Tag: CRPS

From 11/22/2015

by Midnight Demon, posted in Bipolar Disorder, CRPS, depression, mental disorders, mental illness, mood disorders, psychache, suicidality

From 11/22/2015

Around this time, I was having trouble with my therapist. We were fighting over my suicidality. This is just one piece of the pie. Today 13/Feb/19, things haven’t changed. I still feel suicidal. I still want to write that note. I still want to drink that shot. I am seeking oblivion from feeling so empty and hurt. February since 2001 has been filled with anniversaries. The last one of ending both therapists, one temporarily. The other permanently. My heart is broken. I feel unloved. I feel uncared for. I feel like I don’t have anyone to turn to. I miss going to Starbucks and writing, even if it was in my journal only.
I just have physical therapy now. My schedule is an open book. Sure I see my psychiatrist every two weeks and will be seeing a new PCP. My life is surrounded my doctor appts.
My heart is aching so bad right now. I don’t think it will ever heal. I think dying is better.

Written 22/Nov/15

Regarding my suicidal career
I have been feeling like I should write a suicide note. I don’t know why this popped into my head tonight. I have been really struggling with suicide the past few days. I have a suicidogenic mother. She just brings it out in me. Tonight she called me “dear”. Last night she was calling me a lazy ass and tonight I am a dear? I know she was being sarcastic. She didn’t mean it. Neither parent ever means what they say so how am I supposed to believe them?
I sometimes don’t trust what my sister says either. I am not an emotional person. I just feel cut off from my feelings sometimes. Other times I am just so depressed I can’t do anything. I feel suicidal and that is all that I will feel. I don’t feel angry, I feel hurt most of the time.
I have been avoiding Twitter tonight because I am TiVo’g the American Music Awards and I don’t want to hear about it until I watch it. It’s so hard not being on Twitter. I would so love to tweet some more lyrics of Eric Church.
I am struggling with my suicidality. It would be so easy to die right now. And no one would know until the morning. But I don’t know how to kill myself. That is the whole fucking problem. I don’t have a gun or a high place. I don’t even have a beam to hang myself from. And you can’t die by wishing it. I tried that many a times and I am still here. I feel embarrassed that I told my cousins that I was poor. I don’t know why I told them that. It just came up and I blurted it out without thinking. Now they think whatever they think of me. They probably think I am a loser. That is bothering me, too. I feel like such a jerk. I really want to drink my problems away but I know that won’t help. Plus I just took my pain medication so that wouldn’t be a great idea. My therapist would have a cow if I drank and had my pain meds. She nearly had a coronary the last time I drank and took the meds. All it was, was two pain pills and a shot or two of gin. I didn’t even get drunk. I just slept really good. I don’t think I took my night meds. Tonight I took my night meds so no drinking. I hate that I am so strict with myself about alcohol. I don’t know if this is good or bad. I would love some honey whiskey. I have decided that for my birthday I am having 4 shots of whiskey, one for each decade I am alive, that is if I am still around. Tomorrow will mark one month till D-Day. I am so disgusted with myself for living this long. I never wanted to be an adult. I just really hate myself.
My cousin called me tonight. Left me a message saying where am I, how am I doing, the usual bullshit I hear from him when he doesn’t call me every night. He wants me to call him in the morning. HA, I had to laugh. He won’t be up. He is the one that is healthy but has bipolar disorder. He also is the one that calls me when my mother has groceries. I don’t like talking with him because he never understands the depth of my depressions. He doesn’t get suicidal with his depressions. He just barely functions (according to him) but he does the shopping with my mother and my aunt. He takes care of himself pretty good. Better than I do. I barely left the bed today. Only time I left my room today was to make something to eat or to have dinner with my mother. I didn’t even pee that much today because I haven’t been drinking any fluids. I know I am dehydrated because my pee is always orange. I have no thirst. I am past that. Sometimes I will get thirsty but it’s rare. I bought some orangata by San Pellangrino. I like it. Maybe it will help my dehydration. My grocery bill is over $200. I bought a lot of oatmeal and pancake stuff. I like getting the big stuff because I make a lot of oatmeal pancakes. I also like the simply orange juice and juice isn’t cheap anymore. My mother won’t buy it because it’s more than $3. I also bought a 9×13 pan that was on sale. But those pans are hard to find so I hope it doesn’t crack. It’s a pyrex dish with a cover. I bought it to make my brownies for my birthday. I figure I might as well have what I want for my birthday and this year I want a brownie cake with cool whip and cherries on top. All my mother has to do is mix it and put it in the pan. She also needs to buy the cool whip. I don’t know how long it stays so I figure when it gets closer to my day, she can get it. This is if I make it to my birthday

harrowing friggen day part 2

by Midnight Demon, posted in Bipolar Disorder, blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Harrowing friggin day part 2

So Thursday I saw my neuro. I took my walker because I knew I was going to be hurting walking to the hospital and back. It was a good idea because it also meant I got a seat and the T driver of the trolley waited for me. That was really nice of him. The appointment sucked. She had the basics of CRPS but couldn’t really treat the new symptoms I was having so just said to take Neurontin 3 times a day and have the PT I am seeing use the TENS machine on my foot. I don’t think PT will be able to do this because I am seeing them for my right foot not my left. The PT has told me that they cannot work on two limbs at the same time, the insurance just won’t pay for it. So I am not sure what will happen when I see the PT on Tuesday. I walked away cursing and by the time I got home, I was in so much pain, I just wanted to take my meds and go to bed, which I wanted so badly to do but pain stopped me. I had woken up at 5 am and reached the overtired phase. I couldn’t sleep. I think around 330-345 I laid down but pain caused me to sit up again. By this time it was after 5 am so I was up for 24 hours for the first time ever. When I finally fell asleep, I didn’t wake up until after 1 pm. I stayed up for a few hours and tried to go back to sleep before midnight but that didn’t happen.

Friday I was in no mood to do anything. I was still in pain and I was taking a lot of Neurontin to cope (also hoping it would knock me out). I wanted to shower but I knew that if I tried to stand, I would pay. I had taken a shower the day before and before I even left the house, I was in a lot of pain. This didn’t bode well as it was before noon. The weather has been up and down like crazy. There were a few days that were in the 60s and then it went down to 30s on Thursday so I knew that was one reason. It didn’t improve much the last two days as it got really cold but up to the 50s then back down again. I think it went down to 28 degrees last night. It was so cold, I wore a knitted hat, mostly because I just shaved my head and the coldness in my room made me feel cold. I wore a thermal shirt all weekend. I slept most of the day yesterday. I kind of knew I would because it is always the day after that I am super sleepy for being sleep deprived.

Today I woke up at 7 to use the bathroom and then went back to sleep. I took my morning meds and then passed out. I woke up again at noon. I wasn’t really hungry but I definitely wanted coffee. I had a pop tart. My mother was finishing lunch and watching a Hallmark movie with Kelly Martin playing detective. There was a Matthew playing and my mother thought it was McConaughey. I had to look up the series to find the actor because she didn’t believe me that it wasn’t him. He is too big of an actor to play on Hallmark. I remember to seeing Kelly Martin on the 7th Heaven. She was a teen then. She looks so much older on the series so I looked her up and found she was only two months older than I am! Shit! I never knew that. I guess people age differently even if they are born the same year as you.

I wanted to make cookies today but after I had my coffee, I didn’t want to do anything. I woke up with my upper right arm being itchy. I asked my mother if something was there and she said I had a rash. I was nervous as the Lamictal can cause rashes. I took a shower hoping to wash away the irritant. It has so far, stopped itching. I hope no where else itches because I really don’t want to be allergic to this drug. I have been on it for 5 weeks now. Today will be the start of the 6th, which reminds me I need to do my med boxes. I want to clean the blades of my ceiling fan as they are full of dust. But I need to find the duster and the cloth thing that goes with it. I know the vicinity where they are. I just am too lazy to get up and do it. The shower wiped me out. Maybe I will do it later. I just want to read my book today. I am getting behind in my reading as I didn’t read for three days. I wanted to read while riding to my neuro appointment but I just ended up listening to music. I also found that some music was missing again. GGRRRR I had to uninstall/reinstall the Amazon app. I decided to move the music to a different folder so if I have to do it again, I won’t lose the music again, hopefully. I don’t know why the music file is different than it was. It has a bunch of letters and then the artist/album/song.mp3. Maybe that is so people won’t distribute the music? I don’t know. I have transferred the files to different media (like my SD card and other phones) and the tracks still work. Nix the dusting. Ankle just started hurting, the fucker.

I sort of joined this writing community on Twitter. I followed a bunch of authors and have been picking up some info about writing and the publishing. One person I just followed is also an editor willing to edit your book. I thought that was neat. I asked how much she charges, like per word or word count. She was vague and just said word count. I am not sure I trust someone that is vague. I don’t have anything in progress. I want to start on this story that I started last year but never went back to. I still am not sure if it is worth writing or not. I honestly don’t know if I will just write it just to get it out of my head and then have no one see it or what. I really don’t know if I can publish it because I might be infringing copyrights and stuff. That is the one setback in why I haven’t written. I would hate to write all this stuff and get emotional just for it to sit on my hard drive or other media because of this. But then, I can write it and just be done with it. If it gets published one day, fine. If not, then so be it. I really need to find out about it and I should ask someone who has written with these characters before. I just don’t know if he will talk to me or not.

just my daily blog post

by Midnight Demon, posted in Bipolar Disorder, blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Just my daily blog post

I woke up and didn’t want to get up. But I wanted coffee and a shower. I got up and my feet were killing me. I walked to where I have my clothes and that was extremely difficult so I decided not to take a shower. There would be no way I could stand and I can’t seem to sit and shower. I no longer have the hand held showerhead in there as my mother hated it. And whatever my mother doesn’t like goes away. Pisses me off because I take more showers than she does.

I had some coffee and unfortunately, we chatted. It was all that she felt that if I saw the “right” doctor, I wouldn’t be in so much pain. I told her even if I got an ankle replacement (not even remotely possible), it wouldn’t help. I tried to explain that my nerves were messed up and my brain kept thinking I was in pain when I wasn’t. It fell on deaf ears. No matter what I said, I couldn’t change her mind. I flipped on her and told her to go to the hospital she wanted me to go to. She said she did and the doctor was a jerk. Oh, really? I said I could find you another doctor, he isn’t the only knee surgeon in the place. She didn’t answer me. That shut her up.

I went upstairs once I finished my coffee to get dressed as I had to do an errand for her and get my prescription at the pharmacy. She wanted me to buy some things and I got them for her. I came home and my feet wanted to murder me. I had wrestled the lace up brace on and it was going to stay on. I hate this thing. I won’t be wearing it tomorrow when I see the neuro because if I have to take it off, I won’t be able to put it back on and my ankle will hate me. I am not looking forward to it because it is a long way to go to see my neuro. It takes about an hour and a half from where I live by public transportation. Then there is a walk from the station stop. If I didn’t like this neuro, I would see someone else.

After this, I came back to my room to rest. I wasn’t in a huge amount of pain but I was sure as hell sleepy. I kept nodding off so decided to take a nap. Without meaning to, I slept the entire afternoon. I woke up around 1830 not knowing what day it is. I thought I missed my appointment. But it was still Wednesday. I got up to have something to eat. I really didn’t know what I wanted. My mother made hot dogs and potato pancakes. I had one and then made some tea. I got a couple packages of crackers with peanut butter and had that for supper. I didn’t want to make anything. All I had was pizza or hot dogs. I really need to go to the grocery store to get some food but I am waiting until I get my monthly food stamp money to be deposited on my card. I will go then, if my feet don’t kill me.

I wrote to my therapist last night telling him that I can no longer see him temporarily and could we see each other monthly or so until I literally can be back on my feet. I haven’t had a response yet. I emailed my psych to let her know what has been happening and she wrote that we will go slowly on the new mood stabilizer. I didn’t expect anything else. I told her I thought I was hypomanic the other day with my burst of energy, which is further fucking up my sleep. Today I left a message with my TG doc asking about the T increase as I haven’t heard from her still. I haven’t heard back from her or her secretary either. I feel like so many balls are in the air and no one is catching them. I hope I hear back from my therapist. I feel bad about not seeing him but as I explain to him, it takes a lot of energy which leaves me really hurting after our meetings. I just hope he doesn’t want to end. I will be screwed. I told my psych about this and she didn’t say anything about it. She never does when it comes to therapy. She has told me that whatever I decide she is okay with.

With all this I am feeling really down and feeling useless because I just can’t walk like I used to. I really hope PT helps with my right foot as I need to get better from it. I hate being in so much pain and not knowing what to do to help relieve it. Last night I was putting diclofenac gel on and my heel was really swollen. The gel is the only thing that helps bring the pain down some but not totally. A little is better than nothing. I am really surprised my pain meds doesn’t touch the pain in my heel at all. It just makes me think that something is going on either with the heel or the tendons around it. The golf ball was really inflamed last night as well, and I think that swelling is what irritates my heel because it is right where the plantar fascia is. I’ve been using ice but it numbs it and that is all I get from it. It doesn’t help to bring it down. I really hope my PT has some ideas to help me get back to walking again. I don’t know what I am going to do otherwise and I am NOT getting a cortisol shot! I don’t believe them and think they weaken the tendons more than reduce the swelling.

the golf ball

Feeling really sad about therapy

by Midnight Demon, posted in Bipolar Disorder, blogging, Chronic pain, chronic physical pain, CRPS, mood disorders

I have had to miss therapy all week because of pain. Yesterday I didn’t go because I thought I would have PT but slept through the appt. I’ve been thinking a lot about what I am doing in therapy, like is it useful or am I wasting time. I know my therapist cares, or at least portrays that he does. He doesn’t give any “homework” or any structure. We just talk and he might respond like the last 5 minutes to the things I’ve said. Sometimes it is really hard to talk the whole 45 minutes. I have a hard time thinking what to say. But I get through it.

What is making me sad is that I’ll be starting PT again and that always stresses me out. Maneuvering appts and spending 45 minutes on the bus to and from. Then remembering to do the exercises the way I was told. The having flares because I went to an appt. I hurt worse with therapy. Sometimes I hurt for days. Throw in fucking weather dysfunction like going from 63 degrees to 30 the next day kills me.

I think I am going to have to stop therapy while I have PT. I really need to work on my right leg or I am not going to be able to walk. Just getting around my house some days I need a walker because both feet are terrible. My right heel is causing me to walk funny and causing ankle pain. Sometimes I can alleviate it but lately it has become so bad after therapy that I just can’t recover. It is too painful to calm down in a day or two. So with this in mind, I got to let my therapist know. Trouble is, I don’t know how. Stress isn’t good with my CRPS. It makes my pain worse for that foot/ankle. And causing me to put more weight on it because I can’t bear weight on my “good” right foot, well it is a mess.

Mentally I know I am not that great. But I’ve always been suicidal and this guy has taken no interest in trying to decrease my thoughts except through talking about it. Yes that is useful but doesn’t help when I am now planning my death because I can’t stand the cycle of pain anymore. He doesn’t have any structure to deal with it and has even said I am free to do it once I leave his office, as long as I am not going to do it right when I leave. As an autodidact suicidologist, this terrifies me of this approach. But basically he is saying he can’t save me. And I don’t want him to. I don’t want anyone to stop me. Hence I plan. But I am getting off track.

I don’t know how to say to him can we temporarily stop until i am a little better than what i am now. I am terrified he will say no and end our time. Which then means i am screwed with having to find someone once i am better. I am really scared he might say this. But if i just keep canceling week after week, he might think i don’t want to see him anymore.

I have no idea if i am making sense. It sucks that my pain is interfering with this but fuck, I am disabled for a reason. If I was well, I wouldn’t be in this predicament.

Comments are very much welcome to this post. Thanks for reading.