Pit of Doom

Pit of doom

I didn’t think it was that long a period between blogs but I guess I am writing every 4 days or so. I don’t like it but some days it is so hard to get my thoughts together. I am missing the hell out of my psychiatrist even though it has only been two weeks since I last saw her. We have been keeping in touch through email but it isn’t the same thing. I went through the email communication while she was out during her hip surgery and it was torture. I didn’t see her for about 3 to 4 months while she was recovering. I seem to be emailing her at least twice a day, more if there is a response. I just miss her so much.

In the meantime, my mood has blackened. The suicidal mood that I was in in April seems to have returned. It isn’t quite as deep as it was then, but it is slowly getting worse. I am 100% sure the stress of being home and arguing with family nearly every day or every other has significantly contributed. I honestly don’t feel like I am wanted yet I am expected to do things even though my pain is through the roof. Sunday my youngest sister, who I thought was on my side, came up and put my clothes in the bin it was on top of, all without asking first. I did not want them in the bin because I do not want them smelling like plastic. She said she would throw in some dryer sheets. I got so pissed. I sarcastically thanked her and said it is going to hurt my back bending to get my clothes. She said I was being mean and to use my knees. Then she tells me to live my life, storms back up here and puts my clothes that were in a neat pile before, out of the bin in a messy fashion. I was in tears the whole fucking day as my pain just went through the fucking roof I was so upset. Later that night she calls me and I didn’t answer. She calls me a baby and tells me to be an adult. I say you tell me to live my life then call me a baby? Then she goes on about how living in a “mess” is unhealthy. I say I am not dead yet, nor have I been seriously ill. She then calls me selfish and I say good night. We haven’t spoken since. Last night they were having another argument with my mother, and again my fucking middle sister said to my mother “she wasn’t getting younger”. I have no fucking idea why the hell she is obsessed with age. She is 11 months younger than me and says she is old. WTF. I don’t get it. I do not like the fact they have my mother’s bedroom at the far end of the house while every one else is not near her. Something happens to her, we aren’t going to know till morning. How the fuck is that fair. Her sugar was low Saturday night and she came in my room. I was up because I had used the bathroom and couldn’t go back to sleep. She is supposed to navigate with a low sugar to get help or to the kitchen?? Obviously they didn’t plan this out or think this through.

Last night I was in a dark mood. I wrote a draft of what I wanted to say to my psych. Then sent off another email around midnight as I was in so much pain with my back and ankle I couldn’t sleep and was thinking of ending it. I have been slowly doing stuff in my room and it is costing me big time. I bought 6 bins to put my stuff in. I wanted to do stuff yesterday but all I got done was making space for one bin when I wanted to clear my bed so I could change the sheets. I had spilled Gatorade on the bedding so they need to be changed. I wanted to get it done today but I needed a shower, something to eat, and to pick up my meds. I actually had to go to the pharmacy twice because I forgot my ID at home. By the time I came back the second trip, I could barely make it home. I was sweating profusely, back and ankle kicked up two houses from mine, and I was kind of wishing I was fucking dead at that point. I had to change my shirt again. I wanted to jump into a cool shower but I don’t have the energy. Changing my sheets might have to happen Friday, if I don’t have to go to another pharmacy for my pain meds. Maybe I will go to a different chain this time. This new pharmacy always has problems with my meds every month since the other one closed. I am sick of it.

Back is so flared up my scar is hurting. I had to email my pcp to see if he knew of anything to help. He said maybe lidocaine. I have some lido patches so have been using that at night. It has been helping the pain but not the inflammation. I can’t use ibuprofen anymore because I have been getting flares of gastritis. I am on a PPI so I shouldn’t be getting the gastritis and having to use an antacid to settle my stomach. I switched from morning to evening and that has helped. I still don’t want to risk rocking the boat so am avoiding the ibuprofen. I just been taking Tylenol. Some times the pain med helps if the pain is severe enough but it is mostly muscle pain. I know I need to rest it but I got so much shit to do in my room. I thought every other day would be okay but nope. Just makes the pain worse and then I am out of commission for a week. I am just resting the rest of today. I had made a breakfast burrito so that should last me all day. I stayed in my room all day yesterday to avoid family. I didn’t go down to eat at all. I was going to when they had the meeting with my mother. I feel like my sisters are ganging up on my mother and I. All I had to eat yesterday was a protein bar and half cup of coffee. Think I might have had another protein bar before bed but my stomach was killing me so I don’t remember. I lost eight pounds in a week because of the stress. I either had no appetite or just didn’t feel like eating. I think last night’s stomach pains was hunger pains.

I am holding off on sending the draft to my psych. I have a tentative date I want to end things. I really don’t see the point of going on with the ongoing stress at home. I am trying to hold on to what she said of what I have to give to the world. A person on Twitter that I do not know had said the same thing. She had followed me for a while and said somethings that really made me think I mattered in what I say in my tweets, even if I don’t get likes or comments on them. A follower I know through the red sox said she found the courage to share her pain issues on Twitter because of what I write. It is so damn hard to continue living when you want to die yet know people out there, many you don’t know but know of you ether online or through social media, want you to go on despite you having no desire to.

Tuesday is Broken

Tuesday’s Broken

I was feeling pretty crappy today. Back pain was really bad and I just felt really, really down and worthless. I posted how I felt and someone responded with how I help people with how I feel with my posts and raw emotions. After I asked her if I could share her response and she said I could. I posted it on my IG and FB. I also sent a screen shot of it to my psych as she told me the things this person said, maybe not the way she said it, but the sentiment is the same. While I was thinking of all of this, Sugarland’s song, Tuesday is Broken popped into my head. I couldn’t find a more fitting song in that moment.

Last night I was transferring Gatorade from one bottle to another and ended up spilling it on my bedding. My back was hurting terribly so I wasn’t going to do it right then. I was cold because of the AC so I got some blankets and covered myself with those. The back pain didn’t ease up. When I woke up this morning to take my morning meds, I accidently doubled my dose of breakthrough meds and that made me very sleepy. I have been sleeping on and off all afternoon. I had sent my psych an email around 4 am saying I was worthless. I half expected her to call me but she didn’t. I also told her how suicidal I was feeling because my ankle and foot were no longer dissociating. I was getting crazy thoughts and wanted to go through with them so bad. I emailed her instead and that kind of lifted my load a bit. I have not heard from her at all. I hope she is getting my emails and they aren’t in cyber space somewhere. I haven’t been getting a “could not deliver” message so that is good. I think I have emailed her nearly every day this week. Been trying not to and the more I try, the more I fail. I just send her one email a day unless I am having a hard time, like I was last night. I honestly don’t remember being up at 4 but I must have because that is the time I sent the email. I think I also shut the AC off because of being cold. Today has been really hot that the AC is making my room cold but not an ice box. It is so fricken muggy in the house.

I made an egg burrito for the first time in ages. It was good. I put picante sauce in it before I rolled it up. I found that was better than spooning it onto it with each bite. I might make another tomorrow. I bought the flour tortillas. I have been eating them with chili. I fell in love with a Hormel chunky kind with beans. It has a little bit of a kick to it as my nose always runs when I eat it. I really want to make my cookies but it has been so fricken hot that I don’t want to be in my kitchen at all. Maybe I can convince my sisters to install a wall unit and shush my mother about it. It just makes cooking so hard in the summer.

I was still feeling a little sick after I ate. I think it was because of the pain meds. I took a Zofran so I wouldn’t hurl the contents of my stomach. I had coffee. I wanted another cup but my shirt was soaked with sweat and I didn’t want to stay in the kitchen anymore. The testosterone has so increased my sweating. I hate that I have to wear deodorant all the time now because otherwise, I stink within minutes in this heat, even if I just came out of the shower. I really hate that I have to put off top surgery until the construction is done. I am starting to look stupid because I have facial hair and female boobs. I so hate the things on my chest. I hate them more and more every single day. I think that is why I have been feeling such loathing and worthlessness. I have no idea how to counteract the gender dysphoria. I have been shaving again. I had wanted to stop to see what grew but my nephew said that if I keep shaving it will grow faster so I am doing that. There is one slight problem…I like having a smooth face so I am not sure growing a beard, even though I really want one, is going to be possible. I could just grow it and see how it feels and then if I don’t like it, shave it off. I am not going to let it grow crazy like my nephew does. I can’t stand when men do that. It just drives me crazy. I like when it is neat. Maybe it is just me.

The good news is that because I rested and took meds, my back isn’t hurting me as much. It could have flared up because the thunderstorms were passing through and the pressure changes set it off as well. Either way, I am just glad I can move without pain again. My foot is killing me but that is a constant thing that will never go away. I just hope it doesn’t make me suicidal again like it did last night. Pain had jumped from a 12 to a 15 to a 17 within a few hours. I am really exhausted from it, even though I really haven’t done much today. Tomorrow I want to take down the recycling in my room as it has been growing. I just got some study money for Amazon so I might order the bins I was looking at. I was planning on getting four but I might get six. I was going to buy another foam topper that DOESN’T fucking move but I am too afraid it is going to make me hot because of the gel. I also don’t have a place I can spread it out on for 24 hours. I might sleep in the recliner in the living room if I do get it. It has to air out for that long in order for it to “set.” It is also summer so being in the living room right now would totally fucking suck because it will be hot as hell and I won’t be able to sleep. I am completely heat intolerant because of the nerve injury and T. I might hold off till after the construction so I can maybe place it in the dining room floor for 24 hours and then carry it up to my room. I just hope it doesn’t sell out by then because I will be pissed!

Feeling anxious again so I took my pulse. It dropped 5 points since I last took it. It has been steadily dropping today. After I ate it went up to 89, then went down to 63 and now it is 58. It will probably get lower as the night goes on. I have no idea why my pulse drops when I am in pain. My blood pressure is good; I don’t get hypotensive or hypertensive. I just hate feeling fearful for no reason. I hope tomorrow I can do some more stuff around my room, like putting more clothes in the drawers that I cleared out. Or maybe just put my PJs in there so I know where they are, if I remember LOL. I also had trouble peeing today because I forgot to take my urine retention pill. I was having bad bladder pains and spasms. I was wondering why and then I realized I hadn’t peed since the morning. I wasn’t getting the urge to go because that fucking connection seems to want to work when it wants to work, not when it is supposed to thanks to Cauda Equina Syndrome. My sister was yelling at my mother for something so I didn’t want to go downstairs. I hate that I am walking on eggshells in my own house again because of the bitch bully.

Sunday blog 23062019

Sunday Blog 23062019

I woke up with minor back pain that has only gotten worse as I moved around. My mother hasn’t been feeling good so I made her dinner and that was my breaking point. I can barely move and I can’t lay reclining on my back because my CRPS foot goes bananas. I am so uncomfortable. I did some more stuff today. I cleaned out a tub drawer that has come sheets in it. I washed them so I can put that back clean. They have been in there for quite some time so needed to be washed again.

I had a hard time sleeping last night. Around 330 I was listening to blaring music. Apparently, I was hallucinating because no one else heard it. I had texted my nephew to lower his game. He said the neighbors were arguing. I told him about the music and he said there was no music playing. Fuck. I almost always become psychotic when I am really stressed out. Seems last night I was stressed. I was up till after 4. I honest have no clue what time I fell asleep. I woke up briefly when my med alarm went off but I didn’t get up to take my meds. I took them around noon when I woke up. I honestly didn’t want to but my bladder said I had no choice. I still get the feeling that I am going to lose control when I stand. And today with the back pain I had pain going down my leg. I immediately started having intrusive memories of when I had cauda equina syndrome (CES) the first time. This time is slightly different as the back pain is mostly on my left side where the pain is going down into my left leg. This is the same leg I have the CRPS. I hope I haven’t shifted a disc or something. I am hoping it is just sciatica and nothing more.

My sister was out of the house so I had a peaceful day. We barely spoke to each other when she came home. It was strained but polite. We were worried about my mother as her speech was slightly slurred. I can never tell if it is the beginning of a stroke or her sugar about to crash. The symptoms are similar and I get freaked out. I had called my other sister to let her know because I didn’t want her to come home with an ambulance at the door. Then she would have gotten mad that I didn’t call her. She got mad because I called her and she wasn’t home. WTF I can’t win with these people. I think I am doing the right thing and it is wrong.

My CRPS foot/ankle have been feeling like it is being stabbed since I got up. It was probably because of not taking my ER pain med in the morning. I have no idea why I didn’t take it before going to sleep like I usually do. Maybe I just wanted to get up to bake cookies. I really did want to make these damn cookies but fucking back said no. I could barely stand more than five minutes without it flaring up. I am sad I didn’t make them but I am at the hosp on Thursday so I can bring them by to my psych if I make them on Wed when I don’t have any appointments. I have three this week, my psych, PT, and the therapist.

I finally broke down today. I started sobbing and couldn’t stop even though I tried. I really hope I don’t ugly cry tomorrow. I really don’t like crying but this is so damn devastating. I am so fucking angry at the institution. We both got screwed by them in our respective departments. I got forced on disability and she got forced out because she didn’t want a lower position. I really don’t blame her. I blame the fucking place for kicking her out after 30 fucking years. The fricken profession is short of child psychiatrists and they kick out a good one?? Makes me so fucking angry. I half don’t want my care there anymore. Too many bad memories there. But I really have no where else to go just like my home life.

Because my back is almost out, I am not risking a shower. I set my alarm an hour before I have to leave so I can possibly shower. I hate that the appointment is in the morning but I guess it is better than later. I just started drinking. I had taken my pain meds and within a half hour, my MP3 player played Eric Church’s Mixed Drinks About Feelings. It hit me hard and I felt like having a shot. Then I wanted another. I might have a few more. Then I took my night meds. I am in a don’t give a fuck mood. I am in too much fucking pain to care if I get drunk. Honey whiskey is so damn smooth. Hard to just have one shot anyways.

more thoughts on my blog

More thoughts on my blog

A reader emailed me and I thought about what she said. This is my blog and last time I checked, calling someone stupid wasn’t breaking any laws. So on this note, I have decided to keep my blog open, not password protected. If that monitor person wants to continue reading my blog, there is nothing I can do to stop them. I do know that my stats seem to go up when I post so even if I don’t know who you are, I know you are reading.

I’ve had a horrible day so far. My middle sister has been cleaning my mother’s room. When I got out of my room to take a shower, she said that I had to go through my stuff so she can move her things there. I also had to move the stuff in the living room so she can also move her stuff there. I took my shower and found that the shampoo bottle that had a pump on it, she threw away because the bottle was empty. I was so fucking pissed. I called her an asshole and she got pissed. I don’t care. I am tired of her thinking she is the only person living here and has to make the house the way she wants it to be. I got really suicidal after our exchange. She just doesn’t realize how upset she gets me, like I don’t matter at all. Yesterday she left crap on the stairs, which made it hard for me to go down. I really don’t want to fucking fall and she doesn’t get that my balance is off. She also placed a bin right at the bottom of the stairway, which I kicked out of the way. I got so mad. I texted her, in a neutral way, and got no response. I have no idea if she has blocked me or what but every text I send her, she doesn’t respond to anymore. I sick of her shit. I emailed my psych to let her know what was going on. After the disaster of a family meeting via phone, I really don’t know how to get through to the dumbass. Yet she has the audacity of calling me selfish. Such a projection.

After my shower, I made something to eat. My foot started bothering me but I still did what I had to do. By the time I made it back to my room, it flared up big time. My foot and ankle are competing as to who is going to hurt more. I so want to nap as I have been up since 0630 but I really don’t want to. Will be hard to anyway as there is so much light in my room due to my window being open. I have a hard time sleeping when there is light in my room.

Never had a nap. Just had dinner with my mother. I made hot dogs and beans. My foot wants to fucking kill me. I hate it when simple things cause me pain. You think I was walking miles. Speaking of walking, I really need to get my AFO (ankle foot orthotic) adjusted as my foot keeps slipping. I think I have a bit of atrophy plus with the weight loss, I don’t think it is fitting right. I hate that I gained about 10 pounds while in the hospital, mostly because I was eating three meals a day, but they were huge dishes. I tried to eat a salad with chicken or just a turkey sandwich but it wasn’t always possible because I would forget to fill out the menu for the next day. Sometimes I would skip breakfast as they served eggs at least every other day and I don’t like them. I rather make it. I am just picky like that. The rest of the days they had French toast, which wasn’t bad but it was filling. Since being home, I have been having much smaller meals at least twice a day. Yesterday I just had steak and then a protein bar because I was in too much pain to go downstairs to make something. I forgot how painful stairs were.

I got to fill my med boxes for the week. The doc in the hosp increased the Lamictal and I think it has finally improved my mood somewhat. I kind of feel like what I was before I was in the pit of doom. I am just more tired and on a “day” schedule. I went to bed early, or tried to before pain kept me up till at least 1 am. Then I woke up around 630, only because I had to pee. I am glad I woke up because I leaked. Both my pjs and underwear were wet as I didn’t wear a diaper. I bought a much comfortable brief style while in the hospital because they didn’t have a good kind. I should have brought my own but didn’t think I needed them. Now I know better.

Neil Gaiman’s Good Omens came out the end of May. I got it free because I am an Amazon Prime member. I downloaded the episodes to my Kindle, but I still haven’t watched it yet. I keep meaning to but pain has been a chief distracter. Usually watching a movie or something helps but I don’t have the attention span lately. I can watch short videos and then I get bored if it is more than 10 minutes. I think the only thing I can watch for longer is the Rachel Maddow show. I haven’t watched it in a long while because it was just annoying me. She seems to say the same thing in three different ways over and over. Then she goes on only to come back to the original question or point. I had to take a break and haven’t watched since. Maybe I will watch one episode of Good Omens later tonight, if my pain doesn’t get worse after I do my med boxes.