Category: cauda equina syndrome

Sadness over madness

by Midnight Demon, posted in Bipolar Disorder, blogging, cauda equina syndrome, CES, Chronic pain, chronic physical pain, CRPS, depression, mental disorders, mental illness, mood disorders, physical pain

There was yet another shooting in the US. A hospital in Chicago lost an ER doc because of her fiance. We don’t know details because he is dead. An officer and a pharmacy tech were also killed. I am so sad over this. Docs are mad continues to happen while those in government do nothing. is becoming an every day thing. Innocent people are losing their lives because someone decides to take a life with a gun. I honestly think the more this is broadcasted the worst it will be. People must be thinking it is “ok” to do this, everyone is. Makes me so mad and sad.

I had to cancel my therapy appt last minute because I was stuck at the hospital trying to give a urine sample. My bladder was retaining so damn fucking bad. I felt I had to go. I knew I had to go. I had drank more than 1000 mLs of fluid. I was full or close to it but no, I wasn’t overflowing so nothing was coming out. I tried everything. It was so noisy in the lab. Soon as I went to a quieter bathroom, I finally was able to pee. I then had to walk back to the lab to drop off the sample. There was no way I would be on time. I would have like 15 minutes with him and that would be it. I hate having to cancel. Stupid bladder.

When I walked back to the station to go home, my heel was killing me. I don’t think it is plantar fasciitis. I am starting to think the steps I take are to harsh on my heel. It is so inflamed right now. I bought some gel inserts to try. I don’t know what else to do. My feet are freezing so I am not about to put ice on. I probably should. But with the whole CRPS thing, I fear I am causing damage than helping it.

My blood tests came back. My sodium is still low but higher than it was. My pcp sent me a letter but didn’t tell me if I need to keep doing the restrictions or not. Ugh. Idiot. So I emailed him back. Hope to get an answer tomorrow. I see him next week so will probably recheck my values again.

I was so damn exhausted. I ate a sandwich and then I passed out. I have no idea how long. I woke up with a bladder yelling at me. It was ready to explode. I was so disoriented. It was around 6 I woke up so I don’t think I slept too long. I was not rested. I just wanted to take my meds and go to sleep. But i was so cold. It was freezing in my room. It is a little warmer now. It is raining again. We are supposed to have a snow rain mix tomorrow. That is going to be fun as i got to go see the pain program social worker. I am going to be blunt like i usually am. I only had one session and canceled 2. I really don’t care anymore. I am not feeling well. I emailed the PT and OT about why I couldn’t make it. I am not doing the stretches at all anymore because it flares up my foot. I had a million and one pains last night. It was awful. I hadn’t hurt that bad in a while. Then when I was just about to doze off, my body jerk, causing my left rib cage to hurt. It was such a bad night. I have no idea how I got up this morning at 9 to be out of the house by 1030. I didn’t shower as I knew that would tire me out. I wish I went to therapy. The whole thing makes me want to quit. Like why bother seeking help when I have so much wrong with me.

My thoughts are with those employees of that hospital in Chicago. What a terrible thing to happen. It happened at my workplace. A secretary shot a cardiologist one morning. I was glad I was off that day. Total mayhem with police and news crews. The news were camped out for like a week. So stupid. Hope they all can talk about it so it doesn’t cause PTSD for them. That is my theory anyway. But sometimes it doesn’t work and does more harm than good.

Hope my pain eases and I sleep. Night all.

finally home to relax

by Midnight Demon, posted in Bipolar Disorder, blogging, cauda equina syndrome, Chronic pain, chronic physical pain, depression, mood disorders

Finally home to relax

Today is CRPS day so that is why I have an orange ribbon in this post

I have been in more pain than my CRPS foot/ankle today. I tried getting a hold of my doctor to see what the hell the plan was other than “see a foot specialist.” I got tired of waiting so I called the doc I was going to see next week to see if I could see someone this week. There was an appointment open this afternoon so when my mother came home, I flew out the door. I missed the bus by 1 minute because I put my shoes on. I decided to go another way to the hospital. I got there with an hour to spare.

The doc was friendly and said I had plantar fasciitis as the tears were on the other side of my ankle where it didn’t hurt. WTF! I said are you kidding me?? He said yes and he drew it out. Then he was flexing my foot like crazy. If he did that with my CRPS foot, I would need to go to the emergency room for pain control! He said I had to stretch all day and ice the area. 20 minutes on, 40 minutes off. I have to grab one of the water bottles in the freezer and bring it up to my room. Then I will have to play the remember to bring it downstairs for another bottle game. I still have the reusable ice pack my PT gave me in my room. I brought it up here and been meaning to bring it back to the freezer but have not done so yet.

When I got out of the appointment, it was rush hour so I had to wait for the shuttle back to one hospital in Boston that would take me to the orange line. I had to wait for that one too as it wasn’t there. Then there was traffic around. The first train was packed so waited for the second. The bus was packed. I had to fight to get off the bus I was on. There was people coming on the bus as I am yelling I am coming off and then the bus driver closed the doors. Asshole. I was not happy. My mother mad dinner so I was happy. I feel bad I couldn’t do dishes. I just hurt too much to stand. I knew I was going to hurt after the appointment but fuck. I am just glad I don’t have to be in a brace or cast or something.

I totally forgot to go to the pharmacy on the way home. One of my prescriptions weren’t ready. I had to call to find out why. Stock hadn’t come in. I will try tomorrow after I vote. I was able to get a ride so I don’t need to use the Lyft program. I am glad because I don’t like giving my information out to these places. I just hope I am awake tomorrow by 11 am like I told the guy. My mother is supposedly going with my cousin and her sister, the lunatic. I am happy they are going but I don’t want to ride with them.

I had two chicken sandwiches as my mother made chicken cutlets for supper. I didn’t want anything else. Then my PCP’s nurse called and I updated her on things. I just wish there was something I could do for the pain. Hopefully the stretching helps because I don’t want a cortisone shot. I think they are just money makers and make things worse.

Sunday Blog 23 Sept 18

by Midnight Demon, posted in Bipolar Disorder, blogging, cauda equina syndrome, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Sunday Blog 23 Sept 18

I saw my friend in the hospital today. It was good to see my friends. Even though I worked at the hospital and knew where to go, it was exhausting walking around. From the garage to the building he was at, just exhausted me. He wanted something in the café and that was another excursion. The café had changed so much I didn’t know where the ice machine was. By the time I found it and went back to the floor, then back to his room, said our good-byes, and then walked back to the garage, I was glad we didn’t go to the restaurant. There was no way I could walk there. My foot was really bothering me. I forgot my pain meds.

I came home. I wasn’t hungry right away but knew I needed something more than a few cookies that I had with my coffee earlier this afternoon. I rested and then the pain got bad. It was about 6 pm. I have noticed my pain seems to increase around 12 and 6 hours. I don’t think the extended release is doing anything. I am afraid to say this because they could just say they won’t give me anything. That will be worse. I also know that around 9 my pain is much worse but that is most likely because the extended release has worn off.

I waited a bit and then got hungry. I didn’t know what to have. In the end I decided a burrito would do. It would be a few seconds and no cooking would be involved. I had to take my meds. I didn’t fill my med box for the week so that took some doing. I brought up a bag full of powerades and my leg didn’t like that. I am in so much pain it’s not funny. I saw something on my big toe. It was some skin that was off. I pulled it off but didn’t want to tear it off. I cut it and tried to get it closer to the skin but the position I had to have my ankle/foot didn’t like it at all. I am so sick of being in pain.

I am also sick of the Kavanaugh proceedings. If he was a decent person, he should have withdrew his nomination by now but he must be an asshole like the rest of the elected GOP is. All throughout my Twitter it was football, baseball, and then bullshit tweets. It is driving me crazy and it is triggering me because it is making me remember my own sexual abuse that was between my ex and a family member. There is other abuse but I won’t talk about it because a few members of my family read my blog. The family member I mention is known to be a predator. The other one not so much. Still, I am on the fence on talking about it. But remembering it all doesn’t fucking help. I have therapy tomorrow so will try and bring it up. It will depend on how I feel. There is no point in texting my therapist about it because it will be ignored. Anything I want to talk about, it has to be in session only. Fucking sucks big time when you want to talk about something hard but have no idea how to and you think a text might be a Segway into it but it goes into the cyber void. It still might go to the cyber void when I talk about it in therapy. Sometimes I talk about stuff and I have no idea why I brought it up because he didn’t do this or that with what I told him. Sometimes I wonder why I continue to go, like what the hell is the benefit if I am not getting the help I am looking for. I am trying to write about this in the blog I am writing. I wanted to work on it today but I was too distracted with my friends coming to get me and then going to the hospital.

I shaved and showered. I am one week post my haircut and there is some semblance of it still present. I give it another week until I need to go back and get it cut again. My royalties for my kindle came in at a whopping $14 so I can afford a haircut now. Only thing that sucks is that I am not sure my new disability pass will come in before the end of the month to get the monthly pass. That will suck because I have a lot of appointments in Oct so will need the pass. Otherwise I have to keep track of the balance so I don’t get low. That is a pain in the butt because I will have to make sure I have money to put on the card if it does until the end of the month. I hope the new card comes this week so I can stop worrying.

Swear post warning offensive language here in

by Midnight Demon, posted in Bipolar Disorder, blogging, cauda equina syndrome, Chronic pain, chronic physical pain, CRPS, depression, mood disorders, suicide

Swear post warning offensive language here in

So about two hours ago, I was smelling something. Had no idea what the hell it was. I thought maybe a cord was burning, something was catching fire, checked all my wires and electrical stuff. Nothing. I go downstairs to see if my mother sprayed something, and it is coming from the hallway, or so I thought. I went back upstairs. The smell got worse. I decided to open the damn window, screw the storms. I shut the vent or opened it (no idea) on my AC. Then go downstairs again because I had to pee. I check on my mother as her sugar was low. She was fine and then I see the culprit. One of my sisters bought a Renuzit freshener thing that was pineapple and coconut. It was stinking up the house. I shut it, told my mother, put it in the kitchen, and then went back upstairs fucking swearing.

I was talking with my BFF about stuff. I asked if she was okay. She said she was but I knew she was stressed. I won’t go into it but I was glad she told me. I was getting sleepy so I told her goodnight and I will check in with her tomorrow. She said she hopes to sleep too. I lay down, and my fucking legs become stone and hurt like fucking hell. I sit up, take some magnesium as that is the only thing I can think of to calm it down. I shift my position, causing me to move my ankle. Dumb fucking move. I saw fucking stars. Still hurting so fucking bad. I waited, hoping it would settle down. It didn’t. BT med time! I start having anxiety. I am ready to call my fucking psychiatrist, but what the hell is she gonna do? It is fucking midnight. I hate this fucking shit.

All day I have been having body dysmorphia issues. I really hate my breasts. I want top surgery so damn bad. But because of my damn pain issues, I can’t have testosterone treatment, which is delaying the fucking top surgery consults and what not. If I had the money, they would be long gone! I would find a decent surgeon and be done with it. I hate my body. I hate myself more. I feel like I am a fucking idiot who should be fucking dead. My therapist said that it was reasonable that I am thinking about suicide. Who wouldn’t be if they were in my crummy shoes?

I have tried to get my head around it. Someone reported me, again, to Twitter about my talk about suicide. I have no idea what tweet it was as they didn’t tell me. If I did, I don’t remember it. I know I posted last Friday after my pain doc appt. But I don’t think I have posted anything this week. Unless the word itself, suicide, is what freaks people out and makes them report people. I don’t know. They are assholes. If they would talk to me, that would be okay. I don’t know. Sometimes I want to talk and other times, I get the concerned but I don’t know what to do with you people. And it is all fake sometimes. Pisses me off, like bother someone else with you fake sympathy or whatever bullshit you are giving me right now. I know what to do if my safety is in danger. Been down that road one too many times and don’t think that just because I talk about suicide that I don’t know the crisis number or the crisis text number or someone I can call if I feel like I am going to act on my thoughts/feelings. It’s as simple as that. Do I want to end my life, yes I do. Do I want to do it right this second? No. But the time will come when I have all my ducks in a row to execute my plan. I am working with my therapist to kind of break the cycle of overwhelm/end my life thoughts. But until then, I can still plan. It is an escape. You don’t believe me, do research.

I want the meds to work NOW. I don’t want to fucking wait. I am tired of waiting. I used to be a patient person. Now I am realizing being patient, means just that. You are a patient of some kind to someone. The pain doc, psychiatrist, physical therapist, etc. you have to wait to see them. And it fucking sucks. I am tired of waiting. I want treatment now. And dammit, if I don’t get treatment, I am going to die. Maybe not by the damn disease/condition I have, but by other means, which I don’t know exactly what they are. This dying this isn’t easy. Probably is if you have some lethal illness but not a chronic painful one.

I hate that I can’t move my damn ankle the way that it is suppose to move. It gets fucking upset with me. Going down the stairs or up the stairs aggravate it. My right ankle is sprained so it hurts because the tendons are swollen and stretched a little bit more than they are supposed to be. I also walked a lot today. And went up and down the stairs a lot to find out what that fucking smell was that was irritating my respiratory system. Set off my allergies big time. I am sending them a text tomorrow and put it in all caps. That will tell them how fucking pissed off I am. Assholes. I don’t know which sister it was, most likely the middle one but I can’t be sure. They will definitely hear about it later today.