Evening Saturday Blog

Evening Saturday Blog

For the first time in the last two weeks, I missed my afternoon dose of trilafon. I am kind of beating myself up about it but there is nothing I can do about it unless my symptoms come back in full attack. They haven’t so I think I am okay with just taking 4 mg tonight. It was one of those, yea I will take it in a minute and then forgot when the minute passed. I do the same thing with my blood pressure meds, which is why I have an app that reminds me to take my meds.

I usually take my first dose of trilafon a few hours after waking up, usually after or while I am having my coffee. I figure if I take it with the coffee it fights off the drowsy effect. Today I had two cups of coffee and I was still tired by the end of the baseball game. I pretty much watched it from beginning to end, well, watched a couple of innings and then listened to the rest of the game. I am happy they beat the Skankees again. When Sandy Leon was batting, I just had a feeling he was going to hit a homerun. I didn’t say anything because that jinxes it. And when I heard Joe Castig say that ball is gone, I was whooping up and down on my bed. It was so sweet. That made it 5-1 at the time. The final score was 5-2. It was a good game.

I finally finished one of the books that I started but my Kindle ran out of juice. That is the only problem with technology, needing power. A regular book doesn’t need that kind of power. You just have to remember to carry it with you. I had already finished the single but at the end it had the beginning chapter of another Keller series. I think I already read it as it sounded familiar. The book is written by my favorite author Lawrence Block. Keller is one of his characters that I like. He plays a professional assassin. Block’s first book that I got hooked on was “Eight million ways to die”. He had this series by another one of his characters called Matt Scudder. I just fell in love with Matt when I was 15. He was struggling with his issues with alcohol and I was struggling to stay alive with my suicidal thoughts. Block’s books gave me the much needed distraction to keep going. I feel like I should write to him, but I don’t want to sound corny. I do have his email address because what I have to say will be longer than 140 characters in a tweet. I am not that tactful.

Now I am trying to get into a Scudder-like mystery/crime novel written by Robert Galbraith aka JK Rowling. I read the first chapter this morning and it was so meh. It was just so ordinary. It reminded me of a book by Block, “out the window”. I know that I shouldn’t be judging this like a Block book but when that is all you have read for the past two decades, you kind of have a standard. But this book, “The Cuckoo’s Calling” was a National Bestseller so who am I to judge it.

I have been reading my blog from two years ago. Seems like almost every day I wrote more about my pain than about the suicidality I was feeling. My blog has taken such a turn from being about my suicidality to chronic pain that I had to change the brief description as it was more about my physical pain than my psychache. I know I don’t write about my suicidal thoughts that much anymore. I still get them when my pain is off the charts. But it’s mostly my physical pain that is off the charts lately. My psychache seems to be in check. I guess being on an antidepressant has benefitted me the last few months. There was a time back in September 2015 after my New York Times article was published that my depression got worse. I am so used to it that I hardly remember when the episodes start and when things get worse is usually when things start clicking that something is wrong. It’s rare that I get physical symptoms of depression. But that is how bad things got. I just wish the weight I lost was more significant than it was. Only because I gained it all back, sadly. I was so damn close to losing my ideal weight but nope, it wasn’t meant to be. I am just grateful that my NP isn’t a big weight freak like my PCP was. It was really stressing me out and actually caused me to gain weight than lose it.

I have no idea where my writing is going. I have thought about it a million times but nothing comes to mind about what I want to write. It’s been months since I wrote something. The only thing that I did write while I was in the hospital was the first hour of my father’s home visit before he died. He lived only two hours after bringing him home from the nursing home. I still haven’t written it up. Nor did I finish it. The last hour was difficult to write without having PTSD symptoms. I never wrote it. Tonight I was thinking about the last time I saw him before he died. It wasn’t as painful as it once was. I also wrote a lot about him in 2014 in the blogs that I read. That was when he had a GI bleed and his hydrocele surgery. I didn’t write in detail about his illnesses because it is my blog and feel that I should be writing more about my feelings than him. He was the source of my suicidality for a long time. Now that he is gone, I am less suicidal. Don’t get me wrong, I still get suicidal. It’s just that his joking and torturing that made me want to die is gone. He just made you feel like a nobody. And that is how I felt whenever he was around. I also felt like I didn’t matter, that his needs were more important than mine, because they were. He had to come first and if he didn’t, he got so mad. That was how he was. And unfortunately, I miss the bastard.

feeling wicked down and depressed

Feeling wicked down and depressed

I woke up early because I had to pee but I couldn’t get out of bed so went back to sleep. When I woke up two hours later, I really had to run to the bathroom. My bladder was overfilled. I brushed my teeth because my mouth felt like a sewer. That was all I needed to do to get my ankle going. It hurts so bad right now and it got me depressed. I have to out today. I took some pain meds but I still am not sleepy and the pain has, thankfully, lessened a bit. Sometimes the meds are enough to knock me back out and sometimes it doesn’t.

My mood is terrible right now. I really just don’t want to be. If I had the means to really carry out my thoughts, I would so go through with them right now. I feel so lowly. All I can think about is death. I keep wondering what it would be like laying in a casket.

I have therapy today and then I have to go out to my appointment with the NP for my pain meds. I really don’t want to go out. It’s already muggy. I put the AC on to cool down my room. I’m not going to shower because I know I will be sweating when I go out. I will shower when I come back home.

I hate being in this irritable mood. I woke up kind of okay but the pain caused my mood to dip very low. Now all I can think about is death. I am so tired of feeling this way. I never feel “better”. I always feel gloomy and sad. The voices are always there reminding that I am a piece of shit.

I got three hours before my therapy appointment. I am going to try and get some sleep now. I hope I don’t wake up.

psychosis, therapy, and other things

I had therapy today as usual. We talked more about the psychosis and how I have been dealing with it, or not really. I told her I thought I would email my psychiatrist today to inform her of an agenda for when we meet on Friday. I want to tell her that I think we need to get the psychosis under control. I sent her yesterday’s blog in the email so she has a better idea of what I am talking about.

We talked a little about my father. I told her I have been reading blogs about his treatment towards me and other stuff but I was very vague and don’t remember the incident I was describing. I had to look at the date I wrote it to know what I was talking about. He was a difficult man. Hard to believe it will be three months that he has been gone. I still haven’t cried much for him, if at all.

Then I get an email from writing friend today that thinks my psychosis is caused by the grief of my father. She doesn’t know what happened this weekend so I am dismissing most of what she was talking about. Plus she kept calling my father “dad” which just annoyed me. He isn’t a “dad” in any sense of the word. The guy only thought about himself. It was only in the last year that he started giving us money on the fly but even then we had to pay him back. I never wanted his money for this reason. There was always a catch to it.

In the email I sent to my pdoc, I also told her what I wanted to talk about that didn’t involve the hospital. I told her about what happened with my mother. She is stable for now but that can change in a week or two. Hell, it can change today or tomorrow. You just don’t know with diabetes, even if you constantly monitor your levels.

Today I am less psychotic because I took my meds yesterday. I spaced it out so I did take 8 mg of trilafon. Today I plan on doing the same. It seems to be working. I am not as paranoid or agitated. The AC isn’t speaking to me. I haven’t played music so I am not sure the lyrics have changed on me. Last night, I was listening to Bon Jovi. There were songs I had to skip because I didn’t care for them. Then the Sox game got hot last night so I listened for a while. The voices wanted me to read but there was no way I could listen to the game and read so I turned the game off. I was reading Patrick J. Kennedy’s book, A Common Struggle. I didn’t there would be similarities between us but there were, as far as our illnesses go in managing it on a daily basis. I don’t have the addiction issues he has but I know what it’s like trying to manage being bipolar and psychosis. Then I read the part of losing his dad just before my therapist called me.

I asked my therapist if she reads and she laughed, thinking I was calling her illiterate. She usually doesn’t read fun books, just professional stuff. I told her about A Common Struggle and how I was interested in it. I didn’t tell her the reason I had an interest in the primary author (PJK) but did tell her the background of the book. He pushed for mental health and addiction parity while in Congress, all while battling his addiction to drugs and alcohol and bipolar disorder. I really don’t know how he didn’t accidently kill himself but I think he was on that road had he not had treatment at the various places he went to. He was never really suicidal until his girlfriend said things were over between them. It was the first time he had such thoughts.

Anyways, we talked about the book in therapy and how it stirred up feelings about my father. Last night he was on my mind. I think he is always going to be on my mind even though he is gone. I am just glad I am not hearing his voice while being psychotic because that would be very dangerous.

I didn’t go out today, again. It’s too hot out and I am fearful it might spike another psychotic episode if I go. I don’t really want to be around people. Tomorrow I have to go out because I have an appointment with my neurologist. I haven’t seen her in two years, and not much has changed. I still have pain that is unexplained. The reason I made the appointment was because I was having nerve pain, but that seems to have resolved. I think all the standing I was doing the month of April and dealing with the impending death of my father just caused a flare up. Now that I am back to my regular routine, or rather no routine, things have calmed down.

I am missing my cold brewed iced coffee from Starbucks. I will have it on Friday when I see my psych. Feels like ages since I last saw her and it’s only been three weeks.

Just another reason

I didn’t take my trilafon last night so I have been hearing voices the past couple of hours. We have been having a grand conversation about things, most about what I should or shouldn’t do. I woke up later than I wanted to because I woke up in the middle of the night and couldn’t go back to sleep right away. I wish I had woken up just ten minutes sooner and I would have been able to catch the ten o’clock bus like I wanted to. But I didn’t so I had to wait an hour for the next bus to the Square. I got a large coffee, my favorite summer drink is the cold brew iced coffee at Starbucks with vanilla sweet cream. It’s so good. I had it with extra cream today and it was sweet. I am going to be so sad when they discontinue it. Any thing that I love, they discontinue. I am sure it is just for the summer and then it will be gone.

After I got my coffee, I left to go to my PCP’s office to get my prescription. It was really hot out as I was walking outside to get to the building where she is located. I was expecting the AC to be on freezing but it wasn’t. It was cool though. I got my script and then left to go home to get it filled. This would make my third or fourth trip to Walgreens this week. I waited for my meds and then came home. The mail lady was sitting in her truck so didn’t deliver the mail yet. She is so damn slow.

My ankle started hurting me on the walk home. I didn’t bring my cane with me and I wish I had. Damn foot just didn’t want to flex so I was somewhat lifting it or dragging it as I was walking the last leg of the way home. I took some pain medication soon as I got undressed and into my PJs. I am going to try and watch a movie today to keep from being on my feet. I don’t know if I will be successful as I am not that interested in a movie at the moment. I might read some. I am making progress in Brothers Karamazov, but I still have a few more books to go. I had no idea how religious the book is. It kind of reminds me when I was going to the Catholic church when I was younger. I never really read the bible unless there was some purpose in reading it, like say for a class project or something. I have tried to read the New Testament but could never get into it. I remember for my Russian class, we had to read a passage in the bible. Luckily, my niece had one. I also downloaded it on my Kindle app for my tablet. Unfortunately, you have to start from the beginning. You can’t go to sections that you want to read on it, which kind of stinks. Maybe with the Kindle Fire I can maneuver around more, if I choose to read it. I am staying away from all types of religion for now because it doesn’t help the delusions that I am having.

Mood wise, I have been all over the place. I have been feeling ok to feeling really depressed. I am still suicidal at times. I just hate being in pain. I just want to die so I don’t have to be anymore. The voices are making it tough to think straight. They are still wanting me to take most of my pills by the bottle. It’s a difficult fight. I know that I should probably be in the hospital but I just can’t bring myself to go in. I know I will be doped up and I don’t want that. Or they might restart the abilify and I don’t want to take that drug anymore. I know it helps quiet the voices. But I just can’t go back to taking it. I fear my life would be in more danger than it is battling myself. It’s been three weeks since I have been off this medication. I take the trilafon almost every other day, but not consistently. It helps keep things low key. I just need some time to sort things out for myself. I know it is dangerous and my therapist and psychiatrist are concerned about me and my safety. But they trust me, even if my judgement is impaired right now. I am still in control. I go to the hospital and things are out of my control. I won’t be able to take my pain meds when I want to take them. I will have to deal with feminine products because my fucking biology is messed up for whatever reason. I hate being in the hospital dealing with menses. I rather wait it out some more days to see if it goes away on its own. Otherwise I will stop the pill and see what happens. I should contact my repro endo doc and see if she has any ideas as to why I am fucking bleeding twice this month. Just another reason for me to kill myself.