pained and pissed off

Pained and pissed off

I didn’t go to sleep till 0700. I woke up around 1000. I sorted out my meds and as there was a threat of increased pollen, I took an extra Allegra. I then made breakfast and coffee. I was so sleepy after the coffee that I decided to take a nap. My foot exploded a few minutes after my head hit the pillow. I was so fricken mad.

I tried to calm down so I took some more Ativan and Neurontin. I usually don’t take Neurontin during the day but I wanted to fricken sleep. I had emailed my psychiatrist around 0230. She responded and asked if I can come in on Monday. I told her it would be hard as I have PT in the morning but she had a time that suited when I could get to Boston so I said okay. I really thought today was Sunday all day. I kept having to look at my phone to see that it was Saturday. I am so off from not sleeping.

I was able to fall asleep around 1400. I slept for another 3.5 hours. I was hungry so made a burger. My sister is going to have a dinner for tomorrow so I will try and grill the steak that I have. I asked her to show me how to operate it. She didn’t have time today as she was going out.

The highlight of my day was having my little 5 month old cousin come over. She is such a cutie. She kept crying every time I talked to her so I let her be. She stopped crying when I walked away. HAHA. I came down after I finished my tea because I wanted a pic of her. I snuck it as her mother doesn’t want pics. I am not going to post it but I wanted to show my friend how cute she is (not on social media). I played with her and she was “talking”. Just kind of loud stuff, like she was boss. It was funny. I love her so much.

I came back upstairs and some troll on Twitter responded to a message I had posted at god knows what hour. It was from like 1 am or so. We exchanged a few messages and then I blocked him as he was a troll. He said he was using his friend’s phone to use Twitter. Ya, you are a troll if you do that. Idiot. I am trying to stay awake but my fucking foot feels like it is being sliced open. I didn’t have a number 2 today. I am upset about this because I need to keep track of it. I don’t remember if I went yesterday or not. I think I did but I don’t remember. I am kind of in a fog so my memory isn’t great. I will take some fiber pills with my night meds and just continue to take them until I go. I will take Miralax if I need to.

I had take my blood pressure around 4 am just to see what it was. Damn batteries were dead so I had to find new ones. I found them and put them in. Then took it. It was high on both wrists. Pulse was 91, a little fast. I took it when I woke up this morning and it was a much better number. I am going to keep track of it every day in one of my notebooks. My PCP wants to compare the office visit BP to my home BP readings.

I am kind of scared of meeting with my psych on Monday. If I am cool and collected, I don’t think anything will happen. I honestly don’t know what I said in the email. I know I told her about my mother’s upcoming surgery. What I said after that, I am not sure. I know I was pissed I didn’t end my life yesterday because I was in so much damn pain. I got to get through the to the damn pain clinic that the damn dose is not adequate for flares. I need something that will cover me and the breakthrough meds are not doing that. I am having severe pain, just by moving my foot or sometimes, not even moving my foot. It just explodes while I am on the bed, not doing anything. I can’t stand it. I hate, fucking absolutely hate, not being heard and this pain doc and fellow just does not listen!! They have their own idea of what is wrong and how to treat it and that is that. No intervention or input from the patient. What kind of care is that? Paternalistic! I hate it very much. My former PCP allowed collaboration and things. We might not have agreed on some things but at least we talked about it rather than him saying this is what we are doing end of story. I wish I still had him. I know he would be attacking my weight issues, which would be stressing me out, but at least I could count on him to help control my pain. I don’t think those kind of docs exist anymore.

painsomnia ramble

Painsomnia ramble

It is almost 0500. I have yet to sleep. I thought I would write to see if that would help me fall asleep. I went to have something to eat and as I turned to walk back to the stairs, my ankle gave out on me. I couldn’t bear weight on it. It was the slowest walk through the house. There was no one I could call as it was so early in the morning. Now I am in a lot of pain, more than what I was in.

I was thinking about what I wrote early in yesterday’s blog about there being a kind of “split” where you have this dark side no one knows about and then you have this side where you appear like nothing is wrong. I want to write more about it but my mind isn’t that clear. I took some Neurontin and so I am kind of cloudy. I don’t know what more to say about it because it is how I feel. Like if I unleash the dark side people will freak out and maybe force me in the hospital or something. I emailed my psychiatrist and let her know yesterday was the day I wanted to end things. I also told her about my mother’s upcoming surgery and how I had planned my death before I knew she was going to have surgery. I told her I really wish I went through with it as I was and still am in a lot of pain. I am regretting the decision to put it off. I wrote her the goodbye letter. I didn’t tell her that though. I told her that next time I will go through with it as I will not make that mistake of taking back the decision and postponing the inevitable.

In the meantime, I am supposed to live my life like it is all hunky dory and shit. Other than my online friends and a few close people, no one knows about my plan. Hell, I don’t even know if I have a plan. I haven’t checked out the location so I have no idea if that will work out. It has to be a desolate area or I am fucked. Someone sees me and the chance of rescue is great. I don’t want that. I really don’t want to be fucking saved by some stranger. That is a fear. I just wish I had a car so I can drive some place and do it there. Easy clean up too. Kind of. I don’t know. It is not like I have done this before. No one knows what my plan is. And I won’t tell anyone. I think my therapist might know but I am not sure. We haven’t talked about suicide in a long time. And we won’t. There is no point. I have made my mind and I am going to stick with it when the time comes.

I have been trying to manage this pain. I tried distraction. Playing with my phone, being on social media, though nothing is really going on at these hours. I was talking to someone about cats. But that was hours ago. I wrote some tweets. I posted some Instagram pics. I was really bored. I really screwed up my ankle. It feels like someone is trying to cut it off. Fucking pain is terrible. It going up my ankle but only half way. So fucking weird. I am just going to stay up until I pass out. I can’t sleep anyway. Every time I lay down, pain increases. I try to wait it out but after three minutes I kind of lose it and have to sit up. I had the AC on but it is cool outside. It is also 30.2 for barometric pressure, which is why my pain is all fucking whacky. Hope it settles down. I will take another Ativan in about an hour. Hope it fucking helps.

Foot is driving me nutso!!

I’ve been trying to sleep since 2100. My mother wasn’t up in her room yet. I called to see if she was ok as with the AC on, I can’t hear things. She was okay. Her sugars had stabilized.

I got a blog that I read and wished I didn’t. It was about the lesbian protests or something like that in London during the Pride parade. What gets me is that anytime transgender is mentioned, it is almost always having to do with transwomen. I know I cannot be the only transman in the world. I know one came out in the Navy. I know there is another fellow in Oregon. We talk occasionally. We can’t be the only ones out there. So why isn’t it out there?? I just feel alone and invisible.

Then I started talking about suicide and someone tried guilt tripping me. I call it what it is and they say it is on me. Really? I will be fucking dead. How will I know what will happen to my family?? Am I supposed to be a ghost or something? Pissed me off.

My foot felt like it was in a pressure cooker. Then it felt like it was being crushed. Now my big toe is hurting big time. I call uncle, except I don’t think it works. I found my very last breakthrough med. Tomorrow I got to call and have them change the order and make sure the count is so I can take more than 1 a day. Otherwise the pharmacy won’t fill it and I’ll chop my fucking ankle off.

I will need a shower tomorrow. I hate showering. I need to shave my head to keep it bald. Also need to do a touch up of shaving because I missed some spots. My foot isn’t going to be happy. Then I got PT. Oh joy. Yes the curative physical therapy to increase mobility. This is interesting as I haven’t moved my damned ankle in 17 fucking years. It is a fucking joke. Oh and the damn pain clinic refuses to use CRPS. I have left ankle/foot pain. Can I bring a bat to my next appt and clobber them over the head?? Not to kill them, just to knock some sense in them or make them read my damn medical record that says why I need prescription pain medication. Fucking assholes.

I am done trying to say to them what I need. I have a better chance of winning the lottery. My foot is screaming. It is too late for gaba. I need to be up early enough to call the assholes and hope it doesn’t take a week to change the order. I can’t believe I was stupid and didn’t read it before I left. Ugh. Live and learn I guess.

Maybe 300 mg of gaba to calm some of it down. My PT is going to be unhappy with me. I’ve only done home exercises about 3 times. I couldn’t do it the 1st two days after our last session because my thigh hurt too much. Thursday I did it. Friday I was off to asshole’s office. Saturday I slept all day. Today I was in a fuck it mood.ok so what is that just one time? Oops I can’t count. We’ll just say 3 times. I probably am not going to see her anymore anyway. I really don’t want to. I think it is pointless to see her for my ankle/foot. I saw her before and I was in too much pain. And without breakthrough meds, forget it. I am tired of working through the pain.

I have no life. Just doc appts. I can’t remember a day I went to the Square just for fun, to have my espresso and write. Hasn’t happened in so long. Maybe February when I was trying to write the story in my head. It is gone now. Why bother writing it when I am going to die soon?

Part of me is trying to hang around. But with every painful flare, it gets less and less. Just do it runs through my head. Someday soon. I hope. Just do it…

Saturday Blog 7 July 18

Saturday Blog 7 July 18

This is just going to be free thoughts. Nothing really happened today other than I’ve had a migraine all day. It went away and then came back. My vision was blurred so I took meds before the pain hit then went to sleep.

I’ve been in a funk. I never made coffee today. I tried eating but with my bowels being backed up, it feels like it just sits in my stomach and I feel uncomfortable. I went early this morning after MiraLAX but didn’t go a lot. I still feel uncomfortable. It is hot in the house despite it being cool outside. I’ve been running the AC on energy saver so it shuts off every now and then. It is keeping the room cool.

I updated my apps, one of which was WordPress. They did a few changes. Notifications are now on the bottom rather than the top. And they have a new thing called activity. Not sure what the purpose of that is. Seems dumb. My stats are still all over the place. I am happy to get at least 22 or more a day. The other day I got more than 70 so I was happy. Some days are like that. You never know which blog is going to be read the most of if someone is just going to go through your blogs, stacking up the views for the day. It is fun to watch but can get addictive.

My mother washed the bathroom mat and it fell apart in the washer. It was a mess to clean up. I hope it didn’t wreck the filter or water hose with the debris. She had to use the vacuum to get the stuff out. I told her she should run a clean cycle but she didn’t listen to me. She never does.

I was going to cancel my psych’s appt but then I realized I need a refill on my mood stabilizer and it will be a bitch to get it if I cancel. UGH. I am just mad at her because I keep emailing her and she isn’t responding to anything I send her. Just tired of wasting my time. I don’t know why I bother to let her know what is going on if she can’t have the courtesy to respond even one word back, just to let me know a) she got my message and b) she cares. For all I know, it got sent to cyberspace and is still floating around there.

Sox are playing tonight. They won last night. They creamed KC. It was 8-0 by the 2nd inning. Everyone had a hit last night or two. Hope they can do the same tonight. Over Price is pitching tonight so who knows how the game is going to go. I can’t stand the guy. Wish he never came to Boston.

My mood has been all over the place. I was in pain with my ankle and head most of the day. I have no breakthrough meds anymore. I just been trying to sleep. I hope to get the meds sorted out on Monday. I just want to give up. I don’t know why I just don’t go through with it already. I could do it this week, if I wanted to. One of my “friends” on Twitter was saying that I don’t want to do it. Fuck you. That is like telling an alcoholic that is recovering who wants a drink that they shouldn’t even though they feel like they need one. People just don’t get suicidality at all, even if they are attempt survivors. Makes me kind of mad because where is the compassion?

I don’t want to talk about this right now but there will be a few explorations this week. I am not sure yet if this is the week or not. Guess we’ll just have to take it day by day and see how it goes.