Tag: psychological pain

Sunday Palindrome International Day 02022020

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders, recurrent major depressive disorder

Sunday Palindrome International Day 02022020

I am a number nerd. I don’t know how I became one, probably because when I was little I wanted to be a mathematician like the show I was watching that right now I cannot remember. It was a spin off of some detective cop show called Dragnet. The math show was called Mathnet and it was really interesting. I think it played for three seasons and then it was cancelled. I felt bad because I really loved this show. So today’s date, 02022020, is an International Palindrome because both US and Europe write today’s date the same way for the first time in forever.

I haven’t been able to find out if that little rodent called ground hog saw his shadow or not today. They always bring about the movie Ground Hog Day. It is a movie that I have not seen, mostly because I am not a Bill Murray fan. I did sort of like him in Ghostbusters. I tolerated his presence.

Today I was going to try and make room to have access to the alcove in my room. Only problem is that my foot and ankle bones are being crushed and hurt really bad. Some pressure fluctuations are going on and my foot isn’t liking it one bit. Pressure is 29.34 right now. I am going to keep track of it because this bone pain is horrific. I just want to die right now and I am wondering why I cannot act on my thoughts. It’s always a slippery slope. I feel like I should be in the hospital but with the catharizing and upcoming neurosurg appointment, I really can’t be in right now. I was feeling hopeful earlier as I sent off an email to my psychiatrist to see if she is still going to write a letter saying I can have top surgery. I really would like to have these suckers off in the fall of this year.

I was having a weird something going on last night. In this something I was imagining telling my therapist how I feel about her. It came out in a sarcastic tone and then it got serious and we spent time talking about whether or not to continue. I have developed feelings for female therapists for nearly every one of the 14 I have had. Only two were male in this psychotherapy stuff, not counting group therapy. My therapist is around my age (so she says). She is cute and funny and sarcastic as all hell. She also has a caring side but doesn’t show it that often, which annoys me. She doesn’t want me to depend on her and I get that but I really need to know that she cares or this is just not going to work. I understand she wants to work with “this population of people” but that isn’t the same as knowing you give a shit about me. I can’t work with someone who doesn’t care because I feel it is worthless trying to. I’ve had my doubts about her since the first day I met her. I just don’t know if she is the right one or not. Yes, it has been seven months we have been working together. There are qualities about her that I really like but if I don’t feel cared for, then I don’t think it is worth it. I’ve never had a therapist this straightforward before. She doesn’t tolerate my “I don’t knows”. Instead of saying, “yea you do” she will say think about it then answer whatever it is that she asked for. I am very quick to run away from my feelings and she knows this. Trying to stay with my feelings are so damn difficult. I want to feel blank most of the time because it better than feeling turmoil. She challenges me and I challenge her with my quick runaway from feelings. She always brings it back to me when I run away from something. Lately she has been catching on so will stop the maneuvering away and that is the roadblock. I will shut down and it is so hard to go back to that place I was just a few seconds ago. I will also do this while blogging. Feelings will come up and I will take a break by going on the internet for a long while then come back to the word doc and be like where the hell was I. It is then hard to get back into writing the blog because I lost the feeling for too long. I have been trying not to do this, to stay with it and keep focus like my therapist is slowly teaching me. But it is so hard because I always want to run away. I don’t want to feel.

I need a nap but I am not sure my pain will let me. It’s 3pm right now. If I get at least a half hour’s rest, I should be good. I really need to lay down as my back has been hurting as well. Not horribly so but just annoying. Also worries me because I think I am going to have back surgery. I think the pain meds have been blocking my back pain so I don’t know how bad things really are aside from the bladder issues. I am so damn nervous. I might be blogging about this all week so if you are a daily reader, now you know what is going to be written about every day this week or whenever I post my blog.

First bad news of the year

by Midnight Demon, posted in blogging, cauda equina syndrome, Chronic pain, chronic physical pain, CRPS, depression, mood disorders, recurrent major depressive disorder, suicide

First bad news of the year

I’ve had bladder pain all weekend and my uro is out of the office due to illness so she wanted me to see my pcp. My pcp wasn’t in the office so I went to medical walk in. The doc there was concerned I might have appendicitis so he had me down for a CT scan. The scan indicated everything was normal except my spine which had advance discogenic degenerative changes from L2-L5. Not the news I wanted to hear. I am already freaking out over my upcoming neurosurgeon appointment and this just added to my nerves, no pun intended. I am going to ask my PCP to tell him what has been going on and to see what he (neurosurg) wants to do. Maybe he wants to see me sooner than the 5th. I don’t know. My psych said that if I have surgery, she will visit me. Least that is one way of seeing her again. Though I rather it be her new office not my hospital room!

I’ve been in a mood since I came home. I want to self-destruct. I sent my psych a message that I am keeping things as best I can even though I want to plan right now (I didn’t tell her that). If I had some lethal method I would probably act on it. I am keeping focus on things other than suicide and that is very hard when you just want to end your life because things suck so bad right now. I did some Amazon shopping. I probably will do some more tomorrow as there are a few things that I need that I didn’t get. I just don’t want three charges all on the same card.

Voices have no calmed down despite me increasing the dose back to 4.5 mg of Invega. I might have to wait a bit. I canceled therapy for tomorrow because I just can’t go back to the hosp. I am so frigging tired and the stupid doctor hit my right heel to see if it caused abdominal pain that it flared up the sensitivity and my Achilles heel as well. I am in pain all over the place. Plus my ankle is in HUGE amount of pain. It locked up on me again when I came home soon after I took the AFO brace off. I haven’t eaten anything substantial but I gained five pounds since the last time I was weighed. I don’t know when that was but I was five pounds less. I am upset over gaining the weight. I was doing well to stay below 200 but I couldn’t stay off. I just had ensure when I came home and Gatorade. I am not hungry, even though I should be.

On the way home, I found out the GOP Senators were traitors like they have been the past two years and Derek Jeter got into the HOF. I am happy about Derek. He has my deepest respect because even though he was a Yankee, he played with heart and class. Unlike some people that will never make it into the HOF.

I am feeling really out of sorts. The voices are continuing to tell me I am meaningless and worthless. This has been going on for a week and I am about to snap. I don’t know what I will do but it won’t be good. I am trying not to give into my impish ways. I just feel so awful about my back and there is nothing I can do except wait until I see the neurosurg. I also got to wait two days for the urine culture to come back to see if I have a urine infection. That is a lot of waiting. The doc gave me the choice of going on antibiotics now but I didn’t want to be treated for the wrong bug so I decided to wait, which is the right thing to do. Just sucks. The urinalysis wasn’t positive at all so I don’t think there is any bugs causing the bladder pain. Nothing showed up on the CT scan so I am starting to think this is a CRPS thing. If I am right, this is going to be a problem when I have top surgery. I got to read more into Type1 CRPS. Type 2 is supposed to be the “bad” one. But I don’t have that so it shouldn’t be spreading to my bladder. UGH. I got to play medical detective because there is no one else to play with the clues. Though the pain is bad but not as bad as my ankle pain. Not choosing pains just saying. I hope I can sleep tonight but tomorrow is shot and pay day so I doubt it. It’s already 11pm. I will probably give the T at midnight. Sleep for a few hours to wake up to pay some bills then sleep some more. I want to get a haircut tomorrow. I kind of fucked it up as I went wild but I don’t think I did a too bad of a job that my barber can’t fix.

My sister is sick and when my other sister told me I laughed out loud because she opened up all the fucking windows in the house when it was like 18 degrees out. Fuck. Serves her right. Dumbass she is. I have my window open and I only got sick because my mother doesn’t wash her hands or cover her mouth when she coughs, and she has had a bad cough. Her foot doctor sent her to her primary as she had a bad coughing fit. UGH. They have her on antibiotics, which is good. If they have her on something else, I doubt she will take it. She will pay for it but she won’t use it. I don’t get that at all. Meanwhile I got to remember to budget my money this month so I can get my meds. I forgot last month. My bad. January is tough. I don’t even know what my monthly insurance is going to be yet. I haven’t gotten the invoice yet. I am thinking it is going to be at least $232, might be more but I will stick with that for now.

1st cold in a while

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

1st cold in a while

I got my first sickness of the year. I was starting to come down with something over the weekend and now it is full course. I am coughing and got a runny nose. I am all congested but no fever. I ran out of Nyquil so I am just taking vitamin D. I feel a little better today even though I am stuffy.

My urologist got back to me today. She is sick but wants me to drop a specimen to the lab tomorrow and have my pcp follow up with it. So I sent him a message about that. I don’t know if it will be tomorrow though as Wed I need to see my therapist.

I still have the assignment the therapist gave me last week that I haven’t done yet. It is hard because I have to think what three need mean to me and how to achieve them. The first one I picked was achievement, to increase self-regard by the successful exercise of talent. I often dismiss my achievements like they are nothing. For example, the PT I saw was amazed I was able to get to her appointments from the next two towns over by public transportation. To walk to the bus/train stop and then go to and from. She gave me credit for that and I never thought of it that way. I would sometimes I have a pain flare after, but that was something I did without it being a challenge. Writing lately has been a challenge. I would love to write at least five days a week but I know there are days where I am not feeling up to it physically or mentally. It is hard to write when you feel like complete crap or your ankle is screaming on the top of its lungs.

The second thing is play. I would love to have a chance to go to the chess club more but sleep is more important to me. I have to plan the day because I have to take the bus on a Sunday. Then walk to the plaza. Sometimes they go to the coffee shop if the weather is not great and that means I have to have money for coffee. I usually don’t carry cash and I am often broke by the time I get paid. Just trying to have an extra $20 for a haircut has been hard. That also makes me feel good, to have a haircut. I wish I could go more than once a month but budgeting it now with having to budget my meds hasn’t been possible.

The third thing is defendence, to defend against assault, criticism, or blame. I need to stand up for myself more in my house. I let my sisters and mother boss me around all the time. They don’t think that I am disabled and that I do things on purpose, like leaving the toilet seat up. That is a new challenge for me with this whole catheter business. They don’t understand that I am not aware of things that they are. Yes it sucks but give me a little credit or just tell me so that I don’t do it again. Don’t get mad at me for something I don’t know I am doing. I am not doing it on purpose. I get so irritated with my sister about this stuff. She has no respect for other people. My mother has no privacy for my bathroom uses. It is really frustrating. I don’t know how to deal with this because both are so volatile.

abuse finally told

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, suicide

Abuse finally told

****trigger warning****

Wednesday, my mother set off my PTSD. I had such anxiety most of the day that it was driving me crazy along with the intrusive memories and feelings of shame and humiliation. I couldn’t sleep the whole night. I was up because of pain so around 0430 before I went to finally rest, I sent a text to my therapist asking if I could still see her today despite canceling the appointment. She responded like an hour or so later saying yes, I could come in.

I wasn’t sure how I was going to go about this. I had so much on my mind. I needed to ask her input on how to set boundaries with my mother and she said that it is not going to be easy as this is going to be coming from left field with her (my mother). I knew it would be I was just hoping something I could say could diffuse the situation. Really didn’t come up with anything so I started talking about the stuff she did to me. She said if this had happened today, child’s services would have been involved. I still feel sick about all of it. When I told her what she wanted the doctor to do and then I couldn’t tell her what went on at home, with her holding me down to do what she wanted to do. I pretty much told her everything that she ever did to me. She (therapist) thinks my mother is psychotic. She is not trying to take away from what she did to me. My therapist told me what she did was abuse and I was both relieved and scared about this. I always got that what she did was of “motherly concern” so therefore was not abuse. And because when I confronted my mother at 16 she denied it as well as I was told how could I say such things about my mother, it just made me shut down. I denied it because I had to. Now I cannot because it is causing too much turmoil.

The abuse happened when I was a toddler up until I was fourteen. It made the gender dysphoria so much more present and also messed with me in other ways. I feel dirty and I don’t think I will ever be clean. This is all I can write at this time. I wish I could write more but it is hurting too much and stirring up too many emotions.