Tag: chronic pain

Ramblings 24

by Midnight Demon, posted in Chronic pain, depression, mood disorders, suicide, suicide attempt, writing

Took out my back today while doing little things around the house. I am in bed now. My groceries came this morning and I have been up since 7. I hate waking up early but it was an early delivery. I guess I did too much going up and down the stairs as well. I hate my ankle being weak. But on good news I stuck to my diet, pretty much, so that is a good day.

I wish mood-wise it was a good day. I have been up and down all day, sometimes on the verge of crying and still wondering why I should still be around.

I passed on information to my favorite DJ at the country music station I listened to and my name got announced on the radio. I was wicked excited! Gloriana is going to be singing the National Anthem at Gillette Stadium Sunday for the AFC Championship game. So excited to see them in New England!! My favorite DJ and I have been tweeting on and off since I signed up so it was quite a tweet to get the message as I wasn’t listening to the radio at the time! I don’t usually listen anymore unless I remember to turn on the Tune In Radio app on my tablet.

Tomorrow is supposed to be a get together for my old workplace. I would go but I am broke, having spent the last of my money on my groceries and I don’t get paid again until next week. Would have been good to go out but I hate going into a bar and being around drunk people, especially when the start of hockey season begins tomorrow night. People tend to be loud and obnoxious so I tend to avoid those places. But it was my suggestion. I might make an appearance and just have a coke or something.

Read an interesting article about suicide today that was not by someone suicidal but someone who just talked about it without it being depressing or concerning. It was someone who was sharing their thoughts about it as he knew a few people who committed it. It was on the freshly pressed version of wordpress and I think the blog was called “On Suicide”. Also read a good blog about the silence of gays. I know that I am open but you don’t hear people talk about homosexuality like you used to unless it has to do with gay marriage. I myself have never thought of being in a long term relationship with anyone so it’s a null point with me. Hell it took 10 years just to find a therapist willing to put up with me for 12. That is the longest relationship I have ever had. Strictly professional but therapy is a type of intimate relationship.

It was pretty cold today and I didn’t go out. I wanted to but I just couldn’t bring myself to get dressed. I wanted to go to the bakery to get some scali bread but didn’t. It was cold in my room and I just couldn’t get out of my warm bed to get dressed. Course my back is aching me for lugging my powerade up the stairs. I bought 20 bottles to last me for a month or so. I drink it to take my meds as I can’t take them with water as some of them dissolve quickly with water or just taste gross.

The one thing I have to say is that with TuneIn Radio I hear the same commercials at each commercial break. I wonder if it is the same with real radio?

it sucks being disabled

by Midnight Demon, posted in cauda equina syndrome, CES, Chronic pain, chronic physical pain, depression, mental disorders, mood disorders, physical pain, psychache, suicide, suicide attempt, writing

I hate what my life has become. I don’t shower regularly. I don’t brush my teeth every day like I am supposed to. I just hate being this glob of a person. I miss working though I can’t anymore because it hurts too much physically. Plus it was causing me to have severe suicidal thoughts every day, sometimes every hour. But it at least provided distraction from being miserable. I have tried to do what is right but I just don’t care any more. I have given up trying to live a life. I don’t go out anymore unless I have to. I barely make it to my psychiatrist’s appointments. I have a hard time waking up in the morning. And though it’s easier to get it out of the way in the morning, it sometimes sucks because I will have nothing else to do for the day. I write about my miserable life in hoping that someone will take solace in knowing they are not alone in what they are feeling but I feel alone because I no longer have people contact. I know I should probably join a group therapy group or something to get me out of the house but I just can’t think of it and I do nothing. I try and read but my attention span is just not there. I try and play my Facebook games but they bore me now and frustrate me. I should probably clean my room but I have no energy to get out of bed. I keep my laptop on my bed at all times because I need its accessibility for my thoughts. I journal pages and pages of things that run through my head of a day of nothingness. It really sucks being disabled.

nerve pain is a bitch

by Midnight Demon, posted in cauda equina syndrome, CES, Chronic pain, chronic physical pain

I should be sleeping but instead my left foot is driving me up the fucking wall with it’s constant buzzing. My toes are even vibrating though if you touch them they will feel normal. I am very tired and all I want to do is sleep but this annoying foot keeps me awake. If I could chop it off I would.. now I am getting bone pain. My toes are cringing though they have nothing to cringe at except my wrath.
It hasn’t been this way for a couple of weeks. I actually had some reprieve for almost three weeks when I got a cold and was drinking cold medicine like it was going out of style. But now the pain has returned and I do not like it. There is nothing I can do about it till I pass out which might take a while. Right now it’s 02:45 in the morning. I tell time by military as I think it’s cool and more precise.
I got my book that I lost and had to reorder today. I forgot how dry the material is and down. I read up to chapter 1 because I didn’t want to overload myself with suicidal thoughts right now. I should probably take some pain medicine but I want to see if it will go away on its own first. That is part of my problem. I wait until I am in unbearable pain before I take my meds. What usually would be a 6 or 7 for someone would be a 10+ for me. I have a high pain tolerance. It really needs to be a 10+ in order for me to take medication. Otherwise I think I am wasting it. I know that is probably not right to do, to wait till the pain gets really bad, but like I said, sometimes it is just a passing phase and other times it is with me for days. I hate this type of pain. The pain meds just usually knock me out so I can get some sleep and calm down some of the pain. It can take days before I am pain free agin. I just wish My middle toe would stop doing what its doing. It’s like wiggling saying “hi I’m here” like some little kid that wants to play. Well I don’t want to play, I want to sleep damn it!! It also feels like someone with a vise is clamping down on the toe, making sure it doesn’t go anywhere. I hate this type of nerve pain. And it’s the result of Cauda Equina Syndrome. My bundle of nerve got crushed and now I am left with nerve pain that decides to come and play every night. It can’t come out during the day like normal pain, NOOOOOO, why would it do that? Then we might have simpler lives. We might be able to work and play with our kids. This damage costs us everything and there is nothing anyone can do to make it better once it happens. It’s all a joke until we kill ourselves from the pain. Everyone one of us has at one point or other thought about killing ourselves because the pain gets too much or we just can’t see ourselves living this hell anymore. Doctors are useless. They just like to spin us on merry-go-rounds having us go from this doctor to that doctor and so on. It took 9 doctors and two physical therapist to figure out that I was not walking correctly because all my scans and tests came back normal, they thought I was a head case or something. I was in pain 24/7 and nothing was helping me sleep except a little pain medication. It took months between this appt and that appt to figure it all out. Then I got out of work because I couldn’t walk around the lab anymore. My department of 14 yrs says sorry your restrictions are too strict and out the door I went on forced medical leave. I couldn’t believe it. I wanted to kill myself right then and there if I had a chance. At 36 yrs old I was declared disabled after fighting this condition for eleven years. It was fun being out of work for a while. But then it got lonesome. I missed my coworkers. I missed going out. I became a hermit. I had nothing to do 24/7. I played my games and that was about all. But the pain didn’t stop, even with me resting it. If I went out and stood too long or walked too far, I paid the price. Like I am doing now. I must have walked too long though I hardly left my house at all except to go to my sister’s house around the corner. Now my foot is on fire and there is no extinguisher to put it out. Simple things I just can’t do anymore. I don’t shower because it hurts to stand too long. I don’t brush my teeth for the same reason. People take these things for granted. I can only take a 10 minute shower and in those ten minutes I wash and then if I remember I brush my teeth. I dry off quickly and hope I don’t fall while I put on my clothes because sometimes my balance is off.
I still can’t believe the difference between my left and right foot. It’s so weird. I have full feeling on my right but diminished feeling on my left. Sometimes but not often I have burning on my right foot. It’s the left over nerve damage from my initial injury 12 years ago. My anniversary is coming up in a few weeks. Maybe that is why I am thinking about it now. These memories don’t fade away like normal ones. My therapist calls it a trauma. I guess when you have emergency surgery, it is a trauma.

Another cold depressing day

by Midnight Demon, posted in Chronic pain, depression, mental disorders, mental illness, mood disorders, psychache, suicide, writing

It’s a very cold New England day. I didn’t want to venture out because it was bitter cold. I bought the best of Laura Branigan because I had to listen to Ti Amo and Gloria. I was looking for the Italian version she made but no such luck.
I haven’t done anything but shave and shower. I also brushed my teeth. That is one of my resolutions: to brush my teeth at least once a day. Yesterday I didn’t do too good at it though I had enough opportunities. I just was feeling really yucky yesterday like I am today.
Seems the newsletter that I am working on will be on board sometime next week. I am kind of excited but the depression is making me feel like so what. I know this is a big thing but it’s hard to get excited when you feel so exhausted and down because of the depression.
I am supposed to write a review for a book I read. I am kind of nervous about it because I never wrote a review before and right now in this frame of mind, I don’t think it will be good to write anything. It will just be depressing and that is not what the book is about.
I still have not made any decision about when to tell my family about being called “Mike”. It’s funny because those at the newsletter still call me by my initials of my first and last name. I don’t know what to be called. I guess this is what a true identity crisis is like. For this newsletter I want to be called anonymous and so I am, just like this blog. I doubt my family reads this even though I post it on my real Facebook page. I also post it on my twitter account. I started a midnightdemons twitter account but I like my twitter account better as I have had it for so long.
I texted my therapist that I canceled my appt for Monday. We’ll see if she respects it or not. I should call and cancel as that would be more meaningful but I think 4 days time of canceling is better than a phone call. I am supposed to give 24 hr notice and 3 days is more than that!
I just don’t want help anymore. I know I need it but what is it doing for me? Nothing. I talk to a person that sometimes talks more than I do for crying out loud. I have tried to get her to shut up but most of the time I what she says makes sense but I still feel like I should be talking some of the time during my session. I have tried getting a new therapist but that failed disastrously. Tried ten therapists and they all bailed on me because of my history of suicidality. So now I am stuck with a person who is thirty miles away from me and I have to have phone sessions with. Not that I mind. But I wish we could have a real session once in a while. Maybe Tuesday I will get up early to take my sister’s car so I can have it for the day.