Evening Saturday Blog

Evening Saturday Blog

For the first time in the last two weeks, I missed my afternoon dose of trilafon. I am kind of beating myself up about it but there is nothing I can do about it unless my symptoms come back in full attack. They haven’t so I think I am okay with just taking 4 mg tonight. It was one of those, yea I will take it in a minute and then forgot when the minute passed. I do the same thing with my blood pressure meds, which is why I have an app that reminds me to take my meds.

I usually take my first dose of trilafon a few hours after waking up, usually after or while I am having my coffee. I figure if I take it with the coffee it fights off the drowsy effect. Today I had two cups of coffee and I was still tired by the end of the baseball game. I pretty much watched it from beginning to end, well, watched a couple of innings and then listened to the rest of the game. I am happy they beat the Skankees again. When Sandy Leon was batting, I just had a feeling he was going to hit a homerun. I didn’t say anything because that jinxes it. And when I heard Joe Castig say that ball is gone, I was whooping up and down on my bed. It was so sweet. That made it 5-1 at the time. The final score was 5-2. It was a good game.

I finally finished one of the books that I started but my Kindle ran out of juice. That is the only problem with technology, needing power. A regular book doesn’t need that kind of power. You just have to remember to carry it with you. I had already finished the single but at the end it had the beginning chapter of another Keller series. I think I already read it as it sounded familiar. The book is written by my favorite author Lawrence Block. Keller is one of his characters that I like. He plays a professional assassin. Block’s first book that I got hooked on was “Eight million ways to die”. He had this series by another one of his characters called Matt Scudder. I just fell in love with Matt when I was 15. He was struggling with his issues with alcohol and I was struggling to stay alive with my suicidal thoughts. Block’s books gave me the much needed distraction to keep going. I feel like I should write to him, but I don’t want to sound corny. I do have his email address because what I have to say will be longer than 140 characters in a tweet. I am not that tactful.

Now I am trying to get into a Scudder-like mystery/crime novel written by Robert Galbraith aka JK Rowling. I read the first chapter this morning and it was so meh. It was just so ordinary. It reminded me of a book by Block, “out the window”. I know that I shouldn’t be judging this like a Block book but when that is all you have read for the past two decades, you kind of have a standard. But this book, “The Cuckoo’s Calling” was a National Bestseller so who am I to judge it.

I have been reading my blog from two years ago. Seems like almost every day I wrote more about my pain than about the suicidality I was feeling. My blog has taken such a turn from being about my suicidality to chronic pain that I had to change the brief description as it was more about my physical pain than my psychache. I know I don’t write about my suicidal thoughts that much anymore. I still get them when my pain is off the charts. But it’s mostly my physical pain that is off the charts lately. My psychache seems to be in check. I guess being on an antidepressant has benefitted me the last few months. There was a time back in September 2015 after my New York Times article was published that my depression got worse. I am so used to it that I hardly remember when the episodes start and when things get worse is usually when things start clicking that something is wrong. It’s rare that I get physical symptoms of depression. But that is how bad things got. I just wish the weight I lost was more significant than it was. Only because I gained it all back, sadly. I was so damn close to losing my ideal weight but nope, it wasn’t meant to be. I am just grateful that my NP isn’t a big weight freak like my PCP was. It was really stressing me out and actually caused me to gain weight than lose it.

I have no idea where my writing is going. I have thought about it a million times but nothing comes to mind about what I want to write. It’s been months since I wrote something. The only thing that I did write while I was in the hospital was the first hour of my father’s home visit before he died. He lived only two hours after bringing him home from the nursing home. I still haven’t written it up. Nor did I finish it. The last hour was difficult to write without having PTSD symptoms. I never wrote it. Tonight I was thinking about the last time I saw him before he died. It wasn’t as painful as it once was. I also wrote a lot about him in 2014 in the blogs that I read. That was when he had a GI bleed and his hydrocele surgery. I didn’t write in detail about his illnesses because it is my blog and feel that I should be writing more about my feelings than him. He was the source of my suicidality for a long time. Now that he is gone, I am less suicidal. Don’t get me wrong, I still get suicidal. It’s just that his joking and torturing that made me want to die is gone. He just made you feel like a nobody. And that is how I felt whenever he was around. I also felt like I didn’t matter, that his needs were more important than mine, because they were. He had to come first and if he didn’t, he got so mad. That was how he was. And unfortunately, I miss the bastard.

Psychosis That Lingers

Psychosis that lingers

I was reading some of my blogs from earlier this year. I do this on occasion to see what I wrote as I usually forget what I have written the majority of the time. Apparently sometime in January, I was having a psychotic break, even though I was taking the abilify. In my blogs, my therapist wanted me to take my PRNs, which I can only assume was trilafon to help quiet things down. I had refused. Now that things have escalated to the point where they are now, It’s no wonder I can’t get a hold of things.

I am glad the trilafon is working as well as it can be. I have been taking at least 4 mg faithfully the last few days since getting my mail order prescription. Some days I need 8 mg because the voices are just too loud or things are just “weird”. Like lyrics telling me what to do or music changing their meaning. I might also be paranoid. I know eventually I will become tolerant to the 4 mg where it doesn’t work for me anymore but I hope that doesn’t become the case. It’s obvious from my blogs that the abilify lost its ability to work for me.

There are many reasons for this. Having to lose a parent and the stress of the grief was one major reason. Having to go through a SSD review was another. Not to mention a review for my student loans which still has not been decided yet. Add in the stress of my back problems and knowing I am pretty fucked if I move the wrong way doesn’t exactly make be feel comfortable.

Then you have the external stressor of terrorists that I believe are really aliens looking for power to control the world. One way or the other, world war III is going to happen, eventually. It’s going to be against, possibly, religion or an us vs them mentality. I don’t know who is going to be president of the US in the upcoming election. I hope it’s the democratic nomination but you never know. And if it’s the republican nomination, the world is screwed, not to mention the US. I cannot fathom a racist president will run the US.

It’s been seven months that the voices have been out of control. It’s been a month that I have been off the abilify. The only thing that has stayed constant is my chronic pain. My suicidality has been in and out. Some days it’s very much apart of my life and other times it is barely on my mind. Lately, It has been on my mind more. I so want to escape the harsh reality of being commanded by voices that nobody can hear. They keep telling me to do things. They haven’t specifically told me to kill myself but I fear that they will soon, even with the trilafon that I have been taking. The voices now know that I have been taking trilafon. It’s candy to them. It works most of the time. It’s not perfect because unlike the abilify, I have to take it every 6 hours or so. I am bad at keeping track of the hours so when I start to feel paranoid or can’t stand an object talking to me, I will take another dose. I never exceed 8 mg a day. I am too tired by then and usually am in bed after the second dose, if I need it.

I have been reading Harry Potter tonight. I read three chapters. I wanted to read four but I just can’t. My meds have kicked in and I will be going to bed shortly. I have absolutely nothing to do tomorrow except possibly call my psych. I want to let her know what I found out. I think it’s important for her to know how long the psychosis has been going on. This way she can make a clinical decision if she needs to.

I was having zaps earlier this evening. I seriously thought about emptying a bottle of Neurontin in my stomach. I hate zaps. There is nothing I can do for them but wait for them to pass. I hate nerve pain more than my chronic pain that I have. Least with the chronic pain, I can get relief with my pain meds. It really had me feeling suicidal. Throw in the intensity of the voices and it’s not a good mix.

Just another reason

I didn’t take my trilafon last night so I have been hearing voices the past couple of hours. We have been having a grand conversation about things, most about what I should or shouldn’t do. I woke up later than I wanted to because I woke up in the middle of the night and couldn’t go back to sleep right away. I wish I had woken up just ten minutes sooner and I would have been able to catch the ten o’clock bus like I wanted to. But I didn’t so I had to wait an hour for the next bus to the Square. I got a large coffee, my favorite summer drink is the cold brew iced coffee at Starbucks with vanilla sweet cream. It’s so good. I had it with extra cream today and it was sweet. I am going to be so sad when they discontinue it. Any thing that I love, they discontinue. I am sure it is just for the summer and then it will be gone.

After I got my coffee, I left to go to my PCP’s office to get my prescription. It was really hot out as I was walking outside to get to the building where she is located. I was expecting the AC to be on freezing but it wasn’t. It was cool though. I got my script and then left to go home to get it filled. This would make my third or fourth trip to Walgreens this week. I waited for my meds and then came home. The mail lady was sitting in her truck so didn’t deliver the mail yet. She is so damn slow.

My ankle started hurting me on the walk home. I didn’t bring my cane with me and I wish I had. Damn foot just didn’t want to flex so I was somewhat lifting it or dragging it as I was walking the last leg of the way home. I took some pain medication soon as I got undressed and into my PJs. I am going to try and watch a movie today to keep from being on my feet. I don’t know if I will be successful as I am not that interested in a movie at the moment. I might read some. I am making progress in Brothers Karamazov, but I still have a few more books to go. I had no idea how religious the book is. It kind of reminds me when I was going to the Catholic church when I was younger. I never really read the bible unless there was some purpose in reading it, like say for a class project or something. I have tried to read the New Testament but could never get into it. I remember for my Russian class, we had to read a passage in the bible. Luckily, my niece had one. I also downloaded it on my Kindle app for my tablet. Unfortunately, you have to start from the beginning. You can’t go to sections that you want to read on it, which kind of stinks. Maybe with the Kindle Fire I can maneuver around more, if I choose to read it. I am staying away from all types of religion for now because it doesn’t help the delusions that I am having.

Mood wise, I have been all over the place. I have been feeling ok to feeling really depressed. I am still suicidal at times. I just hate being in pain. I just want to die so I don’t have to be anymore. The voices are making it tough to think straight. They are still wanting me to take most of my pills by the bottle. It’s a difficult fight. I know that I should probably be in the hospital but I just can’t bring myself to go in. I know I will be doped up and I don’t want that. Or they might restart the abilify and I don’t want to take that drug anymore. I know it helps quiet the voices. But I just can’t go back to taking it. I fear my life would be in more danger than it is battling myself. It’s been three weeks since I have been off this medication. I take the trilafon almost every other day, but not consistently. It helps keep things low key. I just need some time to sort things out for myself. I know it is dangerous and my therapist and psychiatrist are concerned about me and my safety. But they trust me, even if my judgement is impaired right now. I am still in control. I go to the hospital and things are out of my control. I won’t be able to take my pain meds when I want to take them. I will have to deal with feminine products because my fucking biology is messed up for whatever reason. I hate being in the hospital dealing with menses. I rather wait it out some more days to see if it goes away on its own. Otherwise I will stop the pill and see what happens. I should contact my repro endo doc and see if she has any ideas as to why I am fucking bleeding twice this month. Just another reason for me to kill myself.

TG Issues, on being suicidal, and being psychotic

TG Issues, on being suicidal, and being psychotic

Because I took the senna last night, even though I had loose stool yesterday, I have been going to the bathroom most of the day. And I have been finding that my menses have returned for whatever reason. I am beyond pissed because I stopped the pill earlier this month because of bleeding. It’s the middle of the week so I can’t stop it, again, until Sunday. It’s only minor bleeding but still, it bothers me because it shouldn’t be happening. I am also wondering if this has played a part in me feeling super suicidal yesterday morning. I still feel suicidal but not to the degree I was yesterday. I was even ranting about being suicidal last night on Twitter.

I called my pdoc this afternoon to check in with her. I also needed some more trilafon. So far, it hasn’t been called in. It will be the only reason for me to go back out again today. I had gone to Starbucks for iced coffee, which didn’t help my bowel situation, but I wanted the cold brew coffee. I am going to be so sad when they discontinue it. I also got my burgers for lunch and dinner.

I told my pdoc that the voices are still kicking around but the trilafon is keeping them from getting worse. I really hope there isn’t a problem with the pharmacy like the last time or I am going to flip out. If anything, I need this medication to help keep me stable. It’s the only medication I am willing to take at this point. If I don’t get it, I will have to go in the hospital and that could get messy, especially with me bleeding. I HATE going into the hospital with feminine products while trying to be transgender. It’s just humiliation. I don’t know how long the bleed is going to last. I am really surprised I got it twice in the same month because I have been careful to try and keep it on schedule, give or take a half hour or so. I think there was one day where I took it really late because I took a nap. Other than that I have been keeping to a time table.

My therapist called. She is trying to see if we can have a session today but it doesn’t look likely, unless someone cancels. I told her flat out I was still suicidal. I don’t know if the hormones are playing a factor but she wants me to consider going to the Boston LGBTQ clinic. I have been hesitant to do so because I am not ready to go forth with my transition. Yesterday I got my birth certificate so at the end of July, I will be changing my name. I think once I get my name changed on every document, I might go with hormone treatment. Until then, it’s just waiting out the damn suicidal periods that come with being something I am not.

Last night or the night before I was reading my blogs. I found out that the voices have been active since January. They are active all the time but for me to make note of them being especially noisy is a cause of concern because a couple days later is when I marked when my depression started. This means the voices have been going on longer than I thought, which is why I am so psychotic and paranoid. Granted the events of what happened in Orlando and Istanbul haven’t helped ease my paranoia but it’s starting to look like I might need a hospitalization sooner rather than later. I just don’t want all the voices to go away because then I will feel lonely and sad. I really don’t feel that messed up. It’s only when they want me to take more pills that things get out of hand. But the trilafon keeps those voices at bay. I don’t see my psychiatrist until next Friday. I wish I was seeing her tomorrow. I might page her again, if I feel like talking.