Progress?

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Progress?

I finally cleared off my bed of most of the books and clothes that had accumulated on the corner of my bed. I also cleared my “office”. Now I just need the motivation and energy to change my damn sheets. I rewarded myself with clearing my bed by going to Starbucks and getting a cold brew vanilla sweet cream iced coffee. I was then rewarded with my bowels going haywire soon after reaching home. I seriously thought I sharted but it was just air, thank goodness. I am now exhausted and my ankle is giving me grief so no sheet changing. Least not for now. My back has been having cramps since I left Starbucks so I am just going to rest. I still have a little stuff on my bed that I need to clear off but the majority of my bed is clear.

Today’s word prompt is “Playful”. It’s funny how these words that don’t have any particular order have significance in my life. I was reminiscing with the voices the other day about how my father hated any type of play that my sisters and I did around him. During one of his angry rages, he broke a treasured chess set that I got for Christmas one year. I never forgave him for breaking it on me. Still haven’t. He never apologized for breaking it and he knew I was upset over it. I tried fixing this set but it was not really the same afterwards.

Another time, I was at my then little cousin’s house. We were playing and I came out of his room with one of his toys because they were really cool. I forget why I left the other kids, but my father flipped the fuck out, saying I was not a kid and shouldn’t be playing with toys. I was like 12? It really hurt me and I cried I was so upset. I think I went in the bathroom to cry. My cousin’s mother saw this and said it was okay for me to play.

Both times that I have recounted this story, it brought tears to my eyes. I think it was the kindness my cousin showed me that proved that not all parents are bad and mean like my father. I have other memories that are painful but I won’t rehash them today.

I got an email from TSPN (Tennessee Suicide Prevention Network). They apologized for taking my work without my permission. They said they would inform me in the future if they want to use my work for their newsletter. They also encouraged me to contribute more things to them, if I desired. I think I might write up something for them. If you are an attempt survivor and want to contribute your story, contact them through http://www.tspn.org. The name of the newsletter is called “can you hear me” (CYHM).

When I came home from Starbucks, or as I was on my way home, I became really paranoid. It was very scary. I thought people and objects were talking to me. As a bus drove by a van, I could have sworn it was talking to me. I couldn’t wait to get off the bus. I have never been psychotic like that before. I took a trilafon when I got home because I was so agitated. I am feeling a little bit better now. I wish my psych was available. I would page her to let her know this happened. I still feel kind of uneasy. But the trilafon is helping me so I don’t think I need anymore meds to feel calmer. The nice thing about this drug is that it lasts for at least eight hours so I should be covered until I take the abilify tonight.

Speaking of abilify, I was reading a blog today where the blogger was having bad side effects from the medication. She is experiencing agitation, more mental than physical and it’s making her feel suicidal. She carefully weighed this drug over many others before taking it. I guess the Seroquel she was taking was no longer working for her so she needed to switch meds. She is also experiencing insomnia. Not good for someone who has bipolar disorder. I hope her psychiatrist gets back to her about what to do and she seeks help before acting on her urges. I wanted to comment on her blog but I had no advice as abilify has worked well for me, aside from the extrapyramidal symptoms I experience every now and then. I take Ativan to counteract them. Otherwise, I would be so screwed. I have noticed that as I have gotten older, my psychotic symptoms have gotten worse. I used to be able to take an anti-psychotic just when I was having symptoms. But since 2008 when I had a psychotic break, I can’t stop my meds at all. Even missing a dose can send me into a psychotic delusion. I have been on many meds for psychosis but they have had serious side effects. I can make a list but there is no point. It’s an exhaustive list. You name it, I probably have been on it (unless it’s come out after 2009). The only class of drugs that I have NOT been on are the MAOIs. That is because I don’t like the diet restrictions these medications have. I am lucky that the current regimen that I take suits me.

Hosp vs no Hosp

Hosp vs no Hosp

I have been thinking about this for the past hour, talking it over with the voices. They are loud tonight. I haven’t taken my night meds yet. But I am thinking this, what if I go in the hospital and they smack the “complicated grief” bullshit on me because my father died two weeks ago? I have been struggling with the hospital for more than a month now as the depression was and has been steadily getting worse. I only avoided getting in the hospital a week before my father died because I didn’t want him to die while I was inpatient.

My depression started the last week in January and then got complicated when my father had to go for radiation treatment, then two weeks later was in the hospital because of chest pain. That started his decline. We spent most of March in the hospital with him for pleural effusions, lung collapses, and ascites build up. In April, his ammonia levels were up, causing confusion and more lethargy. His appetite then became non existent and we were told he had a few weeks to a few months to live. Turned out he had just a few weeks. We put him in the nursing home on April 8th and he was gone by April 25th. Not even twenty days later.

In the middle of March, I got started on an antidepressant. Thoughts of wanting to kill myself were rampant. I should have been in the hospital but I became my father’s health care proxy during one of his admissions in March. I couldn’t go in because if they needed my signature while he was confused or needed treatment he couldn’t consent for, I had to be there. It was a delicate situation.

I think starting on antidepressant therapy helped me cope. I still wasn’t eating as I have lost a considerable amount of weight during this time. My last physical in August, I was 218. I am now 203/205. I am struggling to keep this weight because I don’t want to balloon up again. I still don’t have a full appetite like I used to have. Food doesn’t interest me much. I lost a lot of interest in things I used to enjoy. I should be watching the Sox game right now but I am blogging because I really don’t care about the game anymore. It’s lost its appeal with me, and that is not because of the team and all the drama it has this year. I have also lost interest in coffee. I don’t drink it every day like I used to. I can’t remember the last time I made it at home. I don’t go to Starbucks as often as I used to either. I just lost the taste for their coffee, which I used to love. I go there out of habit now but only if I have an appointment in Boston. Otherwise, I just stay at home.

I don’t know if I need to be in the hospital. Sure I am at risk of suicide, that is a given. But will I be helped while being in, is the question. I don’t know if it will annoy me or help me. I don’t know what hospital I will go to. If it isn’t the hospital I was in before, I will hate being somewhere else. The past three years I have been going to this unit when I need to be inpatient. It will be difficult being somewhere else that I haven’t been to before. And I don’t want to be in the ER all day and night waiting for a bed, though I will if that means going to the hospital of my choice. Last admission, I made it to the hospital and was admitted through their admission office rather than through the ER. I just cut the middle man out.

I just really don’t want to be admitted and then have the admission focused on my grief for a father I really didn’t care for or love whole heartedly. He wasn’t a dad by any means. He wasn’t loving towards us, though he probably would have said so. The only time I seen him show affection was when he won at the track and wanted to share his prize winnings. I could go on about the cruelty of the man but I won’t. That will be another blog. I will be damned if some social worker or attending psychiatrist pegs me as a complicated grief stage when it’s only been two weeks and I have been depressed since around the 19th of January. I only remember that date because I know that is when my feelings changed and my appetite became less. The physical symptoms of depression reared it’s ugly head and I was in pain. I was walking in mud. My thoughts were slow and painful. It took me hours to write a 300 word blog. All the while, I would have urges to take a bottle of pills. It didn’t matter which one I took. I just knew to not reach for my pain medication because I was not going to die of liver failure due to acetaminophen. That bottle was not to be touched. All the others were up for grabs. I had a choice or I could take all of them. Mix and match. I didn’t care as long as I didn’t see tomorrow. My hanging myself went out the window because I don’t have a beam. And partly because I don’t like things around my neck except for a tie.

My father died before I could have killed myself. I find this ironic. I know that between my therapist and my psychiatrist, both will make it so I get in the hospital. The only question is what kind of care I will have there. I know I will have a mountain of meds to sort through and I hope they don’t deny me my pain meds. I will not be happy about that one bit. I guess that it’s the care that keeps me from going in the hospital as well as the list of medication that I take. I take around 12 pills every night. I know if I go to the hospital of my choosing, it will be more like 20 pills because they will break up one of my medication. Instead of taking 1 pill, I will be taking 4. I go through this every admission. They don’t have the formulary in the hospital so they make do with another formulary, which means more pills. Guess I will find out tomorrow if I will go in or not. I am scared though. Giving up my rights and my cell phone is hard, even if it is for a little while.

25 years of mental illness: the beginning

25 years of Mental Illness

Twenty-five years ago, I started the world into therapy and madness. It was my aunt’s birthday. I stayed home because I didn’t want to go to the party. My father called me a liar and I lost it. I needed an escape so I started scraping myself with a pair of scissors, hoping to dig into a vein to end my life. The deeper the scrape was, the more it hurt. I barely exposed the adipose tissue but had scraped away most of the dermis. If I had continued, I probably would have reached the fatty layer. I didn’t plan ahead so I didn’t have a bandage to cover up my wound. It was burning as air hit it so I just covered it with my long sleeves. The next day, I went to school and carefully kept the wound concealed. I have no idea how I kept things together and just went on as if nothing had happened. The next night, my cousin had come over the house. He wasn’t supposed to be there. My father had banned talking to him because he lied to him, too. It was scary because I knew there was going to be a fight when my father came home for dinner.

And he came home. All was calm at first. Both men were civil towards one another and then my father’s explosive temper exploded. He wanted my cousin to leave. He refused. My father got really angry, threatening him. All I could think was that this is bad. Then my brilliant father thought of shooting my cousin with his rifle. I dissociated and was hearing bullets being fired. I felt like I was in a war zone but no gun had gone off. My father kept threatening my cousin and my cousin became indignant, refusing to leave. So my father got his gun. He loaded it and then threatened my cousin one last time. I snapped. I got between my father’s aim and my cousin and told my cousin to just fucking leave. I was so terrified that something bad was going to happen that night. My cousin threw me in my room so forcefully that I have a mark on my nose where I hit my heavy bureau and moved with it. He closed my bedroom door so forcefully, that I couldn’t open it. My mother then, I think, told my cousin to leave. He left. My father was still ape shit. Never had I seen him so mad before. My mother was in her bedroom and I think she may have had a hypoglycemic attack, I am not sure. I was in my room. I was fighting the voices who were going ape shit at me. They wanted me to talk to them, to ally with them. I couldn’t think straight. The voices wanted me to kill myself. The leader of the voices ordered me to kill myself. So I got out the pair of scissors from the night before and started over again until I felt no pain.

My father had taken the phone off the hook. My idiot cousin kept calling to see how we were doing. Asshole. He started the whole fiasco. How do you think it was doing?? I was so terrified that his brothers and my uncle were going to come to the house to kill my father it wasn’t funny. I barely slept that night. I was in pain, both physically from what I did to my wrist and mentally. I wanted to die so bad that night and prayed for death that never came. The voices were hounding me left and right. But I kept my mouth shut. Something told me that if I escaped to their world, I was never going to leave it. I had to stay in my century as bad it was. I lost faith in my father that night. He tried to kill a man for no reason except because he was defying him. He made no physical attack toward my father and my father didn’t do it either. But the damage was done that night. I had started cutting to save my life and I liked it. I was hearing voices on a continual basis, telling me what to do and no one knew this at all.

The next morning, it was just like the previous morning. Everything went on as if nothing happened. I got dressed for school, wore long sleeved sweatshirt, and left the house like I normally did. I got to the corner of the end of the street and lost it. I started crying. The events of the night before came flooding back. The voices were still trying to get me to talk. I was a bubbling idiot. The more I tried to control my tears, the more I cried. I don’t know how, but I finally got some composure and went for breakfast. Kids always copied my homework because I was the smart one in school. I gave it up and didn’t care if I got it back. I barely said two words for fear of crying again. I made it through my first period ok. But during homeroom, I lost it again. Someone asked me something and when I bubbled an answer, I lost control of the tears I was fighting back. My best friend noticed and asked what was wrong. I said nothing. My wrist was throbbing with pain. Thankfully because I wasn’t alone, the voices were just hiding out, just waiting to attack me when I was alone. I went to my second period and there my best friend told my teacher something was wrong with me. I wasn’t upset with her. I must have looked a mess from crying and keeping my emotions together. The teacher pulled me aside once she started a movie for the class. I thought I would be able to sleep with the movie going but she wanted to talk to me. I told her I was fine. Nothing was wrong. Then she rolled up my sleeves and I was caught. She said to wait for her after class. I felt like I was in trouble and I was never in trouble with a teacher before. I was always the nice one, the goody two shoes.

She took me to the nurse and they talked for a bit and then it was my turn. I think I told her I tried to kill myself last night, that I wanted to die. My father had a big fight. I didn’t tell them about the gun or my father trying to kill someone. I didn’t want the police involved. My father would kill me. My mother knew I had problems. When I was ten I told her I was going to kill myself but she didn’t believe me. Now, five years later, it took the word of the school nurse to believe me. We went to the county mental health center where I was evaluated. I was tired of going over my story again and again. I didn’t tell them about the voices and they didn’t ask. They just wanted to know if I was suicidal and I lied. Told them I was fine.

I kept in contact with the school nurse for the weeks following this traumatic night. Eventually, the nurse convinced me that I needed to see a school counselor and so I agreed to talk to her. I told her about my abuse, all of it. The sexual abuse at the hands of my cousin (same one that instigated my father) and my mother, the physical and emotional abuse of my father, and the neglect of my mother as well.

In my mind, I had killed my parents when I was 12 and had been an orphan since I was 10 when they died. It was the only way I could survive. I was tossed around between family members and no one wanted me because I was unloveable. Eventually, I started talking to the voices again. They didn’t want me to and were still telling me that I had to kill myself so that I could live with them, to start a new life. I never believed them. I must have had at least a half dozen voices in my head and most of the time they were all talking together, among themselves, about what to do with me. They knew I had to die. I knew I had to die. And so my path to the world of psych began and still continues to this day.

Random 601

I had a good nap, a much needed nap. I was going to go to the post office to get some stamps but I will do that tomorrow. I can’t wait till they come out with the Star Trek ones. I will be buying several sheets of those.

I feel like I have wasted the day because I didn’t do anything but make my turkey sandwich. It was so good. My mother is making stuffed chicken breasts. I don’t have the heart to tell her that I am not hungry. Even though I ate around noon, I am still full from lunch. All week I just been having one meal a day. Today I have had two as I had cereal in the wee hours of the morning. I really wanted to make an egg burrito later in the morning but I never did. I fell asleep and then it was lunch time. I think the only reason I had two hours of sleep was because I was hungry. I didn’t have dinner or lunch yesterday.

My sister texted me. I need to watch my little niece, though she isn’t so little anymore but she isn’t old enough to be on her own, just yet. She’ll probably just play on her game. I will bring my tablet down and read Dostoevsky. I hope I don’t have to make her dinner. I suck at making it, even mac and cheese. I can never get the mixture right.

I am feeling a bit low today. I know I am depressed because my eating is off, all I want to do is sleep, and I just can’t focus on one thing for too long. Last night the window was talking to me again, like really talking to me. It freaked me out because I never had inanimate things talk to me before. Sure I have had TV and radios talk to me but not windows. It was just murmuring something and I just couldn’t make out what it was saying. My regular voices were really quiet. I feel like I am losing my mind. I am afraid to tell my psychiatrist or my therapist about this because I don’t want them to worry. They’ll probably tell me to take a trilafon. And I will start taking it once I move my damn bowels. I haven’t gone in three days so the window will have to talk to me for a little while. If it talks to me tonight, I will take it. I don’t want the window to start to tell me to do things. That will be bad. I wish it was like noises in the street or something but the window is in my back of the house away from any street or highway. It points toward my back yard.

Other than my not eating right and my sleep being all over the place, I still feel pretty crappy. I think I am going to send last night’s blog to my therapist so I don’t have to go over again what hassle my father put me through last night. It was terrible. I still am mad at him.

Finished babysitting and now I am really tired. I still haven’t moved my bowels so I just took some fiber pills. Only thing I am taking tonight is stuff to move them. I really need to go because I am starting to get uncomfortable. Screw everything else. I know that is not a good thing to do but I don’t care.

I really hate when you are depressed that you don’t really feel depressed you just feel nothing. Like nothing is ever going to change. It’s not a hopeless feeling; you just feel nothing inside you. It’s like you can feel your organs of body but other than that you feel hollow. It takes strength to breathe because you have to force air in and out of your lungs. You really just want to stop your heart from beating but it just keep going. It annoys the fuck out of me when it just beats it merry beat, like ha ha you can’t die because I am still beating. People in the mental health world like to call this beating a purpose. How can it be a purpose when it’s just a fact of life? You can temporarily stop your lungs from taking air but you can’t stop your damn heart, not by ordinary means anyways. Maybe with a bunch of cardiac drugs but who has those handy?