blur of days

Blur of days

Friday night I was in a flare. I didn’t get to sleep till 0600 and then I slept all day. I only went downstairs twice to pee. I’ve been living off of protein bars and pie. I mostly been drinking Powerade. Today I was just tired and tried to sleep but my damn mother wanted me up. My sister got sent up to check on me and then she bitched about my room. I wanted to change my sheets today but I was too tired. I will try tomorrow. I left a message for the pain program explaining that my electrolytes are off, making me really tired. I told her it was up to her if she wanted to keep me in the schedule for Thursday. I honestly don’t know if I will be able to keep it. I want to but my body may say no.

I wish my mother was going out tomorrow but she is not. I get to hear the fucking Christmas movies she has been watching nonstop. She hasn’t been watching her regular shows. I swear I thought we were in December and then we argued over when it is, which is next week and she said no, it is the following week. Whatever. Pisses me off.

The I should have stayed in bed day

The I should have stayed in bed day

I woke up at 6 with my entire body feeling like spaghetti. I knew if I just laid there it would get worse so I sat up to take an Ativan before it could. When I sat up, my damn foot exploded. It was three hours before I had to take my morning pain med so I took a breakthrough med. I should have known today was going to be shitty and just stayed in bed but I wanted to descale my sister’s Keurig. I followed the instructions and that would be it? Right?

Three hours later, I woke up. Took my meds. I was in pain but it wasn’t as bad as three hours ago. I grabbed what I needed and headed to down to my sister’s. My niece wasn’t up yet. Teenager so it was early for her. I had my coffee and when I was finished, I started the descaling. I made sure I had things right and followed everything. I did 3 rinses and was going to do a fourth. I shut the machine off while I filled the reservoir for the final rinse, and when I put it on the machine, I turned it on. Nothing happened. I turned it on and off again. Then on and waited like 15 minutes. I think I burned out the heating mechanism as it was dead silent. I had no clue what I did wrong. I felt super bad about this. I will buy my sister a new machine Monday when I get paid. I hate that they have no coffee for the weekend. Maybe I will get them a Dunkin card to compensate for them having to buy coffee. I feel really horrible this happened. I texted my sister when she got out of work. I got no response other than omg after I said I was so sorry.

I checked on the machine a couple of hours to see if cooling down would make it work again and it didn’t. My niece didn’t eat anything but cereal. She refused anything else. I wasn’t going to fight with her.

I went to nap and my foot became an ice pack and it felt like I had a penetrating ice cube on one spot of my foot. I tried to ignore it but it didn’t work. On went the socks and heating pad. Now my damn foot is hotter than hot. I got up to take my night meds and holy fuck. It felt like I was compressing all the bones in my ankle joint and the ligaments/tendons went with them because they didn’t know what else to do. Every time I stand up I have this pain. It is so excruciating. The heel pain has sort of gotten better. I got these gel pads and they have really helped. I am going to try it in the “real world” aka outside in my sneaker. I am not going to go to therapy on Monday. I have been feeling so off. Yesterday I felt like death. I barely ate and my sister had these candles that kept making me sneeze and made my nose run. I had to take 2 benadryl last night to stop my nose from running away. I was so miserable.

I ate good today. I haven’t had the custard pie yet. I had the chocolate pie for breakfast. I always do after thanksgiving. I hate calling it that because white people were so mean to the Natives and continue to be so why celebrate their generosity when we took all their land away or killed them for it or just killed them because they retaliated or infected them with smallpox and other European diseases. It was no better than what the Nazis did to the Jewish population in the 1930s and 1940s. Yet Americans had to save them then shun them. Got humans are so rotten to one another. Not all humans but those with the white supremacy attitudes. Makes me sick to my stomach. And the fucking NRA quotes the Constitution to say something after an ED doc got killed while the “This is our lane” banter was going on. I felt like saying to them, so you are perfectly fine with a 2 year old finding a handgun under a pillow and killing themselves all because the second amendment gives the kid the right to bear arms??? Seriously??? The gun should have had a gun lock on it or the safety on at least. I honest have never owned a gun or even looked at one other than the rifle my father used to own but he was fucking crazy and wanted to kill my cousin or shoot people that pissed him off so he should NOT have had a gun! But I really think gun owners that want to work with legislation on how to control mass shootings would be a HUGE help. I honestly don’t think the Constitution wanted bump stocks and magazines and military grade weapons for civilians. But if you are against what I am talking about, go find another fucking blog to read because you are part of the problem. Do you cheer every time there is a mass shooting? Seriously, go fuck yourself with your gun. I am tired of school kids fearing for their lives, having drills and then worrying about exams. Kind of pointless if they are dead. I have a 13 year old niece and it scares me and must terrify my sister. I hope it doesn’t happen but I know the rhetoric “it won’t happen here” doesn’t work. 4 teenagers died in the town over from me from laced weed! So I know it can happen anywhere. OK I am off my soapbox for today. Hope you all be safe and say I love you a little more often.

what a week

What a week!

I am sorry I haven’t been writing as frequently as I have. I have just been so exhausted by the end of the day that I can’t think and all I want to do is sleep. I am not sure what is going on, if I am having another depressive episode or if the testosterone is plummeting my energy. I haven’t been eating, and if I do, it is only one meal a day. If I remember to eat, it maybe two. I just have no appetite but have not seen any weight loss. I usually don’t have significant weight loss during these low appetite days anyways.

I have been going to my appointments. Wednesday was therapy and it went okay. We didn’t talk much about anything. I just talked about anything I could think of to pass the time. It is hard when he doesn’t ask questions about how I am doing so I just pass things off like I am okay. I had to skip two appointments with him because of pain. My heel pain is plantar fasciitis. I saw a podiatrist on Monday as I couldn’t stand the pain anymore. He wanted to give me a cortisone shot and I said no. Everything is cortisone, but I don’t believe in them. There hasn’t been good data on them helping so I don’t even know why they are still offered.

Thursday I had the pain program. OT wants me to work on using the Recognise app. It is to help train my brain to know my foot is there or something along those lines. I am just to do the basic and to do it a few times a day. I haven’t done it at all today because I was so busy. PT wore me out. She had me walk for six minutes and then I had to do squats with a chair for 20 seconds. My legs were killing me. Then she had me do some stretching exercises for my calf. That set off a flare last night. I was not happy. I didn’t do that shit today either. I thought I might be able to while baking (see below) but I didn’t have a chance as I was in so much pain with my heel. I think I might have to wear sneakers around the house rather than slippers.

Today my mother wanted me to do an errand for her. Then I had to go to the post office to mail something for a friend. The half and half that I just bought curdled in my coffee so I had to go to Stop and Shop to exchange it. While I was there, I bought a few things. I wanted pulled pork so I got that and my probiotic orange, pineapple, mango juice. It is so good! Expensive, but good. Also got my coffee and some more honey, which was on sale. I had just missed the bus so I had to wait.

I came home and then started baking. I wanted to make pumpkin cheesecake bars. Thing was a bitch. I honestly don’t know if they came out okay. The mixtures tasted good, so they probably did. I was just annoyed because it said to chill or freeze but didn’t give a time as to how fricken long it was supposed to do that. The directions were poorly written. I complained to Tasty as I got the recipe from them but haven’t gotten a response. Then the topping was a bitch. You had flour, brown sugar, and butter. And in the video, you just whipped it up. Yea okay. It wasn’t easy doing as it was in the video. I tried using the mixer and flour went all over the place. I was getting so annoyed. My pain levels were astronomical. I just wanted to get this thing done so I could nap. I melted the damn butter and then mixed it. Then I sort of separated it into smaller pieces but not small enough to cover the pan. I didn’t care. I thought it would melt. It didn’t. I took it out of the oven and then let it cool. Instructions said to let it refrigerate overnight so I will have it tomorrow. I hope it is good otherwise, it is going in the trash. I took a nap for about 4 hours. I was completely wiped out to the point of passing out. The TV downstairs was annoying the fuck out of me. I was in mega pain. I put the whisperer thing on and fell asleep within 15 minutes. I hear my mother was on the phone with my cousin so I put my phone on silent in case he called me after. He sometimes does this and it annoys the fuck out of me. He will call me to see how she is and then call her to see how I am, fucker. I really haven’t talked to him in over a month.

Monday I am going to leave a message for the repro endo doc about my energy levels because they suck. Every little thing I do just exhausts me and that is unlike me. If I was working, I would be toast the first 4 hours. I just can’t seem to do things like I used to and I am not sure if it is the testosterone or the depression. But then, the testosterone could be affecting my mood so, I don’t know. I thought it would give me some energy, not take it away.

My CRPS ankle is killing me right now. I guess the events of the day have finally caught up with it. It was hurting while I was baking but now the pain is worse. I wish there was something I could take for the heel pain. Nothing seems to help that. I have been taking ibuprofen and it helps a little bit. I watched a video last night about how to “cure” plantar fasciitis and it said to use a tennis ball, take magnesium supplements, and something else that I don’t remember but wasn’t going to do anyway. He was a naturalistic doc so was saying to eat better and shit. Okay. Every ailment has that prescription. I have the magnesium as I take that for my spasms. I will try anything to lessen the pain. I used the tennis ball today, it hurt but it did decrease the pain. I can’t use it in the kitchen as the crevices in the floor make the ball go all over the place. I had to use it in the living room while my mother watched TV on full blast. UGH. I hated that but it was the only room I could do it.

For the first time all week, I woke up from my nap rested. I haven’t been sleeping great at night. Seems every two hours I am awake. I don’t know why. I feel like I am sleeping like a baby waking up every few hours. I haven’t been taking my extra dose of Ativan so maybe that is why. I have been taking Neurontin and that causes me to feel sleepy within an hour. I posted the pic of what I baked today. Will let you know tomorrow how it came out.

About suicide hotlines: My thoughts

About suicide hotlines: My thoughts

some hotlines: Crisis text line 741741, National Suicide hotline 1-800-273-8255, Trans Lifeline 877-565-8860, Trevor Project for LNGTQ 866-488-7386

After a 9 year old that came out as gay to his friend and then killed himself, there has been an increase in sending out the suicide hotline numbers. While I know that sending out and calling does help people, there are other that feel too hopeless and alone, maybe feeling ashamed, maybe feeling no one will understand, and therefore won’t reach out.

One thing that is often said in hindsight of a suicide is why? Why didn’t I see the signs? But knowing the signs are not enough. Often when confronted, people with suicidal thoughts or maybe even planning a suicide, will deny it. It is a sensitive issue. A private issue. I know when my best friend told me at the age of 11 to seek help, my response was “I am not crazy”. With stigma, it is hard to approach someone who is suicidal. Often, there is the thought, no way this person is thinking of suicide, not my child, friend, co-worker, etc. They may deny it and say they don’t because it is against their religion or maybe the person who asks, frightens their friend or family member for fear of being stopped or if they do say yes, the person who asks responds with “don’t do something stupid” or “I will kill you if you do this”, which further alienates the suffering person. I’ve had this experience from two different people. I’ve never understood this logic. I still don’t.

My point of all this is people who are depressed ad suicidal need to feel safe in order to talk openly about their feelings. Often calling a hotline takes a lot of effort to even pick up the phone or dial the number. It is so scary because they are afraid they will be turned away and that holds people back. Or maybe they have phone anxiety like me. The Crisis Text Line is super for those people. But it is still scary to admit they are having suicidal feelings. They don’t know what will happen when they call or text.

In this case of this little boy who apparently was bullied, I don’t know if he would have had access to a phone to reach out and seek help. We often think those under the age of 10 cannot think about suicide but the numbers are growing. I know when I was eight I started having suicidal thoughts and made my first attempt at age 10. I didn’t tell anyone about this besides my best friend. He was probably sick of me talking about it so told me to reach out and then I shut down. I stopped talking about it but the thoughts were still there. When I was 12 I did reach out to Samaritans. I talked to a nice British speaking lady. I was very scared to call. I never had another good experience calling a hotline again. I was often rushed off the phone once I mentioned that I was suicidal.