Tag: CES

Thanksgiving Eve 2020

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Thanksgiving Eve 2020

My sister didn’t buy the squash that I wanted so I wanted to go today but I had to go to the post office to mail something out. I got stuck in the line so my sister went for me. I waited so long in line at the post office that my ankle flared up. It still is hurting me and I am trying so much to ignore it. It isn’t working. I am tired just from this excursion. God my ankle hurts. I didn’t go get my EKG today. I might go Friday if my sister isn’t doing anything. I will have her drive me there. It shouldn’t take too long. They are usually quick. I hate that I have to have it because my stupid breast is in the way because it is useless. I hate the things on my chest so much. It is really bothering me that I can’t get rid of them until I lose 25 lbs. I have been slowly losing weight but it is slow. I really think that this is discriminatory against overweight people to have them lose weight to affirm themselves. I don’t understand why you need to lose weight or be a certain BMI. If I had breast cancer I bet they wouldn’t say I needed to lose weight to remove the cancer. So stupid. Makes me so angry. It doesn’t help the gender dysphoria and it doesn’t help my mood that I have to fucking wait. I am so pissed off because losing weight is not easy.

I ordered lunch from my favorite sub shop. I can’t wait for the chicken kabob sandwich. It has been a long time since I had it. I bought myself an early birthday present for myself. I got a ticket to see Mary Chapin Carpenter at the Wolf Trap Center virtually for Friday night. I am so excited. And then I find out Taylor is on Disney plus so I will watch that tomorrow after dinner. It will be great to see Taylor and how she came with her new album. I love it. It is a really good mellow album.

I accidently took a double dose of Miralax today. I had a close to empty bottle so thought I would just take the rest didn’t realize there was enough for a dose in there. So I emptied the bottle in my glass. I just hope I don’t have colon blow or lose control of my bowels making an accident. I did my T shot today and didn’t hit a vein. I am so happy about that. Last couple of times I have hit one and there was a lot of blood after the shot. I can’t stand looking at my own blood. It makes me queasy.

I took a nap around 1600 and I am still tired. Hope I can sleep tonight. I know I took a late nap. I just took my night meds. I haven’t heard back from my psychiatrist. I had asked for a refill on the citalopram and haven’t gotten it yet. It still hasn’t been called in to the pharmacy. I hope I will hear from him on Friday as I will run out this weekend and I don’t see him till next week. Monday I will go get the EKG that I need. I wanted to go today but I wasn’t sure if the office had a half day or not because of tomorrow’s holiday.

flare up

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Flare up

I am in a flare right now. Ankle is so hurting. Bones are hurting me more than anything. I took a double dose of gabapentin and took my BT meds which I am running low on. I forgot to call in a refill Friday. I was in such a bad mood Friday that I just stayed in bed. I didn’t get up for anything other than bathroom breaks. I don’t think I ate either. I managed to eat today but it was just soup and ensure. I wanted to make some scrambled eggs but my sister was taking over the stove baking and making the soup. I couldn’t be bothered with being in the way. I have my way of doing things and I didn’t want to go over my sister.

I laid low today. I didn’t have the energy to do anything. I wanted to pick up my meds at the pharmacy but I had such a headache that I didn’t get up till 1500. It was too late to do things. I had no motivation when I woke up to do anything. I have been in this mood for a while. I think the depression is getting worse. I really want to increase the citalopram but this idiot psychiatrist is banking on the antipsychotic in helping my mood. He is really pissing me off. I got to go for an EKG before he wants to increase the dose. I have never had a problem with SSRIs and my heart. It is just another excuse so he won’t increase the dose.

I am tired but I can’t sleep. I think I slept too late today. I haven’t had coffee in two days. I don’t know if my sister bought half and half like I asked her. She went shopping today. I forgot to ask her if she bought my things. I wanted butternut squash for Turkey day. I wonder if my therapist is going to be with her family that day. All this covid stuff has people putting off visiting, least the responsible people. The ones that don’t care just do what they want without consequence to them. Wear your mask! Wash your hands! Social distance!

I haven’t been doing the DBT skill that my therapist wants me to do. I haven’t been in the mood to do it. I have looked it over several times and there is a lot in the ACCEPTS skill. Each letter is a different activity. One of the reasons why I don’t like DBT, too much work. I haven’t even written about the “experience”. I started writing a letter to my therapist last night I think. I don’t even remember what I wrote. I will have to look at it before session to know what I said. I am glad I have access to sent mail.

My ankle pain has worsened. It feels like someone is trying to break it in two. I already took what I can to combat this pain. I just have to wait it out for now. I hate the waiting. It makes me anxious. I was listening to music but instead of calming me, it was making me annoyed. I have to put on Mary Chapin. She is the only one that calms me down when I am irritable. She has such a soothing voice. Tomorrow I need to shower and shave. It is on my to do things. I just hope I can do it without my back flaring up on me. My back has been so much better since taking the magnesium supplements. I haven’t noticed a bowel change with me taking it twice a day. I have had to take Miralax in order to go. I am not going to take the senna anymore as it hasn’t done anything for me to help my bowels. I just feel like I am taking a pill that is doing nothing. Maybe my bowels will be better without me taking it. I hope so anyway. We’ll see.

Anxiously Awaiting the Results of the Election

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Anxiously awaiting the results of the election

It has been two days since the election and we are not closer to finding out who won. We think we might have a chance but it can go either way. I am so fricken nervous about this. I have purposely been on the minimum of reading Twitter. Facebook is a little lighter in content but I have a few friends that are posting about it and it gets me rattled. All we can do now is wait until all the votes are counted, which is an arduous task.

I didn’t have supper so I ordered some cheeseburgers from McD’s. I couldn’t finish the second one. I did have the chicken nuggets that I ordered. I always order chicken nuggets. I am a nugget freak.

Later today I hope to do some errands and empty my recycling as it has piled up. I have two big bags of stuff. I also need to take out my trash. I got to empty my bucket by the bed first as it is close to being full. Yesterday I had no energy to do anything as my back was in bad shape. I still haven’t heard from the docs about increasing the dose of Zanaflex. I hope to hear from my neuro today about it. She is very slow in communications.

I haven’t had a bowel movement in two days. I just took some magnesium for two reasons, 1 to help the spasms in my back and 2 for bowel management. I haven’t been taking them because they have been causing loose stool so I stopped it on my pcp’s advice. Now I can’t go to save my life. I took some Miralax so hopefully I will have a movement today. Sometimes it takes a few days though and then unexpectedly, I will have colon blow. Not a good thing to have when you don’t have control over loose stool.

We made a compromise in therapy. For the month of November, I get three weeks of talking about anything stupid thing I want to talk about. But there has to be one week where there is treatment involved. I agreed to this. She wanted to switch to every other week but then changed her mind. I think this will be a good thing and might help me to talk more in therapy.

I am tired. It is a little after 4 am. I woke up around 0230 to pee and couldn’t go back to sleep. Probably because I was hungry. When I go on my errand I want to buy a snickers bar. I have been craving one since Halloween. I usually have candy but this year my brother in law didn’t put it out because of Covid. I don’t think Halloween was allowed in our town.

I see my psychiatrist today. I got to ask him if he will be doing bloodwork because I am on the new antipsychotic. My weight hasn’t changed. If anything it has gone down instead of up but only because I haven’t had appetite lately. I hate to get my blood drawn but if I do I am going to ask for a CBC to check my blood count levels. If they are low that could be why I feel so tired all the time. I might need to take an iron supplement. But I rather have beet juice and carrots to build up my system. I think my sister has a juicer. I also want him to test me for diabetes as it has been a while since I was last checked. Hopefully he will listen to me and order the tests I would like. So far, I haven’t had too many side effects other than loose stool but that hasn’t happened over the last few days. I am back to being constipated.

My back is acting up again. I have been taking Ativan and Zanaflex to try and calm it down. Sometimes nothing works despite my efforts. Only thing I can do is lay down and rest, which sucks. I have to take a shower today as I smell again. Should be interesting as I wonder how many times I need to sit down before I am done showering. I got to shave, too. But I am thinking of using my electric shaver instead of the razor this time.

A Cold Sunday

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

A Cold Sunday

I woke up freezing. I had to shut off the ceiling fan as it was below 50 degrees out. I am still cold but I am under blanket and I just put on a long sleeved T-shirt. I am listening to Martina McBride’s Where would you be. I love the vocals in this song. She has such fantastic vocals. It amazes me.

I have been feeling down all day. I feel tired and sluggish. I haven’t eaten much and lost a few pounds. I think I am in a depression again. I just don’t feel like doing anything. My mood is so low. I just want to stay under the covers. I feel so useless.

Friday I had PT. It drained me. I still haven’t recovered from the exercises and fatigue. I hope it gets better with time. I am supposed to make more appointments with her as I have just one left. I will probably get a call tomorrow. I got to call the pain psychologist for an appointment, too. I will do that in the morning. I have therapy in the afternoon. I want to go to Starbucks. I think I earned a trip for a treat. I also need to put money on my Tpass. I got a lot of things to do this week. Weather is supposed to be in the 50s all week. I think it is almost time to take the AC out of the window.

I had coffee today but it didn’t keep me awake. I took a brief nap after I drank it. I was still tired after the nap. I have been struggling to stay awake. My back has been bothering me for most of the day which just wants to make me stay put. I don’t want to move too much because it hurts.

I got sort of suicidal the other night. I thought about ending it again. I don’t know what is keeping me from acting on my plan. I could take some of what I have to sleep for more than 4 hours at a time. I have been having such a difficult time sleeping lately. I keep waking up either from weird dreams or I have to pee. It is so frustrating because I try not to drink too much after I take my night time meds but I get thirsty and so I drink. Even if I use the bathroom before I go to sleep, I am still up around 4ish needing to go.

I got a pretty sunset of the Boston skyline that my friend took. I got it as my zoom background now. I have been saving pics for zoom. I have been bored with the ones that are given so I like that I can choose different ones.