastrami.

One of my blog readers suggested I get input for the blog about therapists who shaft clients for the suicidality or hospitalization history. If you would like to contribute, please email me at Collerone at Yahoo dot com or use my contact page to send me a message. I’m still mulling over ideas for it so you have time to also contribute if you would like. Please get it in by this week though. I’d like to write it up by the weekend. I think it’s important to get the word out that there are therapists and organizations out there that just don’t want to deal with severe mental illnesses.

never ending. It just goes on and on

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders, suicide

Never ending. It just goes on and on

I’m trying to settle down for sleep but a new pain keeps popping up when I lie down, when I sit up, when I take my meds, when I move it, etc. It is fucking never ending. I am not doing a damn thing tomorrow, least that is the plan for now.

I sent an email to my psychiatrist asking her if I was a difficult patient. I briefly discussed my therapy session with my therapist and that the therapy group down the hall from him contacted me. Unfortunately, it got filtered to my junk mail so I didn’t get it until I got home. My phone doesn’t get junk mail for they could be viruses embedded in what they send. Last thing I need is a virus on my phone.

I just sent an email to my neurologist asking her if she could help me out by confirming that I do indeed have CRPS as my PCP just wants to pass me off to another doctor. I am tired of seeing new doctors who aren’t helpful and then just want to pass me off or not treat/see me anymore. I see my neuro in two weeks. It was kind of a long email but I don’t care. My stupid phone kept on inserting different words as I typed, which annoyed the crap out of me. I should have just typed it on my laptop so I wouldn’t get aggravated. Lesson learned.

My foot feels like it is being strangled. There is such a pressure on it like it’s going to burst. I am so tired that I am reaching the over tired stage, which is dangerous because I could catch my second wind and then be up all night. I took an Ativan because along with the strangulation, my ankle is pulsating. The little muscles are twitching. This condition is so frustrating because there is never ending different kinds of pain. I wish I could see a doctor at this hour so they can see or I can try to explain to them what living with this condition is like. All I can do is send them an email and then not get a response. But at least by writing it out, it helps me because at least I have documentation that I wrote this to a doctor.

I still am shocked that in the great medical hub of Boston, I have not found a doctor that is willing to help me. Sure, my PCP gives me pain meds to alleviate my pain. I appreciate that. But he doesn’t want to stop there. Right now my diagnosis is in the air and it is making everything seem like we haven’t tried enough. I am tired of this merry go round. I want off. I asked my neuro if she could possible give me a concrete diagnosis and staple it on my PCP’s head. Well, I didn’t say that. But if she could send a note to him saying I have this dreaded condition, then maybe I don’t have to see yet another new doc. There is no treatment for this condition. I know this. My PCP knows this, my neuro knows this. But opioids help me and if I don’t have them, I am good as dead. I have exhausted physical therapy. I have tried injections. I have tried rest. This is no longer a case of tendonitis. It is deeper than that.

The pain is changing all the fucking time, all over my ankle, foot, toes, bones. It hurts every where. Normally, at this hour, I would be writing a morbid story about ending my life. That is what this blog was about. My suicidal thoughts in the cybersphere. But then one day someone took it too far and called the cops on me so I no longer talk about those things, even though it relieves the tendencies to act. Thoughts are NOT the same as feelings. And feelings does not mean act upon them. It is okay to feel. It is ok to think. Here is a quote from the father of suicidology, Edwin Shneidman that I had the pleasure of talking to him before he died.

“Never kill yourself while you are suicidal. You can, if you must, think about suicide as much as your wishes and let the thoughts of suicide –the possibility that you could do it- carry you through the dark night. Night after night. Day after day, until the thoughts of self-destruction runs its course and a fresh view of your own frustrated needs comes into clearer form in your mind and you can, at last, pursue the realistic aspects, however dire, of your natural life”. –Edwin Shneidman, Suicidal Mind, p166

I write these blogs because I still am struggling night after night, day after day. Pain increases my vulnerability to think of self-destruction. I have the means though no one talks about restricting them. I told my psychiatrist I have something that will end my life but still, she doesn’t ask about it when I see her. She never does. Poor assessment of risks. So does my therapist who knows damn well that I have chronic suicidal thoughts. It makes me angry that I am not treated the way I was with my former therapist, Bozo. She was annoying, I will give her that, but she fucking cared and if I had a method she damn well tried to take it away from me the best she could. I really miss her. Yesterday was her birthday. I wonder if I will be alive to see mine. I really am surprised that you CAN get anything off of Amazon. While I was searching for my method, they had machetes. Machetes!! I don’t think I would have the will power to use it to chop my ankle off but I know a chainsaw would do the job. I refuse to search for it because I know in my darkest of moments, I may just buy it. I’ll go all Scarface on my ankle and groin to sever my artery.

I am once again plagued by dark thoughts. All because I can’t sleep and I am in pain that is never ending. It just goes on and on.

bad physical pain day

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

Bad physical pain day

I did way too much yesterday and the day before. I tried resting but my damn allergies kept me up. I did take a nap, eventually. My Achilles is really painful. After I had supper, I iced it. It helped to numb it so I could bear weight on it. I am completely miserable today.

Last night I went off on my psychiatrist. I told her I didn’t want to see any doctor including her. I am tired of seeing them. She responded today asking if I was serious. I told her I was just frustrated at not being heard and being dismissed all the time with my concerns. I told her I would see her tomorrow for our scheduled appointment but to have tissues ready. I have been crying a lot lately because of pain and because I am just so upset at the medical profession. Why did people chose this profession if they are not going to be helpful?

It’s hot and humid so I just turned on the AC so I could freeze my ass off. I hope it helps the allergies as I have been stuffed up and coughing most of the day. I thought when I woke up this morning, I was getting a cold. It cleared up after I used my Flonase. I am just miserable and I have been taking my pain meds but it’s not helping my Achilles at all. I feel so upset with this. I bought another $25 worth of pens last night as retail therapy. I bought a 12 pack and a single pen that I like. I want this one to be in my carryon bag that I take with me when I go out.

I took 900 mg of Neurontin after my mother rudely woke me from a sound sleep to find out where my childhood friend now lives. I was so annoyed. She knows I have been in a lot of pain yesterday. I had a hard time sleeping despite taking my night meds early. I just couldn’t sleep even though I was so tired. I didn’t fall asleep till around midnight, six hours after I took my meds. I had to take another Ativan to calm down. The Neurontin is helping with the burning pain, even though it’s making my waistline bigger. I weighed myself yesterday and found I had gained 10 pounds in a week. This med just adds weight, even if you don’t eat more than you usually do. Then when you stop it, you lose the weight, or some of it anyway. I hate it but it works so I can’t do anything about it.

I’m feeling really depressed and at times I just want to kill myself because I feel so worthless. If I can’t walk, what is the point of living? I just want to go to my spot and end it. I might this weekend if my pain lets up. I will tell my psych this. I don’t care. I know I am going to bawl when I see her. I just am so upset at my PCP.

Both ankles are hurting me but my left is hurting me more than my Achilles. The game is on as to which part of my ankle/foot is going to hurt more with my left. My ankle will start hurting and then it will move down to my metatarsal bones. These are the major bones in the foot. My last three always hurt when they flare. I have already taken two strong pain pills to quiet down my Achilles but it didn’t do anything. I am feeling hopeless that nothing is working for my right ankle. My mother saw how swollen it was and saw the lump. I am tempted to just get a sharp knife and cut it out. Maybe then my Achilles will stop hurting me.

I ordered my favorite dinner, pizza and fries. I only ordered half a pizza and I am glad I did because I’m the only one that wanted a second slice. My mother and niece ate the fries and one slice each. I like when there is no left overs because I am the only one that usually eats it.

My Red Sox gear that I ordered finally came. I bought another hat and a hoodie. I know summer is coming but it’s a lightweight hoodie for cool nights. Plus I can use it as the temps keep fluctuating to cold even though it’s fricken June! My left ankle is not happy that I went down and up two flights of stairs. Stupid fucking CRPS!