Tag: therapist

walking too much

by Midnight Demon, posted in blogging, cauda equina syndrome, Chronic pain, chronic physical pain, CRPS, depression, mood disorders, recurrent major depressive disorder, suicide

Walking too much

Yesterday was my first double header since being sick. I am not 100% well so I was really tired when I got to my second appointment. I am glad the two buildings were close to one another but there was still some walking involved. Therapy was a little rough. I am experiencing so much feeling and she doesn’t put up with much in between stuff. She likes to stay on topic and squeeze shit out of me when I don’t want to. I have hid from my feelings for a long time so this is completely new to me, to have a therapist that actually wants to work on feelings and stuff. I talked briefly about today’s appointment with her as I didn’t want to be stepping on people’s toes. Everything is a gray area all of a sudden. I feel like I am seeing psych sub specialists for things that I used to see one person for. Yesterday’s events exhausted me and what the cold didn’t do was make me exhausted enough to sleep. My nose kept running and I felt like I had a leaky faucet for a nose most of the night. Same tonight. Then my bladder kept me up with its constant shit of having to be emptied. I also been having loose stool so I been trying to void on my own rather than use the catheter. It’s the only way for me to go.

Today’s appointment talked about boundaries and for the first time I felt like I wasn’t asking too much by wanting privacy in the bathroom. It has been giving me such anxiety so we creatively came up with ways to say I am in here so my mother doesn’t barge her way in. One is fixing the lock on the door. It has been broken for so long I honestly don’t know if it can be fixed. It will require YouTube and google or I might have to get another mechanism or part to have a working lock on the door. Most people would know someone is in the bathroom and respect their privacy however those rules don’t belong with my mother, least when they concern me. Going to try these things first before actually having to talk to my mother which isn’t going to fly with her.

Yesterday I had sent my psych an article about trans youth and suicide. She recognized the name as one of the residents where she used to work. She then asked me if I thought about coming out sooner would have changed the course of things. It got me thinking and I am still thinking about things because I realized last night, despite twenty-five years passing, I am still suicidal and I am pretty much in the same boat as I was emotionally as I was then that I am now. What is going to keep me here is what is going to make the difference. I sent my therapist a text last night of the question and she responded this morning that it was a good question. Last night I started jotting things down of what has happened and if I do have something this time around that I didn’t have back then. I am not sure I will still be around. My mind has been going and planning this for a while and maybe this time I will succeed. But I think I need to know if my therapist cares if I am to continue to be here. I think that is why I am getting angry with her is because the voices have been saying a lot of stuff about her and I just been listening to them. My messages aren’t being answered when I send them. She doesn’t respond to my texts usually. If I am supposed to work with her, I need to know she gives a shit, that I am just not someone to just fill a spot because she has an opening.

If I sleep tonight, it will be a miracle. Ankle was already hurting before I left the house. My legs are killing me from the walking around the Government Center area I was in today. It would have not been a big deal if I was “normal.” Being disabled really sucked. But I am glad I saw the psychologist today. I feel better knowing I was validated.

not a good day

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Not a good day

I woke up around 2 am to pee. I was up for a bit and felt like I should see my therapist today so sent a message to her. At 2 am. She sent me a response asking why I sent it at 2 am. So I didn’t see her. I feel like I should cancel tomorrow but I won’t. Voices are going bananas. The German voiced one is back. I have no idea what he is saying as his accent is so thick. I know that he wants me to die as that much is clear. So now there are three male voices. I thought I was getting better and this shit happens. I was able to get an appointment with the therapist for the 6th, the day after I see the neurosurgeon. I sent her a message saying that I was feeling suicidal and voices were bad. Haven’t gotten a response to ANY of my messages so I don’t even know why I fucking bother.

My mood has been low all day. I just want to sleep but I can’t because of the voices going around and around. I managed a shower and it further exhausted me. I wanted to shave my face and pits but it never happened. I just washed up and that was that. It took me forever to dry off as I was so tired afterwards.

I managed to have some lunch. I had some chili. Past few days I have just been eating cereal. Special K came out with a honey oat multigrain that is the bomb. It is so good. I really like it. It is cold today but I don’t think I will be going out. I was thinking about maybe heading to the Boston Public Library to do my research for my book but I am so damn tired all the time I don’t think I can do it. I can barely take care of myself. I still got a cold but it is finally going away. I just have a stuffy nose left over. Been taking 10,000 IUs of vit D. It seems to be helping a lot. I just wish this fatigue would go away. I am not looking forward to two appointments tomorrow. There is an hour in between them so not back to back. It is just going to be an exhausting day.

sick and in a flare

by Midnight Demon, posted in blogging, cauda equina syndrome, Chronic pain, chronic physical pain, CRPS, depression, mood disorders, recurrent major depressive disorder, suicide

Sick and in a flare

I woke up around 5 am because my bladder said to. I then decided to stay up as my grocery delivery was scheduled between 830 and 9. I had two cups of coffee and a breakfast sandwich. After the delivery I put the stuff away and then got my haircut. I went without checking the bus schedule and was too early. I had sent a message to my doc asking if I had to see him because of the mucus being green from my nose. I didn’t get notification until after I got home so I had to go back out again. I just wanted to go to bed and sleep. I was so tired and I had a mocha after my cut. No amount of caffeine was going to keep me awake. I got to the doctors and had to wait. Office was busy. I got sent home with a “ I will live” and I cursed myself for going in. I was really exhausted and tired by the time I got home.

I was playing with my phone and had to use the bathroom. Coming back to my room my ankle flared up. I had to have my niece get my cane in my room. Now I am stuck here. I went to bed before grabbing some catheters so the next time I go may not be the bathroom. I have not been successful cathing in bed. I guess I will have to figure it out now.

I used to love Twitter. I used to get my news from there. Now, I rather be in the dark about the fucking news because every day my govt does something stupid or unconstitutional. Let this year be over so I don’t have to deal with the election bullshit (I will vote!!) and let Jan 31st happen with NEW admin that is Democratic or Pigskins anything but R. All I will say on the matter. If this offends you, I am not sorry.

Hope this weekend’s storm doesn’t kill me. My little suicidal brain has been calculating shit. I won’t get far if and only if my psych do what I told them to do. Other day when I was in painsomnia mode, the voices got out of control. I was thinking of going in the hosp but now with this cold, it isn’t going to happen. They don’t allow fricken cough drops on the unit and the ones that they do allow are the kind that a doctor has to write an order for and numbs you. I hate those kind. I also don’t think going in will be good for my bladder condition. I am too fearful of an infection happening, either because of my having to cath (if the unit allows ME to do it) or if I have to have a Foley and a leg bag. Psych unit bathrooms can be gross even if cleaned once a day. The voices are responding to the higher dose of Invega. I guess I will have to keep taking this dose despite side effects. Benadryl and Ativan will have to be my counter agents for the side effects. I switched taking it to the morning and haven’t had any sign of effects yet.

I’ve already decided that if I am still sick next week, I am going to cancel my appointments with my psychopharm and therapist. I didn’t have therapy this week because of being sick. I supposed I could have been seen today but I really didn’t want to so opted for next week. I am having the fuck its come into play where I don’t want to see either of them because I just feel so damn hopeless. I might cancel anyways or just one as I am supposed to meet both the same day but at different times. I don’t know why I do that because it kills me but it gets it out of the way I suppose. Guess it will depend on how much this virus and this flare will conspire against me and what my recovery will look like. Stay tuned…

1st cold in a while

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

1st cold in a while

I got my first sickness of the year. I was starting to come down with something over the weekend and now it is full course. I am coughing and got a runny nose. I am all congested but no fever. I ran out of Nyquil so I am just taking vitamin D. I feel a little better today even though I am stuffy.

My urologist got back to me today. She is sick but wants me to drop a specimen to the lab tomorrow and have my pcp follow up with it. So I sent him a message about that. I don’t know if it will be tomorrow though as Wed I need to see my therapist.

I still have the assignment the therapist gave me last week that I haven’t done yet. It is hard because I have to think what three need mean to me and how to achieve them. The first one I picked was achievement, to increase self-regard by the successful exercise of talent. I often dismiss my achievements like they are nothing. For example, the PT I saw was amazed I was able to get to her appointments from the next two towns over by public transportation. To walk to the bus/train stop and then go to and from. She gave me credit for that and I never thought of it that way. I would sometimes I have a pain flare after, but that was something I did without it being a challenge. Writing lately has been a challenge. I would love to write at least five days a week but I know there are days where I am not feeling up to it physically or mentally. It is hard to write when you feel like complete crap or your ankle is screaming on the top of its lungs.

The second thing is play. I would love to have a chance to go to the chess club more but sleep is more important to me. I have to plan the day because I have to take the bus on a Sunday. Then walk to the plaza. Sometimes they go to the coffee shop if the weather is not great and that means I have to have money for coffee. I usually don’t carry cash and I am often broke by the time I get paid. Just trying to have an extra $20 for a haircut has been hard. That also makes me feel good, to have a haircut. I wish I could go more than once a month but budgeting it now with having to budget my meds hasn’t been possible.

The third thing is defendence, to defend against assault, criticism, or blame. I need to stand up for myself more in my house. I let my sisters and mother boss me around all the time. They don’t think that I am disabled and that I do things on purpose, like leaving the toilet seat up. That is a new challenge for me with this whole catheter business. They don’t understand that I am not aware of things that they are. Yes it sucks but give me a little credit or just tell me so that I don’t do it again. Don’t get mad at me for something I don’t know I am doing. I am not doing it on purpose. I get so irritated with my sister about this stuff. She has no respect for other people. My mother has no privacy for my bathroom uses. It is really frustrating. I don’t know how to deal with this because both are so volatile.